Sunday, November 08, 2009
My entire point is that we are not believed because people choose not to believe. The judgement and stigma follow no matter how we act, how we look, what kind of day we are having or what we say. Those who choose to think FM is fabricated for attention seekers will never believe us no matter what physical evidence does now exist in research. We shall never be applauded for having good hours. We shall rarely get compassion for the very cruel hours of misery. But rather, we shall be judged in our very integrity, dignity and character as long as the word "fibromyalgia" is attached to our being. If I could remove that word from my life, believe me I would.
Debra Van Ness RN
a.k.a learnFMnow
i want to tell you how much i appreciate what you have so well written.i have been living with chronic cervical degenerative pain now for two decades and i share your sentiments completely! sometimes i am in so much pain i want to lie down on the ground and scream, but i can't because i am smiling and engaged in some social activety where people are thinking..."he's in pain?" it is the pain on the inside and smile on the outside (my two concurrent existensies) that is more and more difficult.....especially when i am with family member's i love and try to protect from my suffering....thank you again for your wonderful sharepost
beanie, d.m.d.
I am so glad I could reach someone out there who needs understanding. People tend to judge no matter what. You can grimace and they think you are faking. You smile and they think nothing in the world is wrong. I just get fed up with the everyday stereotypes of what people think pain "looks like". Pain is what we "feel" not what we can see. People living in chronic pain often react to pain much differently than one whom has just had their toe hit with a hammer. We learn to live with chronic pain because if not, we would not live at all.
Thanks,
Debra
a.k.a. learnFMnow