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Monday, November, 30, 2009
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Intrathecal pump

Optomistic Jean
Optomistic Jean
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It's nice to be here. I'm a 59 year old grandmother that has...

Optomistic Jean

Sunday, April 01, 2007
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I am new to this site, so I am not sure that I am doing this correctly.  It seems that there are a number of posts about getting the pump.  I'm attempting to put them all in one location, but am not sure if this is the way to do it. I have had an intrathecal pump for almost 2 1/2 years. This ...
  1. Intrathecal pump
    PhiltheNelson
    Thursday, August 21, 2008 at 01:25 PM

    What drugs do you recieve and how much. How often is the pump filled and what is it like. How long will the pump work for and what happens when it needs replacing, or if the catheter comes out, what happens then? What is the pump like when in place. can you see it easily or is it difficult to see. Does the pump make wearing some clothing awkward? What about going through customs at an airport. I have never met anyone with a pump at all.

     

    I am waiting for a pump and I am getting a bit of the pre op jitters. I am fifty, male and I take methadone amongst others. I have had chronic pain since before my teens. Yes, over 40 years that I can remember. Phun eh? I have used my humerous side to help me through. When asked how I am I always reply 'Fit as a Cripple!' As to be honest it is a very silly question to ask.

     

    The first memory is from a rugby game at about the age of 8 or 9. But I know that it occured alot earlier.

    A slang word from these parts means tired. That word was always used by me wrongly, as all the other lads when 'knacked', meant they were tired. I was almost 22 before my Wife told me the secret. After a 40 mile walk for charity I had to take time off work to recover. (I was knacked). The others who were 'knacked' went back to work the following day after a good nights sleep. I asked my wife how it was possible to do that with so much pain. The secret was out.....

     

    Sorry for the ramble, but other people have long term pain as well. I didn't know you existed, as I feel so isolated.... I am glad you have the relief from the pain with the pump. It makes me have some sort of hope. I will have a future of sorts. A quality of life is mine for the asking.

     

    My e-mail should be there for any one to mail.

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