Why is it, that when I see the world, my city, my home--it's all in my head. See, I am a on-the-brink-of-40 and I am on the floor, all curled up, no furniture, and the walls are just around each side of me. Then I shake my head and *poof* I am back in my house with all my furniture, dogs, gadgets and my husband.
It's this world, in my head, that I see for real. Because it is NOT my imagination. It IS how I see myself. All boxed in with no way out. Since my disease consumed me, I don't feel like there is a way out. I will learn to live with it. I can hear all day long that so and so is WAY worse off than I. I am sure that's true.
See, my most of my life has been inside a bubble. I call it Teri Bubble. Inside this bubble is a GREAT life. No one talks about me, no one says rude things to me, everybody loves me and I believe that the world is much better because I am here. I created this bubble around 22. When things in college were falling apart. I realized that if I put myself in this bubble AND REALLY believed what I said above, then...it would be true, right? It's worked for most of my adult life. I really have loved life. I have embraced every challenge given to me. I have had good things and bad things happen TO me and to those AROUND me. I loved everyday because in MY bubble, nothing was wrong with me.
Since my hospitalization from GBS I have heard all different kinds of people talk about me, gossip about me, hurt me and treat me much different than before. The treatment was not the better kind, either. I realized my bubble had burst. It was gone. Since it's been gone I realize that I hate people, I hate my life, I hate where I am going and I am terrified of turning 40. I have received the lecture (more than 5 times) that 40 is coming whether I like it or not, so why not embrace it, than try to run from it. To me, 40 is like a roadblock. It's almost like I fear that I have to change who I am. Most people rarely think I am even IN my 30's let alone close to 40. I loved my childhood, my 20's and my early 30's...even up to 38!!
It's hard at my job because the average age is 58. They all THINK I am late 20's or very early 30's and treat me as such. Many think I try to befriend my students, who are 14. When I am 40, it's like I am a woman. I know, I was a woman when I turned 18...but my entire life, I have NEVER felt like a woman..I've always been a girl and I like it. Now it's really hitting me. I'm an old woman. I should start making more mature choices in life, being more appropriate than fun. I am so in debt and now working is working to live, living only to work.
If I can't work I am in this house. My time schedule revolves around pills. I am always in pain. Something new everyday. I see me in this little section of my house. Walls closing in. I feel so alone. I feel like this is an ending. Most people say it's moving to my 40's. I TRULY feel like it's the end of ME. I am so depressed, even though I am on anti's and I don't wanna go do anything. People say you gotta go do it whether your mind tells you NO or not. I am sure there are LOTS of things I SHOULD do, but what I am saying, is I feel helpless. There isn't anyone who is there for me. Maybe my mom. But she is 72 and I swear at the beginning stages of dimentia (sp). My two sisters and I have been oddly close our whole lives and since I got married a few years back there has been a strain that we're not recovering from. So if I call mom she tries to make me feel better but then she says things she has heard from my sisters and it makes me feel worse. So, it's like my family is tired of hearing of my world, my work thinks I am not mature enough and my husband is convinced that really I shouldn't do anything.



Dear ElemenTeri:
I felt your pain as I read your post and my heart went out to you. I know you feel like you are in a box (I liked your photo) and there is no way to get out, or do you even have the motivation to get out? It does seem much simpler to stay where you are. Even though it is not ideal and it is lonely, it is also familiar to you, which makes it feel safe. I think many of us could stay in places like this for years and years. And perhaps we would, if nothing happened in our lives to change all that.
When I was hospitalized for manic-depressive disorder (that's what they called bipolar back in 1982), I was so depressed that I would not get out of bed, brush my teeth, comb my hair or shower. I laid in bed, praying for sleep to take over and dreading the moments when I could no longer sleep and had to feel my feelings every day. And while I have always been a drinker (not anymore - two plus years sober, now), I was too depressed to even get out of bed to have a drink.
It was awful, but it was safe. I was stuck where I was. A prisoner of my own mind. Unable to look forward or backward. Just stock on the here and now. Nowhere to go, nothing to do, just lay in bed day after day after day . . . .
Then one day, my psychologist came into my room and sat down and very clearly stated that he was not going to stick around me anymore, if I wasn't going to do anything for myself. He would just leave me there and never come back. This mortified me, because he was the only bright spot in my otherwise dreary day. I couldn't make it without him! That's when he told me his secret. He said you have to "fake it til you make it". You have to put one foot in front of the other and gradually get to the bathroom. Once there, you have to pick up your toothbrush, put toothpaste on it and put the brush up to your mouth and put it in and start brushing. He explained to me that this is how I could get out of the spot I was in. He also said that if I was not going to do this, he was "bailing out of this ship".
Well, this shocking statement of his is what it took to get me out of that bed. And, very slowly, I began to get out of bed, to brush my teeth again, to comb my hair and to shower. Over time, I even ventured out of my room and went to the day hall. No, I did not interact with anyone, but I didn't turn away and go back to my room. Yes, it was tough. It was one of the most difficult things I have ever done. Was it worth it? God, yes. While I have experienced severe depression since then, it never lasts for more than a couple of days, because I remember how I once pulled myself out of the hole I was in and "faked it til I made it". What a powerful experience.
I guess my point is that you, too, can get out of your box. You are not doomed to a life of forever in your box. I know you don't think you want to leave your safe haven, but I think deep down inside, part of you is begging for relief from that box.
All you need is someone or something to give you a little nudge, a reason to climb out of your box. You may be totally surprised by who or what it is. It will happen when you are not expecting it.
I will be thinking of you and the box you have created for yourself. I will send out positive air waves and pray that your something or someone comes to you really soon. You will know it when it happens. Then you, too, will slowly begin to emerge from your shell.
The feeling will be magical . . .
Kay
What wonderful words, Kaye.
I always believe that somewhere, someday that someone will give me a REASON to do something other than stay "safe." I wonder if it will ever come. Those that love me most are the ones that have wrote me off or told me, "There are other people that have difficulties in their lives. It's not all about thinking of ways to **** you off. Other people have horrible things hindering them, too.
Being in this depressed state is not a time when I will be the magical person for someone ELSE. I can barely take care of my emotional self these days.
Like the words you gave to me; perhaps I will be that person to someone else. Just maybe. Right now I have to get things right with me. With school starting I have to put on my "day" costume and just LOVE the world; until I can get home to my "box" costume and be able to safely breath again. It's time for me to see if *I* can fake it. Perhaps knowing that I can, and will make it, by your mouth to my ears, maybe the days will be easier.
I will keep trying, though. Thanks again for the positivity sent my way. I really appreciate it!
Teri C