Monday, February 13, 2012

My first time here

It's my first time here and I'm trying to figure out how to use this. I've had chronic pain for almost ten years. My pain is in my low back and left leg. I've had five low back surgeries and two nerve releases in my left leg. Now I have scar tissue wrapped around my nerve roots. As a result I have severe pain and nerve damage.

8/21/08 1:01pm

22 years ago I had a spinal fusion. L3,4 & 5 and two bridges onto my hips. The pain was controlled enough to allow me to walk again and also to be able to play with my young children. Bliss.

However, now in a wheelchair, pain in my lower back and left leg (Oh and upper back, neck, left arm, right arm right leg, hips and ankles and both feet... I'll stop there) I have been told that really I would probably be better off if I had not had the op at that time. Is that why it is called 'Medical Practice.'

The problem is, You probably feel the same, I will do anything to try and ease the pain.

I was asked recently if I would accept paralysis below the waist for life, with a garentee of full pain relief. Can you guess the answer?

At least I would be able to do something other than just sit and hurt all day. Don't even get me started on the side effects, but my daughter bought me a bra for christmas to try and make me laugh. Methadone does that to a man sometimes. However i'll not describe the worse side effects on this site as someone of a younger age may be reading this. Suffice it to say that the joke this time was to do with a change of religion.....

8/21/08 5:24pm

Thank you for answering my post. I'm so sorry that things got worse for you after they were already bad enough. I'm not in a wheelchair YET, but I do use a battery operated scooter at the store. I also would do anything to get rid of my pain. I worked as an emergency room secretary for 20 years. Three years ago the pain got worse and now I'm unable to work anymore. Thank God that I qualified for disability. Of coarse I have bad money problems because it's no where near what I made when I was able to work. Do you have government disability where you live? My life has gone steadily down hill since this all happened. My pain all started because I fell down a flight of stairs. When are you getting the pain pump? I'm scared to do that. My doctor offered to put one in, but for now I'm going to wait. Good luck to you.

10/ 3/08 6:02pm

Hi Scooter-

Boy, I think there is an echo in here.  I too had 5 failed back surgeries.  I also had a broken hip they repaired with pins.  By the time I went to get the sutures out, all 3 pins had broken away.  They did a hip replacement that didn't go too well either.  I also had 3 pelvic fractures that they could do nothing with.  I was a mess!!!  I have been in pain 24/7 for the last 11 years.  They decided to do the intrathecal morphine pump about four years ago.  What a life saver.  It doesn't take away all the pain but at least I can get around now.  However, if there is no furniture, walls or walker around, I flop over like a ragdoll.

And, in response to your original comment:  If one more person says:  "why don't you take another pain pill", I think I will go postal.  My own kids are the worst!  They hurt my feelings all the time with thier snide remarks.  I wouldn't wish this on anyone, but I  wish people would understand!!!  Thanks for letting me air my anger. 

9/ 6/08 1:43pm

I was ready to pack it in for the day.My wrist are about to fall off.My ear is hurting.I recently had some injections in my back.And my pet peeve is being judged for taking the advice of doctors.Why does it bother other people so much that we want to alleviate our pain.If the only relief we get is taking pain meds then why is it any skin off of their nose if we do.They don't pay our bills.Or even live with us.But I have lost 3 people in my life who I loved dearly.All because I take pain pills.It is so unjust.I am a 57 year old woman living in Jax.Fl.And I am new to this too.I just joined about 2 days ago.But I see so many people I would love to talk to at length.But today it has to be short.I just wanted you to know that you are not alone.We are all in a lot of pain.And some days are better than others.I am having a bad day.On top of everything else I have a flu bug.As if I didn't already know what that felt like.It is exactly what Fibromyalgia feels like.But I really need to rest.I can see the doctor Monday.For the flu.I couldn't make it to my own daughter's baby shower today.I feel so left out.I would love to be there to see all the baby clothes and see the joy in her face when she opens those presents.But I will not go around someone pregnant with something contagious.So I hope her day is wonderful.Mine is nausea and pain and many other kinds of pain.Keep in touch,from Jo

Anonymous
SINDY
1/24/09 2:37pm

I ALSO AM A FIRST TIME ON THIS SITE. I HAVE HAD MANY INJURIES, BEATINGS ,ACCIEDENTS, I AM NOW DETOXING AFTER20+ YEARS OF OPIETS , SO I CAN HAVE LOWER DISCECTOMY??  I AM DETOXING FROM FENTANAL PATCHES.100 . I AM SO TIRED OF JUDGEMENT.  I NEED THE SURGERY. WILL I ALWAYS HURT. I HAVE COMPLETELY COMPRESSED 2 DISC IN MY NECK. I FEEL LIKE I WILL NEVER STOP PAIN MEDS. I HAVE FIBROMIALGIA AS WELL.  I DONT KNOW I FEEL SO CONFUSED? MY DR. AND MY SURGEON ARE GREAT.  THE RA]EASON I HAVE TO DETOX IS SO I   CAN  HAVE PAIN RELEAF.  I BET I WILL STILL TAKE SOMETHING.   I HURT AAND MY POOR HUSBAND.  GOD HE IS SO GREAT AND UNDERSTANDING HOWEVER HE TAKES NOTHING AND IS NEVER SICK.  OH WELL ENOUGH OF MY PROBLEMS. I FEEL GOODYell

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