Dearest Sharon

I'm sorry yesterdays post disappeared.  I've had that happen and just had to sign off for awhile, cuz I was so unhappy about it.  Just frustrating.

Boy you really have a great deal to live with.  I hope your recent days are going ok.  As you know, mine have not been the greatest, but I'm feeling better this evening, but was really bad this afternoon.  It's even more than one day at a time, it's more of an hour by hour sort of time.  ((((Smile)))))

I have met alot of really great people here and I really hope that you can too.  If your ever interested in our daily discussion in the forum area, your welcome to join us.  Just because it's daily does not mean you have to participate daily, you can just post or participate when ever anyone likes to.  Just let me know and I'll send you the link or explain how to get over there.

Well, I've got to catch up on a couple of things, talk to you soon.  Many hugs and have a wonderful weekend.

Betty

SHARON FELDMAN

2/ 9/08 7:09pm

thanks for the invite.  please give me the link i would need to get in.  i understand how it workss so i would like o try it when able to.  will let you know prior to my trying.  i am sure it is very interesting and very informative. anyone professionals in it such as dr's.?

going to sleep now.  my eyesight is so bad right now i can not see very clearly.  love toyou my friend.  take care of you

Betty Boop Too

2/14/08 8:58pm

Hello again Sharon

 

It's so good to hear from you.  I apologize for me delayed response.  I'm using a new email service and I'm having a little trouble learning to navigate it and return my messages to the shareposts, I'm finally beginning to get it sorted out, but just take me a little longer to figure things out.

Here is the link to the "Daily Grind" It's really just an on going discussion/support group type of topic, not too exciting. We work hard to keep it very quiet and peaceful.  Just a place to make new friends who understand what it's like living in pain & chronic illness.  Here is the link, you just have to do a re-sign up for a password & forum name over there too.  It's easy and most of us use a name similar to the one we use on this side too, so we can recognize one another.  http://forums.healthcentral.com/discussion/chronic-pain/forums/a/tpc/f/1361017/m/54910312  Let me know if you need any help and I'll help you with anything you need.

 

I hope your days are going alright, low pain and your at peace.

Gentle Hugs dear friend

Take care and I cannot wait till your able to visit again.

Betty

Carol

2/22/08 5:30pm

Betty Boop Too:

I read Sharon's post and your response.  My, Sharon, you certainly have much to contend with; I'm so sorry!

Betty Boop,- you're invitation to Sharon about the chat group or whatever,- is that open to anyone?  I'm fairly new to this site and it's so chuck full of advise and articles, etc., that I haven't come across the group you mentionned.  I've been struggling with Fibro, migraines, RSD, and other health issues for over 30 years (33 to be exact).  I live alone, have no family and most of my "friends" have faded away over the years.  I have no immediate family as my husband died 10 years ago (we had no children), my mother died last summer, and I have no siblings.  I desperately need some "support," and would be interested in the Group, but would rather just not join in without an invitation, I guess. 

Sharon, I hope you have availed yourself of this support and that you've found some new friendships, there.

 

Carol

Betty Boop Too

2/24/08 12:25am

Hello Carol

 

Yes, the invitation is for anyone who would like to discuss their day and have some support, make some new friends and just to have someone to talk to each day about your struggles with pain.

We don't really get into any heavy discussions and are a very peaceful group.  Your welcome to follow the link and just view the posts and see if it's something you'd like to join in on.  Everyone is welcome to join.  Some may find the Grind too boring and would like more substantial discussion and this too is alright, anyone is welcome to create as many conversations in the forums as they'd like.  We just keep this one thread very quiet, low stress and calm.  One thing that most paniacs have in common, is any type of stress can cause our pain to go through the roof, so this is why this thread is a calm & friendly one.

 If you go over and want to join in, you just have to go through a short sign up and create another screen name & password for over on that side too. Its really easy and most of us use the same or similar name as we do on this side so we recognize one another.

Take care and we hope to see you too.

 

Betty

Dear Sharon, I am so sorry that you suffer so much from so many different illnesses and related problems.  It can be lonely to live in pain constantly, especially since it is so difficult for those who do not have chronic pain to understand exactly what you are going through, it is so different from acute pain which is what their experience is.  I have lived with chronic pain since I was 12, which is over 40 years ago.  I have had a total of 20 surgeries, 5 on my back, including removal of a tumor, 3 lumbar laminectomies and an anterior/posterior fusion that including implanting a rod and screws in my spine.  In addition I was diagnosed with MS. a progressive disease of the central nervous system (brain and spine) and has many symptoms which relate to where the MS lesions are on the brain. Mine include double vision, loss of mobility, chronic nerve pain, numbness, cognitive changes and extreme fatigue.  I worked until 1998 when the seizures I was having from the MS became so frequent I was having them in the office sometimes 4 and 5 times a week.  I, like you, tried every possible pain treatment and got little relief, until 2000 when I had a Medrtonics Intrathecal Morphine Pump implanted, and I have been so happy at the success I have had with it.  There are days that I can almost forget about my pain, although it is there every day it is finally manageable.  I only take additional pain meds when it gets very bad, maybe a few times a month.  The nerve pain doesn't respond as well to the morphine, but I've had success with both topamax and neurontin.

I don't know how disabled you are right now, but it is so important to stay involved with peole and things you were doing before and if not in person maybe you can over the computer. I am in an email support group of 18 women around the country and they have helped me through some of the worst days and nights of my life with their support and encouragement. It is good to be able to talk with people who have had the same or similar experiences; I often feel validated by hearing of their issues and emotional responses, which is much better than feeling like I am going crazy.  Best of luck to you, I hope you can find some peace in your heart as your body rages in its own war.  Denise