Narcotics and Fibromyalgia Pain Relief

learnFMnow Community Member September 29, 2009
  • I am very very happy to see that FINALLY someone did a survey that seems to have included the real or rather more severe FM patients.  For so long I have heard the myth that says "narcotics won't work for fibro pain".  Not true and could not be further from the truth.  The survey results I found on this site is probably the very most accurate I have ever seen yet.

     

    I suspect several reasons why research has made the remarks indicating that narcotics don't work for us.   One reason is because for anyone to admit that we need narcotic pain relief, they must admit this is a seriously painful condition.  Another reason would be that never has medical science encountered such a painful disease which does not kill you.  Narcotics have traditionally not been favored for chronic life long pain.  They have rather been only recommended for acute, short term painful conditions which will subside or for cancer patients.  So now we are dealing with an illness which has the pain of cancer but does not kill us. 

     

    Let us discuss for a minute the implications of long term narcotic use and the risks vs. benefits.  The risks, of course, are dependence, addiction,  tolerance, and side effects.

    I recall a few studies indicating that less than 2% of all patients on narcotic pain meds for chronic pain ever become addicted.  This is a low addiction rate in spite of all the hype of the celebrity news telling only one side of the narcotic use story. 

     

    Dependence is something many of us have on other drugs besides a narcotic.  Dependence is not addiction but simply the fact the body "depends" on the med to relieve symptoms.  We could put antidepressants into that category and they are not even controlled substances and are not addictive. 

     

    A true addiction means the patient craves a high from the drug and continues to pop more and more pills even past pain relief.  This is addiction.  Dependence is not addiction.

    A few people do become addicted when they start taking narcotics for pain.  However, the percentage of people with the addiction probably is much less than one would imagine.  Many people take a narcotic pain med daily and never become addicted to the drug.  They use it safely and effectively for years.

     

    Tolerance does become a problem for just about everyone using a narcotic for chronic pain.  This is part of the downside.  However, I would rather live knowing I am becoming tolerant to a drug than to live in hell bound pain for the rest of my life.  Yes, I will have to step up doses over the years and step up the narcotic ladder with stronger prescriptions.  But that is my choice in order to achieve qaulity of life.  No over the counter medication will touch my pain anymore and has not in years. 

     

    Side effects, of course, are many.  For some people side effects are a problem and for some of us they are not an issue.  I will be perfectly honest when I say no pain med I have ever taken has had a side effect for me.  Perhaps it is because I use it for pain and if the pain has subsided I do not take more of the drug.  I was a hospice nurse for a couple of years of my life.  I remember the teachings.   One of the main facts of narcotics is that they work on the pain before they get anyone high.  My medication never makes me loopy or leaves me staggering and drooling.  It does not make me sleepy even.  In fact, I function better with the pain med than I do when I am in severe pain.

  • However, everyone is different. 

     

    I am just glad that the research and surveys are finally coming to some truths.  If not for my narcotic pain reliever, I would be rendered non-functional and would live a very low quality of life.  So, therefore, the benefit of the narcotic medication outweighs the risks in my case.  I am a strong advocate for pain relief by whatever means it takes to achieve it. 

     

    Traditionally, the word "narcotic" is a dirty word.  Most people conjure up all kinds of labels for those of us who need this type of medication.  However, I know in my heart that if those very people suffered this kind of misery, I promise they would look to a narcotic medication instead of laying down and giving up on life. 

     

    learnFMnow

22 Comments
  • Karen Lee Richards
    Health Guide
    Sep. 30, 2009

    You made many excellent points and I appreciate you sharing them with us.  I did want to let you know that the reason fibromyalgia patients are told opioids don't work for FM is largely based on a study that showed that the opioid receptors of FM patients had reduced availability so that opioids wouldn't bind to them as well as they should.  However,...

    RHMLucky777

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    You made many excellent points and I appreciate you sharing them with us.  I did want to let you know that the reason fibromyalgia patients are told opioids don't work for FM is largely based on a study that showed that the opioid receptors of FM patients had reduced availability so that opioids wouldn't bind to them as well as they should.  However, this was a very small study.  Generally much larger studies are required before something is accepted as fact.  I suspect a lot of doctors have jumped on this study as an excuse not to prescribe opioids for FM patients because they don't like to prescribe opioids anyway due to their strict regulation.  Here's more info on the study:  Why Painkillers Don't Work on Fibromyalgia

     

    I know of quite a few FM patients who, like you, have gotten pretty good pain relief from opioid medications, so I definitely don't think they should be ruled out as an option for severe cases. 

     

    Thanks again for sharing!

    • skeetelmore65
      Sep. 30, 2009
      I have to say that I am one of those patients that suffer from Fibro.and it is in excruciating pain.It takes over your whole body and just riddles it with pain.You don't have any options for relief except for strong medicine because over the counter medicine just won't cut it. I hate to have to take what's been prescribed for but I have to.I might add that...
      RHMLucky777
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      I have to say that I am one of those patients that suffer from Fibro.and it is in excruciating pain.It takes over your whole body and just riddles it with pain.You don't have any options for relief except for strong medicine because over the counter medicine just won't cut it. I hate to have to take what's been prescribed for but I have to.I might add that I do have other issues like a T3-T4 compressed fracture that was left or a result of failed fusion(still after 3 yrs.of misery trying and now to find a resolution).I have also been dx with DDD,Spinal Stenosis,Myofascial pain,Cervicalgia,and have had ACD & F spinal fusion of C5-C6.We definately deserve to have as much help as possible for the pain we endure everyday.Since,I have worked my entire life and that includes high school co-op program. I love to work and now just picking something up off the floor can shut my functioning with the outer world down for days.I do try with all my might to do things that I have no business doing,but it is hard for me to just lye there dormant and my brain thinking of the things that I want to do.I have been bedridden for almost 2yrs.now and life around me moves on but to a different drum. If it hadn't been for my pain meds(opioids and Lyrica),I couldn't have done some of the things that I wanted to do like seeing my son graduate from school and going to that ballgame even if I would have to leave in pain.It made it tollerabe/possible for me to go to my Dr. appointments instead of the ER. I am greatful for the relief I receive and never do I abuse them. Just like the previous post that stated only the celebs or those able to afford the cost of them that abuse them..not the ones who are ligitamently suffering.Aren't you,by the way,the same trying to legalize marijuana(medical).I believe it would be a good thing and bad thing.Good because of the extra relief,but bad because not all states are approved for this.Also,I wouln't want to smoke it for the lung side effect(but would),but the pill I would take for relief.I thank you, besides I am sure millions of others that are suffering are as well.
    • Anonymous
      learnFMnow
      Sep. 30, 2009

      It seems I have heard another theory.  (I don't know how true it is and really cannot remember where I heard it... I will have to google it).  But that one stated we actually have MORE opiate receptors in the brain than the normal person.  This is one reason that narcotics are not working well for some because it likely takes us a higher dose...

      RHMLucky777

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      It seems I have heard another theory.  (I don't know how true it is and really cannot remember where I heard it... I will have to google it).  But that one stated we actually have MORE opiate receptors in the brain than the normal person.  This is one reason that narcotics are not working well for some because it likely takes us a higher dose than the average person.

      Thanks for your comment.  I love this site.  It is wonderful.  I appreciate being able to be a part of it.

      hugs,

      Debra

    • rhonda
      Mar. 13, 2014

      true when i am on the pain meds i am able to do more of my daily activities. When i  dont have the pain meds somedays it hurts to move. But when you ask the Dr they sometimes look at you like you are addicted so im more afraid of asking and try to deal with the pain by using something over the counter. Its nice to see that someone else sees that we dont...

      RHMLucky777

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      true when i am on the pain meds i am able to do more of my daily activities. When i  dont have the pain meds somedays it hurts to move. But when you ask the Dr they sometimes look at you like you are addicted so im more afraid of asking and try to deal with the pain by using something over the counter. Its nice to see that someone else sees that we dont want them cause we are addicted but because it sometimes helps deal with the flareups.Smile

  • Hipichic
    Jul. 31, 2014
    I have severe fibromyalgia that my doc refuses to treat...went to er today and they denied me help..telling me that they don't prescribe because of addiction...meanwhile I can't get out of bed or raise my children..I have no quality of life and no one cares...I'd rather b dead
  • Hipichic
    Jul. 31, 2014
    I have severe fibromyalgia that my doc refuses to treat...went to er today and they denied me help..telling me that they don't prescribe because of addiction...meanwhile I can't get out of bed or raise my children..I have no quality of life and no one cares...I'd rather b dead
  • Anonymous
    Frustr8edFibe
    Apr. 17, 2014

    I  am a fairly "new" victim of this syndrome-and by that I simpy mean newly diagnosed. That said, until I was diagnosed I was getting prescribed oxycodone nd guess what? It Worked!  It really did! AND it was not expensive. Since I have found myself  in pain management (becuase my primary is terirfied to prescribe the nasty N-word for too long...

    RHMLucky777

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    I  am a fairly "new" victim of this syndrome-and by that I simpy mean newly diagnosed. That said, until I was diagnosed I was getting prescribed oxycodone nd guess what? It Worked!  It really did! AND it was not expensive. Since I have found myself  in pain management (becuase my primary is terirfied to prescribe the nasty N-word for too long a period of time - and I completely understnd his situation given the hype on narcotic abuse in this country) ...I have been experimented on like a gunieau-pig with fancy, esoteric and VERY expesive, might I add, deisgner drugs that do NOTHING for me. I have done Lyrica, Nycunta, tramadol and Savella. I am still on the Savella but I don't think it does much more than my welburtin does anyway. Then...Opana ER. Not bad as far as side effects but it doesn't do anything and with ER I cannot even have a glass of wine with my husband here an there so I don't see the point in taking it. I begged my new doctor to take me OFF the Opana ER and just keep me on the oxycodone but at a slightly higher dose or intake. He "sort of" agreed but only with negotiation. I continue with the Savella (which I take  in conjunction with my Welburtrin, as I previously mentioned) and I endure a week of prednisone (sure-wonder drug but it makes me a bit manic and obliterates my ability to sleep at all) while agreeing to a holiday from the percocette. So, take me OFF my much needed pain meds-put me on an upper and an antidepressant and dangle a narcotic treat in my face for relief at the end of the week. All I can say is my poor husband....becuase I can't function and I'm not exactly a ray of sunshine when I feel so lousy.  Also, thank goodness I was on vacation(I am a teacher and its hard enough to fucntion when you are in extreme pain and have to be ON all day) because I would have had to lose MORE time at work due to the loss of sleep I endured and the pain I am in!

     

    I guess my point is-I think its easy for people who are not "in theb throws" of it to decide whats best for those of us who are. The narcotics WORK and I would rather have to be on those for the remainder of my life than feel like I do without them. I am relatively young (44) and have a lot of life ahead of me. I know my body and my needs etc....I just wish the puritanical medical experts would listen to US a bit.

    Frustratedw/Fibe

  • Anonymous
    Mandy
    Sep. 06, 2013
    With so many of us saying the same things you would think that the medical community would listen! I too have been down the same road as all of you. I found relief from my primary care doctor who believed me and prescribed me Norco and Lyrica after the other treatments we tried failed. I also have tried the fentenal patch and that brought the "old me" back...
    RHMLucky777
    Read More
    With so many of us saying the same things you would think that the medical community would listen! I too have been down the same road as all of you. I found relief from my primary care doctor who believed me and prescribed me Norco and Lyrica after the other treatments we tried failed. I also have tried the fentenal patch and that brought the "old me" back to my husband. I was active again, excercising again, walking my dog more than the minimum again, starting school for a new career (choragraphy just won't work no matter what pain meds I have). Then, I got referred to pain management. Well, that is the beginning of the end. "Oh, you shouldn't need that", she says. "We don't treat Fibro with opiates", and my personal favorite, "fibromyalgia is a pain from within, not a physical pain". Say, what!!! You have got to be kidding me! So now I am being worked off of my opiate pain medications and its not withdrawal I'm suffering from. I'm suffering from pain! "Think of your daughter", she says. I DO think of my daughter! When I'm in miserable pain I'm no good for her. I can't participate in her life I can only watch from the side lines. I'm tired. Tired of being made to feel like an addict. Tired of being made to feel like a liar. Tired of being tired. "We don't want to keep giving you opiates because of the long term side affects, and the first rule of being a Dr. Is do no harm", she says. Really? What would you say you are doing to me now? Harm! That's what. You did blood work. Anything ammiss in liver function, renal function? Nope. Do I thinks monitoring these things is a good idea? Yep. I implore DR's. to listen to us. We are not making our pain up. It does not stem from some some past emotional struggle. If that we're true most of the population would have Fibromyalgia. Should opiates be prescribed willy nilly? Of course not. Those of us that truly need opiates for pain won't argue about being asked to come see you once a month or to be re evaluated should we experience tolerance. There are NO laws for Drs. limiting the number of prescriptions they can write, or for what they write prescriptions for. They just need to do due dillagence. The Drs. who are going to jail wrote scripts. For undocumented patients, obvious over dosage, and so on. I implore the medical community to understand that we are not making this life up. Believe your patient until she gives you a reason not to. Thanks all for reading my thoughts, Mandy
  • Anonymous
    Mandy
    Sep. 05, 2013
    With so many of us saying the same things you would think that the medical community would listen! I too have been down the same road as all of you. I found relief from my primary care doctor who believed me and prescribed me Norco and Lyrica after the other treatments we tried failed. I also have tried the fentenal patch and that brought the "old me" back...
    RHMLucky777
    Read More
    With so many of us saying the same things you would think that the medical community would listen! I too have been down the same road as all of you. I found relief from my primary care doctor who believed me and prescribed me Norco and Lyrica after the other treatments we tried failed. I also have tried the fentenal patch and that brought the "old me" back to my husband. I was active again, excercising again, walking my dog more than the minimum again, starting school for a new career (choragraphy just won't work no matter what pain meds I have). Then, I got referred to pain management. Well, that is the beginning of the end. "Oh, you shouldn't need that", she says. "We don't treat Fibro with opiates", and my personal favorite, "fibromyalgia is a pain from within, not a physical pain". Say, what!!! You have got to be kidding me! So now I am being worked off of my opiate pain medications and its not withdrawal I'm suffering from. I'm suffering from pain! "Think of your daughter", she says. I DO think of my daughter! When I'm in miserable pain I'm no good for her. I can't participate in her life I can only watch from the side lines. I'm tired. Tired of being made to feel like an addict. Tired of being made to feel like a liar. Tired of being tired. "We don't want to keep giving you opiates because of the long term side affects, and the first rule of being a Dr. Is do no harm", she says. Really? What would you say you are doing to me now? Harm! That's what. You did blood work. Anything ammiss in liver function, renal function? Nope. Do I thinks monitoring these things is a good idea? Yep. I implore DR's. to listen to us. We are not making our pain up. It does not stem from some some past emotional struggle. If that we're true most of the population would have Fibromyalgia. Should opiates be prescribed willy nilly? Of course not. Those of us that truly need opiates for pain won't argue about being masked to come see you once a month or to be re evaluated should we experience tolerance. There are laws for Drs. limiting the number of prescriptions they can write, or for what they write prescriptions for. They just need to do due dillagence. The Drs. who are going to jail wrote scripts. For undocumented patients, obvious over dosage, and so on. I implore the medical community to understand that we are not making this life up. Believe your patient until she gives you a reason not to. Thanks all for reading my thoughts, Mandy
    • Anonymous
      Mandy
      Sep. 06, 2013
      Mandy again fixing a couple magor typos. corrections are in CAPITAL With so many of us saying the same things you would think that the medical community would listen! I too have been down the same road as all of you. I found relief from my primary care doctor who believed me and prescribed me Norco and Lyrica after the other treatments we tried failed. I also...
      RHMLucky777
      Read More
      Mandy again fixing a couple magor typos. corrections are in CAPITAL With so many of us saying the same things you would think that the medical community would listen! I too have been down the same road as all of you. I found relief from my primary care doctor who believed me and prescribed me Norco and Lyrica after the other treatments we tried failed. I also have tried the fentenal patch and that brought the "old me" back to my husband. I was active again, excercising again, walking my dog more than the minimum again, starting school for a new career (choragraphy just won't work no matter what pain meds I have). Then, I got referred to pain management. Well, that is the beginning of the end. "Oh, you shouldn't need that", she says. "We don't treat Fibro with opiates", and my personal favorite, "fibromyalgia is a pain from within, not a physical pain". Say, what!!! You have got to be kidding me! So now I am being worked off of my opiate pain medications and its not withdrawal I'm suffering from. I'm suffering from pain! "Think of your daughter", she says. I DO think of my daughter! When I'm in miserable pain I'm no good for her. I can't participate in her life I can only watch from the side lines. I'm tired. Tired of being made to feel like an addict. Tired of being made to feel like a liar. Tired of being tired. "We don't want to keep giving you opiates because of the long term side affects, and the first rule of being a Dr. Is do no harm", she says. Really? What would you say you are doing to me now? Harm! That's what. You did blood work. Anything ammiss in liver function, renal function? Nope. Do I thinks monitoring these things is a good idea? Yep. I implore DR's. to listen to us. We are not making our pain up. It does not stem from some some past emotional struggle. If that we're true most of the population would have Fibromyalgia. Should opiates be prescribed willy nilly? Of course not. Those of us that truly need opiates for pain won't argue about being ASKED to come see you once a month or to be re evaluated should we experience tolerance. There are NO laws for Drs. limiting the number of prescriptions they can write, or for what they write prescriptions for. They just need to do due dillagence. The Drs. who are going to jail wrote scripts. For undocumented patients, obvious over dosage, and so on. I implore the medical community to understand that we are not making this life up. Believe your patient until she gives you a reason not to. Thanks all for reading my thoughts, Mandy
    • Anonymous
      Mandy
      Sep. 06, 2013
      Mandy again fixing a couple magor typos. corrections are in CAPITAL With so many of us saying the same things you would think that the medical community would listen! I too have been down the same road as all of you. I found relief from my primary care doctor who believed me and prescribed me Norco and Lyrica after the other treatments we tried failed. I also...
      RHMLucky777
      Read More
      Mandy again fixing a couple magor typos. corrections are in CAPITAL With so many of us saying the same things you would think that the medical community would listen! I too have been down the same road as all of you. I found relief from my primary care doctor who believed me and prescribed me Norco and Lyrica after the other treatments we tried failed. I also have tried the fentenal patch and that brought the "old me" back to my husband. I was active again, excercising again, walking my dog more than the minimum again, starting school for a new career (choragraphy just won't work no matter what pain meds I have). Then, I got referred to pain management. Well, that is the beginning of the end. "Oh, you shouldn't need that", she says. "We don't treat Fibro with opiates", and my personal favorite, "fibromyalgia is a pain from within, not a physical pain". Say, what!!! You have got to be kidding me! So now I am being worked off of my opiate pain medications and its not withdrawal I'm suffering from. I'm suffering from pain! "Think of your daughter", she says. I DO think of my daughter! When I'm in miserable pain I'm no good for her. I can't participate in her life I can only watch from the side lines. I'm tired. Tired of being made to feel like an addict. Tired of being made to feel like a liar. Tired of being tired. "We don't want to keep giving you opiates because of the long term side affects, and the first rule of being a Dr. Is do no harm", she says. Really? What would you say you are doing to me now? Harm! That's what. You did blood work. Anything ammiss in liver function, renal function? Nope. Do I thinks monitoring these things is a good idea? Yep. I implore DR's. to listen to us. We are not making our pain up. It does not stem from some some past emotional struggle. If that we're true most of the population would have Fibromyalgia. Should opiates be prescribed willy nilly? Of course not. Those of us that truly need opiates for pain won't argue about being ASKED to come see you once a month or to be re evaluated should we experience tolerance. There are NO laws for Drs. limiting the number of prescriptions they can write, or for what they write prescriptions for. They just need to do due dillagence. The Drs. who are going to jail wrote scripts. For undocumented patients, obvious over dosage, and so on. I implore the medical community to understand that we are not making this life up. Believe your patient until she gives you a reason not to. Thanks all for reading my thoughts, Mandy
  • Why us ?
    Mar. 16, 2013

    Nothing can be further from the truth. I have had fibr.omyalgia for over 25 years now, and believe me it is no picnic. I suffer from the excruciating pain every waking minute of my life. The ink only time I can remember being pain free was when I was put on methadone. Those were the best 2 years of my life. When all of a sudden this doctor decided I was addicted...

    RHMLucky777

    Read More

    Nothing can be further from the truth. I have had fibr.omyalgia for over 25 years now, and believe me it is no picnic. I suffer from the excruciating pain every waking minute of my life. The ink only time I can remember being pain free was when I was put on methadone. Those were the best 2 years of my life. When all of a sudden this doctor decided I was addicted and because I refused to her friends drug treatment center she discharged me from her clinic. 8 ears with her . Ever since it has beenbeen impossible to find a docor that knows about this painful disease. I only want some type of medical treatment of which I know will help ME! Doctors who haven't this disease, but, study it should in fact ask the patient what they find is helping them, not the other T around. We deserve that consider all that we suffer. Thank you I hope someone out there agreeas with me. LET OUR BE ME

  • Anonymous
    scoville
    Aug. 04, 2010

    my doctor and I have recently had a very frank confersation regarding my pain. I've done all the research and everything points to either FM or MS. I seem to have written the symptoms on FM. The problem is my doctor is the ultimate anti pain med prescriber. I've had  pain meds on occasion and I know that on pain meds I'm unbroken, without pain meds I'm...

    RHMLucky777

    Read More

    my doctor and I have recently had a very frank confersation regarding my pain. I've done all the research and everything points to either FM or MS. I seem to have written the symptoms on FM. The problem is my doctor is the ultimate anti pain med prescriber. I've had  pain meds on occasion and I know that on pain meds I'm unbroken, without pain meds I'm severely depressed, consumed in pain, and sometimes suicidal thoughts seep into my mind. I'm willing to try any allternative treatments but I fear because my dr. is so cautious because of the feds that my treatment will suffer. Please someone tell me they can relate to my nightmare!

     

     

     

     

     

     

     

     

     

    f

    • annette
      Sep. 20, 2011

      I feel your pain. I am on neurotin 400 mgs a day, used to be on lyrica but insurance wont pay for anymore, voltaren cream 4 times daily, mobic, and cyclobenzapine and still have chronic pain. it helps but doesnt allow me to live a normal life. my family understands, but friends are clueless, because they see me look fine and question my pain. I am so depressed about...

      RHMLucky777

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      I feel your pain. I am on neurotin 400 mgs a day, used to be on lyrica but insurance wont pay for anymore, voltaren cream 4 times daily, mobic, and cyclobenzapine and still have chronic pain. it helps but doesnt allow me to live a normal life. my family understands, but friends are clueless, because they see me look fine and question my pain. I am so depressed about it. I feel also like my quality of life is gone. I have a wonderful doctor,she has a great beside manner, but doesnt like to perscribe pain meds often either. I wish in time that they would find a cure for this horrible condition. I would give a million bucks if I had it to feel better. please know that your not alone .

    • Donna38
      Mar. 05, 2014

      I know exactly how you feel, my pain began in my early twenties and am 38 yrs old now. It started in the back of my leg behind my knee. I was diagnosed with meniscal degeneration and was told that eventually i would experience meniscal tears. Dr. was right about that, it went from one leg to the other then i began to experience pain all over my body. i started...

      RHMLucky777

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      I know exactly how you feel, my pain began in my early twenties and am 38 yrs old now. It started in the back of my leg behind my knee. I was diagnosed with meniscal degeneration and was told that eventually i would experience meniscal tears. Dr. was right about that, it went from one leg to the other then i began to experience pain all over my body. i started to hurt all over, my arms, hands, fingers, neck, back, legs (also with meniscal tears) and i just began to ache beyond belief...It is so miserable and it completely changes your life, i was a very active person i used to exercise everyday and was a size 3/4 now i wear a 14-16 because of the pain i cannot even get up off the couch some days, the pain is so severe that at times all i can do is sit and cry and i am no sissy, i gave birth to a 10 1/2 lb baby and didnt shed one tear but this pain is excruciating and it seems that no doctor can understand what i am going through...I also now have a curve in my upper spine and a perforated bone in my lower back. I have been on lortab and lyrica...the lortab for at leat 7-8 yrs and i tell them that the medicine doesnt seem to be working for me the way it used to and they look at you like you are a drug addict, believe me i would much rather to not be in this kind of pain, not have to take any medication, and be able to work...I also was sent to pain management just last month because my family doc said they would be able to help me manage the pain...WRONG!!! Since i began to go to the "Pain Clinic" they havent helped me i feel all they did is hurt me because my doc was giving me 180 lortab 10/500mg tablets and now the pain clinic will only give me 120 that is 60 less pills each month, BIG DIFFERENCE and he says he plans to wean me off of them...I do not know what I am going to, I will have no quality of life period...they say exercise but when you are in excruciating pain and have no energy at all, it is easier said than done...I told my doctor I feel like I am a cancer patient just laying there hurting so bad just waiting to die. It is very depressing and i see now why some people have asked others to help them to go ahead and pass...That is not what I want but when you have no quality of life you feel whats the point? I thought doctors took a hippocratic oath and vowed to help those of us who are truly in this type of pain, but they seem to just not care at all. I hope that some type of relief is on the way because i dont know how much longer I can take this...I have two teenage girls and they dont understand what i am going through and at times they get aggravated because mom doesnt feel like going anywhere, shopping, or anything else and i want to so badly its just that i cannot do it...At times i do push myself for my girls, they do not know this but i do it because i love them...Also almost 2 yrs ago i was going through a divorce and had no income at all so i had no choice but to get a job as a nurse aide, OMG it was killing me, I had to get up extra early to just be able to force myself to go to work, I worked 12 hr shifts three days a week, luckily they let me work every other day and believe me i was down on the in between days. My knees were swelling up and i do mean they looked awful you could see how bad it was, i forced myself to do that for 6 months and couldnt take it anymore. I had to quit (which killed me because I want to work) and had to move in with my mother while waiting to be approved for my disability, which took over 2 yrs to recieve...This truly is a debilating illness...I need a doctor who will actually listen to me regarding the pain, I am willing to try ANYTHING to get some type of relief...I just dont know what to do anymore, God help me and all the others like me, in the name of Jesus.

  • Advise Needed
    Mar. 31, 2010

    I only wish I had a doctor around to help me through the pain. I can't get restful sleep, go for walks past my block, climb bleachers to watch my children, and stairs what a joke, at times my husband has to get me out of the bathtub. I have no pride left, and feel like I watch a family, not be a family. I am so sad that my children expect me to sit and watch,...

    RHMLucky777

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    I only wish I had a doctor around to help me through the pain. I can't get restful sleep, go for walks past my block, climb bleachers to watch my children, and stairs what a joke, at times my husband has to get me out of the bathtub. I have no pride left, and feel like I watch a family, not be a family. I am so sad that my children expect me to sit and watch, or use ice packs and daily bases. I use Tramadol 300 mg long acting, Lyrica, and Tylenol just to move, most of the time it dulls the pain so I can move for a few hours. I use to take Tylenol 3, 2 @ 4 times a day... I was part of my family than. Now I go to the doctor and there is nothing more they can do... even try Physical Therapy. I don't know how much longer I can be on Tramadol or Lyrica, it is so expensive even with insurance. I appreciate the post, just wish a doctor could hear me without making me feel like a drug addict. I pray for guidance. Fibro ruins a persons spirit, self worth, family and work. I just want pain relief and my family :O(

     

  • Anonymous
    Tired of aching
    Oct. 19, 2009

    Oh dear Lord if only you could talk to my husband who thinks I am an addict.  I finally found a Doctor who is willing (at least for now) to prescribe narcotics for my pain relief.  I am currently taking Vicodin 5/500 one 4 times a day, while I am not pain free and have some days still worse than others I am on a more even plane.  I no longer...

    RHMLucky777

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    Oh dear Lord if only you could talk to my husband who thinks I am an addict.  I finally found a Doctor who is willing (at least for now) to prescribe narcotics for my pain relief.  I am currently taking Vicodin 5/500 one 4 times a day, while I am not pain free and have some days still worse than others I am on a more even plane.  I no longer lay on the couch every moment I can with heat or ice or both to try to alleviate my misery.  I wish the world would understand not all people with chronic pain are junkies.  I also wish they could spend 1 week in my body to get the day by day fun I get to enjoy, let them know the feeling of not being able to walk well or being brushed up against sends you to the moon.  Everyone keep advocating and demanding we are treated like humans and are aloud to maintain our lives with legal means as functional and pain free as we wish to be.

    God Bless

    tired of aching

    • Regina
      Mar. 30, 2010

      I was diagnosed with fibro and chronic fatigue syndrome about 13 yrs ago. I am now 41. I also have bouts of tmj and bladder problems that feel like i have an infection but i don't. It's called interstitial cystitis. I work and drag myself 5 days per week. On the weekends i just sit in bed. I can barely shower, i force myself and can barely do the normal things...

      RHMLucky777

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      I was diagnosed with fibro and chronic fatigue syndrome about 13 yrs ago. I am now 41. I also have bouts of tmj and bladder problems that feel like i have an infection but i don't. It's called interstitial cystitis. I work and drag myself 5 days per week. On the weekends i just sit in bed. I can barely shower, i force myself and can barely do the normal things in life such as my adl's and iadl's. If it were not for strong pain meds, i'd be stuck in bed 24/7 crying. The meds don't make me high. When you are truly in pain they block the receptor site and help to alleviate the pain. Those who get high are not in this type of pain or are taking too much. I hate my 1x/month pain management visits and the oh so lovely trip to the pharmacy after to get my multitude of pills filled. Some friends who know what i take think wow you get those pills! You are lucky and i tell them I'd gladly give you my pills if you took my disease. They have no clue what the pain is like and to not enjoy life the way i used to. I used to be active travel but to sit on a plane is a nightmare for me!! Plus i have horrible sleep which is part of the fibro. But i also have people close to me who think i look pretty on the outside so how could i feel this bad. I must manipulate my doc to give me these pills. They have no clue. I see only 1 doc and go to 1 pharmacy that is the agreement i signed with my doc and that helps with my credibility. My doc is great and so understanding but that is so rare!!!!! He is a real doc not a pill pusher. But there are times when i feel he thinks I'm exaggerating my pain or fatigue but he sees pain Pt's all day and deals with allot of liars so it is a hard job for him. But w/o him I'd be lost. He thinks I'm doing well because i work 5 days per week and allot of his Pt's are on disability but i feel like a loser big time. I hate all the pills, money I've had to spend,etc... But I've been told if i had diabetes would i treat it with meds and i say yes, so I'm told what is the difference. Yes your body becomes addicted to the meds physically but mentally is another story. Your body becomes dependant and can't help it! But i never think of my next pill. I have even forgotten to take them when I'm doing better and my body reminds me because of the withdrawals you have w/o them. If i were a true addict I'd never forget. I remember because of the pain and symptoms and that is the truth!!!Maybe one day chronic pain Pt's won't have to prove themselves, it's so embarrassing to tell friends what i take and most i don't because my doc says it's none of their business and sometimes people like to hurt you with things one is sensitive about. I feel like i live a secret life because i have a good job and if anyone knew what i took they would be shocked!!!! I don't slur or appear drugged, at least i hope so!!!!LOL!! Well good luck to everyone suffering from this horrible painful disease. It won't be until a celeb speaks out about it that more money will be put into finding out more about it. I just hope that docs who really don't know what Pt's have give them this dx. I hope they follow all the s/s of this disease and what the pt says and the answer will be obvious if they have it or not.

    • learnFMnow
      Mar. 30, 2010

      I understand every single thing you just said.  I feel the exact same way about my life day to day and the meds I take.  No one would know I am on these medications unless I told them.  They never see me high, drunk, looped, nothing.  I feel more normal when I take them if anything.  Some people would be stoned on some of my meds. ...

      RHMLucky777

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      I understand every single thing you just said.  I feel the exact same way about my life day to day and the meds I take.  No one would know I am on these medications unless I told them.  They never see me high, drunk, looped, nothing.  I feel more normal when I take them if anything.  Some people would be stoned on some of my meds.  I am not.  It simply helps me to live a more normal life in fighting the curse called "fibromyalgia".  And true, it is none of their business anyway.

      I had to tell my workplace what meds I am on because they do a pre employment drug screen.  I was somewhat embarrased when I put those pill bottles out in front of the woman.  But I had to.  I am quite sure she had her own private thoughts about all of it.  But then she sees I am a pretty dependable employee now and also that she has never seen me look high or drugged.  I take them because I have to.

      I get sick of taking pills all the time.  I get tired of having to depend on them.  Tired of centering my life around the next doctor visit and tired of spending all the money I spend for the sake of the curse I have. 

      No one but NO ONE can understand this disease unless they live with it.  I just wish there were a way to let someone spend ONE MORNING in my body or feeling like I do when I wake up.  Just ONE morning and they would then know what I go through.

      I suppose I am a pretty strong person...stronger than I give myself credit for.  I keep trudging alone and also work a full time job.  But like you, my off days are spent like a slug just around the house.  I don't even go out the door in my off time very often. 

      I sure could have written your post directly from my own thoughts.  But don't worry about what others think.  Those of us who deal with it know what it is.  The rest of them can just think what they want because it is not a cake walk like the Lyrica commercials make it look.  Oh yeah, and I look pretty good when I go to work in the afternoons and don't look sick or anything.  So how in the hell do I expect them to even understand? 

      Thanks for posting.

      Debra

  • Miss Kat!
    Oct. 02, 2009

    I, Totally agree with what you are saying. I am currently dealing with the everyday Chronic Pain of Digenerative Joint Disease. The one thing that I am having a hard time with is that when I see the many doctors that I have to see for my Disease, none of them will perscribe me a pain killer "NARCOTIC". They want to perscribe me "TRAMADOL 50mg", which would...

    RHMLucky777

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    I, Totally agree with what you are saying. I am currently dealing with the everyday Chronic Pain of Digenerative Joint Disease. The one thing that I am having a hard time with is that when I see the many doctors that I have to see for my Disease, none of them will perscribe me a pain killer "NARCOTIC". They want to perscribe me "TRAMADOL 50mg", which would be 1 tablet 3x's/day. LOL! I tried taking 3 at one time, (as the doc increased my dosage) which then made it 150mg. Did not even touch my pain. Basically, it is like I am taking a medication for no reason what so ever. When I had told the doc, that the new amount was not working, she said there was nothing else she could do, I would have to seek Pain Management. Well, come to find out, they do not except Insurance, and it is $250 for the first visit, and then all other monthly visits would be $150, plus the price of the Meds (prices varied on which kind if Med was needed anywhere from $50-$200). To me, it  just seems un-fair that I am seeking treatment from a Professional Physician, and she can no longer give me what is needed to not live in AGONY eveyday of my life. Oh, I forgot to mention, I am a 35 year old young women, who used to be so active and out going, and now is a totally different individual, who does not have the energy or strength to do anything because the PAIN is unbearable. I remember when it was no problem for me just to get up and go to work, now I was told I can no longer work, that I am going to have to collect Disability. It is pretti sad when you can't even get yourself out of bed in the am, to use the bathroom, because you are so stiff. All I know is I need to find the right Doc that is willing to listen, understand, and will give me what I need so I can go on with my life, the best that I can, in dealing with this CHRONIC PAIN!

     

    ALWAYS,

    young and in pain

    • Anonymous
      learnFMnow
      Oct. 02, 2009

      It sucks.  I will just say it like it is..  Sometimes I wonder who the hell these people are with Medical Licenses.  If you are afraid to prescribe MEDICATION then don't be a doctor.  It is a crock.

      Narcotics have the bad wrap because of the likes of Paula Abdul, Anna Nichole, and poor Michael Jackson.  I understadn that people have...

      RHMLucky777

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      It sucks.  I will just say it like it is..  Sometimes I wonder who the hell these people are with Medical Licenses.  If you are afraid to prescribe MEDICATION then don't be a doctor.  It is a crock.

      Narcotics have the bad wrap because of the likes of Paula Abdul, Anna Nichole, and poor Michael Jackson.  I understadn that people have had problems with narcotics, but what about the ones who will not abuse but use them for true pain that is unrelentless.  It makes me sicker just thinking about the miseries that people must live in just because of the media and the stigma of a narcotic pain pill.

      hugs,

      Debra

    • Hawk
      Sep. 13, 2014

      Can someone point to the study?   I am afraid the doctors will not take a blog but I highly agree that opiates are useful. 

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