hi i posted on 15 sept hi i have suffered with back pain since i was pregnant on my 1st child 11 yrs ago.in the last 6 yrs it has been chronic low back pain on the right with pain down the leg into my foot.and in the last 3 yrs it has started on the left side with pain down the left leg too.i have a 19mth old and a 14 week old.i have been on nearly every med going and im allergic to most last year i finally got to see pain specialist and surgeon at the time i could barely walk,i had paid for an mri 2 yrs previous and showed i had dessicating discs but the pain specialist was not happy with the results said that pain would not be that severe with these results,he noticed the way i walked so sent me for an xray on back and pelvis.it was the first pelvic xray id had and it showed id damaged my pelvis having my son 10 yrs before,so he ordered an urgent mri.i was on morphine patch at the time and was taking diazipam 3 times a day for nerve in leg.i was then seen by an orthapedic surgeon who explained that walking around for 10 yrs with damaged pelvic had damaged my sacroiliac bones.i was pregnant again so had to cancel mri.my pain lessens when im pregnant docs joke il have to stay pregnant all the time :) and i was going thru severe withdrawal from the meds so surgeon said he would see me after i ahd baby and discuss options.i saw him 6 weeks ago and he did another xray and said he could see differences since xrays last year.he checked my sacroiliac ones and said they were extremly tender to touch.he thinks my sacroiliac bones are damaged,i have nerve erosion and disc damage too.so 2 weeks ago i had cortisone steroid injections in my 2 sacro bones to see if it helped,no joy.he will see me again in 2 weeks he wants pain specialist to do steroid epidural for nerve pain in leg.he explained he did not think any of this was going to take away my pain but was process of elimination to try determine where pain was worse and i will have to have mri and cat scans done.im in constant pain which is getting worse daily night times are worse waking in agony not being able to turn without agony climbing up and down stairs on hands and knees,awake for hours.i cant walk for long stand sit,only way i can get comfortable is propped up with pillows.im on solpodol,melfin and diazipam and it helps a bit if i take them and just rest which is impossible with 2 small children.im sorry this post is so long wanted to give as much info as possible.im trying not to get too down but it is very hard,has anyone else had symptoms like these id like to know what im dealing with can i get it fixed i feel useless,i do day to day care of my children,but cant do any fun things with them and my husband,because of the constant pain.docs want to put me back on morphine patches but i had no quality of life last time and still had pain. thanks so much for listening and any advice would be great,shelsers since then i have new symptoms
hi since i talked to you last,iv a lot of new symptoms knee collapsing under me stumbling pain and tingling in legs worse.iv saddle area sensations.urinary and bowel problems,no incontinence.iv had 3 difene shos in last week and am seeing my surgeon fri.my doc has given me anote saying he is worried about cauda equine.im quite scared now too when they do tests will this mean emergency surgery if it shows i have this,thanks again for listening shelsers


Hi there Darl,
something about your post made me want to read further. My heart goes out to you in these worrying times. I'm afraid that I have no answers for you as I know little about your condition other than to say please find a good quality support group. Hopefully one that has members aware of your issues and what you are facing. You can not go down this path alone and sometimes our families are too overwhelmed to recognise all of our needs.When it is all too much you need to be able to rant and rave, to vent all that is wearing you down. Agood quality support group should allow, actually encourage you to do this. It is surprisingly therapeutic to do this.
I have heard good things about neuro stimulators and hope this will be a worthwhile option for you.
Good luck with "your lot" you seem to be quite level headed and I bet a good Mum (you may need to alter what your children see as fun things to do) remember children are versatile, books, bubbles, song and dance dvd's are fun too. If you need to vent, write to me, I'll hear it!
All the best, Ozigal