Tired of being judged for taking narcotics

Scooter Community Member August 30, 2008
  • Is there anyone else out there that is being judged harshly for taking narcotics? I worked as a sectretary in an ER for 20 years before I became disabled because of chronic pain after having 5 back surgeries. Someone looked at my medical records and found out what meds I'm taking. I went from being liked and respected to being a scum in their eyes. If anyone of them hurt as bad as I do they would take meds too. Some people treat me like I'm a drug addict and it's not fair. I can't get out of bed if I don't take my meds. Why do people treat others so bad when they really need to take the meds? I just don't understand. I wouldn't take anything if I didn't have to.

84 Comments
  • whyowhy?
    Feb. 15, 2012

    I hate to say it; but it is only going to get much worse!!!   Anyone that takes any kind of controlled RX and are not on death's door with horrible cancer pain will always be judged very harshly!   I have been on this earth for 41yrs. and have no idea what it feels like to not have pain!  I was 1st diagnosed w/ arthritis at only 7yrs....

    RHMLucky777

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    I hate to say it; but it is only going to get much worse!!!   Anyone that takes any kind of controlled RX and are not on death's door with horrible cancer pain will always be judged very harshly!   I have been on this earth for 41yrs. and have no idea what it feels like to not have pain!  I was 1st diagnosed w/ arthritis at only 7yrs. old.  There  was also some "mystery problem" that was very wrong w/ my nerves and muscles that they knew was causing alot of pain and other problems; but had never seen anything like it before in a child.  I was sent all over to many drs. and even ended up at one of the top shriners children"s hospital and even they were left scratching there heads.  I was a very active child despite all the pain and was started into figure skating and dance.   This became EVERYTHING to me and because I loved it so much I would deal with the horrible pain as I thought that everyone hurt like this.  At 11yrs. old it was all taken away after a very bad fall that messed up my knee and could not return to skating.   I worked so hard to heal doing everything that I was told; but no matter what I never healed right.  They still did not know why and would just say that I probably had some kind of genetic nerve/muscle problem because my grandma had something wrong with hers that made her head shake all the time.  They rediagnosed me w/ rhuematoid arthritis at 14yrs.  Over the years I went to more drs. that did all kind of horrible treatments and tests to "fix" me; but all they have done is make it much, much worse and still do not give me answers.  So far, fibromyalgia comes the closes to what they think it is; but there are still things that remain a mystery.  Like they say that fibro. does not cause damage to muscles and nerves; but in my case they are seeing damage that cannot be explained.  It has also started getting much worse causing shaking and severe pain and weakness that they say fibro. does not cause.  How do they know?  There are still a bunch of drs. out there that still believe it is all in your head or not real at all!!  It has gotten a little better; but they still have a long way to go.   I finally after years of fighting and trying EVERYTHING else 1st, gave into trying meds.  and had for the 1st time in my life some relief!  I have been on this rx rollercoaster over the last 16 yrs. and most people would not believe how I get treated!!  I am so SICK of it!!!  I did not choose this life; but I have to live it!  No one knows what it feels like to be me!!  Everytime someone in the public eye dies and they are on any rx either legal or illegal; I and many others like me suffer for it!!!  Having so called "experts" like dr. drew & jane v. that do not show all sides of the story and just show the neg. and bad parts to "joe public" then nothing will ever change!  Yes, being a mom myself, my heartbreaks everytime they show the poor, tragic parents holding a picture of the usually grown child that ODed on rx drugs! It always gets glossed over the fact that this "child" is either getting these drugs illegally or by going to a "pillmill" and they always have a bunch of other drugs or alcohol mixed in!!  I want to see the stories of long suffering people that got their lives back or were at the brink of suicide; but because of the right combo of meds. has allowed them to not only save their lives; but to actually live with a somewhat quality to enjoy!!! 

    • backandneckoaingirl
      Jul. 02, 2012

      Unfortunately I have to agree.  Most recently my family doctor looked at my pain meds and muscle relaxers (prescribed by my pain management doctor) and said that he was extremely concerned that I would become addicted and that he believed most of my pain (60%) was not from DDD and spinal stenosis.  He wasn't alone in his thoughts.  The psychiatrist...

      RHMLucky777

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      Unfortunately I have to agree.  Most recently my family doctor looked at my pain meds and muscle relaxers (prescribed by my pain management doctor) and said that he was extremely concerned that I would become addicted and that he believed most of my pain (60%) was not from DDD and spinal stenosis.  He wasn't alone in his thoughts.  The psychiatrist and one neurologist that I saw both said my symptoms in large part appeared to be psychosomatic.  Even a few of my "friends" thought this was true.  I had to insist on a new MRI because my symptoms have been getting increasingly worse.  I’ve been falling, dizzy, and lose of memory, not to mention the pain, neuropathy and other physical issues stopping me from living a normal life.  Thankfully the pain management doctor wrote the RX for a MRI series of both C and L spines.  The results indicate that of the 33 discs in the spine 25 of mine are either bulging or herniated.  This includes t 11-12 which is herniated.  In addition the test found severe narrowing of the spinal canal, spine straightening in both the c and l spine, encroachment of the thecal sac and either bone spurs or tumors in several discs.  Further testing is necessary to discover if the findings are bone spurs or tumors.  I wanted to take the results and wave them in everyone who didn’t believe that my pain was really as bad as I said it was.  Now I need a new family doc and neurologist because if they cant see that a patients symptoms are real they don’t need to be treating me!  I've tried every alternative to taking pain meds because they work to an extent but are not completely effective.  Good luck to all the other people here with chronic pain struggling to get the treatment they need and acceptance from dr's and family regarding their conditions.  If they could only feel our pain for 5 minuets they would never question us again. 

  • Denise
    Aug. 20, 2011

    I am also a chronic pain sufferer and a Registered Nurse. It is unbelievable how ignorant the medical profession is in regards to chronic pain and the NEED for narcotics. You are right, if they were in pain they would be taking pain meds too. I even hear nurses judge patients who have just been cut wide open for calling out for their pain meds either too early...

    RHMLucky777

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    I am also a chronic pain sufferer and a Registered Nurse. It is unbelievable how ignorant the medical profession is in regards to chronic pain and the NEED for narcotics. You are right, if they were in pain they would be taking pain meds too. I even hear nurses judge patients who have just been cut wide open for calling out for their pain meds either too early or when it is due. If they're callling out early that usually means their pain isn't being controlled which in turn makes them have to play catch-up. Then when they are due (usually every 4 hours) it doesn't control the pain because they arentrying to play catch-up. The majority of medical professional are not educated on chronic pain and don't recognize the difference between treating it and abusing narcotics. I've been treated for chronic pain for 11 years, have NEVER abused it and am still judged by some medical profrssionals, including the Board of Nursing. My license was recently suspended for no reason other than the fact that I take pain medication. My pain doctor and my primary care doctor had both written letters to the Board telling them that I had never abused anything they had prescribed and my KASPER is clear. Because they are so ignorant about treating chronic pain they were dunb enough to violate my civil rights GOOD JOB DUMBASS!

     

  • Kimberly
    Nov. 01, 2010

    At the age of 33 I began having swelling in my joints and within 3 months the pain began and now am in my 7th year of living with pain. I still do not know why I am in pain even though I have been to more doctors (including a psychiatrist) in these years than I have seen in my entire life. I have had numerous blood tests (they took 15 vials one time),x-rays,...

    RHMLucky777

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    At the age of 33 I began having swelling in my joints and within 3 months the pain began and now am in my 7th year of living with pain. I still do not know why I am in pain even though I have been to more doctors (including a psychiatrist) in these years than I have seen in my entire life. I have had numerous blood tests (they took 15 vials one time),x-rays, bone scans, soft tissue scans and when no conclusions were reached by these was told I needed an MRI - which my insurance company promptly refused. I was sent to a pain Dr. and was told that every other Dr. had treated me incorrectly and he acted as though I was just looking for drugs. If all I wanted was drugs then I could have found them much easier than spending all my time and money with all these Dr. appointments. I left that office in tears and never went back. I was naive enough to think that the doctors would tell me what was wrong. My best family Dr. moved away, which was devastating as I know she believed that I was in pain no matter what the tests show. I now depend on my rheumatologist for my pain meds. I can no longer afford to run tests as I lost my health insurance and everything is self pay. I cannot afford much as I cannot work and was not working before all this started as I was an at home mom raising my children. I no longer have friends due to not being able to do anything or make plans as I never know how much pain I will be in or how swollen I will be. I have been judged for the pain meds that I take as people think taking them cures the pain - so what am I complaing about?! The meds help with the pain enough that I can move around, do some laundry and cook meals (on best days), but I still cannot sit for long and when I stand too long my feet and ankles swell uncontrollably. When people ask what's wrong with me I still have no answer. I often wonder if it weren't for the swelling, would the doctors believe me? I no longer like to go out as people are always asking me why I am angry, or am I upset? No. I am in pain! I don't know how to put on a happy face through pain. Ends up looking like a grimace (at best) when I try.

     Before this I was a person who never took anything stronger than ibuprofen. I am now taking vicodin and ultracet, and am still in pain but am afraid to ask for anything stronger. I called my Dr. office this morning for a refill and was told by receptionist that the vicodin prescription now requires a Dr. appt every 3 months. I cannot afford this. My husband works very hard to support his family and I feel like a burden. I cost a lot and cannot contribute. I know he believes me. At least I have that. But I still feel like a burden.

    • Anonymous
      Ellen
      Feb. 04, 2011

      My father has had back pain since 1963 and 3 back surgeries and a neck surgery.  He was on all kinds of pain medication and nothing really helped until now when someone told him about Kadian (or Kadien).  After 2 weeks the drug started to work and he's a different man.  Just go here and read what everyone says about it and the pain that they...

      RHMLucky777

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      My father has had back pain since 1963 and 3 back surgeries and a neck surgery.  He was on all kinds of pain medication and nothing really helped until now when someone told him about Kadian (or Kadien).  After 2 weeks the drug started to work and he's a different man.  Just go here and read what everyone says about it and the pain that they were in http://www.askapatient.com/viewrating.asp?drug=20616&name=KADIAN&sort=gender&order=0

       

      I hate seeing people in pain so if you are suffering, go to your doctor and see if he will give you a prescription for this.

       

      Take good care!!

  • Anonymous
    Greg G.
    Dec. 30, 2009

    I have suffered chronic back pain for 20 yrs. Have taken every pill imaginable even methadone. Would like to find Dr. who RX's dilaudid w/o freaking out. anyone know of such Dr.? I'm at my wits end.

    Greg

    g319@sbcglobal.net

    214-240-8494

    • karen
      Jul. 17, 2010

      hi i suffer with athiritus from the top of my neck right down to the base of my spine and in both hips, i also suffer with bulging disk all the way down my spine and collapsing disk, i am in pain 24/7 i take morphine sometimes that does'nt help when a disk pops out, when that happens it affects my breathing and i have to get in touch with the doctor who will...

      RHMLucky777

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      hi i suffer with athiritus from the top of my neck right down to the base of my spine and in both hips, i also suffer with bulging disk all the way down my spine and collapsing disk, i am in pain 24/7 i take morphine sometimes that does'nt help when a disk pops out, when that happens it affects my breathing and i have to get in touch with the doctor who will then prescripe me with diasapam excuse the spelling i do get fed up with my life as i have 2 grandsons who i can't spend any proper time with them. Like so many others the pain gets to much as i can't cope and think it is easier to end my life

  • Anonymous
    Anonymous
    Nov. 18, 2008

    I UNDERSTAND TOTALLY  I HAD SURGERY MANY YEARS AGO,AND I HAVE A PHOBIA  {fear} OF NEEDLES ,,SO I KEPT ASKING FOR PILLS NOT NEEDLES ETC... THERE 2 WEEKS about the 10th day this nurse wanted to know why i was buzzing her over and over, I YELLED AT HER I,M IN PAIN YOU SKIPPED ME 2 hours ago , AND WITH THIS HORSE NEEDLE IN HAND SHE SAYS QUOTE ...

    RHMLucky777

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    I UNDERSTAND TOTALLY  I HAD SURGERY MANY YEARS AGO,AND I HAVE A PHOBIA  {fear} OF NEEDLES ,,SO I KEPT ASKING FOR PILLS NOT NEEDLES ETC... THERE 2 WEEKS about the 10th day this nurse wanted to know why i was buzzing her over and over, I YELLED AT HER I,M IN PAIN YOU SKIPPED ME 2 hours ago , AND WITH THIS HORSE NEEDLE IN HAND SHE SAYS QUOTE  "YOUR A FUCKIN JUNKY" THEN STUCK ME IN MY HIP.. AND I YELLED IF I AM ""YOU MADE ME THIS WAY""..!!!   NOW I,M LIKE YOU  I CANNOT GET OUT OF BED WITHOUT MY PAIN PILLS ABOUT 80 percent of the time, AND THE DOCTORS I USED TO SEE A FEW YEARS AGO ,WERE CREEPS , LETS JUST LEAVE IT THERE, I GOT ARRESTED FOR DESTRUCTION OF PROPERTY AT THE HMO HOSPITAL ,WHEN THE ADVICE NURSE TOLD ME YOU HAVE TO GO IF YOUR IN THAT MUCH PAIN, I DID NOT WANT TO GO..!!  SHE INSISTED I NEEDED A SHOT AND A PRESCRIPTION FOR STRONGER PILLS,,,I WENT ,, AND THAT ASS third world country KAISER PERMANENTE DOC,, SAID TO MY FACE  ""NO SHOTS,,,NO PAIN PILLS AND NO REFERRALS FOR YOU MY FRIEND.. I WENT OFF , HE RAN ,I TORE HIS OFFICE APART,AND PICKED UP A COUCH IN THE WAITING ROOM + THREW IT THROUGH THE WALL.!!!!   NOW I BUY PAIN PILLS ANY WAY I CAN GET THEM, DO NOT NEED NO DR..

    • Scooter
      Nov. 25, 2008

      I feel so aweful for you. We , people in chronic pain , do not  deserve to be treated so badly. Please do not give up on getting the meds you deserve. Let me know how things turn out. I care about what happens to you. I wish you the best of luck.

      Scooter Innocent

    • Anonymous
      THE ITALIAN RED...
      Nov. 26, 2008

      THANK YOU FOR YOUR CONCERN AND E-MAIL,  A LARGE PERCENTAGE OF DOCTORS  THINK THEY ARE GOD, AND THINK YOUR JUST ANOTHER CUSTOMER ,LIKE THE DRIVE THROUGH AT BURGER KING...$$$$$$   THEY WORSHIP  $$$$$   AND GET ON A POWER TRIP, THERE A GENIUS IN THERE OWN MIND...  BUT  IF" THEY WERE IN CHRONIC PAIN "LIKE SO MANY...

      RHMLucky777

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      THANK YOU FOR YOUR CONCERN AND E-MAIL,  A LARGE PERCENTAGE OF DOCTORS  THINK THEY ARE GOD, AND THINK YOUR JUST ANOTHER CUSTOMER ,LIKE THE DRIVE THROUGH AT BURGER KING...$$$$$$   THEY WORSHIP  $$$$$   AND GET ON A POWER TRIP, THERE A GENIUS IN THERE OWN MIND...  BUT  IF" THEY WERE IN CHRONIC PAIN "LIKE SO MANY OF  GOD,S CHILDREN ARE !!!   THEY WOULD BE JUST LIKE DR. HOUSE  ,BELIEVE IT...... THEY WOULD HAVE VICODINs  EVERY WHERE,, + EAT THEM LIKE  M + M s.........

    • Anonymous
      Terry
      Mar. 29, 2009

      Like everyone else here I have been judged by many others about my chronic pain issue- mainly because I have no hard proff of what is causing my pain. In short, I have long suffered from large amounts of small, sometimes alrge, kidney stones. Once I had an operation when the doctor discovered one kidney was not draining, teh operation proved their was a vein...

      RHMLucky777

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      Like everyone else here I have been judged by many others about my chronic pain issue- mainly because I have no hard proff of what is causing my pain. In short, I have long suffered from large amounts of small, sometimes alrge, kidney stones. Once I had an operation when the doctor discovered one kidney was not draining, teh operation proved their was a vein wrapped around the tube beteen my kidney and dladder- So the doctor cut the tube and routed arouund the vein. After 5 weeks of painful healing time my ain was totally gone for almost two years!! I told everyone that it was teh best thing that ever happened to me to have the sugery.... BUT, after a couple years of the surgery I had kidney stone pains that were very bad, so I had to go from work to the ER. At first I was told their was something cloging the drainage of my kidney but it was hard to make out on the cat scan, I was given a 'script for 20 percocets and sent home (no insurance). Well, when I ran out of pills the pain got more intense, waaay more intense. I was in tears. I went back to ER and got a very mean doctor this time that tried to tell me I was perfectly fine and the previous report said I was fine- I was furious. One of these doctors had to be lie-ing to me, and I even seen the catscan which had mutiple stones circled on paper, so I deeply suspected this new ER doc was judging me. We argued for ten minutes, and the doctor changed his story, yup, it really happned... FInally hte doc told me my body was producing numerious small pepper size stones that would cause me costant pain for the rest of my life, there was no cure. he advised I get a primary doc and get into a pain mangt program- He sent me home crying in pain with nothing for pain.

       

      Thats where it started. Next I discovered I could get insurance via the COBRA laws, and I started going from expert to expert. I had tests after test. I had an operation looking inside for problems. In the end no doctor would treat my ain with narcotics, and I cryed everyday from a constant pain that felt like a kidney stone stuck- only I normally dont have one stuck. I know accept the speculation that something went wrong in my surgery- I can close my eyes and push my finger deep into the spot where teh stabing pain stays 24/7 and it's ALWAYS right on top of the 10 inch scar from my sugery. It's often a ain of level 8 or 9, meaning that it's almost the worse pain my body has every felt in my life- the only thing that hurt more was waking up from the sugery to doctors that messed up my pain pump and I was screaming because they morphine pump was set at less than 1/10th of what the doctor had ordered. That pain was most intense.

       

      I was unable to work for a couple years as I tried to get my body fixed. I didnt want pills, I wanted an operation to stop my pain. My co-pays were in the thousands of $$. I was sent to a pain clinic that never disnossed my pain, they automaticaly set me up to see a head shrink and to find the nerves to numb and hopfully burn away to stop my pain latter. The ynever found the right nerves, I got angered at teh mental doc because all he wanted to do was talk about me quiting smooking and how to bake cookies for $400 an hour!!! - I finally had to give up on the pain clinic, they horded us around like cattle into a large room in which many of us would have to disrobe in front of strangers to get a practice run at a speculated location of a nerve to numb to test if it stopped the pain. the pain clinic milked my insurance and me for all the money tehy could and never prescribed me anything that worked for my pain. I got mad at the head shrink and told him my pain was real, it had wrecked my life, and I wold quit smooking on my own terms (which I latter did- Im smoke free now for 3 years) and I told him I came to the pain clinic for help stopping my pain, NOT to get charged $400 an hour from a doc who rather talk about quiting smoking and baking cookies. I walked out and gave up on the pain clinc as I was in tears just waling due to the pain.

       

      I still held out hope. My primary care doctor is very conservative and advised me to have all sorts of tests done and sent me to otehr doctors for awhile. Finally the day came. On a visit to see my primary care doctor I broke down and said I was at my end. My insrance under COBRA was almost out, no doctor, no test, not even the pain clinic, could tell me why I was in so much pain, nor had a solution to get out of pain that worked. - My doctor asked me what the pain clinic did for me I told him the truth. he looked at me in disbelief, and said (Ill never forget his words:) "Do you mean you went to the pain clinic (long drive) for all of that time and they NEVER treated your pain? Did teh not prescribe you anything else? - Man, finally I had the look of frustration from a doctor that finally understood. I had been thru the mill, every doctor treated me like a drug seeker. Finally my primaray care doctor took me under his wing and he started prescribing be generic morphine sulfate ER in 15mg pills X 8 pills a day= 120mg a day.

       

      I was so happy a doctor finally believed me, yet I was sad that no operation could fix me. I never wanted to take these dang pills. but they helped. However even on this amount of oral morphine I still suffer pain 24/7- it's just not as bad. Honestly I feel I need stronger meds like oxycontin, morphine clouds my thinking and makes it very hard to work a job while taking it. Despite the cretics of oxycodone, I know from previous experience that it works much better at controlling my pain and allowing me to work better and become a produtive member of this country. But my doctor is strict, he drug tests me, and he wont go up any higher on my dose. I fear telling him how these morhine pills seem to help so little nowadays because I fear he might just take me off the mophine and never replace it with anything as strong or stroger.

       

      Much of my problem is the state in which I currently live in has much media coverage about all of the abuse of pills here. I wont name what state Im in, but Im sure many can guess. The media ignores the drugs of abuse in the inner cities here and goes into the mountains and country areas of this state and shows people abusing pain pills all of the time. Im afraid whats going on here is much more complex than just a bunch of folks snorting pills for a buzz. Many here are older and have suffered painful conditions due to the only local industry here that tends to shortens the workers lifes, and tehy latter must sue for disabilty. Many here ar ein legit chronic pain, yet get cut off their meds because of drug tests that either fail to pick up all of their controlled meds prescribed, OR such tests might pick up on a person's use of WEED- THC, which is common most anywhere. The doctors here all feel if any patient tests opsitive for THC then the patient must be a abuser, and many get cut off due to this and forced to deal with their 24/7 pain in anyway they can- and often this results in some breaking the laws... the less inteligent ones might break into pharmacies for pain meds, while otehrs get involved in rings on the internet or driving far away to states like Florida where getting pain meds are easier. In the end it's important to note that many of these so called abusers were often once called legit chronic pain patients that got cut off their pills because their doctors fear law enforcement which has little understanding of chronic pain and how such pain can drive people to become criminals to kill thier pain.

       

      I have a dream that someday I can get good insurance again and be able to get an understanding doctor to either change my pain meds to somehting oxycodone based, or maybe increase my morphine dose. So far Im too scared to ask this of my doctor because I greatly fear he wont agree with me and he just might cut me off. Where I live some doctors hang up large signs in the waiting rooms advising people they will NEVER prescribe narcotics or controlled substancies for anything!!! - yes the mis-trust is that bad here. Were all treated like crriminal drug seekers no matter what medical records we have to back are claims. the doctors are the worse around here, as my family KNOWS Im in pain... sadly it's not so easy to convince any doctor of such things here. I have dozens of other stories about my bad experiences in this state trying to get help for my chronic pain, but I have already wrote a book here. I hope I made my point.

       

      Just because somebody has chronic pain is no reason to lable them as a drug seeker. A good pain doc can drug test and call patients in for random pill counts. It can be controlled. But first we need people, starting off with our primary care doctors, to believe and trust us when we claim we are in intense pain and have gone tru intense testing etc... ' fact is most chronic pain can not be explained. many times it is linkied to areas of the body that had surgery done previosly, like in my case... but it appears there is much about pain that the medical people dont understand.

       

      My family supports me. Some of my friends say things behind my back. But when the doctors treat us like criminals seeking drugs it hurts the most. We need to at least be able to get our doctors to understand and trust us. But, none do where I live, no matter who you are they always question the prescribing of narcotics for long term pain. I pray for the day things change. 

       

      My best to you all, and I wish everyone a pain free day.

    • Anonymous
      WILDLOVER
      Apr. 02, 2009

      I AM THE ITALIAN REDNECK,,,,,  AKA WILDLOVER,,, IF YOU ARE CURIOUS WHO WROTE THIS REAL LIFE STORY, ABOUT BEING CALLED A JUNKY BY THE NURSE WITH THE HORSE NEEDLES..!AFTER MAJOR SURGERY.!!!!  AND I BEGGED FOR PILLS..!!!!  IM, NOT AFRAID OF GUNS OR KNIVES""BELIEVE IT""  BUT HORRIFIED OF NEEDLES...!!!!!

  • abbyinokc
    Oct. 29, 2008

    For all of my friends on here dealing with Fibromyalgia, please sign up with www.fmaware.org and also www.fmnetnews.com , at fmaware, you can order what they call the "clothespin challenge" kit.  If I remember correctly (fibro fog big time today!), you have your family/friends put the clothespins, one on each finger, and they HAVE to wear them for about...

    RHMLucky777

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    For all of my friends on here dealing with Fibromyalgia, please sign up with www.fmaware.org and also www.fmnetnews.com , at fmaware, you can order what they call the "clothespin challenge" kit.  If I remember correctly (fibro fog big time today!), you have your family/friends put the clothespins, one on each finger, and they HAVE to wear them for about 30 minutes...it's supposed to help them understand the pain we all go through.  THEY CANNOT TAKE THEM OFF for 30 minutes!  And they aren't the cheap plastic clothespins...they're wooden!  It sure couldn't hurt to have them try it!  Maybe then, they'll all "get it"??  Just thought I'd pass this info along to all of you.  Soft hugs to you all, Abby!

  • amanda
    Oct. 15, 2008

    i am to being judged harshly by people and my own doctor i had have chronic pain for 6 years in the neck and my upper back. and my right shoulder even ssi looks at me like a person who should deal with it.right now i have been fighting them for a couple years now all because there is no way i am able to get up and go to work like this. i found out that i have...

    RHMLucky777

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    i am to being judged harshly by people and my own doctor i had have chronic pain for 6 years in the neck and my upper back. and my right shoulder even ssi looks at me like a person who should deal with it.right now i have been fighting them for a couple years now all because there is no way i am able to get up and go to work like this. i found out that i have a hernated disk and bone spurs whitch is getting pretty bad i have surgury this thursday 10-16-08 i'm scared and dont know if even the surgens are gonna treat me badly.. i know when i went to see my surgen his assistant was really rude tords me and my husband and child.. i wanted to sooo bad slap him. but i know that no matter what i say or do people are gonna treat me badly because of my body and what i take..

    • Lisa1972
      Oct. 29, 2008

       I am also judged by people who have no clue what it feels like to suffer constant pain.I was always afraid of medicine,even antibiotics.Then when I was 33 years old,I was diagnosed with breast cancer.I had bilateral mastectomies,4 months of chemo and take Tamoxifen 2x a day.I was left with neuropathy,post-mastectomy pain syndrome due to nerves being cut...

      RHMLucky777

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       I am also judged by people who have no clue what it feels like to suffer constant pain.I was always afraid of medicine,even antibiotics.Then when I was 33 years old,I was diagnosed with breast cancer.I had bilateral mastectomies,4 months of chemo and take Tamoxifen 2x a day.I was left with neuropathy,post-mastectomy pain syndrome due to nerves being cut during surgery and I had 19 lymph nodes removed under my right arm causing numbness and pain all the way to my fingertips.I have severe joint pain from the Tamoxifen on top of Fibromyalgia.I know it may sound crazy but my toes hurt so bad sometimes that it brings me to tears.My knees make it near impossible to get back up if I bend down.I have not seen a pain free minute since June 2006.I thank God everyday that I am still here with my 2 children but my quality of life is horrible,the pain affects every aspect of my daily life.I have no choice but to take narcotics now.I take Oxycontin,Roxicodone,Dilaudid,Lyrica,Provigil,Effexor XR,Coreg CR,Aldactone,Lisinopril and Tamoxifen regularly.I have heard snide comments at the pharmacy about needing a garbage bag to hold all the pills I take.I've had Drs tell me that I shouldn't be in pain now so stop the meds.I am blessed in the family department for the most part.My mother is also a chronic pain patient as is my husband of 19 years.My daughter also understands,she is 18,as well as my 10 year old son.I have a pretty good PM Dr right now but she has hired a nurse practioner that is not playing with a full deck.She tries to tell me you should be out of pills such and such so you don't get addicted.Last month I just told her the truth,I honestly don't care about addiction,if there is a pill and I am in pain,it's going down the old hatch.I don't abuse my meds,I keep them locked up and I have a terminal illness.It is sad that so many of us have to worry because of idiots who are chasing a high.I don't get high from my meds at all,I only get some pain relief.

    • amanda
      Oct. 29, 2008

      wow i know.. i'm 24 years old .. i have had my doctors tell my i'm to young to know pain.. i have my surgury done. now whats worse is that i'm in more pain then i was before? how can that be.. while i was at the hospilte for one night this nurse was sooo mean i cryed and cryed because the pain med... morghen was not working and i told the lady that and she...

      RHMLucky777

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      wow i know.. i'm 24 years old .. i have had my doctors tell my i'm to young to know pain.. i have my surgury done. now whats worse is that i'm in more pain then i was before? how can that be.. while i was at the hospilte for one night this nurse was sooo mean i cryed and cryed because the pain med... morghen was not working and i told the lady that and she just looked at me like.. i was this small pee in a hole and i couldn't move with out crying. finally i told that nurse to get my doctor on the phone right away i was done being in pain and i wanted something else. and finally she gave me something else that helped then god bless this other nurse morning nurse who came in and was soooo sweet and nice.. i had surgury on my neck. and now i have pain between my shoulder blades going down my spine and pain in my right side neck and my shoulder still.. i'm only on oxycodon.. 5 mil. but it helps i'm not complaning at least i have something to help and my faimly is soo ohelpful. god bless you all have to go thru this crap everyday.. i went threw years since i was 20. in pain and NOT 1 doctor believed me.. not one person cared about it.. i was in the hospitle in and out.. i just now got insureence and still i'm treated badly. all because the this pain that i have and i wish everyday i wake up in pain that it wasn't real that my body is playing tricks on me.. and wish that it could just go away and i could be normal like everyone else.. but still it hasn't happened.. god bless you all for going thru this... amanda h

  • kgmorris22177
    Oct. 11, 2008

    I am on Ambien, Ultram, Lyrica, and Elavil and my dostors and fmaily all think I am coo coo for cocoa puffs and a major dope addict. Hubby thinks I fake the paiun just to get the meds --- LOL SO i can feel ya!

  • Anonymous
    chronic-pain/c/...
    Sep. 18, 2008

    I am new to this site and just signed up and saw your question.  First of all your medical info is private and would love to know who looked into it and would bring it up with your supervisor.  Second, the peoole who are treating you like scum, need a talking to either privately or as a small group, who ever is involved.  This pisses me off as...

    RHMLucky777

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    I am new to this site and just signed up and saw your question.  First of all your medical info is private and would love to know who looked into it and would bring it up with your supervisor.  Second, the peoole who are treating you like scum, need a talking to either privately or as a small group, who ever is involved.  This pisses me off as These people who look down on you have no freaking clue what it's like to live in severe pain everday.  I would tell them they should have your pain for 10 min. to see what it's like.  I give you credit for still working too.  I myself live in severe chronic back pain and fibromyalgia everyday and take pain meds to make it out of bed.  No one should ever be decriminated, judged or looked down upon.  I support you 100%. Another thing that pisses me off is people who take pain meds just for "the buzz" and who aren't in pain.  It's because of these abusers is why doctors are leary to precribe pain meds and I myself had a hard time finding a pain management doctor who would put me on a maintenence drugs.   Read my post and e-mail me if you want to talk sometime.  I opted not to have back surgery because of the fibromyalgia.  Scar tissue would have caused more pain..........take care Tammy ^j^

    • Scooter
      Sep. 18, 2008

      Bassguitar, Thanks for your reply. I can't take credit for still working. The people I worked with made it way too hard on me. They started writing me up for things I didn't do. Being in the medical field you would think they would have compassion, but no. I was taking meds at work from 1999 until 2005. Most of my co-workers didn't care because I did a great...

      RHMLucky777

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      Bassguitar, Thanks for your reply. I can't take credit for still working. The people I worked with made it way too hard on me. They started writing me up for things I didn't do. Being in the medical field you would think they would have compassion, but no. I was taking meds at work from 1999 until 2005. Most of my co-workers didn't care because I did a great job. A couple of the doctors I worked with even told me I was the best sectretary they ever worked with. I have it pinned down to a few nurses that could have looked at my records, but I'm not sure. The same ones are probably the ones that wrote me up. I think the boss believed them over me because they were nurses and I was a secretary. They flat out made up lies about me. I worked in that ER for 20 years and it still breaks my heart that I'm not still there. To be honest though, my pain level is way too high to work anymore. Thank God for disability. I don't like staying at home, but some days I can't even get out of bed anymore. I would love to keep in touch with you.    Scooter

    • Anonymous
      chronic-pain/c/...
      Sep. 18, 2008

      People really suck sometimes.  I also had a great job in a spa as I am a lic. nail tech.  The owner bumped me up to more responsibility, trained me for that plus I still did my regular job, then left me in charge and went on vacation.  The day she left, I had a pain in my side.  Now being I have fibromyalgia and back pain, well I wasen't...

      RHMLucky777

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      People really suck sometimes.  I also had a great job in a spa as I am a lic. nail tech.  The owner bumped me up to more responsibility, trained me for that plus I still did my regular job, then left me in charge and went on vacation.  The day she left, I had a pain in my side.  Now being I have fibromyalgia and back pain, well I wasen't rushing to the doctor right away and waited two days.  I then went to er and to make a long story short, had emergency exporitory surgery.  The fatty tissue in my abdominal area, which we all have, called "omentin" chocked itself on my intestines.  If I would have waited longer, I would have gone septic and could have died.  Well needless to say, I was in agony before and after surgery but continued to run spa from my hospital bed.  I called the owner and left a dozen messenges for her, no return call.  She fired me in person when I was well enough to drive to spa,  for having surgery and told me I was supposed to be watching her spa instead of having surgery!  I now have a lawsuit against her and she is being investigated by the "eeoc"  equal employment commission.  I am looking for damages for discrimination, she knew I had fibro and a chronic bad back.  I worked my ass off for this women, went beyond the call of duty. It won't be a great deal of money, but I have been out of work for a year now and it is stinging my husband and I.  He is a cival service employee, job security and makes a real decent paycheck.  But when you are used to having two incomes, put in a new kitchen because of your wonderful job, and now have debt for that, the economy is so bad and I can't find work.  I am not trained for anything except nails.  And now with my new back problems, I can't sit or stand too long.  Once this lawsuit is settled, I will consider disability.  I won't get much because there were years I didn't work.  We are only talking about $333 a month.  But I am tired of the bullshit and the way people treat you.  So I totally understand about your situation Scooter.   I don't know how Social security works when your filing for fibromyalgia.  If anybody here has done that, let me know.  My husband too suffers from Fibro.  He only as body aches and pains and very hard for him to get up in the morning.  He works nights, if he didn't he would have been booted a long time ago!  My husband doesn't have any chronic back pain because of discs like I do.  Please comment if anybody knows anything about disability and fibromyalgia.  Thank you for listening and good luck to you Scooter, hugs to all Tammy ^j^

    • Sandy
      Sep. 19, 2008

      Hi there, I read that you were thinking about applying for SS Disability. I applied for and was granted disability on my first application several years ago. I have fiiound that the most positive aspect of being d"Disabled" is you access to Medicaire.

       

      I have a medicare account and an inexpensive Supplement from Blue Cross Blue Shield. I would like to...

      RHMLucky777

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      Hi there, I read that you were thinking about applying for SS Disability. I applied for and was granted disability on my first application several years ago. I have fiiound that the most positive aspect of being d"Disabled" is you access to Medicaire.

       

      I have a medicare account and an inexpensive Supplement from Blue Cross Blue Shield. I would like to offer a few suggestions if I may. I received my disability on my first application. I think the thing that made that possible is that I collected letters from 6 of my attending physicians to send in with the application. I have a genetic disorder that affects about every part of my body. So my vision was impaired- I got a letter from my ophthamologist, my teeth were falling out- letter from my ndentist. Had had 2 ankle fusions alrerady- got a letter from that surgeon, and I got one from my primary physician, I was being seen by a rheumatyologist for general overall problems with my joints, and I received one from the pain doctor at the pain clinic I attended.  All of these letters spoke to how disabling this disorder is and how there is no treatment, or cure  available. As one Dr said, "This will only get worse. It will never get any better. There is nothing we can do to stop the progression of this diso-rder. The disability she is experiencing is total and irreversable."  I think by hitting  the SSA with the hard truth, left little "wiggle" room for them to pass on me. First time acceptance is the way to go. Hold nothing back. They are looking for terms like "Permanent" "totally disabling" "irreversible" the big terms like that, supported by multiple geniuine Drs letters did it for me. I wish you luck. It is worth going for but don't just dabble in it. Prepare your documentation and then let them have it!  Let me know how this terns out OK?

      Sandy

    • Jo
      Jo
      Sep. 20, 2008

      To Sandy from anonymous.I was reading down about what a lot of us have been through and just saw one thing where I might shed a little bit of info for you.The  S.S.D. are told to turn down up to 3 times everybody excluding anyone with renal failure and on dyalisis.Or anyone who has terminal cancer. What they hope is that you will give up,and...

      RHMLucky777

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      To Sandy from anonymous.I was reading down about what a lot of us have been through and just saw one thing where I might shed a little bit of info for you.The  S.S.D. are told to turn down up to 3 times everybody excluding anyone with renal failure and on dyalisis.Or anyone who has terminal cancer. What they hope is that you will give up,and hope that you are unaware that you can continue to apply for it now that there are disablity attorneys.We didn't use to have them.And I was told that you can get assistance faster if you are sick in the head rather than body.I think you know what I mean.My psychiatrist wrote the letter that convinced the judge to award in favor of me.The judge actually wrote it in the judgement.I had fibro fog,couldn't concentrate on conversations.Forgot what I was talking about and have to ask the other person now why am I talking about this.I forgot the whole issue and got off somewhere in never never land.Ant that wasn't due to medications.How could I hold down a job.I can't even keep up with a conversation much less think quickly and this is not just for Sandy it is for anyone who didn't know how to go about getting disability if you sincerely need it.Sure there are always those few who ruin it for those of us who have suffered years.But we don't.So these people who decide if you are going to be homeless,no medicine,no help,no more friends to help,Should be intelligent enought to recognize who is truly sick and who are just seeking drugs to get high.I do not promote street drugs.But I know people who are so disabled and have no insurance that they have to go to the streets just to get the rx's they really legally need.And I know people who sell part of their meds in order to pay their mortgage or rent.Buy food for their children,because all leave when you need as much help as we do.I know these people because they are real and they are out there.But no one cares why they must resort to such borderline illegal behavior if they had not been pushed into it.I know that if my children were hungry,and I eshausted every avenue for help,yes I would steal food to feed my children.I would probably go to the manager first and explain my plight.And most of the time you would be surprised that if you are honest,someone will help you.It might be someone you never though you could depend on or trust.But that is all I wanted to say.About how to apply for Social Security Disability.Read a book written by Mary Ellen Copeland and Devin Starlanry.You can get them on Ebay for a couple of dollars.I bought mine years ago.They wrote 2 books as far as I know but there is one,the cover is purple and it is How to Advocate for Yourself.In the chapters at the end they will tell you in detail how to get the assistance you need.I would imagine you might find this out by means of the Internet itself.As not to insult anyone.I do get a little angered myself when people ask me if I tried going to a chiropractor.Like duhhh.After going to one for 20 years that questions makes me defensive.So please anybody do not be offended if you already knew all I have said.I guess we just assume everybody already knows what we know.And it isn't for self gratification that I wrote what I did.I  am just hoping that there is one person out there who needs help from the government and didn't know where to begin.I am having a really bad day.I am having surgery on my sinuses the 25th and that is probably why I have been feeling bad for so long as far as the sinus dept goes.So I will pray for us all.I pray for those who don't even know about this site.Because I pray to our Heavenly Father who knows all who are in need.God Bless everyone.........

    • Scooter
      Sep. 20, 2008

      While it is true many people get turned down the first time they apply for disability it's not always so. My late husband got turned down once and then had to get a lawyer. Anybody out there who has been turned down should get a lawyer and fight because nobody deserves to hurt all the time. For some reason when I applied I got it the first time. I'm not sure...

      RHMLucky777

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      While it is true many people get turned down the first time they apply for disability it's not always so. My late husband got turned down once and then had to get a lawyer. Anybody out there who has been turned down should get a lawyer and fight because nobody deserves to hurt all the time. For some reason when I applied I got it the first time. I'm not sure why. I have chronic back and left leg pain and nerve damage due to scar tissue wrapped around the nerve roots where I had five low back surgeries. Maybe I got it the first time because of the nerve damage. I feel so bad for people who have to fight for it. Please don't give up. When you hire a lawyer they don't get any money until you do. I'm praying for all of you to get the help you deserve

    • Jo
      Jo
      Sep. 20, 2008

      That is for sure scooter.Most people don't get it the first time around.Perhaps the fact that you already had multiple surgeries and the fact that you did what most people don't know in the beginning and that is keep records of every doctor visit,xray,lab work,doctors opinions.I learned that from working at Mayo Clinic.Because unfortunately by the time I realized...

      RHMLucky777

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      That is for sure scooter.Most people don't get it the first time around.Perhaps the fact that you already had multiple surgeries and the fact that you did what most people don't know in the beginning and that is keep records of every doctor visit,xray,lab work,doctors opinions.I learned that from working at Mayo Clinic.Because unfortunately by the time I realized that.I also realized that the doctors we saw were provided to us as a part of our benefits.I mean it does sound like a good deal.You get sick.You don't even have to leave work to go see the doc.Your supervisor would let you go when they could have someone fill in for you.And you still got paid while seeing employee health doctors.So that all sounded real good when I was 39 and just started working there.Wow to be paid for not working and not having to pay a doctor money.It was too good to be true.They even had the parmacy right there so you didn't need to leave that building to do anything.They had an atm machine.A cafeteria where you could eat and a post office where you could mail your bills from.And you received pto every 2 weeks so that say in 6 months you might have accumulated a week paid off.Unfortunately when something seems to good to be true it usually is.Because by the time 8 of us were borderline disabled enough not to be able to work anymore.We began to cost them money.We were liabilities.And who had all of our personal medical records.Guess who.That is right.The employee health doctor knew everything about you.And who paid him for his job.Mayo Clinic.So if that doctor wanted to do the right thing by a patient.The pressure was put on him.And we had a wonderful employee health doctor.We always heard the rumors.If someone went in the blood lab to get a pregnancy test.Everyone in the cafeteria knew the results before the patient/employee did.No matter how much we were supposed to keep health issues of fellow workers confidential.Human nature was stronger than that.It only took one person who may dislike the person who had the test to reveal it.So...the 8 disabled people who all had different problems and different attorneys.Not one of us won our claim to have the benefits promised to us that we held in a folder in our hands.I was turned down twice but I didn't give up.I had a lawyer and it took a year.But most people cannot live a year without money.I was lucky enough to have a husband who could pay our bills.Our cars were paid for.We didn't go out to eat all the time.We lived simply.But the is not the norm.Some people would be in real financial ruin if they didn't have a paycheck for just one month.So they had us no matter which way we turned.Thanks for sharing your story with us.And that is important to do so because I do know that out of the 8 of us we each had different issues.And none of us received the benefits promised.Money has a way of making the wheels go round and round.This was a good story of how we are all in the same boat.But not always the same situation.Take care everybody.Keep the info coming....

    • Sandy
      Sep. 21, 2008

      Hi there,

      I do wish you the best on your sinus surgery. I had that done years ago. I have to admit it was a little uncomfortable after the surgery especially if you come out with your nose packed closed. And tell them to go slowly when they remove the packing. However, good news too, after the healing process my breathing was so much improved that it made it...

      RHMLucky777

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      Hi there,

      I do wish you the best on your sinus surgery. I had that done years ago. I have to admit it was a little uncomfortable after the surgery especially if you come out with your nose packed closed. And tell them to go slowly when they remove the packing. However, good news too, after the healing process my breathing was so much improved that it made it all worth while. Now I know I don't know if we even are talking about the same surgery. But most of these kind are a little uncomfortable right after the surgery. But keep your eyes on the long run. That was a much improved time for me. And I do hope for the same outcome for you. I will keep you in my thoughts and prayers on the 25th. Have a hug too from me. You once asked what state I lived in I believe. I live in Dallas Texas. If you are anywhere nearby do contact me! Do carry my prayers into surgery with you as well!

      Sandy

  • Anonymous
    Anonymous
    Sep. 13, 2008

    hi, i too am taking meds, but i am not so much judged on that as i am not being able to work. Even though i walk with a splint and cane, people think i should be able to work. they disregard the pain issues, which really upset me. i am a nurse and feel i get judged by my peers most!- sometimes i wish they had a way to ralize what it's like to go through what...

    RHMLucky777

    Read More

    hi, i too am taking meds, but i am not so much judged on that as i am not being able to work. Even though i walk with a splint and cane, people think i should be able to work. they disregard the pain issues, which really upset me. i am a nurse and feel i get judged by my peers most!- sometimes i wish they had a way to ralize what it's like to go through what we do.

    You have my support and understanding for sure!

  • Anonymous
    Pamela B.
    Sep. 13, 2008

    I have had fibro...skin lupus,disc disease and the list goes on.I have been treated like a drug addict,a crazy women,lost friends and family members because i`m so ill.

    I take 750 mg of lortabs 3 times day and it doesn`t touch my pain.I`m sick of being treated badly.In my county they won`t give nacotic`s ,I have to drive 55 miles away to a pain management.I...

    RHMLucky777

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    I have had fibro...skin lupus,disc disease and the list goes on.I have been treated like a drug addict,a crazy women,lost friends and family members because i`m so ill.

    I take 750 mg of lortabs 3 times day and it doesn`t touch my pain.I`m sick of being treated badly.In my county they won`t give nacotic`s ,I have to drive 55 miles away to a pain management.I need stronger meds but scared to ask.It`s a shame when you feel guilty because your in pain.

    I keep getting turned down for disabilty since 1996.We`ve lost homes because I can`t work.Its not right and i`m sick of our Government.

  • Anonymous
    Deb M
    Sep. 11, 2008

    I surely understand what you are going thru, my sister isdisabled wth CFS and fibromyalgia..............I am with degeneative disk disease/surgeris, fibromyalgia and artritis.  We are treated like drug addicts too.  Even the doctor who said she understands all about our pain, doesnt really... when it gets down to.  Have your chronic pain spiking...

    RHMLucky777

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    I surely understand what you are going thru, my sister isdisabled wth CFS and fibromyalgia..............I am with degeneative disk disease/surgeris, fibromyalgia and artritis.  We are treated like drug addicts too.  Even the doctor who said she understands all about our pain, doesnt really... when it gets down to.  Have your chronic pain spiking at aabout 10 and then have an additional injury tha t gives you another area of 10 pain with a fibromyalgia flare up.............end up going into ER for hellp as the narcotics arent' workng............ya I love taking all those pills and having injections on top ofthat

  • Anonymous
    Kindred Spirit
    Sep. 11, 2008

    Dear Scooter,

     

    You're not alone in your experience.  Many of us are undergoing the same scrutiny.  Personally I resent being judged because I take narcotics as prescribed by a physician for legitimate medical reasons.

     

    You mention that someone looked at your medical records.  If that person did so without you're express consent then...

    RHMLucky777

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    Dear Scooter,

     

    You're not alone in your experience.  Many of us are undergoing the same scrutiny.  Personally I resent being judged because I take narcotics as prescribed by a physician for legitimate medical reasons.

     

    You mention that someone looked at your medical records.  If that person did so without you're express consent then your privacy has been violated.  In particular, if it was someone at work who delved into your medical records that is a serious HIPPA violation.

     

    The bottom line is that you can sue for any damages that you have experienced.  This includes problems with your employer and coworkers.  Courts have been very strict on HIPPA violations.

     

    If it was a family member then its a bit different, but you can still take legal action - if you desire.

     

    You should consult with an attorney immediately.

    • Scooter
      Sep. 11, 2008

      Someone did read my medical records because that's the only way they could have found out what meds I'm on. The problem is I can't prove who did it. I worked in an ER when it happened. The gossip spread like wild fire. It's makes me so angry. If they went through all the trouble to see what meds I'm on they should have kept reading and found out I have a good...

      RHMLucky777

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      Someone did read my medical records because that's the only way they could have found out what meds I'm on. The problem is I can't prove who did it. I worked in an ER when it happened. The gossip spread like wild fire. It's makes me so angry. If they went through all the trouble to see what meds I'm on they should have kept reading and found out I have a good reason to be on the Oxycontin. You see that's the problem. Oxycontin has such a bad name because of abuse. I guess they assumed that because I'm on Oxycontin I must be abusing it. I'm not. Some people have come up to me and told me it should be taken off the market. I'm no longer able to work. The last two years I was there they made me feel like a loser. I would sue if I knew who looked at my records. It's amazing how a person can lose respect of other people because they are on meds they need. It breaks my heart that there are so many of us being judged. We have enough problems already.

  • Anonymous
    Ladybird
    Sep. 11, 2008

    I too have been on narcotics for years.  To all those people that judge me harshly--I tell them to TRY to walk a mile in my shoes.  They do not know the pain I go through daily.  They can get out of bed in the mornings and function normally.  I cannot.  If it werent for the narcotics, I would still be in that bed in horrific pain. ...

    RHMLucky777

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    I too have been on narcotics for years.  To all those people that judge me harshly--I tell them to TRY to walk a mile in my shoes.  They do not know the pain I go through daily.  They can get out of bed in the mornings and function normally.  I cannot.  If it werent for the narcotics, I would still be in that bed in horrific pain.  Who cares what they have to say anyway?!  I dont take narcotics to impress anyone or care what anyone thinks.  I take them for pain, and only pain.  They dont live my everyday life and see the excruciating pain I have to live with day in and day out.  Let them look in the mirror and judge themselves!

  • Sandy
    Sep. 11, 2008
    I know what it feels like to have people judging you for taking narcotics to manage your pain. Sometimes it is subtle: i.e. "I have read some articles about people getting "hooked" on narcotics. Do you ever worry about this?" Or right out front: " That Dr is just trying to make you a drug addict so he (she) can keep you coming back to him (her) for more drugs!"...
    RHMLucky777
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    I know what it feels like to have people judging you for taking narcotics to manage your pain. Sometimes it is subtle: i.e. "I have read some articles about people getting "hooked" on narcotics. Do you ever worry about this?" Or right out front: " That Dr is just trying to make you a drug addict so he (she) can keep you coming back to him (her) for more drugs!" I have heard the full range. I am a post polio patient. Sometimes I even think about sucide as the only way to stop the pain in my legs. I also have Ehlers-Danlos Syndrome. In the list of symptoms of EDS is one line that describes the "intense, chronic, potentially catrostophic neuromuscular pain". I have been dealing with all this for most of my life, but worse for the past 15 years or so. I go to a "Pain Center" and we have run me through the whole list of pain management options; site injections,facet injections, even ryzotomies, physical therapy, massage therapy, acupuncture, hypnosis, individual and group therapy, In-patient therapy, ECT,TENS, patches, a large part of the PDR and even spinal surgery (2 so far, coming into #3) with discs removed, vertebra fused, even plates inserted. Lost my marriage due in part to this pain. I am now on a combination of Oxycotin (morphine), Hydrocodone, Zanaflex, Dolobid etc I take a lot of morphine and hydrocodine on a regular, daily basis. What I tell people is that I have tried the full range of options. Narcotics were not my first choice. I don't like how the morphine makes me feel, I would prefer not to have to take it, but when my only other option is suicide then I will deal with any potential long or short term side effects of the morphine. I HAVE to take it. I am not getting "high" on anything. I am just trying to stay alive. And right now this combination of drugs is doing the most good for me. I pray for new and better options. If I am addicted to the narcotics, it is a fairly easy matter to be weaned off them, under medical supervision, if a better option appears. And I do hope it does!
    • Jo
      Jo
      Sep. 11, 2008

      Hi Sandy this is Jo.I am really down today.I have the flu on top of everything else.I must be well before Sept 25th as I have a sinus surgery scheduled. So I went to the doctor(for the flu) and of course I get a lecture on smoking.Which I have tried so hard not to do since I got sick this week.I don't drink and I have had about 28 oral surgeries that have...

      RHMLucky777

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      Hi Sandy this is Jo.I am really down today.I have the flu on top of everything else.I must be well before Sept 25th as I have a sinus surgery scheduled. So I went to the doctor(for the flu) and of course I get a lecture on smoking.Which I have tried so hard not to do since I got sick this week.I don't drink and I have had about 28 oral surgeries that have left an infection unchecked as I have told over and over to any doctor I could find.Finally by the time I find a good one.Well it has been a year and a half since I have been able to go out it public.I have these six metal implants and attaching the teeth give me so much pain that I can't wear them.I see that you have indeed been through a massive amount of surgeries,documentation,filling out medical papers every time you have a new doctor they want you to see.You have really been through it.I take MSContin and then MSContin IR for break through pain.The only relief is sleep and I have severe sleep apnea.So suicide is a word I use on a regular basis.I never knew that I would.But in the end everyone leaves you.Or the majority for the most part.I just want to let you know that I feel a kindred spirit.I have never lost my temper until I was talking to someone on classmates and said I am just trying to find people for our reunion.Well almost anyone can read them.But I wrote a letter to someone I went to school with and we had some great memories and I told her I had Fibro.I didn't want to say anything else at that point because anyone can read it if they are cunning and find the way.Well out of the blue this guy who was about 6 years older than me said he had been reading my notes to our mutual friend.And he told me if I wanted any information on Fibro to just call him because it was my choice to have it.That I could not have it if I wanted to.I mean this guy was talking like he knew me and all of my medical problems which he did not.Because I never told them all.Would you have gotten mad if after all you and I have gone through for someome to say in a smartalec way had I ever been to a chiropractor.Ot had I done this or that.That really burned me up and I wrote him and told him so.I said you were not invited by me to join in on my conversations with other people.I don't know who you are but you have a lot of gaul to talk down to me.Don't you think I am smart enough to do my own research and yet you judge me.It was a long time before he answered me.But he finally said couldn't we be civil to each other and he accepted my anger.That made me even madder.I could care less what he accepts.I feel like someone judging me without even knowing me is an intrusion in my life.And just reinforces what we all have to fight society for.Just for the recognition that we could be right.A lot of people who are judgmental I have found take medicines secretly.So I dont know how they get off judging us.I am sure that our bodies are addicted and as you say.I have a doc who said a simple matter of detox I have done at home.Mentally I am not addicted.So as long as my body holds out I will try to keep up.I am just so sorry you have been through so much for so long.....I guess I just felt bad for letting my anger out .I wasnt raised that way.But do you think I did wrong by telling him it wasn't for him to say that I was choosing to be sick?.....Jo 

    • Sandy
      Sep. 11, 2008
      Hi there Jo. It seems like things are just being piled one atop another as problems breed more problems. But please remember you are not alone. You are in my thoughts and prayers. As to the jerk who was totally out of line when he spoke to you-I think letting him know that the things he says can be very hurtful is really part of your responsibility. As to how...
      RHMLucky777
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      Hi there Jo. It seems like things are just being piled one atop another as problems breed more problems. But please remember you are not alone. You are in my thoughts and prayers. As to the jerk who was totally out of line when he spoke to you-I think letting him know that the things he says can be very hurtful is really part of your responsibility. As to how you should com back to him, please remember that people like this are not going to have their ideas altered by anything you have to say. So don't waste too much energy on him. Your enegy is better applied in other areas! That brings up a point that I have found very helpful to me. My previous response to the pain was very often to withdraw, shut everyone out of my life, curl up in a ball on the bed and feel so very alone. I found that the longer I pursued this apprpach the sooner I reached the point of thinking that suicide was really the only option I had . What I have very gradually learned is that I need to resist the attraction of withdrawing and shutting people out when I am feeling "shaky".That curling up in a ball on my bed exerts a very strong pull. Butto withdraw, push people away, and pull away from any activity or any people. If I fighyt that pull I find that being around people and doing SOMETHING" is the most effective direction to go. Alone, all I can think about is the pain- and the more I focus on the pain the bigger and scarier it gets. Being around people helps pull me away from focussing on the pain. I am forced to focus on other things. I play the piano, I am a photographer, I write and have published several poems. I have allway been interested in a variety of crafts,I collect first edition flat-signed books and completed several different collection. I am a certified Master Gardener. I am almost driven to remain acxtive, But this is what keeps me alinve right now. Its not a permanent solution to anything but it has hel;p[ed me ease through some very tough points in my life and I highly recommend it. I have both Post-Polio and Ehler-Danlos Sybdrome as I have said before.I am now living in a "nursing Home" despite the fact that I am still 59 and one of the younger residents here.But my vision is quite impaired now. I can no longer drive at all. Reading newspapers or books is now longer worth the effort. Lots of joints have been fused or replaced. I am dependent on a walker. My balance is lousy and I have done considerable damage to my body by falling down. The experts have calculated that I have about 10 years left. On the positive side, however, I have 2 intelligent, kind and very caring children. A daughter 26 years old witha BS in Civil engineering, an MS in structural engineering now, married and they are talking about st5arting a family- I will get to hold my grandchildre! And I have a sone who is 23 and working on his PhD in Computer Engineering- the University he is attenting is PAYING HIM over $50,000 a year to go to school there. And they are kind and caring people. I have been able to earn my PhD and license in Clinical Psychology. Had a private practice and taught for many years before the pain started interferring with my concentration. So I went on to take 'the courses to become a certified Master Gardener.And at the top of list I am now almost completely diborced from my husband. It has been a 2 and 1/2 year divorce.We were married for 27 years. I filed for divorce on the grounds of abuse- verbal, emotionaland physical, and adultery. He counter-filed on the grounds of abuse. All he could come up with, however, was one time,10 years ago when I slapped his face. And another jbstance 13 years ago when I threw a glass of water at him. He has always thought my pain and troubles are all contrive my me. He is ones of those who has given me a difficult time about the medicationa I am on! Good riddance -he is almost out of my life. Well the list goes on. I have no real control over the problems brought on by the 2 disorders. I have no direct comtrol about the pain. What I do have some control over is MY ATTITUDE! and I have found that the face I present to others has a major influence on their response to me. Hang in there.I can tell from what you say that you are a survivor. I will try very hard tosupport you but fundamentally it comes down to your response to the pain an disability that will make the difference betwen making iut or not making it. Do take care, Jo. Sandy
    • Jo
      Jo
      Sep. 12, 2008

      Dear Sandy,I am so amazed that we share some of the same interest.My mother is the guru of crafts.I mean anything from making lamps to taking a couch apart and reapholstering it without any directions.I live in Jax Fl.And I have always lived here with all of my moms family here also.But my sister bought a restaurant in Panama City and convicned my mom...

      RHMLucky777

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      Dear Sandy,I am so amazed that we share some of the same interest.My mother is the guru of crafts.I mean anything from making lamps to taking a couch apart and reapholstering it without any directions.I live in Jax Fl.And I have always lived here with all of my moms family here also.But my sister bought a restaurant in Panama City and convicned my mom to let her and her husband build her a little place there.Well the little place turned out to be a basic motel room on their dock.On their place of business.I don't think it would take a rocket scientist to figure out how that would benefit them after my mom passes on.But money is not of interest to me.It is the fact that I no longer have mom here and we had a blast playing canasta twice a week with my older 3 aunts.We were all hurting of course but when we were all in the kitchen and mom(the best cook anywhere) would be keeping an eye on what she was cooking for us for supper.As we played 12 hours straight sometimes.My mom was much more active then and all my aunts and I (me being the youngest) would take off for St.Augustine for a day on St.George street and do some Christmas shopping.So my interest group has left me as 2 aunts have died and mom moved away.

          I took piano lessons for 3 and 1/2 years.I used to play for dad when he was rehearsing for his church solo.And he is the person in my life who gave me my self-esteem.I also have written poems but didn't know how to go about having them published.I don't know how good they were but they always meant something dear to me.I have lost them.I started a short story and didn't finish it.But I took that test at N.Fl.College on what you are good at.It is a week of doing interesting things.Then they make a pie and divide it up into sections like scientific,artistic,social,and a few more items.It has been so long that I have forgotten.But I do remember they give you 2 strong traits and one kind of lesser trait.And man were they ever right at the end they explained each trait and everyone was going that is me oh my goodness that is me to a tee.

          I love gardening it is the only thing left that interest me beside loving and caring for my friends and loved ones.I grew roses.Jackson Perkins is where my mouth would water looking at what I could order.But alas the moles kill everything here now. 

         The other thing that blows my mind is that I always wanted to be a psychiatrist too.We do have so much in common.I read your pain issues and I have never heard of Ehler-Danlos Syndrome.If you don't consider this getting too personal.Would you mind telling me what that is.We have had polio in our family.Back in the 40's I think.I would just so like to understand what you go through each day because of it or what are the syptoms.That is a new one on me.I did used to go in my bed and curl up in a ball too.And I used to think that maybe my friends were right too.So I tried it one day.My best friend was the friendship I wanted most to keep.So I lied to her and told her I was off the meds but could she help me.So the first morning I called and said I am paralyzed and can't get out of bed can you come over and help me.Well then she reconsidered and said Jo I am not a doctor so just do what you have to do.I went back to the doctor.He was horrified that I cut my meds back to one a day.He said why did you do that.I explained and he said you tell them where did they get their M.D.So I started taking the correct amount and again my best friends said see how much better you are acting without all those DRUGS.....I let her go on and on for a couple of weeks and then said hey Sandra....I am on more meds.And you think now I am back to my normal self.Maybe it is about time that you think real long and hard about what you just proved to yourself.We haven't had any more problems about that anymore.

         I am so impressed that your children are doing so well.That is such a blessing.My 3 girls are older than yours.I am 57 and I have one daughter who will be 40 in Nov.One is 38 and the other is 33.I have 6 grandchildren.And one on the way.I think that will be my last grandchild.But wait a minute....hold the phone...my 21 year old grand daughter is going to have a baby in Feb...These are the things that keep me hanging on.I used to have a good friend I worked with and she understood so much of what I felt because she was in the same boat.I have lost her to hybernation.She is terrified to talk to anyone and her husband left her all this happened to her at once and I am so sorry for her.But it has been 3 years and I would truly like to hear from her just for a minute to see if she is ok and what can I do to help her.Oh I forgot to tell you my youngest daughter's children are by-racial.She is the one pregnant.I have never seen a by-racial child who wasn't beautiful.I see the hope and love in the future when I see Payton,10,blond hair blue eyes,with his arm around his cousin Elijah,10,dark hair and dark eyes walking arm in arm down the road.And who ever said sticks and stones would break your bones but names would never hurt you wasn't from this generation.I guess Sandy that is why I asked you if by my getting frustrated with that guy am I becoming a mean person.I know that guy was full of it.But I think instead of not answering his email .I think I will tell him just how much it does to people like us to have things said to us to put us near suicide.And these are strangers.I may be talking about myself too much but I just wanted you to know about me.About my morals,friendships,and especially the blessing of a wonderful man as a husband.I know God placed him in my life for this reason.Thanks so much for telling me about your life.I enjoyed your comment and I hope we can become friends.Keep each other's spirits up....May the Lord send The Holy Comforter to you each day and night....Jo

    • Sandy
      Sep. 15, 2008
      Dear Jo, You are right we do have a lot in common. I think that scares me some. I can separate myself from most others because my life has pretty much run its own path. Kind of off the track really. But when someone like you comes along its is much harder to draw the line. In some ways the similarities helps me feel much closer to you and that is a comfort...
      RHMLucky777
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      Dear Jo, You are right we do have a lot in common. I think that scares me some. I can separate myself from most others because my life has pretty much run its own path. Kind of off the track really. But when someone like you comes along its is much harder to draw the line. In some ways the similarities helps me feel much closer to you and that is a comfort to me. To know I am not on this path so different that no one else is close to me and feeling ,any of the same feelings. I am not alone. But in some ways I find this closeness very scarry. It is harder for me to dismiss all this crap as just being a figment of my imagination; part of my craziness and not real. But when someone is feeling some of the same things then the chances that it is all real are much greater and I think that is the part that scares me. I don't know if I am making any sense at all to you. I am not certain this all makes a lot of sense to me even. The feelings are different one, ones I have not had a lot of esperience with. I don't want to run away from them. This is the perfectime for me to try to undeerstand them. I have all kinds of support around me right now. A bit over done I tthink sometimes. This is a good time for me to allow myself to remain vulnerable and I iknow that this will allow me to learn some important things. Hopefully I can help you in some ways as well! Sandy
    • Sandy
      Sep. 15, 2008
      Dear Jo, You are right we do have a lot in common. I think that scares me some. I can separate myself from most others because my life has pretty much run its own path. Kind of off the track really. But when someone like you comes along its is much harder to draw the line. In some ways the similarities helps me feel much closer to you and that is a comfort...
      RHMLucky777
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      Dear Jo, You are right we do have a lot in common. I think that scares me some. I can separate myself from most others because my life has pretty much run its own path. Kind of off the track really. But when someone like you comes along its is much harder to draw the line. In some ways the similarities helps me feel much closer to you and that is a comfort to me. To know I am not on this path so different that no one else is close to me and feeling ,any of the same feelings. I am not alone. But in some ways I find this closeness very scarry. It is harder for me to dismiss all this crap as just being a figment of my imagination; part of my craziness and not real. But when someone is feeling some of the same things then the chances that it is all real are much greater and I think that is the part that scares me. I don't know if I am making any sense at all to you. I am not certain this all makes a lot of sense to me even. The feelings are different one, ones I have not had a lot of esperience with. I don't want to run away from them. This is the perfectime for me to try to undeerstand them. I have all kinds of support around me right now. A bit over done I tthink sometimes. This is a good time for me to allow myself to remain vulnerable and I iknow that this will allow me to learn some important things. Hopefully I can help you in some ways as well! Sandy
    • Sandy
      Sep. 15, 2008
      Dear Jo, You are right we do have a lot in common. I think that scares me some. I can separate myself from most others because my life has pretty much run its own path. Kind of off the track really. But when someone like you comes along its is much harder to draw the line. In some ways the similarities helps me feel much closer to you and that is a comfort...
      RHMLucky777
      Read More
      Dear Jo, You are right we do have a lot in common. I think that scares me some. I can separate myself from most others because my life has pretty much run its own path. Kind of off the track really. But when someone like you comes along its is much harder to draw the line. In some ways the similarities helps me feel much closer to you and that is a comfort to me. To know I am not on this path so different that no one else is close to me and feeling ,any of the same feelings. I am not alone. But in some ways I find this closeness very scarry. It is harder for me to dismiss all this crap as just being a figment of my imagination; part of my craziness and not real. But when someone is feeling some of the same things then the chances that it is all real are much greater and I think that is the part that scares me. I don't know if I am making any sense at all to you. I am not certain this all makes a lot of sense to me even. The feelings are different one, ones I have not had a lot of esperience with. I don't want to run away from them. This is the perfectime for me to try to undeerstand them. I have all kinds of support around me right now. A bit over done I tthink sometimes. This is a good time for me to allow myself to remain vulnerable and I iknow that this will allow me to learn some important things. Hopefully I can help you in some ways as well! Sandy
    • Jo
      Jo
      Sep. 16, 2008

      Oh Sandy Sandy Sandy...I started with this site just a few short weeks if that long.When I saw all the things people were saying I just wanted to unplug my computer because it scared me so.I was terrified.I felt like I could write all day long and still not tell everybody just how much I have lived through.Just how much I wish I didn't have to live through.I...

      RHMLucky777

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      Oh Sandy Sandy Sandy...I started with this site just a few short weeks if that long.When I saw all the things people were saying I just wanted to unplug my computer because it scared me so.I was terrified.I felt like I could write all day long and still not tell everybody just how much I have lived through.Just how much I wish I didn't have to live through.I wish so many times I just would have a stroke in my sleep and never wake up.The only thing about death that scares me is the pain that would accompany it.Some say suicide is a sin.An unforgivable sin.But if God forgives child molesters,murderers,etc....wouldn't He understand that one of his Christian children who has done nothing but good all her life...just couldn't take it anymore.To have to continually fight.And to fight with chronic pain,with insults and injury to us.Wouldn't God understand and forgive that???Would he keep us out of heaven for that?I guess as long as I am unsure,I must stay and take it.Because I sure don't want to spend eternity in hell.I have lived in hell all of my life.I don't want to do anything that will jeopardise it.But yes you are right.The longer I am alone the worse it is.If I have people to atleast talk to or take me for a ride.Anything at all,I do feel better emotionally.And as scared as my letter was to you.It scares me to know that you and I share so many interest and situtations that are far more than a coincidence.But yes I did get scared and I still am.Sometimes I don't want to look to see if anyone wrote to me.Because that pulls me in emotionally.And I get scared all over again.So if you need a break from me or us.I will understand.Only people like us do understand.And thanks for saying what you did about that jerk who told me I chose Fibro.I keep looking at his reply to me about his accepting my anger made me even more angry.Who does he think he is.I can't decide if not answering him would make me angrier.Its like I am compelled to prove to him that all of us out here didn't chose this pain.But there really isn't anything you could tell someone like that,that would change his mind or impress him to admit he was wrong.And he was also wrong to easedrop on a conversation that had nothing to do with him.I dont even know the idiot.But it sure burns me up that someone who lives in Hawaii and has everything thinks he knows it all.I guess someday I will think of something good to say.Well I am facing surgery on the 25th.Sinus surgery.I have to have a 4 hour physical Friday.Have you ever heard of anything like that.And at 8:30 in the a.m.I really cannot get someplace that early without paying for it all day long.Plus I have had the flu or something from last Wednesday when I had an mri of my c-spine.I mean why do we always have to do all these test and you are around sick people.We have little immune so we catch everything.I think I would just like to finish this letter with please pray for me.And I shall pray for you.One day at a time.Someday tell me what state you live in.I wonder if you live down the block.Now wouldn't that be a hoot....here is a soft hug and know that you aren't alone.I am here.......Jo

    • Sandy
      Sep. 17, 2008

      Hi again Jo,

      Yes I am back again. I called my neurosurgeon about my lower back and now my other leg is numb. He will see me this afternoon. He has seen my spine up close. He knows it is all screwed up and if I say it hurts, then it hurts! I think thats what has to happen for all of us. Find Drs and Pharmacists and Pain professionals, etc who will take the time...

      RHMLucky777

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      Hi again Jo,

      Yes I am back again. I called my neurosurgeon about my lower back and now my other leg is numb. He will see me this afternoon. He has seen my spine up close. He knows it is all screwed up and if I say it hurts, then it hurts! I think thats what has to happen for all of us. Find Drs and Pharmacists and Pain professionals, etc who will take the time to get to know us. Onhe's who will hang inh there log enough to get enough experience with us to know that when we say he hurt, WE HURT and are not just reporting aches and pains to get high on narcotics.  I finally gave up on Wallgreens they wouldn't even carry the Oxycontin or Oramorph for me.So the only place I could find was a small independent "compounding" pharmacy who took the time to get to know me and my problems, carried every medication I ever had prescribed AND BEST, since I no longer drive, DELIVERED!!! They have had alot of experience with really ill people, terminal cancer patients at home, etc. They also sale walkers and wheelchairs and the accessories that go with them. In fact they have a "Home Healthcare Office" in house that can help you make decisions or can actually become a part of your treatment team. They cost a little more but oh are they worth every penny they charge! Look for a "compounding pharmacy" in your town. Its those smaller independent ones that seem to be what we are all needing!

       

      Nobody likes us going to more than one Dr for the pain medication. I have run into this as well.I fight on a lot of points but on this one I found it easier to find a good pain clinic that would work with me than have to take care of all the red lights that go on for everyone when we have more than one Dr prescribing. I've tried it both ways. I'd suggest the one pain clinic if you can possibly find one that will take time to get to know you. Insist that they take the time to do it. Good luck with these issues. I hate we have to fight them- the Drs as well as the pharmacies. But that is the reality we face!

    • Jo
      Jo
      Sep. 19, 2008

      True enough Sandy.A compound pharmacy if memory serves makes theirs right there on the premises.That is what it means.I am pretty sure.I have 2 uncles that are pharmacist and my mother and aunt both worked in pharmacies for atleast 25 years both together.It sounds like you live in a small town where there arent a lot of pharmacies.Is that right or wrong? A...

      RHMLucky777

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      True enough Sandy.A compound pharmacy if memory serves makes theirs right there on the premises.That is what it means.I am pretty sure.I have 2 uncles that are pharmacist and my mother and aunt both worked in pharmacies for atleast 25 years both together.It sounds like you live in a small town where there arent a lot of pharmacies.Is that right or wrong? A pharmacist should not be able to deny filling a legal script.I haven't had problems in that area.I have a wonderful pain mang doctor.He is the most compassionate man I have ever met.He puts you to sleep to do any kind of injections.He says why put you into more pain.You are already suffering and that you don't hear a lot of.Not even from pain mang doc's.I have gone to some that want me to bend over the exam chair to put a needle in my spine.No way buddy.I said I have been down the road already with this.I have done it without anesthesia or even a little novacaine or what ever.So I let my feet do the walking right out of there.What if I jumped and he damaged a nerve.So I have a good team.It is just the fact that there is no cure.There is no answer for us.We will all have to live in some amount of pain for the rest of our lives and believe me I  hate writing that down but it is the truth.I hope you have a good weekend Sandy.I am going to relax.Been at the hospital all day.For the surgery the 25th o my sinuses.This should be fun.Ha Ha Ha....I bet I wake up screaming.I am not looking forward to this.But I am happy to get the infection under control.This has been almost 2 years so its time.Ok girl gonna lay down now .Thanks for the holler.......Jo

  • scohoon
    Sep. 05, 2008

    Yes, many people are quick to judge others when they have no concept of what it takes to live in constant pain. I know this first hand because I have suffered with FMS for over 20 years (but didn't get a correct diagnosis until 1992), I also have 3 herniated discs in my back and neck, degenerative disc disease and osteoarthritis. I am a RN on a psych unit...

    RHMLucky777

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    Yes, many people are quick to judge others when they have no concept of what it takes to live in constant pain. I know this first hand because I have suffered with FMS for over 20 years (but didn't get a correct diagnosis until 1992), I also have 3 herniated discs in my back and neck, degenerative disc disease and osteoarthritis. I am a RN on a psych unit and there are days I'd like to strangle some of the doctors and nurses there. Instead I've tried to educate them. You would think that people in the medical field would have more compassion for anyone with chronic pain issues. If I had a dollar for every time I heard a nasty comment about a patient with chronic pain who has the gall to ask for pain meds I could retire to my own private island! Unfortunately, we see many depressed, and often suicidal, patients in the psych unit who also have chronic pain. Who wouldn't be depressed when they live in constant pain that is invisible to everyone around them? I have had more than one heated discussion with coworkers about their treatment of patients with pain. One comment that gets me really mad is when they call the person "drug seeking" & "clock watchers" just because they ask for the pain meds as soon as they can have them. If the pain was properly controlled, they wouldn't need to keep asking for more meds! So, ignore the ignorance, hold your head high, and continue to take whatever meds help you have some quality of life.

    • Jo
      Jo
      Sep. 08, 2008

      Dear Scohoon,I have a daughter who is a nurse and she said the same exact thing you said about patients.She said mom you wouldn't believe how these nurses are.She said she tries to tell them constantly that if someone just had surgery and is in great pain and need help with it.Then it would be logical that they are in a great deal of pain.My daughter kind...

      RHMLucky777

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      Dear Scohoon,I have a daughter who is a nurse and she said the same exact thing you said about patients.She said mom you wouldn't believe how these nurses are.She said she tries to tell them constantly that if someone just had surgery and is in great pain and need help with it.Then it would be logical that they are in a great deal of pain.My daughter kind of did't understand at first.Her sister who thinks I am a drug addict basically drummed it into her head that I didn't need rx.I just needed to get out there and exercise.Sound familiar?? Then my oldest became a nurse and she saw first hand how much medicine a person could take and still cry and cry and cry.Then my daughter the nurse started showing symptoms of Fibro-.She said mom please do not tell anyone that I have this or that I take meds.I have learned by watching the way people have treated you and now I know better.She told me that she was so sorry she ever doubted me.And that it was an injustice that she had to learn to keep her mouth closed if she wanted to keep her job.She said I can just hear them now.Well you know it was probably that nurse who made the mistake she takes narcostics you know and I'll bet she did it.So I keep my daughters confidence.Because I really do not want her to suffer what I have had to endure.We seem to all have the same stories.We just have different names and slightly different combo's of diseases.Not everybody responds to the same treatments and medications.But I do know this.How could this many of us be wrong? As you said I never took street drugs in my life.And I am from the 60's generation.I had 2 babies by the time I was 19 and I sure as heck never had time to even think about doing anything like that.Even though my friends who were still in school constantly tried to get me to smoke pot with them.I never did.Now they are the ones calling me a drug addict.And ofcourse when I remind them that they took LSD and tried to get me to do it,they suddenly have a lapse of memory.Well all I have to say is shame on them.I hope to be back on the site later.But I just got back from the doctor and the pharmacy and you know what that feels like.Thank you my friend for your story.Wishing you a day without pain....Jo

    • scohoon
      Sep. 10, 2008

      I'm sorry to hear about your daughter's diagnosis. As a nurse myself I know the physical demands and pray she will be able to continue receiving the help and support she needs to continue in her profession. And she'll need to develop a very "tough skin" and stand up to her coworkers. I don't know why so many in nursing are so judgemental, it's like we eat our...

      RHMLucky777

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      I'm sorry to hear about your daughter's diagnosis. As a nurse myself I know the physical demands and pray she will be able to continue receiving the help and support she needs to continue in her profession. And she'll need to develop a very "tough skin" and stand up to her coworkers. I don't know why so many in nursing are so judgemental, it's like we eat our young! On my bad days I wish they could live in my body for one day. But then I get over it and go on. One of the first lessons I learned in nursing school was that as nurses, our most important job is to advocate for our patients. So I'll continue to do just that no matter what my coworkers think or say. My youngest son, age 23 also has FMS and suffers with debilitating migraines. He just became a father (8/25, a baby boy) and refuses to take any pain meds except tylenol or ibuprofen. Isn't is terrible watching our children suffer? Thanks for your reply to my comment and all the best to you and your daughter. Sue

    • Jo
      Jo
      Sep. 10, 2008

      Dear Sue,thanks for the comment about my daughter the nurse.I am glad that there are some of the medical people who are commpassionate.I have always been that way to members of my family who had to suffer needlessly just because a doctor says you must.What earthly purpose does that serve.I am sure if a doctor had to watch his child or mother or wife whimper...

      RHMLucky777

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      Dear Sue,thanks for the comment about my daughter the nurse.I am glad that there are some of the medical people who are commpassionate.I have always been that way to members of my family who had to suffer needlessly just because a doctor says you must.What earthly purpose does that serve.I am sure if a doctor had to watch his child or mother or wife whimper from pain for 10 years he would find a way to help the pain.I also worked at Mayo Clinic.And I was always getting into trouble by taking an extra 5 minutes to assure the 90 year old patient that she was told by her friends that they will make you get on that treadmill and go until you have a heart attack.I took about 5 minutes to explain to her that she was the boss.We would stop upon her request.She stopped shaking and held my hand tight.In my mind I felt a peace from God that today I helped one little person.To not be terrified.And I was reprimanded for it.But the only one who's judgment matters to me is that of God's.I would never change a thing if I had to live it over.I feel sad for those who feel they must dominate over people just because they have the power to.It is shame against the medical profession.Why then did they become doctors if not to help people.I am confused about what exactly do they think their role as a doctor or nurse is.I have found out the hard way that you cannot win against a multibillion dollar Corp.If the Mayo brothers knew how their name is being used they would turn over in their grave.There are a lot of good doctors there.But there are as much bad ones too.And they have Mayo backing them up to be albe to do or say what ever they want without fear of a lawsuit.So they do what ever they want.It is only the conscience of the good doctor that wins.And they are usually the ones that the administration runs off.I am sure that there may be some people who will not like what I have said about Mayo.I have 2 daughters that work for them.But you can only make something better from within.I did my best and lost my health for it.I am so sorry your son suffers from migraines.I have very bad headaches occasionally.But a migraine is terrible.I have an old friend of 55 years.Her husband has cluster headaches.Maybe this will help or maybe you already know about it.But he self injected with the consent of his primary doctor.I cannot remember the name of the med right now but you know what I mean.That quit working and they are trying oxygen at night.He says it is helping.I just thought I would tell you about that just incase you had not heard of it yet.Take care Sue and good luck with your family.....Jo

  • Anonymous
    Anonymous
    Sep. 05, 2008

    Frown I would like to make a comment about taking meds.I have lost the respect of my daughter,sister,and a life long friend.Simply because I take medications that give me some quality of life.I have even thought of  suicide.Thinking it would be better off for me to be out of pain.And for my husband who is the most understanding man in the world.To watch...

    RHMLucky777

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    Frown I would like to make a comment about taking meds.I have lost the respect of my daughter,sister,and a life long friend.Simply because I take medications that give me some quality of life.I have even thought of  suicide.Thinking it would be better off for me to be out of pain.And for my husband who is the most understanding man in the world.To watch him work hisself into the dirt.And then come home and cook and clean because I am unable to anymore.I have been made worse by some medical people who think I have a drug problem when what I have is a chronic pain problem.I have gone to church since I was 2 years old.I served 14 straight years in a row as a deaconess until I could no longer even sit for an hour to worship God and ask him to give these other people an understanding heart.It has been 11 years since I am unable to work.As I look back on my life I have done nothing that is bad enough to warrant not getting the respect I deserve.Even if I send them testemonies of people like yourself.Or even doctors and medical people who say we are undermedicated.I have suffered mentally as well.I have panic attacks.I know about them I have read all the literature in the world about all of the medical problems I have but they wont even read it.It is like they think we deserve to be in pain.I don't get it.I wouldn't wish this on my worst enemy.No one would I want to live through what I have.I wish there was some way that these people could have the issues pushed down their throat as nothing I have done will make them waver.My heart goes out to you.I have the same problem and have tried for 10 years to explain that my doctors are most highly repected with a lot of integrity.And it is difficult for them too as when they went to college and med school they were not taught how to treat chronic pain.I would like to hear what any body has to say on this subject.And how can we make them understand.God Bless You and I hope there will be an answer for us all someday.

    • Anonymous
      UnicornDeb
      Sep. 08, 2008

      Laughing   Oh how wonderful it would be, if someone in the medical world would understand this pain WE ALL live in, day in and day out!  That is my wish!  I have lived in cronic pain for the last 4 1/2 years. Seems alot less than most of you that have written in. So I feel for you all. Yes, I will live in this pain for the rest of my life. I am...

      RHMLucky777

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      Laughing   Oh how wonderful it would be, if someone in the medical world would understand this pain WE ALL live in, day in and day out!  That is my wish!  I have lived in cronic pain for the last 4 1/2 years. Seems alot less than most of you that have written in. So I feel for you all. Yes, I will live in this pain for the rest of my life. I am 52, have 4 children.  I am an only child. My died died suddenly of a massive heart attack... he had diebetes,  and a leg amputated 4 years before he passed.  3 years after he passed away... I found out I was diabetic with neuropathy....... I only discovered this, because, the pain in my feet got sooo bad, I could barely walk. So I went to the drs... he said.. right away.. when I told him of the pain in my feet... hmm...  You must be a diabetic.. he pricked my finger.. said.. yes, you are, and you have neuropathy.. I said what?? Well it took alot of reading etc.  to find out exactly what it was.  And yes, I have also tried the neurontin, cymbalta, lyrica, on and on.. All the combo's of meds.. that did NOTHING... not one thing for me. THEY ONLY thing that takes the edge off the pain.. is YES... narcotics..... sooo.. I live on 120 perocets a month. plus!  Duragesic pain patches.  and I had one neurologist I went to.. tell me... I was nothing better than a druggie OFF the street.. and any Dr that would give me narcotics... was nothing better than a drug dealer off the street.  Nice huh? OF course I never went back to him! I tried to turn him into my Ins. co... but... they just said basically how terrible it was of him to say that to me. But never reported him.. like I asked!!

      Anyway, yes, my mom, keeps saying to me.. aren't you afraid you are going to get addicted to them? Even my pharmacist, that I have known most of my life... once in a while.. will come out  and "chat" with me... only to say... sooo.. Deb... how are you doing? Haven't they found anything yet to help you? Sigh........ and my neurologist.. she is the one that gives them to me, and tries to "act" like she understands.........but she doesn't.  The pain patches.. say right on the insert... that they work... for 2 to 3 days... I keep telling her, yes, they work the 2 days.. but that 3rd day.. they do NOTHING.. .I am in sooo much pain on that 3rd day! But no, she will not give me enough, to cover that 3rd day!! Why.. are they willing to give you enough to help you make it though "part" of your ungodly pain....... but not ALL of it? I just do NOT get it?? I am constantly asked... IF I ever took drugs before in my life.. the answer is NO.. if I drink alcohol -- NO I have never been a drinking.. ever.. and NOT now either.  I am one, that has to have a "clear" head.  I do not like feeling "fuzzy" or "high" or whatever you want to call it. I do not get "high" from  my narcotics.. ever.  they just barely take the edge OFF my pain.. thats it!  I know I will never be pain free. I totally realize that.  But at least the 2 days.. I take the pain pills and the patch.. I can manage. That 3rd day... I suffer terrible.  This is no way to live. But its all I have.  I have already been to acupuncture.. to two different pain clinics... hopefully will be going to my 3rd one  in the near future in Boston.  Even though.. the other ones have said.. there is nothing more they can do for me!!!  I have tried a trial spinal implant...that didn't work either!!

      oh well........ I wish everyone luck.. and hope that someday.. They will find something to help us ALL.. and more understanding Drs.   Drs.. that aren't afraid to LISTEN to US.. to understand what WE need.

      Understand.. that WE are the ones living in these bodies.. that are full of pain!!!

      hugs to all..

      debbie  :)

    • Burney
      Sep. 19, 2008
      To our annonymous entrant; How unfortunate it is that the truth happens to be that others who do not live with chronic pain simply cannot and will not ever possibly understand and there is absolutely no way on Earth to "make them understand" what any of us feels on a daily basis, much less our struggle, minute by minute of every day. Years ago my own father...
      RHMLucky777
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      To our annonymous entrant; How unfortunate it is that the truth happens to be that others who do not live with chronic pain simply cannot and will not ever possibly understand and there is absolutely no way on Earth to "make them understand" what any of us feels on a daily basis, much less our struggle, minute by minute of every day. Years ago my own father thought the worse about my struggle with pain too, despite my terminal diagnosis/prognosis. He'd tell me to "buck up" and "quit making all those annoying sounds" said, he'd show me pain if I didn't shut up. He simply 'assumed' that even with terminal Cancer, one only needed pain medicine IF and when they were in hospital and undergoing chemo at that very moment. He didn't know what the side-effects of any of my treatments were either. He accused me of trying to become an anorexic or bullemic (sorry, that one still illicits uproarious laughter! LOLOL)For an educated man this was incredulous! Of course, he couldn't have been any more wrong about his assumptions. It wasn't until he grew older and more infirmed himself that he even began to have the slightest idea of what it has been like to live with pain like we all do. Just as with so many things, no one truly can comprehend the full extent of the damage it does until they have experienced it themselves. So sad, but true. You wouldn't expect that kind of attitude from someone whose own child has terminal Cancer. Naturally I was shocked and utterly convinced he didn't love me or care. But no, he was simply ignorant. Yes, I'm afraid it's true, all people are ignorant. You and I and the guy next door too-everyone is... we're all ignorant about something! No matter how much education or common sense anyone has they won't understand until they too have experienced it for themselves. It's like trying to explain labour pains to someone who's never given birth to a child or worse yet, a man. *smile*
    • Burney
      Sep. 19, 2008
      Deb, you said; The pain patches.. say right on the insert... that they work... for 2 to 3 days... I keep telling her, yes, they work the 2 days.. but that 3rd day.. they do NOTHING.. .I am in sooo much pain on that 3rd day! But no, she will not give me enough, to cover that 3rd day!! Why.. are they willing to give you enough to help you make it though "part"...
      RHMLucky777
      Read More
      Deb, you said; The pain patches.. say right on the insert... that they work... for 2 to 3 days... I keep telling her, yes, they work the 2 days.. but that 3rd day.. they do NOTHING.. .I am in sooo much pain on that 3rd day! But no, she will not give me enough, to cover that 3rd day!! Why.. are they willing to give you enough to help you make it though "part" of your ungodly pain....... but not ALL of it? I just do NOT get it?? Well, I can't say with absolute certainty, but I have a theory or two. 1st. Gov. regulation disallows the dispensing of narcotic analgesics without titrating your dosage. In other words, it takes time to get to the level you may acyualy need to be to relieve your pain for the most part. Don't give up and never stop telling your physician that it's NOT strong enough IF it isn't. 2nd. They have what's referred to as "protocol" and that means they must try a.), b.), c.) & d.), FIRST. Doctors are in the business of Healing People. It's very frustrating to the average doctor when he/she cannot "fix" you. So, do try to be as patient as you can with them, but persevere! Or find another doctor that specializes in Pain Management. That, in and of itself, is probably where you'll end up eventually and the sooner the better for you it would seem.
    • UnicornDeb
      Sep. 23, 2008

      hi Burney...  well I have been on this dosage for over 4 years. I have tried to tell her several times, that this dosage isnt working for me .. She just looks at me, smiles and shakes her head. And says.. well you know how much I hate you on narcotics as it is. And when I try to explain to her, exactly what the insert says, and how my pain is, she won't...

      RHMLucky777

      Read More

      hi Burney...  well I have been on this dosage for over 4 years. I have tried to tell her several times, that this dosage isnt working for me .. She just looks at me, smiles and shakes her head. And says.. well you know how much I hate you on narcotics as it is. And when I try to explain to her, exactly what the insert says, and how my pain is, she won't listen, she just continues to shake her head. Now, my counselor, is right next door to her. And they are good friends. So, I have of course, told my counselor this.. many times. SO, my counselor said.. what Deb, do you want ME to talk to her?? I said, no.. thats NOT your job. So she said, I will if you want me to. I still insisted NO. So she said.. well then YOU HAVE TO.. you have a right to tell her of your pain and what YOU need! I said look Kathy, I have tried, many many times. And I told her what her response was every time! She said, well keep at her, keep telling her!! I said no, Kathy, I give up! I have told her, and you have NO clue what it is like, to keep telling her, and have her looking at you like you are a drug addict. And the reaction is the same every time I tell her! so I will NOT tell her again, I have told her enough, she will NOT listen to me.  But I went to Kathy last monday, and she insisted I tell her again. I go back to see my neurologist next week.. I see her once a month for my narcotics. I still havent decided IF I will say anything as of yet. Sigh.. I just don't know IF I can take her reaction ONCE more.. I will think about it.. we will see!
      thankyou for replying :)

      Debbie...

       


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  • thedubrat
    Sep. 05, 2008

    We are all out here. At one time or another I'm fairly sure we all have dealt with it. I myself no longer have any friends to drop by and my family is on me constantly. They watch me take all these pills and still walk & talk. I told them if I wanted to get "high" it would talk a whole lot more that what they thought. As my docs have told me, bless them,...

    RHMLucky777

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    We are all out here. At one time or another I'm fairly sure we all have dealt with it. I myself no longer have any friends to drop by and my family is on me constantly. They watch me take all these pills and still walk & talk. I told them if I wanted to get "high" it would talk a whole lot more that what they thought. As my docs have told me, bless them, if you need it, you won't get "high", it will just relieve or at least help with the pain. If you are drug-seeking a person would act "high", all jumpy or all floaty or whaterver high they are looking for. My family gives me grief at least once a week. My SO of 14 years left way before I even got to this point, said he could not take what was happening to me, whoo hoo, how do you suppose I felt? Try to learn to let it roll off your back, that is the absolute hardest thing I have had to deal with, all the harsh, ugly comments from family, friends, co-workers before I had to leave because of the pain, and absolute strangers like your pharmacy worker. I have a little mantra that I read to myself daily, feel free to copy it and use it to suit you if it will help. Keep that chin up and head high and keep walking for as long as you can, walk. I have my days and tears still, but I know I am in the right on this and my docs back me and I get back level fairly quickly. God Bless and Good Luck

      Wheel Chair  thedubrat      

    Rheumatoid Arthritis Fighter

     Reading  Studying     Studying for a cure

     Angel 3 Love and Prayers to You & Yours  

    Please light a candle in memory of my grandson Devan DuPerry by visiting
           
    http://devan-bright-eyes-duperry.memory-of.com

     

  • ltassone
    Sep. 04, 2008

    It was mostly by my family! Was lucky enough to find a decent pain doctor.  She now however will no longer be prescribing Medication.  So I found a new Doctor and Have no clue if she will be as good.  Basically the hospital no longer wanted this because there is more money in treating pain with injections and epidurals.  None of which work...

    RHMLucky777

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    It was mostly by my family! Was lucky enough to find a decent pain doctor.  She now however will no longer be prescribing Medication.  So I found a new Doctor and Have no clue if she will be as good.  Basically the hospital no longer wanted this because there is more money in treating pain with injections and epidurals.  None of which work for me.  I am allergic to anti inflammatories and neurontin, lyrica, and cymbalta were a bust.  There have been numerous other treatments tried that have failed also.  My husband and Sister had me feeling so guilty for being on a narcotic!  They even had me convinced I was a drug addict.  This past July I decided they must be right so I checked myself in to detox!  Oh man, was that crazy.  It didn't take me long to discover that I may have been physically addicted to my medication, Mentally I was not (by the way they gave me sumboxone for the withdrawl and it worked great).  I took my medication as prescribed, didn't doctor hop, didn't buy street drugs and went to the same pharmacy for my medication.  Unlike everyone else in there for narcotic addiction.  When asked the most drugs taken in a day replies from the patients were anywhere from 50 to 100 pills in ONE day! Usually vicodin or Nocor....(and of course Heroin) either bought on the street or stolen from the Hospital they worked in.  I was on Kadian...2'xs a day and Feoricet for the headaches (that I will not take again) That I did take to many in a day of (anywhere from 5 to 8) but did not go over my prescribed amount.  It just wasn't helping and would cause rebound headaches so am better off without it.  After being in for 2 1/2 days I also discovered my insurance was only paying $300 a day.  That barely covered food cost.  I ended up leaving early, thank goodness.  It was Crazy! I felt like I should have lied or pulled out a needle and started shooting up to justify me being there. Now I am waiting for monday for my appointment with the new pain doctor and wonder what the heck to tell her.  My pychiatrist knows about the detox cuz he admitted me. But knew I may still need to take narcotics.  He also was kind enough to prescribe me some Hydrocodone until my appointment (takes some of the edge off but not much).  Why the treatment center even admitted me in the first place is beyond me.  I imagine they thought I lied about the amount I took and why.  Who knows.  Now we have a huge bill to deal with and I have a record saying I am a substance abuser.   Since that should be private it should be ok but is it really private?  Enough is enough.  No longer will guilt plague me if narcotics are needed.  If this new doctor that has something else that will help....that would be wonderful!  If not then so be it!  The good out of it?  My husband felt horrible for doubting me.  But you know what?  He was just worried about me.  Of course I didn't let him off the hook until I read him the riot act but now finally he is more understanding.  As for the rest of the family....who knows.  It's my daughters and husband that live with me and know what I go through every day that matter most.  The others don't.  So to them I say; GET OVER IT! 

    • Burney
      Sep. 19, 2008
      Hope this helps some! Re: "I imagine they thought I lied about the amount I took and why. Who knows. Now we have a huge bill to deal with and I have a record saying I am a substance abuser. Since that should be private it should be ok but is it really private?" It honestly matters not what anybody thought at the time. Most importantly it appears that you have...
      RHMLucky777
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      Hope this helps some! Re: "I imagine they thought I lied about the amount I took and why. Who knows. Now we have a huge bill to deal with and I have a record saying I am a substance abuser. Since that should be private it should be ok but is it really private?" It honestly matters not what anybody thought at the time. Most importantly it appears that you have proven to yourself, spouse and children that you are NOT an addict or substance abuser! Personally, I'M PROUD OF YOU! Way to go, M'Lady! Insofar as the 'perceived lie...' (thinking you mean while you were in detox/hospital) Now, you say that your psychiatrist admitted you, but did he really or did he simply make a "referral" professionally and set up your admission? OR did he actually have to FORCE you to be admitted? You see, when you enter a psychiatric facility, you go in only one of two ways -- by either signing yourself in ~OR~ forcibly. The later way is what's called a ' Physician's Emergency Committal ' Given that you stated that others actually convinced you that you had a problem, it was no case of "denial" (a part of the addiction process) and I do believe every human is still entitled to make a mistake now and again, right? RIGHT! We are only human. And I would be VERY specific about that point of the matter, should you find yourself needing to discuss it. I sincerely doubt your own psych. Dr. would've admitted you (even if only by referral) and then prescribe opioids for you IF he honestly felt you HAVE a problem. Why? Because such actions could be viewed as unethical or unlawful. ALL physicians, nurses, law enforcement, etc., are required to report anyone whom they consider to be in danger of harming themself or another. Just stand firm and calmly explain how it was a mistake. BUT only if their attitude dictates that you must explain. While I don't advocate not telling your new Dr. that you're seeing a psych. Dr, but you might ASK your PSYCH. Doctor (if he's NOT going to prescribe narcotics for you in the future) IF HE FEELS it's even necessary to release anything OTHER than dates of treatment, diagnosis and any other Rx he may still need to prescribe to you, to the new pain Dr. He may agree that sending anything more is unnecessary. Most psych. Drs. typically DO NOT release their own notes taken during your actual therapy. It's unfortunate to see so many folks not knowing or understanding their Patient Rights. YES, we all HAVE patient rights! The HIPPA act controls what info. may be released and to whom -- get a copy from any pharmacy or Dr.'s office or go to http://www.hhs.gov/ocr/hipaa/ YOU control what IS and ISN'T released, If they request your entire record, calmly explain a minimum of info., ONLY if asked directly, and request that your psych. Dr. write a Personal Letter of Referral (vouching for your honesty) to take with you just-in-case you are asked about it by the new Dr. That should be all they could possibly require to convince them of your trustworthiness. Good Luck and Best Wishes for Brighter Days! -- Burney
  • Anonymous
    jcphan3
    Sep. 04, 2008

    My daughter is 31 years old and suffers daily with chronic pain and has been lectured, snubbed, rejected as a patient, and in other ways treated as though she has chosen to hurt so that she can obtain meds and currently not being adequately medicated for pain out of fear or out of ignorance...I thought a physicians first duty to a patient is to relieve their...

    RHMLucky777

    Read More

    My daughter is 31 years old and suffers daily with chronic pain and has been lectured, snubbed, rejected as a patient, and in other ways treated as though she has chosen to hurt so that she can obtain meds and currently not being adequately medicated for pain out of fear or out of ignorance...I thought a physicians first duty to a patient is to relieve their pain?  We need patient advocates who will intervene to the "powers that be" for you and my daughter and all those like you so that their pain will be alleviated instead of being recommended tor drug rehab.  My daughter will have to take pain meds for the rest of her life(barring divine intervention) and she should receive help and not condemnation!

    • Burney
      Sep. 19, 2008
      Yepp, been there and done that. Then with assistance from my own Mother, determined myself to never be anyone's victim again. Check out the laws for the State/Province/Parrish where you live. Chances are, they have laws to protect patient's rights! Do a search, example: Pain Law Delaware (input name of your region, instead)... The first step to educating anyone...
      RHMLucky777
      Read More
      Yepp, been there and done that. Then with assistance from my own Mother, determined myself to never be anyone's victim again. Check out the laws for the State/Province/Parrish where you live. Chances are, they have laws to protect patient's rights! Do a search, example: Pain Law Delaware (input name of your region, instead)... The first step to educating anyone is educating yourself on your own rights! I feel for your daughter. Help her Mom. She needs YOU to do so!
  • abbyinokc
    Sep. 04, 2008

    I can totally relate to this.  Most of my family as well as many "friends" judge me this way.  I suffer from chronic pain, fibromyalgia, osteoporosis with a "grade 1 wedge deformity of the spine" which is basically a hairline fracture, esophagitis, GERD, TMD (TMJ), diverticulosis, hiatal hernia, anxiety, IBD, thoracic scoliosis, atherosclerotic disease...

    RHMLucky777

    Read More

    I can totally relate to this.  Most of my family as well as many "friends" judge me this way.  I suffer from chronic pain, fibromyalgia, osteoporosis with a "grade 1 wedge deformity of the spine" which is basically a hairline fracture, esophagitis, GERD, TMD (TMJ), diverticulosis, hiatal hernia, anxiety, IBD, thoracic scoliosis, atherosclerotic disease of the abdomen/pelvis, and a tumor IN my left adrenal gland which causes a multitude of symptoms.  Back in 2003, after pleading with my pcp doctor for 2 years prior,  (ALL doctors I see believed I was a "druggie"),  they FINALLY put me on Lortab 7.5 mg along with Zanaflex 4 mg and I have been on it ever since.  My pcp doctor will only "allow" me to take 2 of each a day.  I wake up around 5 to 5:30 a.m. and take my first round, suffer throughout the middle of the day until around 1 to 2 p.m. in the afternoon when I take the 2nd round.  Heaven forbid if I ask for more!!  My pcp doctor will only give me 60 a month.  He, as well as all the specialists I see, tell me "oh sure, it's okay if you're having a really bad pain day to take more", but I will tell them great...but when I run out before my prescription is due again, then what do I do??  And what about the months where there are 31 days??  Why don't I get 62 for those months?  Read the literature that comes with these medications and how DANGEROUS it is to just STOP taking them after being on them for so long!  I did some research through the Oklahoma State Board of Medical Licensure and Supervision wherein it states "Pain should be assessed and treated promptly and the quantity and frequency of doses should be adjusted according to the intensity, duration of the pain and treatment outcomes.  Physicians should recognize THAT TOLERANCE AND PHYSICAL DEPENDENCE ARE NORMAL CONSEQUENCES OF SUSTAINED USE OF OPIOID ANALGESICS AND ARE NOT THE SAME AS ADDICTION.  It also states that "Inappropriate pain treatment may result from physicians' lack of knowledge about pain management.  Fears of investigation or sanction by federal, state and local agencies may also result in inappropriate treatment of pain.  Appropriate pain management is the TREATING PHYSICIAN'S responsibility.  As such, the Board will consider the inappropriate treatment of pain to be a departure from standards of practice and will investigate such allegations, recognizing that some types of pain cannot be completely relieved, and taking into account whether the treatment is appropriate for the diagnosis".  It also states "Physicians should not fear disciplinary action from the Board for ordering, prescribing, dispensing or administering controlled substances, including opioid analgesics, for a legitimate medical purpose and in the course of professional practice".  I keep a copy of this with me at all times.  If more doctors understood all of this I think they'd be more likely to treat your pain.  An experience I just recently went through...I see 2 digestive specialists, one for my colon problems, another for my stomach problems.  About 4 months ago, after enduring so much pain I could barely take it, stemming from the multitude of digestive problems, I actually got my colon doctor to prescribe me 30 Lortabs of the same  strength so I could at least have ONE to take during the middle of the day.  Heaven forbid I should ask my pcp doctor to give me more!  And yes, every single one of the doctors I see each know what the other is prescribing me, I WANT THEM ALL TO KNOW and be on the "same page" with each other.  Well, I use Walgreens for my pharmacy and have used them since first being prescribed the pain pills/muscle relaxers.  I got online with Walgreens as I usually do, to get the Lortab from my colon specialist refilled.  Walgreens sent me their "confirmation" email that my pills were ready to pick up.  I waited until the next day and drove up there to pick them up, only to be told they were not ready...I said what????  But you sent me an email telling me they were.  The pharmacist says "well we haven't heard back from your doctor".  Again I was like what???  Then why did you send the email saying they were ready to pick up??  Finally, he tells me..(and mind you this is after getting them filled for the past 4 months with NO problems), well we see where you're getting these from two different doctors.  I said yes I am and ALL OF THE DOCTORS I see know this!!  I asked the pharmacist "why are you just now having problems with this when I've been getting them filled now for 4 months with you?"  He couldn't respond to that question.  So he told me to go home and call my colon specialist and see what he could do about this and I did.  I spoke to his nurse and told her what was going on..she said the same thing.  Well you're getting the Lortab (they don't care about the muscle relaxers), from your pcp doctor.  I said yes, and you all have known this since I started coming here!!  I told her go get my file and you will see it written down in my file that my pcp doctor gives me these and THAT I DID TELL YOU THIS!!  She did get my file and did see this and after all this b.s., finally "got it"...and called Walgreens to let them know it was okay to go ahead and fill them for me!!  Well then, later that afternoon, Walgreens sent me another email now saying they couldn't fill them because my insurance would not okay them!!  So I called Walgreens and said what in the heck is going on??  She said "your insurance won't approve them until September 16th!!  I said well if the insurance won't cover them until then, then you use my free drug card (go to www.freedrugcard.us), and I will just outright pay for them by using that.  So you'll know, this particular pharmacist at Walgreens treated me like crap!  Acting like I was the one doing something wrong here!  She tells me okay then that'll be 11.00 and I said okay I'll come get them and she proceeded to just hang up on me!!  I took one of my best friends with me in order to have a witness..because I was ready to "raise some hell" with this lady for being so rude to me.  Of course, she had already gone by the time we got there.  I understand that the DEA is freaking out on people that go "doctor hopping" in order to get pain pills.  BUT I AM NOT ONE OF THEM!!  I tell ALL of my doctors everything.  I let them ALL know what the other is prescribing me.  I am not trying to "hide" anything or go "doctor hopping"!!!  So I have my doctors judging me, the pharmacy, family, friends which only adds to my anxiety levels which leads to MORE PAIN.  You can't win for losing at times!  I am going crazy having to deal with this every single time I have to get my refills!!  Sorry to go on about all of this...but this all just really strikes a nerve in me big time.  Thanks for letting me share my story.

    • Jo
      Jo
      Sep. 08, 2008

      Jo here,I first of all feel so much kinship with you and your problems.My pharmacist takes it upon hisself whether he thinks what I am taking is right or not.Even when  a doctor has written it.There are 8 months in the year with 31 days.So say for instance you take 6 pills a day.If there are 3 months in a row that have 31 days you are going to be ...

      RHMLucky777

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      Jo here,I first of all feel so much kinship with you and your problems.My pharmacist takes it upon hisself whether he thinks what I am taking is right or not.Even when  a doctor has written it.There are 8 months in the year with 31 days.So say for instance you take 6 pills a day.If there are 3 months in a row that have 31 days you are going to be  3 times 6 which is 18 pills short.I talked this over with my psychiatrist and he said you are right,So he wrote it for 31 days and it was the insurance company that denied it.So if that is your pet peeve.Which it really is one of mine too.Maybe by telling you that information you may have contacts that this info will help you and there fore help us all.God please help us all........Jo.....gotta lay down.Had a hard day with the doctor and pharmacy....My prayers are for everybody....Jo

    • makeupgal
      Sep. 14, 2008

      A great idea for the running out of meds on a 31-day month problem, is what my Pain Doc does: Writes them for 28 days.  Period.  Month after month.  Just as you stated, a month does not contain the same number of days.  Just ask your prescriber to write them for either exactly 28,or 30 days.  I get #56 of a med I take twice a day for...

      RHMLucky777

      Read More

      A great idea for the running out of meds on a 31-day month problem, is what my Pain Doc does: Writes them for 28 days.  Period.  Month after month.  Just as you stated, a month does not contain the same number of days.  Just ask your prescriber to write them for either exactly 28,or 30 days.  I get #56 of a med I take twice a day for instance, not the #60 most would think.  Then what happens to day 31 in a month?  NO meds?  And he is kind enough, and knows me well, to give a set number of one med, which contains #20 more than the exact 28 day supply.  For the REAL BAD DAYS I get less than one pill per day for a month.  But I am so grateful that he thinks that way, yet still is extremely careful about changing meds or doing it often I should say, I just trust him so much!! 

       

      Try out the #28 days, it is EXACTLY 4 weeks apart for any needed visits!!  Cool

    • Burney
      Sep. 19, 2008
      I felt a strong need to reply to this post since what this dear lady is saying is the honest truth! If you have the need to take opioids on a daily basis, please get your physician's office to "get with the program!" You should reschedule ALL monthly appintments no more than precisely 28 days apart (4 weeks) and make sure they COUNT those days/weeks with exact...
      RHMLucky777
      Read More
      I felt a strong need to reply to this post since what this dear lady is saying is the honest truth! If you have the need to take opioids on a daily basis, please get your physician's office to "get with the program!" You should reschedule ALL monthly appintments no more than precisely 28 days apart (4 weeks) and make sure they COUNT those days/weeks with exact precision. If the receptionist refuses, ask to speak to the office manager. And know, in advance, exactly which day you will need to fill your meds or schedule that next appointment with your doctor. You'll stop being looked upon by your pharmacist as an "early-bird" refiller. Since I, too, take an extended release as well as break-through dose of a short-acting opioid as well, I make certain that they never mess with that because with the level of meds I'm on, I'd wind up in hospital if I were to miss two doses of the long-acting opioid in a row. Not all doctors know about doing the 28 day scheduling. ENLIGHTEN THEM! By helping them learn to understand what your needs are. If they refuse to get it, find another doctor who does! Take responsibility for your own health and refuse to be a victim! As for those of you still dealing with ignorance, whether it be your family, friends, chemist/pharmicist or whomever else; A.) consider contacting your insurance company or filing a complaint with your Ombudsman (that's a representative that works for them but works with YOU like a social worker of sorts) or B.) see the social worker at the hospital where your doctor is associated. Most hospitals or insurance companies have an Ombudsman or social worker who can assist you. If nothing else, C.) contact Legal Aid or even your State's Dept. of Human Services (or equivilent) and ask them to direct you to an advocate who can assist you in filing a complain with the state's board of physicians if you're being refused proper pain relief and have not been refered to a pain specialist. THIS IS VERY IMPORTANT --> Also, the second point of the 28 day med cycle is having the doctor write your Rx as 1, 2, 3 or 4 per day, instead of 1 every so-many hours. Be responsible for your own health by getting involved with your own treatment by telling the doctor or receptonist precisely what day/date you should be returning. When it comes to family, friends and other non-professionals, offer them the choice to be either in or out of your life. You are who you are and through what has likely been no fault of your own, you are UNWELL and need medication... tell them they can either take it(you) or leave it(you)... END OF STORY. This is what's called Tough Love. If they are so selfrighteous to continue judging you after you do your level-headed best to explain your condition (though you DON'T HAVE TO, medical info. is priviledged and private info.), they'll never get it.. forget them! And if they REALLY love you, they'll try to get it or accept you for who you are--with or without meds!
    • Dawn
      Nov. 18, 2010

      This is so sad!  What is wrong with people???   Im having the same problem and my Dr actually just dumped me!!  She changed me from percocet to tramadol which does NOTHING and I've been calling the office crying for pain relief and my life back!!!  Now they just dont take my calls!!  Is this legal???

      She did discograms, nerve ablations,...

      RHMLucky777

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      This is so sad!  What is wrong with people???   Im having the same problem and my Dr actually just dumped me!!  She changed me from percocet to tramadol which does NOTHING and I've been calling the office crying for pain relief and my life back!!!  Now they just dont take my calls!!  Is this legal???

      She did discograms, nerve ablations, epidurals and any other procedure which involves ramming a needle up my back in the last year alone...all to suck every drop of money from my insurance!!  She actually caused permenant nerve damage in my leg and foot from the last procedure and now that the funds are dried up she dumps me??  Im in MORE pain now than when I started seeing her 3 years ago!!!!

      I suffer from 3 herniations in back with tearing of the disc...2 in my neck, 1 bulging, arthritis/degenerative disc disease and now this year diagnosed with fibromyalgia on top of it....Not to mention I have polycystic ovaries which causes EXTREMELY painful periods!!!  I cant take much more!!!   Im raising a 4 year old disabled child ALL alone and if it wasnt for him I would have killed myself to end this misery!!!!

      I guess in order to survive I will have to turn to the streets to buy pain drugs illegally like the rest of the drug addicts!!!!  THANK YOU FOR CARING DOCTOR!!!!

       

  • Anonymous
    deborah 56 yrs ...
    Sep. 04, 2008

    i have the same  problem 5 years i have endured surgerys, physical therapys, several injections im put togerther with plates and screws, ive tried accupunture, but yet im still getting out of  bed when i can with vicodin or norco, short term pain release, people think im a druggie, or there trying take them from me, when that happens i crie in pain,...

    RHMLucky777

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    i have the same  problem 5 years i have endured surgerys, physical therapys, several injections im put togerther with plates and screws, ive tried accupunture, but yet im still getting out of  bed when i can with vicodin or norco, short term pain release, people think im a druggie, or there trying take them from me, when that happens i crie in pain, i get funny looks when i pull in a handicap spot, and i have handicap  plates  but i still get dirty looks and people trying to beat me to it and their not legal just in a hurry. i worked in shops building office furniture, welding, lifting and making car and truck bumpers all heavy work so i endure pain day and nightand people who mis use drugs make my life hell there the druggies , and im in need life without pills to get my life back, somedays i wish i was dead, but im trying to be strong to bake cookies 4 my grandchildren, and watch them grow.

    • Sandy
      Sep. 15, 2008
      Hi there, I know exactly what you mean by the dirty looks and the handicapped parking. May I make a suggestion? I don't know how stable you are but I finally had to break down and buy a cane. I decided to get one tyhat was coloprful. So I have one with flowers and one with butterflies. Canes are not that expensive and anyone can use a cane for some stability...
      RHMLucky777
      Read More
      Hi there, I know exactly what you mean by the dirty looks and the handicapped parking. May I make a suggestion? I don't know how stable you are but I finally had to break down and buy a cane. I decided to get one tyhat was coloprful. So I have one with flowers and one with butterflies. Canes are not that expensive and anyone can use a cane for some stability assistance. Unfortunately I have had to progress to a walker. First I used the aluminum one. I did OK with that psychologically. Unfortiunately I have problems with falling. I have lousy balance, non-functional sight aqnd once I start to fall I seem to be u8nable to do anythiong to cvatch myself. Hense am proken kneecap and later a torn rotator cuff. There are 3 main tendons in the rotator cuff. I tore one 90%, the 2nd one 50% and considewrably less on the thirtd one. Nonetheless, it does require surgery. So I finally had to get one of the 4 wheeled wa;lers with a seat. It was difficult because I could always tell myself nothing bad was wrong becausew people used the aluminum walkers for temporary condicitons. But moving into a rollator type walker seemed to be more of a commitment or even giving up. But it certainly has made it easier for me to go places. Now I am not suggesting that you have to get a waslker- altho if you ever do, email me and we can talk through this one. But I found that just the cane, and I didn't haVE to look like an invalid when I was walking with it either, seemed to help people relax about the hjandicapped plates and sticker. When you think about it, those people are just trying to make sure that that privilige is not abused. That means it will be available when we need it. And sense it is, perhaps we have them to thank just a little. Copnsider my suggesteion if you will. Write me back if you have any quesrtions or feedback about the way I did it if you would, OK? My sight is not sufficient to read what I have written here tonioght. Usually I can get my computer to enlarge it enough that I can read it. But tonight either my eyes have given up for the night or my machine is just not cooperating. So please read through the misspellings et al if you would . If there is anything you just cannot decipher, write me back and perhaps tomorrow when I sign on things will be better. So to you iI send an unproofed note. I do apologize but it is the best I can do tonight! Take Care, Sandy
    • deb0911
      Sep. 16, 2008

      sandy, got yr email, we have alot in common, i also have eye problems, glucoma and cararacs, also misspelling, ive been very busy and i had to go buy a new computer so this one is about shot i will email back in a couple of days after the new computer is set up thankyou 4 the advice will get back to u asap. thanks try to have a good day. i know its hard. deb...

      RHMLucky777

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      sandy, got yr email, we have alot in common, i also have eye problems, glucoma and cararacs, also misspelling, ive been very busy and i had to go buy a new computer so this one is about shot i will email back in a couple of days after the new computer is set up thankyou 4 the advice will get back to u asap. thanks try to have a good day. i know its hard. deb davis

  • Anonymous
    Brenda
    Sep. 03, 2008

    I know exactly what you're going through. I almost died a couple of months ago due to an ER Dr just assuming I had just taken too many pain pills when my family found me past out at the computer. I was in renal failure due to bactrim, an antibiotic. He wasn't even going to do bloodwork until my daughter demanded it. I spent 3 days in ICU and 2 days out...

    RHMLucky777

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    I know exactly what you're going through. I almost died a couple of months ago due to an ER Dr just assuming I had just taken too many pain pills when my family found me past out at the computer. I was in renal failure due to bactrim, an antibiotic. He wasn't even going to do bloodwork until my daughter demanded it. I spent 3 days in ICU and 2 days out on the floor. I'm so tired of people just assuming I'm a drug addict, even though I have several disabilities and am on SSDI.

  • Anonymous
    Beth
    Sep. 03, 2008

    I get judged by my own family!! I have fibromyalgia and have had it now for almost 10 years. After trying SEVERAL different meds from anti depressants to epilepsy drugs to about 20 different other meds without any relief whatsoever my doctor put me on Oxycontin 3 times per day. Does it take my pain away? Not completely but makes it more tolerable. I actually...

    RHMLucky777

    Read More

    I get judged by my own family!! I have fibromyalgia and have had it now for almost 10 years. After trying SEVERAL different meds from anti depressants to epilepsy drugs to about 20 different other meds without any relief whatsoever my doctor put me on Oxycontin 3 times per day. Does it take my pain away? Not completely but makes it more tolerable. I actually have some what of a life back thanks to oxycontin and it giving me some relief from this god awful pain. Ofcourse I have a family who alreadt thing fibromyalgia is "all in my head" then add that now I take oxycontin!!! They actually held a family "intervention" for me!! I take just what my doctor prescribes me and no more. It's realy something when you are judged by your own family!

    • Sandy
      Sep. 21, 2008

      Hi there Beth,

      I am sorry you are getting such a hard time from everyone. People just fear things they don't understand. And instead of dealing with their own fears, they dump it off on us!! I too have been through every prescribed and OTC medication and have not yet found anything that takes it all away all the time. The Oxycontin is one of the meds I take....

      RHMLucky777

      Read More

      Hi there Beth,

      I am sorry you are getting such a hard time from everyone. People just fear things they don't understand. And instead of dealing with their own fears, they dump it off on us!! I too have been through every prescribed and OTC medication and have not yet found anything that takes it all away all the time. The Oxycontin is one of the meds I take. Its a scary drug even for me. But it does provide some relief and like you, I cannot live with the level of pain I feel without any medication. I did try a somewhat new medication which has provided me with some more relief. You may have tried it yourself. If not find out if your Dr will try you on Lyrica. When I took it 3 times a day, I got some pain relief but all kinds of neurological side effects too. So now I take just 1 Lyrica a day, along wiuth the Oxycontin, Hydrocodone,Dolobid, Xanafles, Soma, etc... and it does seem to take care of a different part of the pain. Anyone who has been in pain for 15 -20 years knows that there are different kinds of pain. And some medications are more effective with different types of the pain.It may take a collection of medications to provide more widespread benefit for you.

       

      Well I have gone on and on again. But what I guess I am trying to say is that sometimes it takes a lower dose combination of several similar mediucation to be most effective with the "total" pain. I hope this makes sense to someone and maybe even be helpful to someone. Hang in there. If you haven't yet tried the Lyrica, it may be worth considering.!

      Sandy

       

      PS Lyrica is not a Narcotic

    • Anonymous
      Beth
      Sep. 21, 2008

      Hi Sandy, yes I have tried Lyrica as well as Cymbalta. I was completely loopy on Cymbalta. It actaully made me feel like I was out of my mind. So then the doctor tried me on the Lyrica and had god awful side effects to that as well. So that kind of just leaves me now with the Oxycontin which having been on it for while now I have absolutley no side effects...

      RHMLucky777

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      Hi Sandy, yes I have tried Lyrica as well as Cymbalta. I was completely loopy on Cymbalta. It actaully made me feel like I was out of my mind. So then the doctor tried me on the Lyrica and had god awful side effects to that as well. So that kind of just leaves me now with the Oxycontin which having been on it for while now I have absolutley no side effects to it anymore. I am also on Xanax for panic/anxiety and Flexeril(which is a muscle relaxer) and normally only take that at night becuase it helps me sleep or only during the day if I'm having a bad fibromyalgia flare up. I wish just one of my family members could walk in my shoes for even just one hour to understand the pain I put up with everyday and then just maybe they would understand why I take these pain meds. And seriously that's I think all it would take is one hour becuase I don't think they could even deal with this pain for even one lousy hour.

      Beth

  • Anonymous
    Anonymous
    Sep. 03, 2008

    I too have had major problems from others, not to mention the medical community because of my medications that I've had to take for pain control.  I had a doctor whom I went to see for a female problem stand right in front of me and actually accuse me of being a drug addict because of the heavy narcotics that he found on the federal data base that I had...

    RHMLucky777

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    I too have had major problems from others, not to mention the medical community because of my medications that I've had to take for pain control.  I had a doctor whom I went to see for a female problem stand right in front of me and actually accuse me of being a drug addict because of the heavy narcotics that he found on the federal data base that I had used in the past. 

     

    So, let them talk, but do keep track of who prescribed what and when so that if you ever run across this situation in your life, you have a record to prove that your not showing a "drug seeking" behavior. 

  • annebeckett
    Sep. 03, 2008

    Yes I am having a really difficult time with a pharm-- who has NO idea what I am going through.  She seems to think I should have healed from a surgery that is ONLY part-done.  Right now, I have NO jawjoint due to infection in the prosheses and the mandible.  Having only one when they are supposed to work together is incredibly painful-- every...

    RHMLucky777

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    Yes I am having a really difficult time with a pharm-- who has NO idea what I am going through.  She seems to think I should have healed from a surgery that is ONLY part-done.  Right now, I have NO jawjoint due to infection in the prosheses and the mandible.  Having only one when they are supposed to work together is incredibly painful-- every day alll day and while taking meds.  SO, I don't think I should have to deal with her judgements, either,

    You MAY want to take one or two people aside and explain where you are.  Generally, when they understand why you are where you are and, that of course, you don't like it either, they can open their eyes and minds.

    In the meanwhile, I get it and I feel for ya!

    @

    • Anonymous
      Anonymous
      Sep. 03, 2008

      Yes I have been judged harshly as well. I must take my pain meds to be able to get out of bed and then function throughout the day. I have had people tell me I need to go to rehab. I don't even take all the meds I have been prescribed for the month! I am sick of being judged by people who have no idea what constant pain is like!

  • Donna Baker
    Sep. 03, 2008

    I have arthritus, fibromylagia,myofascial sydrome that causes my chronic pain.

    People are so willing to judge people that

    have chronic pain. They think we are put-

    ing on a  act.  I take a lot of medication.

    I take Adderall.  Without this drug I could

    not even get out of bed. Let them talk!

    • Anonymous
      Sandy Van Der Kar
      Sep. 04, 2008

      I am also someone that has lived with chronic pain for over 20 years and have tried everything you could think of to get some relief. I have fibromyagia,bulging discs in my lower back and a cyst on the nerve root of the c-5 cisc. I take a narcotic plus a a patch that is also a narcotic and also use a cream that has narcotics in it but without them I am not...

      RHMLucky777

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      I am also someone that has lived with chronic pain for over 20 years and have tried everything you could think of to get some relief. I have fibromyagia,bulging discs in my lower back and a cyst on the nerve root of the c-5 cisc. I take a narcotic plus a a patch that is also a narcotic and also use a cream that has narcotics in it but without them I am not able to move litterally. Yes I have heard it all I am addicted to drugs and it can't be that bad that you have to use all of those. I truely wish that I did not have to. I don't even get a the relief that I wish I could,I am not able to do anything even with the meds if I get up and start doing housework or cooking ANUTHING I am in horrible pain even with the meds. This is not the life that anyone cares to live believe me it is awful to feel so helpless and to depend on others for everything that you do. People can say what they want but unless they are going through it they have no idea how truely horrible it is to live with chronic pain every day and night of your life. Your life is not your own. I was always a person that was doing something,I walked at least five miles a day and now I can't walk two feet without being in pain. Please do not judge those of us that HAVE to depend on narcotics to help us get through each day. I am a Christian and I prey every day for help for the Lord and I know that some day there will be something other than narcotics to help people with chronic pain but for now this is the way it is and I know with the Lords help I will get through it,prayer is a powerful tool.

    • Anonymous
      teresa
      Jan. 19, 2009

      I can so relate to all that is posted on this subject. I went round and round with my Dr several years ago about pain meds. I have bulging disk in lower back and all in my neck but one. Hip pain both knee's are bad. If I didn't have my pain meds I would not be able to work. Doc was worried I'd become addicted. So finally I looked him in the eye and said, I...

      RHMLucky777

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      I can so relate to all that is posted on this subject. I went round and round with my Dr several years ago about pain meds. I have bulging disk in lower back and all in my neck but one. Hip pain both knee's are bad. If I didn't have my pain meds I would not be able to work. Doc was worried I'd become addicted. So finally I looked him in the eye and said, I don't abuse my meds I never get hight from them and I said this pain is the rest of my life so why should I have to go through it without some relief. isn't that why these drugs are made? He agreed and never gave me any more lecture's about becoming and addict. I look at it this way maybe I do rely on them but I'm am a funcution member of society. I don't lay around popping pill have pill just to try and get some kind of buzz. I take my meds like I'm supposed to. Maybe on really bad days I take  one extra so what I'm not hurting anyone and I'm not high in anyway shape or form. So people shut up and stop putting a label on us.

       

      Teresa

    • LITTLEBIT2454
      Feb. 23, 2010

      I also am going through both chronic physical pain, and mental anguish from those that want to condemn me as an addict.  I have had 5 major reconstructive shoulder surgeries, bi-latearal ulnar nerve transpositions, carpal tunnel syndrome surgery 4 arthroscopic knee surgeries, L-4 disc disectomy and broke my pelvis on Friday 13th, 2009.  I stay in...

      RHMLucky777

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      I also am going through both chronic physical pain, and mental anguish from those that want to condemn me as an addict.  I have had 5 major reconstructive shoulder surgeries, bi-latearal ulnar nerve transpositions, carpal tunnel syndrome surgery 4 arthroscopic knee surgeries, L-4 disc disectomy and broke my pelvis on Friday 13th, 2009.  I stay in constant pain and am only taking 40 mg of roxicodone per day.  My friends and family constantly treat me the same as you.  They don't understand it.  It is a horrible feeling having to be dependant on the narcotics, to have to take them from being "PILL SICK" even when you are having a good day pain wise  I have come to accept that I am going to have to be on the narcotics the rest of my life, just to be able to function.  Just don't let what others think, or say get you down.  You have enough problems dealing with your chronic pain.  Good Luck, and "GOD BLESS US ALL"

    • Anonymous
      Kent
      Nov. 30, 2010

      I am a minister of the gospel.  I was involved in an auto accident in 2006.  It broke 3/4 of my back crushed my thoracic.  While spinal fluid running out, in radioliogy, they picked slivers of busted bone out, grafting bone to build a thoracic replacement.  Now I have two straps and screws on both sides to keep my back together.  I...

      RHMLucky777

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      I am a minister of the gospel.  I was involved in an auto accident in 2006.  It broke 3/4 of my back crushed my thoracic.  While spinal fluid running out, in radioliogy, they picked slivers of busted bone out, grafting bone to build a thoracic replacement.  Now I have two straps and screws on both sides to keep my back together.  I have desentigrating back-bone.  It broke my neck, that crunches when moved now.  Broke my sternum, all ribs, punchured lung, busted right hip, that a hand doctor at the ER inserted a leg with a broken femure bone in a busted pelvic.  Busted knee, severed nerves, flatened foot from a 12d to a 14 e, three right hand paralized fingers.  I've tried to come off of the Morphine sulfate that I've tried to come off of, so many times that I can't count.  I nearly die at now 65yrs.  Is it a Sin, that will eternally bind my Soul to the pits of Hell.  I've never been completely off of narcotics.  But the Pain of my Body and withdrawel, has almost killed me.  I feel that I'd been better-off to have died in the accident, than to bear the reproach of the condemnators.  I've tried to come off a little at a time, to awaken to Pain all over my body.  It's so tormenting that, I had rather someone blow my brains out while I holler for help, being rushed to the Hospital some many times that I can't count them.  Yet christian people Pray and say I'm healed.  I believe it and try to come off.  I'm confused, discouraged, dispondant,desperate for the answer.  I like the favorite saying, "All you got to do is Believe"...Human Faith, God's Faith, Or Devils faith for they believe in God and Tremble.  Have you got a better Answer than, "you need to get off those narcotics, its a sin".  Anybody got any logical, medical, or whatever, Answers.

    • Lorie
      Jul. 02, 2012

      I have been dealing with chronic migraine, knee and back pain for almost 6 years now - recently having to go on disability for my migraines. I feel like I have fell away from my relationship with God because I am being punished and can't seem to overcome the amount of pain I wake up with everyday. There are at least two or three times a week I don't want to...

      RHMLucky777

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      I have been dealing with chronic migraine, knee and back pain for almost 6 years now - recently having to go on disability for my migraines. I feel like I have fell away from my relationship with God because I am being punished and can't seem to overcome the amount of pain I wake up with everyday. There are at least two or three times a week I don't want to wake up because I know I will be in pain and have to again ration the medicine. I will soon be going to again a new pain specialist to see if he can help me find a new way to get it under control. Am I wrong to now look to God for help? I feel like I am letting Him down and not be able to get it right to help my family in the day to day schedules...

    • Scooter
      Jul. 02, 2012

      I'm also having problems with my relationship with God because I'm so angry that I hurt so bad everyday. I don't think we are being punished by him though. If He was going to punish people with pain He would be punishing people way worse than we are. Turning to God for help is the right thing to do. I'm working on that because I want to be right with Him. I'll...

      RHMLucky777

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      I'm also having problems with my relationship with God because I'm so angry that I hurt so bad everyday. I don't think we are being punished by him though. If He was going to punish people with pain He would be punishing people way worse than we are. Turning to God for help is the right thing to do. I'm working on that because I want to be right with Him. I'll never understand why we have to suffer so much. How about I pray for you and you pray for me? What really makes me mad is when so called Christians tell me I wouldn't be going thru this if I was a better person. What happened to not judging people? I will keep you in my thoughts and prayers..........ScooterInnocent

    • Why Me !!
      Aug. 20, 2012

      Heres one that will blow everyone away, I am a 50 year old male I have worked 30 years on paper and paid my taxes.

      Back in 1983 I was involved in a Accident, I was headed southbond on the NE 42nd.street bridge where traffic came to a sudden stop and I was at the begining of the bridge in the east lane stopping behind a tractor/trailer.

      As I looked in my...

      RHMLucky777

      Read More

      Heres one that will blow everyone away, I am a 50 year old male I have worked 30 years on paper and paid my taxes.

      Back in 1983 I was involved in a Accident, I was headed southbond on the NE 42nd.street bridge where traffic came to a sudden stop and I was at the begining of the bridge in the east lane stopping behind a tractor/trailer.

      As I looked in my review mirror it was over !! A Cattle truck loaded down w/80 heads weighing 80,000 hit me in the rear doing 60MPH it killed my buddy that was with me, "back in those days their was not mandatory for trucks to have that lower rail so vehicles will not go under their trailers", well......guess where I went,

      completely underneath that trailer, my friend did not have a chance and as for me all I can tell you the good lord told me to hold on, as real as it was a steel cage was around the top of my body and head and the lord said hang on Steven you will alright we are going for a little ride anyway I made it through w/250 Stitches in my head w/a nerve that the drs. could not find in my head and left me paralized on the right side of my face.

      Also I sustained on my left hand where I pertected my face when I kinda ducked down going under that enormous size trailer, I had to have hand surgery the same time they did head surgery, no one thought I was gonna make it, my neck was also broken.

      Anyway..we, I know why I made it so I was in shock bad when this happened, I'm not going to go into anymore details however, the back dr. and neck dr. told me that I would be lucky to get out of bed @ 45 years old, so this is when I started having problems and when I started taking meds for pain and been fighting w/SS ever since, been denied 3 times and now I have hired a lawyer. Needless to say I haven't worked in 5 years I was raising my boy by myself and had to let him go live w/his Mom temporary due to no money coming in and my whole family thinks I'm nothing but a drug addict now what they don't know is all I take is Methadome, this is a miracle drug for me and keeps my pain tollerable, I went thru all the phases of lortab and percs,down to oxys.

      My point in this whole story is the people that are really injured is the ones that suffer w/our good ole SS System, I also have PTSD, Anxiety attacks, Bi-Polar, and the worst nightmares anyone could ever imangine, oh for the record I also had 2-stints Installed in my Heart on Xmas Day 2006 and around that time is where all this pain started, do you all think a man with this background can work ?? Not !!! I walk w/a cane these days and still am fighting w/SS... Thanks for lisining to my story.

    • Anonymous
      Sandy Van Der Kar
      Sep. 04, 2008

      I am also someone that has lived with chronic pain for over 20 years and have tried everything you could think of to get some relief. I have fibromyagia,bulging discs in my lower back and a cyst on the nerve root of the c-5 cisc. I take a narcotic plus a a patch that is also a narcotic and also use a cream that has narcotics in it but without them I am not...

      RHMLucky777

      Read More

      I am also someone that has lived with chronic pain for over 20 years and have tried everything you could think of to get some relief. I have fibromyagia,bulging discs in my lower back and a cyst on the nerve root of the c-5 cisc. I take a narcotic plus a a patch that is also a narcotic and also use a cream that has narcotics in it but without them I am not able to move litterally. Yes I have heard it all I am addicted to drugs and it can't be that bad that you have to use all of those. I truely wish that I did not have to. I don't even get a the relief that I wish I could,I am not able to do anything even with the meds if I get up and start doing housework or cooking ANUTHING I am in horrible pain even with the meds. This is not the life that anyone cares to live believe me it is awful to feel so helpless and to depend on others for everything that you do. People can say what they want but unless they are going through it they have no idea how truely horrible it is to live with chronic pain every day and night of your life. Your life is not your own. I was always a person that was doing something,I walked at least five miles a day and now I can't walk two feet without being in pain. Please do not judge those of us that HAVE to depend on narcotics to help us get through each day. I am a Christian and I prey every day for help for the Lord and I know that some day there will be something other than narcotics to help people with chronic pain but for now this is the way it is and I know with the Lords help I will get through it,prayer is a powerful tool.

    • Peter3
      Jan. 24, 2011

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      I am 39 years old and I too am in the same boat and I must say that it is the Titanic. I am judged at work for what I am taking and going through. I suffered an injury to my thoracic and...

      RHMLucky777

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      I am 39 years old and I too am in the same boat and I must say that it is the Titanic. I am judged at work for what I am taking and going through. I suffered an injury to my thoracic and cervical spine. I have a total of 5 surgeries and have 3 vertebrae in my cervical spine fused. The doctors have told me that there is too great of a risk of mortality for them to try to fuse the thoracic spine, for which my reply was I don’t care but they were more worried about having a death on their record than helping me. The muscles around my left shoulder blade are constantly in burning pain, which is gradually spreading to my right shoulder blade. I would not be able to breath without my pain meds; I know because I have tried. I did not last long. I am by no means addicted to pain meds.

       

      I saw a show about how botox is used to paralyze muscles to remove wrinkles. I convinced my doctor to let me try this for my chronic pain because the muscles in my thoracic area are constantly tense. He indicated that he did not know much about it and needed to do some research. So I waited. After a few months he gave me a prescription and had me pick it up and bring it back to him for 3 injections in trigger point areas. This helped relieve the burning pain but began to wear off after a month. The insurance would not cover it so I was out $500, which I could not afford to continue but desperately wanted to. However, during this time I did not need the usual level of narcotics.  

       

      It’s been almost 10 years that I have been in burning pain and am uncertain how much longer I can take it. Between the pain and the judgment, this is like 9 times hell.  

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