Friday, June 01, 2012

Tell me I'm not the only one!

By DblBassPlayer Thursday, June 10, 2010

When the pain seems so massive, unrelenting, and no relief in sight. You just can't stand it anymore! Do you ever have totally irrational thoughts of how you might be able to affect it yourself? Crazy stuff that you would never actually do...but it's a thought. Like the one about getting the drill and letting the migraine out of my head.

6/10/10 6:32pm

As I have seen it, most of us have those thoughts - especially during times of intense pain. I hate to talk about myself when replying to a post, but it might help to know someone else's insane thoughts ;)

I used to want to cut my skin off or specific muscles and I would obsess over it until I had relief of some sort. I used to cut myself a bit to experiment if it would work, and of course it didn't - but the endorphins flowed so somewhere in my mind I would think: hey, maybe it does work. Needless to say it's VERY dumb and I promised my family (after they found out) that I would never do it again. Or holding my breath until the pain stops.

 

I also used to plan my suicide in order to get through a pain attack - but then found an excellent way to transfer that into something useful.. Death Meditation - coming to terms with death's inevitability and then making the most of the time - the sand - left in our personal hour glass. Takes a LOT of practice. Sometimes I think pain guides us with these insane thoughts to more sane thoughts - helpful thoughts.

 

Humans have that instinct you spoke of in your post - drill your head to get the migraine out (I have those too so I know what you mean!! lol) - in a way it was as if the body knew what was going on: pressure in the skull - you let the pressure out... no more migraine. It was, of course, silly to say the least, but the inspiration was there and helped to trigger research into brain surgery as we know it today.

 

Record the thoughts with interest and analyze them - when you're able to - you might find little hidden hints as to what can help you. For me it was that pain can produce pleasure - and I have since gotten an TENS machine.. and it helps certain kinds of pains.

 

If they're totally out there, well - still record them. It's good to record all we got through for future sufferers - or even to share with our families so that they might better understand the struggle.

 

Maybe it'll also help to think - at the same time as you're suffering and thinking these rash and insane things - or as I like to call them: "Fantasy Cures" - probably 10 other people are thinking the exact same thing. Imagine yourself in a room with them, and what you would say to comfort them. Send your energy out to hold their hands and be one with their struggle, to be stronger. I know it sounds kinda kookie, but it's helped me and some fibrofolks I've known to feel less alien or alone.

 

Hugs and love. :)

6/17/10 11:53am

Your not alone.  There is a trick you can try.  I learned this as I found my depression and crying increased my pain.  So doing the opposite should help, right?  Yes it is hard to "be happy" when going through intense pain, but you can try watching whatever to you is a funny movie or TV show or read a funny book.  Laughter releases endorphins, too.  Even just smiling does!  Or even just trying to find peace through being present with the birds...listen and watch them. Whatever floats your boat that brings your emotions around to the other end of the spectrum.

This all might sound hokey and impossible.  I won't tell you it always helps.  It does not make it all go away in my experience, just allows a few moments sometimes so I don't go off the deep end.  I can't always push through and do it.  But it's a non-invasive, non-prescription method of getting your mind to talk to your body in a different way.  The more we consciously think about the pain seems to make it worse, for me anyway.  It's a domino effect.

Hope this helps.

Rose

6/13/10 9:04am

For DblBassPlayer   you are not alone on this..  when the pain and all the other symptoms multiply your thought process becomes irrationally..  Everything becomes like a blur and is overwhelming, so, you are trying very hard in some non typical way to get results of the what i call "the Y"  you are not alone...  it  just seems that way.  When you get into that state don't let it eat you up Reach Out to a friend or someone you don't even no.  Just start talking to someone, even the dumbest thing as having a big cold glass of Water sometimes will that slump.  Hope this helps.  have been there done that and still doing that.  Get a Pet they help a great deal....  ann m

6/17/10 5:46am

Blame the government and health care industry for treating migraine as unimportant and failing to come up with good treatments.

Anonymous
Anonymous
6/17/10 3:17pm

i take drugs, then a nap.  After that my brain feels better and the pain level is down to "tolerable".  I meditate, crochet, read, and sometimes just give in and grab a Lyrica, Arthrotec, and a T-3.  The drug combo works for a nap that lasts an hour and my brain gets back to problem solvng or whatever it does.  my answer to the overwhelm is a nap,  it has saved my life a number of times.  Seems  that  when I am in OVERWHELM my brain's problem-solviing ability takes over while I nap and all is better in that 45-60 minutes.

7/ 3/10 2:56am

None of us here are alone.  Have you noticed how just being on this pain board reaching out to others helps, especially when our thoughts go crazy?  I can't speak for anyone but myself here, but so many people post on these sites about how they hurt, share ideas with other people they haven't even met and then find more peace than going to a specialist.  Sometimes it's just having someone that can understand what we are saying that helps to make that difference.  Our families and friends try so hard for us, but they can't fix us and get discouraged with our pain issues.  Here, we are safe.  I can talk about whatever is bothering me and someone else understands and reaches out to me.  It is like that here for each of us.  Yes, I have those crazy thoughts.   I would like to remove my whole right leg and hip, sometimes even my lower back so many days.  But my only other choice then is a wheelchair and that sure can't be better.  But then I read on here about someone with problems much worse than mine and I can find a way to reach out to someone else.  And that's thanks to all of you for being here.  No matter the hour or the day, I don't need an apt. to deal with my issues.  I like having friends here that understand my new language.  And I don't feel all alone or like a freak because I have thoughts that may sound strange to someone not having chronic pain issues.  It's a depressing life if there were no outlet.

 

All of you keep hanging in here.  You aren't so different from many others here and we are ok the way we are today.  Tommorrow we can have more control.

God has led us here to help one another.  This is true love, reaching out to help people we don't even know.  What does the Bible say more than anything else?  Love One Another.  This site is that, we reach out to show love to one another.  You are ok and I am ok, no matter how crazy our brain goes in severe pain.  We come back to our reality.  Have a very blessed day my friends.

Trans.

7/ 6/10 3:42pm

Well said, Transcriber.  I am so greatful to all of you and to this website.

Gentle Hugs,

Mear

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By DblBassPlayer— Last Modified: 12/19/10, First Published: 06/10/10