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Sunday, November, 22, 2009
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greenweanie

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I am a 46 year old female involved in an mva in 2003 that left me...

greenweanie

Friday, November 06, 2009
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Hello everyone out there living with chronic pain.  I have been living with chronic pain since 2003 when I was involved in an mva.  I have nerve damage in my left leg from the hip down and in the right leg from the knee down.  I also have fibromyalgia which developed from the chronic p...
  1. chronic pain
    cindi
    Saturday, November 07, 2009 at 12:02 AM

    well, hello, there...sorry you have to be on this site, but am glad you found "us"..if ever you need or want to talk...i (have said this many a time)..have a big ol" shoulder..and would like to hear from you!!... also was invovled in a mva..i was walking across the street..and someone did not understand the sign ..STOP!!!!...if ever you would like to talk..i will be here to listen...cindi...

    Reply
    re: chronic pain
    Linda
    Saturday, November 07, 2009 at 12:15 AM

    HELLO CINDY,, i personaly can attest (if i spelled that correct) that cindy has a big ole heart,,,,,,,,, and a great shoulder,, hi Cindy,, i did the opposite,,i took the cymbalta,, now i am back to square one,,, hellpppppppppppppppp...  Have a good nite,, i have to do that thing thats called "sleep" not quite sure what that means, but gonna try it,Undecided,( i actually tossed in humor on that one lol lol),,,hope everyone has a low pain day,,,,Linda

    Reply
    re: re: chronic pain wiith Lyrica
    joanna
    Monday, November 09, 2009 at 12:00 AM

    Hello Cindi and Others, I asked this question before, but noone answered me. I will try again. Have any of you tried or are now on Lyrica? My Dr. put me on it even tho I don't have fibromyalgia. I have had a very badly failed back surgery. He thought Lyrica might help. NOT!Frown If you ever have occasion to read through their side effects or even just listen to what they say about their own aide. Well of all the side effects I probably have all of thm and thern some. Now I can not get off them. Surprised Dr. had it all figured ooooout for me how to go off slowly. When I got down to the last couple days with very little left in my system I almost comitted suicide. I am not kidding you. I had deep depression, over whelming feeling to end it all, crying hyestericaly. I wish I could explain this better. Long story short; I would have to go back on them immediately. After trying this twice, I gave up. Can anybody HELP me?????????? 

    Reply
    re: re: re: chronic pain wiith Lyrica
    cindi
    Monday, November 09, 2009 at 10:54 AM

    hi, am so sorry abo all that you are going thru, w/ this ( i think ) awful drug...i also was prescribed lyrica...the LEAST of my side eefects were MAJOR wieght gain...which in itself is depressing ( i just got down to  my normal wieght after slowlyy coming off cymbalta..another AWFUL drug..i think)...i also had suicidal thoughts, a very, very terrible side effect...you must go speak w/ a counselour..or if you think talking to me, will help..i am here to help you...but KEEP in touch!!!!...when you are feeling suicidal, PLEASE write ...or as i said PLEASE try and get in touch w/ a counselor...i don't know what other kind of medication, they can put you  on besiides lyrica...but THERE has to be something else, you cannot have these kinds of side effeects!!..write to me, when and if you want...please take good care!!!...cindi

    Reply
    re: re: re: re: chronic pain wiith Lyrica
    joanna
    Monday, November 09, 2009 at 12:17 PM

    Thank you for your reply. I am also om MorphineER and Norco. Have not seen any side effects with either of those. I have a physciatrist(m.s) who handles some of my meds. right now as on effexorER for depression  and need something else because it's not working any more. Have an app't. next weeks about that. So much going on with the news that I likely have MS and am scared to death about that too. When it rains, it pours.Frown

    Reply
    re: re: chronic pain
    cindi
    Monday, November 09, 2009 at 02:13 PM

    you are a sweetheartWink...you know the more i am on here ( sometimes:)..the more i forget about my pai, because i go to OTHER peoples pain and wonder what i would do if i were in thier situation...thanx :)...cindi...

    Reply
    re: re: chronic pain
    cindi
    Wednesday, November 11, 2009 at 09:42 AM

    hi linda...just wanted totell you what a sweetheart you areInnocent.....thanks, for the kind words..i just hope i am not teling anybody..wrong things...as i have said many times...i have a big ol' shoulder, whats going on in your life right now???...write if you want:)..cindi

    Reply
  2. hello, thank you for offering your time and experience.
    Linda
    Saturday, November 07, 2009 at 12:09 AM

    i am very sorry about what you are going thru, and i have been going thru chronic pain for soooo long now,,, ahhh, but now a diagnosis,, i am in need of of some help roomies,

     against my better judgement and the rooms advice, i did try cymbalta,, it was the worst thing that i ever did,,, the effects were too much,,, i promised myself never again,, and when i went back to the rheumo doc, i asked him about nuerontin for the pain, and zoloft for the depression, i was once on both of them at one time yearssssssss ago, and never had an issue, the rheumo doc basicly stated that its possible that the nuerontin and zoloft would work, as he came back with a starter kit for Savella,,,i rust rolled my eyes,,, it is very expensive as well. I am wondering what other combinations of medications F.M. sufferers use,, i am also on fentanyl patch, soma, hydromorphone, also xanax to help me sleep. Any IFORMATION THANKING YOU IN ADVANCED,,,, THANK YOU.............................................LINDA

    Reply
    re: hello, thank you for offering your time and experience.
    cindi
    Monday, November 09, 2009 at 11:00 AM

    hi ! linda..just wanted to tell you i am thinking of you...having a very bad pain day ( drove 600 miles in 2 days...my worst is driving :(   and once i can get away from my heating pad and get a couple pain  (yeah like they work:(..maeds in me...i will write to you...just wanted tolet u know i was thinking about you Wink.....cindi

    Reply
    re: hello, thank you for offering your time and experience.
    joanna
    Monday, November 09, 2009 at 02:05 PM

    I too was on the Fentanyl patch. When it didn't really do the job pain wise, we increased it until I was on the highest dose I could take. Then one day I sat down and read all the side effects, then went on the computer and researched everything I could find about it. It scared the Hell out of me so bad we backed me down on off of it as fast as possible. Don't mean to scare you,  but I think anyone using that patch should sit down and research it and decide if it's right for you. Doctors don't have the time to read about each pill they prescribe. If it's on the list for a certain ailment, the prescribe it. Check things out for yourself! Believe me I do.

    Reply
    re: re: hello, thank you for offering your time and experience.
    cindi
    Monday, November 09, 2009 at 02:27 PM

    hi joanna..i , also was on fentanyl patch...none of the drs. i went to wanted to take me off, because the one dr. prescriibed it..finally went to another dr. and said straight out..i want off this patch and if you cannot hellp me, i am wasting my time and yours...she was pretty impressed w/ all the nfo i had on the patch ( you are correct, most drs. do not know much about meds, your pharmisist knows MORE!!!)...so we are going to wean me off..but she wants to prescribe methadone ( now, i have to do more research) for the pain???...kinda confused about that, i thought methadone was for addicts coming off heroin??? ..my ignorance??...certainly do NOT want to go from one bad drug to another!!...but nothing is working for mmy pain...they had me on morphine for 2 months, and i told them i would NOT take it for longer than 2 months, yet another very dependant and i read very hard to stop taking after a long time...so where do we go???...vicodin is like taking advil, for me...i don't know, sometimes i really just think....CAN i LIVE w/out pain meds...but if i still had pain when i was taking morphine??...what the hell is left???...sorry but i just am getting really frutrated w/ all the different pain meds and them not working, then you have to be weaned....its like a viscous (?) cycle...having a very bad pain day, so forgive my frustrations....cindi..

    p.s. as scooter said...do not ever take cymbalta..it is a horrible drug and it is a very hard drug to be weaned off...for her ..and myself, anywyay.....

    Reply
    re: re: re: hello, thank you for offering your time and experience.
    joanna
    Tuesday, November 10, 2009 at 04:49 PM

    Thank God I have never been on Cymbalta. But, my sister has been for a long time as an anti-depressant. I am on Morphine ER and have been for a while, I also am on Norco ( stronger Vicodin) which is a life saver for me even tho I have break through pain. My doctor explained for me thatt Methodone way before it was usd for recovering addicts was used for pain. Most people don't understand that. I didn't. But I'm willing to try it. It seems to work wonders for the people who are on it. Thanks for writing. Keep in touch. I really don't have anyone to talk to about all this. Foot in mouth

    Reply
    re: re: re: re: hello, thank you for offering your time and experience.
    cindi
    Wednesday, November 11, 2009 at 09:38 AM

    good morning joanna, so you heard about methadone used as a pain med??? when the n.p. suggested it, because i want to stop taking the fentanyl patch ( hear too many stories on t.v. about them, my daughters are even calling me, asking me if i saw the commercial, where fentanyl patches have caused death..and yes, i know it was a certain manufacture...but i just don't want to mess w/ this medication, anymore)...any other info about methadone??..i know, you can also become addicted to this also...my brother ( poor guy, he's a painter, fell off a scaffil and crushed his L4 L5 S1, had a surgery and now is having another srgery..in 1 year!)..but anyway he said they prescribed him norco...never heard of it before he mentioned it, but he also said it is stronger than vicodin...because like i said taking a vicodin is like taking an advil...it just is doing nothing for my brakthru....any kind of info you have or know about methadone...i would surely like to hear!..truthfully i think she is giving me methadone, because she is weaning me off fentanyl..and maybe the methadone will help somewhat w/ the withdrawals....damn, i remember if something hurt me and advil didn't work, they would prescribe tylenol 3....wish my pain was that LESS!!!!...hugs...cindi...joanna, write anytime you want. ...kay?Tongue out..:):):)

    Reply
    re: re: re: re: re: hello, thank you for offering your time and experience.
    joanna
    Wednesday, November 11, 2009 at 12:36 PM

    Hi Cindi~ Basically all I asked my pain management Dr. was what you had asked, and that was, I'm not an addict, why would I want Methodone and he told me about the years ago it being used as a pain med first. Everything I've heard about it are positive things like wow it really took the pain away. I think Rush Limbaugh was on it for awhile(?) I am really scared because I saw a Neurologist yesterday for results on an MRI I had recently on my brain to rule out MS, He pretty much ruled that out, but showed me a lot of areas in my brain have abnormallities and don't know what that's about. Now I have to have another MRI with contrast, a CT scan and possibily spinal stick, ( can't remember what it's called). OMG what if I have brain cancer!!!!!!!!!!!! I'm so scared!!!!!!

    Reply
    re: re: re: re: re: re: hello, thank you for offering your time and experience.
    cindi
    Saturday, November 14, 2009 at 01:42 AM

    oh hon, don't start thinking the worst now..you know what they say stress causes your pain to get worse....dont mean to be so nonchalant about it...just want you to c a l m  down....i would probably going where you are going in your head..but lets just wait until you have the tests...one thing at a time, kay??..please let me know how the tests turn out..and if you need to talk, cry, laugh, yell..i'm here...pleasant dreams...sleep, lady, ..kay??...cindi...

    Reply
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