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working, jobs, etc
helene
Thursday, April 03, 2008 at 04:23 PM -
working,jobs,etc
manicbeatz
Friday, April 04, 2008 at 12:06 AMHi daisymay. I personally do not know anyone who has had fM a long time that still works. How many times were you turned down for SS? They almost ALWAYS turn people down the first time. They flood you with a maze of paper work only to call and ask you the same questions. Keep it up. I know people who have had lawyers and still had to go for a hearing but in the end finally get it. On the opposite spectrum my friend applied with a diagnosis of FM and was approved the first time. I am throwing out a question to you that you need not answer to anyone but yourself but do you get depressed --seriously depressed with chronic pain and the stressors it brings? If the answer is yes, does your doctor know? This needs to be treated anyway but by having it documented on your chart, it could very well "push you over" into the approved pile. As tabt said keep filling out paperwork and her idea about voc rehab is a good one if you feel you are able to work. I do know a person whose health is bad that is a medical transcriptionist. She works from home and gets work from not only her local area but from other states as well. The class for this is not long and much of it may be done over the net. For help with your meds ask your doctor for paperwork from the pharmceutical companies. Fill out the papers and have your doctor sign them. Here the doctor is the one who sends the paperwork to the companies. You probably quailify for this. If you do the companies will send medications in your name to your doctor. All you do is pick it up ---- no charge at all. You have to refile periodically but hey you don't have to pay for your meds. My prayers are with you. Let us hear from you .re: working,jobs,etc
daisymay
Monday, April 14, 2008 at 09:07 AMwith fm I do not know how people work unless they have a very mild case or were lucky enough to find some med that works for every symptom. every day is different and the pain, fatigue, etc. on many days make work impossible. to plan anything in advance is hard cause on that day u might not be able to do anything. so far only people that have dealt with it understand. I do not know anyone without fm that really knows what it does to you mentally and physically. I do not think soc. sec. thinks it is as serious as it is. I have been turned down over and over again. I would tell anyone else to get a lawyer right away and to try right away. I tried to do it on my own. thanks for your help and ideas. daisymay have a good day -
Working from Home
Kathleen
Thursday, April 10, 2008 at 08:30 AMI don't earn a huge amount, but I am able to work from home. I am a freelance writer/editor for an Internet information site. If I have really bad days, i can bring my laptop to bed with me and still work.
Do you have any particular skills? There are actually many jobs that allow you to work from home. Most of it is phone work, which I hate. But many people support their families with it so it can be done.
Just be creful in your search. There are lots of scams out there too.
Hope the best for you! :)
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money from home
yeti105
Thursday, April 10, 2008 at 09:51 AMHey Daisymay,i have been caught up in a couple scams myself trying to earn money to support my family.Lucky for me the person who scammed me for the most money was found fraudulent & i got my money back,credit card.Since then have been trying to figure out what i can do,i am a disabled RN so w/that you see i am usually the breadwinner in family.I have RA,fibro & fractured my L1 2 yrs ago,have not worked since 5/2006.We have done bankruptcy so that is a blow to my family.There is a website called Komando.com she is a guru for the computer,last week she put on website that you could make money by blogging & put advertisements on your website & can earn a bit of money.Her website is very useful,check it out.Also like the other person who wrote in,are you depressed?Is it documented?Anyone w/a chronic painful disease is usually depressed & your doc should know about it.Also getting SSD depends on how old you are,the older the easier.I am only 41,that don't look so good.I got an attorney,but i was stupid,i did not know that you could hire an attorney w/o money up front & i hired one in GA,i live in NM,this lawyer has done nothing for me at all,trying to get rid of him now.I hope this will help in some small way and good luck
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Untitled Comment
T.G.
Thursday, April 10, 2008 at 10:29 AMI have had fibromyalgia since I was 19. I am now 26. I have been in and out of a variety of jobs and off and on state (temporary) disability. Now I have chosen to go back to school
to become a Registered Dietitian. My hope is to be a full-time student and live off of grants and loans until I finish my degree. With this degree I should be able to support myself working part-time, and it is a job that does not have to be physically strenuous at all. I strongly suggest pursuing further education if you need to. There are definitely jobs people (many people, at least) with FMS can do at least part time, with enough accommodations and pacing.You could consider finding a part-time job as a receptionist. Some receptionist jobs involve mostly greeting people and answering phones - They don't all include a lot of computer work and it is often easy to stand and sit as you need to.
I have made income doing database management, internet marketing, blogging, selling stuff on EBay for people, freelance writing, mystery shopping, and a variety of other ways while unable to have a regular job.
Here is a useful site about workplace accommodations for people with FMS - There is info for employees as well as employers about what reasonable accommodations are under the ADA.http://www.jan.wvu.edu/media/Fibro.html
re: Untitled Comment
daisymay
Monday, April 14, 2008 at 09:24 AMare you going to school on the computer? my computer is old and slow and I do not have the money to get a new one. also I can not afford any of the fast online things so when I am on the computer I can not get any ohone calls. Most jobs at home involve the computer and I am not that great with this thing. I could probably use some computer classes. good luck with your school. hope the part time job works out for you. I need a job that is SUPER flexible......like, come in any day and time you can. ha that would be great. daisymay -
Working Jobs, etc.
Suzanne Winnicky
Thursday, April 10, 2008 at 03:31 PMI also have severe fm pain and chronic fatigue. I have had this for over 16yrs. I have not worked now for about 7 years. I have pain 24/7, but my mind is wanting to do more! I have tried to apply for numerous jobs, and even to volunteer. But it seems everyone wants a committment, eg. days to work, times, etc. With this illness, it is very hard to say which day and time I would feel up to coming in, and for how long?? This is my BIG problem! I am sure you can relate! So, I recently called up Employabilities, and they help people with disabilites find work! I haven't gone to the information class yet, to see how they can help me. But I do feel optmistic that they may be able to help me very much! I live in Canada, and if you are in the States I don't know if they are there??? Something to think about though, or try to e-mail them @ www.Employablities.com maybe they have a list of some jobs that can give you an idea?? Hope this helped in some way! Good Luck! Bye for now Suzannere: Working Jobs, etc.
daisymay
Monday, April 14, 2008 at 09:34 AMYour idea sounds perfect, great, and wonderful. I hope they are also in th U.S. THANK YOU SO MUCH. I need some kind of income. In the past before I got sick I did some voluteer things and most things can not be done if you can not do them on certain days or certain times. Not many things are very flexible. Have a good day. Daisymay -
ideas
Lisa
Thursday, April 10, 2008 at 07:57 PMhi Daisymay,
I am sorry to hear that you were turned down, it seems to be the norm. I was told that the biggest mistake is to get an attorney after first being turned down. I was told to keep a daily journal even if the pain stays the same, and to write down everything you can't do that you used to be able to do like a normal person. The ss office will then send you all the documents to fill out and set up appts. This worked for me and i stopped working in june and by dec i had my disability payments.
Call your local united way or 211 if you have it and they can give you local churches that give you food and such. Also they is a site www.shareflorida.org or your state that has a food program, i know most states have this. a basic package of food for $18.00 will get you 5-7lbs of meat, vegies, fruit, etc. check this site out and if you can't afford that much split it with a neighbor. Also annikas.msn scroll down on the left hand side to legit freebies, you will find all kinds of samples here from toothpaste to cereal, i go there almost everyday. Walmart.com click on instoresnow and you will find there free sample page. you can still get food stamps for yourself, if you are not working.
Working well that one is a hard one if you can do some kind of craft's or my brother after his heartattack made candles with his own scents and has a great business, and he can work at his own pace. if you have aol you can do surveys and they can credit your account. i save $3.00 a month on my $10. bill every month. I have tried other surveys and they are a waste of time and they don't pay. If you have a local Vocational Rehab Center that is ran by the gov't they only hire disabled people and work with your ability and skills.
Coupons are great some stores take coupons from other stores and i have saved up to 33.50 on a 34. bill.
Write me back and tell me what you used to do and maybe i can think of something.
Don't give up my dear there is help out there, and don't worry yourself sick. Do you have family?
lisa
re: ideas
daisymay
Monday, April 14, 2008 at 09:47 AMthanks for all the info and ideas. I do some crafts. I used to do them a lot but now because my joints and muscles in my arms hurt most of the time so I do not do them very often. It is one of the things I miss the most. I used to do crafts while watching tv because most of the time tv is boring. I like to make things and do things. I have a husband and children. My children are grown. I am so glad that I did not have fm when they were small. some friends and family have not stayed in touch after I got sick. I hope I can help others with fm or chronic pain with ideas and pass tips along. the support I am getting here is really a blessing. knowing you understand, and all the great suggestions ,and ideas are helping me feel more hopeful. thanks. daisymayre: re: ideas
cyberchar
Tuesday, April 29, 2008 at 05:46 AMDaisymay - my biggest mistake was NOT getting an attorney. Because I was on welfare while waiting for my disability, I just used a free attorney through SRS. BIG MISTAKE. I was 53 when I was denied the second time. She refused to appeal because she said I was in good shape, took care of myself (I had NEVER seen this woman) and had a college degree. I had to have a sedentary job, so she said I could always work in a convenience store!! Of course Step #1 is to have a doctor who supports you 100%. THAT is who will get your disability in the end. I was so lucky, my doctor never charged me for one letter or records or anything. Some doctors charge big bucks for this, and that is the one part you do have to pay your "real" attorney for; most attorneys - and I would suggest getting one that handles nothing but disability cases, they are known in the court system in your area and hopefully have a good relationship with the Judge's clerk.
My attorney asked me numerous questions when I first called. He, like all attorneys who are making a living, will only put forth time and effort if he's 99% sure you will win. By the time I went to my lawyer, I had already been on Medicare for almost 2 years. A law was waiting to be signed saying that a person can only get Medicare for 2 years in their lifetime while awaiting a disability claim. I was over half way there and we hadn't even filed the appeal. The attorney told me to tell my doctor all my complaints each & every time I went. Very important. And, as the other poster stated, most claims are approved if your problems are both physical and mental. So don't feel embarrassed to tell your doctor about being depressed, anxious, etc.
I was sent to an MD and a psychologist. My little cockatiels would make little bite marks on my arms when I ignored them (they loved sitting on the toilet with me???). The shrink decided I was a self-abuser and a danger to myself. My doctor laughed about that one, but it helped. We had something like 25,000 people before us awaiting to see the Administrative Judge for the final hearing. Once my attorney called, all excited, and said his friend the Judge's clerk, was going to present my file to him due to the length of time I had already waited and I was trying to live on that big $197 check I got from Medicid. Which came off the top of my settlement before I even saw the money! Apparently the Judge was new, and refused to sign it. Sooo, back to waiting. Finally in January, almost 3 years since the last day I worked, we had the hearing. Apparently a doctor calls in for SSDI, he has all your records, etc. My attorney had my doc write a final letter telling about how I was doing physically at that time. The other important item was that the doc had to verify that I would miss at least 4 days of work per month. I was not allowed to be at that part of the hearing.
My lawyer came out and said the doctor agreed 100%, was extremely complimentary on the records the doctor (it was really my wonderful PA) kept and letters he received. He said my disability should be put back to the last day I worked, almost 3 years of back disability. This judge, again, despite the doctors decision, had to have a hearing. He was a little senile, I think, and concentrated more on the fact that Fred MacMurray's wife went to the same college I did. I came out feeling all was lost. My attorney said he was 99.9% positive all was okay. And sure enough, the judge signed the papers just 3 days later. Some had to wait 6-8 months before a decision was made.
Anyway, the attorney's fee had to be approved by the judge and it is a standard percentage up to a certain amount. Because my settlement was so large, he didn't even get the full percentage. But he was a wonderful man, always took my calls, allowed me to cry on the phone, you name it. In fact, he phoned me before the money came in and asked me to do a commercial with him, which is still playing some 3 years now. Of course I get no royalties, but it's still fun to turn on the TV and see my mug on there.
So don't you give up, okay?? It can happen. I was so sure I would never, ever get mine I had started trying to think what jobs I could work. Oh, the on thing my attorney did tell me the day before the hearing when I saw him to discuss what to say & what NOT to say, he told me to remember it wasn't a job interview, that I didn't want them to see how I looked with make-up (I have chronic disease anemia and am always pale along with liver disease which makes me yellow too--gee a rainbow LOL). His final words to me were that on the day of my hearing I should be the shortest and fattest I ever was.
After we did the commercial, he took me and my friend who had driven me the 40 mile trip to the Federal building to lunch, then gave me a hug and $20 for the gas.
So the big thing is, find an attorney who handles only SSDI cases, one that you have faith in immediately, and one who listens to what you say. Oh, and someone who takes your phone calls or returns them ASAP if he's in court. Mine was good looking and that didn't hurt one bit either.
You can be sure I'll keep you in my thoughts and prayers. I know what a scary road ahead it was for me. I hated having my son pay my rent, begging rides, begging to use someone's phone, you name it. If I can answer any questions, please feel free to send a post to me.
All my best, Char
re: re: re: ideas
daisymay
Tuesday, April 29, 2008 at 09:14 AMAfter using Legal Aid and going as far as they would go I talked to one lawyer that would not take my case. I am all the way at the end where you have to go to the supreme court. I can only apply for ss not ssi because I have a house and a husband who works. The income is low enough to qualify for Legal Aid. I don't think a lawyer we take the case now that it is at the end and final place. I do not know how to find a lawyer that will help me now. Thanks for sharing your case. I wish I had everything to do over again. I really thought if you were sick and in pain and couldn't work you would get approved. Even after I got declined and had to try again. The system really is not fair. Thanks again. Have a good day. Daisymay
Disability
cyberchar
Wednesday, April 30, 2008 at 08:10 AMDaiseymay, I am so sorry. Don't ever give up though. It may be your age that is the problem. You don't mention how old you are, but the closer you get to 55, the easier it will become. I know that's not much to look forward to, but it is something.
Keep doing exactly as everyone mentioned. Be sure your physician documents every time your problems get worse. I remember the first time they sent me to a physician (the SSDI folks), the doc asked me to walk on my toes and on my heals. At that time, I could do both. By the time I got a real lawyer, not the pre-law students that legal aide uses, I could do neither. Then my liver went bad.
I certainly don't wish that your condition worsens over the next few years, but unfortunately that is life with chronic pain and whatever is causing it. There are more than just that one lawyer out there that you spoke too. You can always try another.
I wish you the very best. Again, I'm so sorry things are going so badly for you.
Char
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Work
Nurse Dawn
Friday, April 11, 2008 at 04:23 AMOh, how I empathize and sympathize with you! I am a registered nurse with fibromyalgia, neuropathy and severe spinal arthritis. Work has been quite a struggle for me for 2 years now. I have a somewhat supportive boss that has "modified" my work within the scope of doing newborn intensive care area. Because I also have mild vertigo at times because of Meniere's syndrome, I fall more often too. So right now, am typing with one hand because I fell last week and broke my left wrist (I am left handed). The hospital tried to get me "light duty" to do until wrist heals(6 weeks). I could only do ONE day of computer entry and chart audits because of severe arthritis pain. If you have any computer background, or any type of background in medical terminology, hospital business offices and doctor's offices sometimes need good office skilled people. Wish I had better and more numerous suggestions for you. I am 54 and between a rock and a hard place right now also. Trying to come up with something for myself that will sustain me. I write poetry and have self Don't give up!....... published one book, but there isn't much demand for this.re: Work
daisymay
Monday, April 14, 2008 at 09:56 AMsorry you had so much happen to you so close together. thank you for trying to help. I wish I could open a store or something and pay people to work there and earn an income from a business or something.I would love to write a book but do not know what I would write about or how to go about getting it published and all that. I am going to try some of the ideas that everyone has passed along to me. And if I come up with any great ideas I am going to be sure to let everyone know, so that maybe I can help someone else. thanks. daisymay -
re: re: Not Fair!!
GeekyGranny
Wednesday, April 30, 2008 at 09:53 PMHI Daisymay!
You might want to check out http://www.thedisabilitydigest.com for resources. They help people win their SSDI. The site also has many links for work-at-home jobs.
I wish I had found them last year before I began my SSDI application. I probably would be getting payments by now. I am now waiting for a hearing date.
My husband did win his disability finally. But it took a second application for him to win. And he went out of state to where his folks live.
You need to reapply for SSDI and maybe SSI. And contact the folks on the above website. They help you out for free.
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Join the Disability Digest BLOG!!!! at www.thedisabilitydigest.com/blog A community of like-minded folks who want to share and find information about surviving the Social Security Disability experience! ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
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Earth is my home and animals are my family. Life is my religion and love is my example. Peace and freedom belong to us all.re: re: re: Not Fair!!
SRbear
Saturday, May 10, 2008 at 05:01 AMI understand your circumstance. I am going on 3 years not working, and was turned down for ss last nov 07. What is so strange is that the vocational officer was in the room, and told the judge I could not work an 8 hour day. The judge turned me down. I think it was the fibromyalgia 'diagnosis, since ya can't test for it like with blood work or with xrays. oh well..will keep appealing until I starve to death or lose my house and die of exposure. I did have a disabilty group helping me, but they changed my case manager so many times..no one knew what the other had done.
re: re: re: re: Not Fair!!
daisymay
Saturday, May 10, 2008 at 08:30 AMI wish the people that make the decisions would get fibromyalgia and then try to work. they would know what it is like to be in pain, not sleep, and be exhausted. worse than having the flu, mono, and a getting beat up all at the same time. I do not know how people with one problem get approved. to me this has been hell. being sick is terrible but being sick and poor sucks. I have to worry about Dr. bills, tests, medicine,other bills and how all this affects my family. It's enough to make you sick (pun intended :), ha. not funny but try not to make all this make me crazy. everything has been a fight and a struggle. go to a lawyer that knows how to play their stupid game. I went to Legal aid...they did not care and did not help. I was stupid and did not know any better. My Rhumatologist was the pits. Worse than the pits. He did not care either and did nothing for me. He was a waste of time and money. DId not want to give me medicine, no suggestions on exercises or anything to help with the pain. I think social security waits for you to give up or die. When I call there I get different info everytime and I do not think anyone there knows what they are talking about. also everything takes so long it is rediculous. Go to a lawyer. Try to find someone else that was approved and go to their lawyer. I am not going to get soc sec cause I waited to file thinking I would be cured or get better and go back to work. Then soc sec took a long time with each step and drug it out and wasted time. now my time has about run out. I hope I can help you and others learn from my mistakes. I stupidly thought sincee I was really sick I would be approved. good luck keep in touch daisymay
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You might want to try contacting your State Dept. of Rehabilitation regarding Vocational Rehabilitation services. This agency is funded by a mixture of state and federal money. Available services are often limited by funding and sometimes there are waiting lists for services. In general, a State Dept. of Rehabilitation is mandated to provide services to anyone with a medically documented disabilty that creates a barrier to employment. These services can include ordering a formal assessment of your physical limitations, providing you with vocational counseling to find a job that you can do, paying for work station modification and/or paying for education and/or vocational training needed to get a job and many other services too. What you get varies from office to office and even from counselor to counselor within the same office. Not fair, but that's how it works. Services are free to you, so I think that it's worth filling out the paperwork. If you don't like the response you get, there is an appeal process. You will need to be clear and concrete about how fibro prevents you from working e.g., can't stand for more than 1 hour, can't sit for more than 2 hours, difficulty using your hands to operate a computer etc. Make as long a list as you can because it is best for them if you can be classified as "severely disabled". If you have any other problems that would constitute a "barrier to employment" such as a learning disability, psychiatric problem or other medical issues, be sure to mention those too. Good luck.
tabt