My toes,fingers and legs are killing me!

By Lisa1972 Saturday, March 21, 2009

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Today has been one of the most painful days I've ever had.It's so hard to explain especially to those who cry when they stub their toe on the coffee table.My toes hurt so bad that it drives me to tears.Same thing with my fingers.Then my family is ready to lock me in the looney bin.My legs are hurting and the slightest touch feels like a bruise.This is my 2nd night unable to sleep,I'm exhausted and that just magnifies the pain.I've taken Lyrica,Oxycontin,Oxycodone,Dulaudid and Fentnyl pops.I rubbed my legs,feet and hands down with Voltaren gel.I know that a trip to the ER is useless since I have all the big guns at home.I'm at my wits end.

Comments (5) | Add comment

Violetlady

3/22/09 12:21am

Dear Lisa, It sounds awfully bad the way you described it. I have nueropathy in my feet. This past week pain kiced up in my feet and legs. Today my feet and legs hurt so bad . I started to think this afternoon that there might be clots or something in my legs. Well, all of that to say, I am sorry you are hurting so bad and that I would pray for you

Violetlady

Lisa1972

4/14/09 6:09pm

I really do appreciate your prayers.I will keep you in my prayers as well.It's so nice that we have such a wonderful place to support one another.I'm really starting to think that I have Rheumatoid arthritis.I have an appointment with my pain management Dr tommorrow and I am going to ask her to send me for testing.

chippi

4/14/09 1:01pm

Hi Lisa, I'm sorry to hear your in such pain. I can relate to this. From 1995-97 I hurt all over, especially my feet and hands. Other areas hurt also, to the point that clothes hurt on me. The slightest touch anywhere would cause such pain. Numerous docs had no idea what the cause was, numerous tests for numerous conditions showed up nothing. You begin to feel that docs think it's all in your head, you know it's not, very frustrating. Anyway, finally after two years of searching for cause, went to rhuemetologist out of area, who knew within 15 min. what the problem was, fibromyalgia. Finally, a diagnosis. I'm not suggesting this is the cause of your pain, only that I know how frustrating it can be. Just don't give up searching. Try new doc, second,third opinion if necessary. now, 12 years later, I've learned how to manage the fibro and rarely get to the point I was at 12 years ago. When the body is hurting, there IS a reason, just hang in there and keep searching. Good luck

Lisa1972

4/14/09 6:20pm

Chippi,I know what you mean about people thinking we are just nuts.It hurts for clothes and blankets to touch me when I'm having one of my "spells",as my Mom says lol.I was dx with fibromyalgia a couple of years ago and it was horrible but this is worse.It started after chemo and I take Tamoxifen so I'm assuming it's cancer related.I just wish somebody could fix it.

Anonymous

5/ 8/09 1:08pm

Lisa I'am so sorry you are going thru all of this pain I can def relate to you!I'am 28 years old and at the age of 26 I had my first surgery on my spinal cord. I had such horrible leg/foot pain when I woke up one day I couldn't even put my foot on the floor or even walk.I was rushed to the hosp to find I had an arachnoid cyst webbed around my cord.But this was actually found 4 days after I went to the hosp so in the mean time I was on so much pain medication to keep me relaxed and tested for rhuemetoid arthritis plus seen by a neurologist.It was like they didn't believe I was in so much pain b/c the first 2 MRI's they did were of my lower back and there was nothng there.Then the tech went up a little higher on the next one and found it.They had to remove 2 bones to get to the cord.The surgery was a C5-C6 Thoracic Lamenctomy.My surgeon said that if it was a disc thing they never would have operated on that area. I never went back to work b/c I was in so much pain still after the surgery so I was on disability.Then I went for my 6month MRI and it was all accumulating again about 3in higher from the inital cut the first time.At this time I was 27 and going in for my second surgery.They needed to remove 3more bones to get to the cord this time my incision is about 8 1/2in long and I'am very self concious about it.This was all done in an 8month period.I'am now 28 yrs old and am on Lyrica,Avinza(morphine),percocet for the break thru pain and drs recently put me on prednisone for the inflamation in my neck.I'am in pain all the time and feel as though some people don't believe or understand it.I can't drive still at this point or do any of the activities that I used to enjoy and probably never will.I'am sorry to babble on and on just wanted to let you know that I feel your pain and hope that you get the help that you deserve and the support as well.Sincerely Sarah

My toes,fingers and legs are killing me!

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