It seems, everytime I see the neuro, he comes up with yet another name for what I've got.. like "severe, chronic, intractable pain disorder" ain't enough? Sorry you have been made to deal, too; this is no fun. It's awful and most people cannot get "it", our pain, understanding why we feel like we do. It stinks.
And, an aside; sorry you got that dx on my 45th birthday, to boot! @
Norada; I, too, used to have much difficulty getting around (or even out of bed!). The ONE thing that helped me was swimming; well, water-aerobics. It has changed my life! Check with your doc(s) if this is something that might be good for you. I do recall the first few days, wading into the pool with my cane. After a while, I got to toss it aside, was able to get out of the pool on my own, and got to stop using that cane or any other assistance device. PLEASE, though, make sure that the pool you use is heated as cold water makes it even worse (at least it did for me).
I do hope this is helpful and, if you ask the doc, you can get a prescription for this and it should be covered under p.t., by your insurance. Again, best to you! @
Norada
I'm very sorry for your struggle with pain. I understand and my heart goes out to you.
I've been suffering for four years now and I too just woke up one day and sneezed, loud cracking sound in my back, pain dropped me to my knees, husband took me to Emergency. I had fractured 2 dics in my Lower spine. Excruciating pain that radiates down my legs and through my groin area. I could barely walk for nearly a year. started the regular routine of treatments and barbaric injections, medication, etc. Finally got some help from a pain mgt clinic and have my own pain doc. Finally was able to get on a dose of meds and a schedule of all kinds of treatments, and was additionally diagnosed with FMS last winter and I suffer flares about once or twice a month.
I've learned alot about chronic pain and I continue to try to educate me on living with these illnesses, as I don't see them going away any time soon.
Your welcome to leave me a message and if your looking for others to talk with that understand your pain. I'm here and you can reach me at my page; http://www.carecentral.com/bettys-pages-on-pain/ or I can give you my e-mail.
I've made it my mission to share what I've learned and to continue to learn to live with this the best way I know & understand how.
Hope to talk to you soon
Betty
Hi Norada - I am Adrian and I have only recently found this site ... I , as many others, suffer from chronic pain .. my bio is on my home page here ... sorry you are'nt feeling like you are not doing well ... funny though how I too can remember the exct date of my firs occurence .. 05/05/01 .. I also have Multiple Sclerosis .. and it was very difficult for me to comprehend what was happening to me.
I had migraines, was off balance, severe aches, my vision was foggy and the list goes on. So , here I am dealing with several issues about me . My God, I was frantically on the computer looking up as much info as possible.
All I can say to you is , please give this site a chance , we also have a "chat" forum .. I just enrolled to it, and hopefully you will read others tsories and solutions or fears on share posts. Please, you are not alone ...
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How/when was this diagnosed
By various xrays, bonescans, mri's, etc. Back in oct 3, 2003. I have it in my legs and right hand. did you need me to get more specific cause i have no idea how this came about. i've never had an injury before and all of a sudden, bam!