Friday, June 01, 2012

The Painful Un-Goodbye (shared in another chronic pain support group as well)

By bzmomkfor Saturday, November 10, 2007
"Please God, please, just make the pain go away for just a little while, please?" I implore in a whisper between muffled sobs. I'd done my best to mask my pain from my children all day but by 4:30pm it was all too much. I put my hand over my face to hide & wiped the tears away as coverly as possible before they could streak down my face. The heating pad had lost its magic; no position was comfortable; I spent the day vascillating between chores & idle time - nothing made an improvement in the pain. On top of it all, an IBS flare! My heart has been on overdrive, pounding fastly and I've tried moderating my breathing patterns to get through the pain, but the symptom continues on anyway.


My 18 yr old son showed compassion & concern, it was a welcome surprise, but his 17 yr old sister gave me the usual 'oh brother' attitude.

There is nothing anyone can do. I'd asked my doctor if I could discontinue my narcotic pain med since I felt it did nothing for me but cost $ & give me another pill to swallow. I'd tapered off, but now, this flare & nothing to help it. My surprise was my doctor's unwillingness to prescribe anything else in place of the pain med which had failed me. I was told by phone by her nurse, "She says it's to be expected." In desperation I take my bedtime medicine and and a panic attack med at 5:30pm, hoping something will take me away from the insurmountable pain, even if it's only a brief bit of sleep.

My appointment with the local pain clinic isn't until the end of this month and this was only the 5th of the month. I had briefly contemplated whether inflicting other pain upon myself would at least transfer the sensation to a localized area & give the rest of my body a short respite. Too bad there is no $ for more tatoos or to go skydiving & my fibro-fog mind could "forget" to pull the cord. Anything, even death, must be better than this.

I think of treasured memories from my children's past, of my own as well: falling in love, having my children, beautiful, breathtaking places I've been. Then suddenly the good memories accidentally shift back to my daughter's disbelieving & uncaring attitude & my husband's latent resentments. Then I hear the laughter of my younger ones in the other room. I had retreated to my bedroom where I could sob & beg God for just an ounce of relief, just a few moments to catch my breath so I can continue on. Do I dare try to reintegrate myself into my family now that I've stopped crying? Am I even wanted?

It all meshes together in a mis-matched ugly tapestry, with pretty colors showing through here & there if you take the time to look long enough.

My nose is stuffy from crying, my lips dry & no longer quivering. The statistics on suicide of chronic pain sufferers seem they must be grossly under-reported.

At least the IBS has stopped. Now if this damnable right eye twitch would stop, a whole day of that is more than enough. 22 or so more days before the appointment I've placed all my hopes in. I wonder which will come 1st, that or my death? I try to bravely continue on although I'm not sure if it is better or worse for my family's benefit.
Leaves of Fall
Anonymous
ylmiles
11/13/07 4:42pm
I have had these kind of thoughts for the past 3 years.  I'm the only one in my family and in my circle of friends who suffers from RA and fibromyalgia.  The attitudes of my son and my husband are just like you described them.  Sometimes those attitudes hurt just as much as the real pain I'm feeling.
11/13/07 11:23pm

Sadly many of us face this same thing every day. Some of us face it even after seeing doctors. I pray your pain doc is as wonderful as mine is the same way my PCP is.. Now off to find a different caring psych. I wonder if there are any left or have they all gone on to the dollar signs that are so obvious on certain faces.

Welcome and know you aren't alone. There are literally millions of us across the USA alone. You are not alone and hey, you never know. YOU might find out that the support of others like us, just might make those days bearable Happy

11/14/07 1:11am
 Crying 1 Electric I know what you feel inside. When the pain starts it like a electric  shock shooting thought my body and no way to stop it.  My husband left me and I feel so alone now. There is no one to really share how I feel when I'm hurting. My youngest has help me out the best she can, but it is not her place to. It's no one place but my to deal with it. That is why I let God handle my pain for me. If God didn't I would rather be dead than to feel all the pain. God bless you and your family. thank again for your great incite. Read ya later.
11/24/07 7:33am

I know how you feel.  Hold on till you are seen in the Pain Clinic.  It has made my life berable and pain better controlled.  I have complex pain disorder - caused by a hip injury over 5 yrs ago.  It put my life into shambles the last few years.  But finally with a good pain doc and clinic I am starting to live more. It will not be one thing that takes it away. It is like the puzzle, the pain docs add one thing at a time to bring to gether a whole.  I have complicated many times ending it...only because of the suffering and the stress it puts on my family.  You sound very depressed, which it totally normal in chronic pain. Don't be afraid to tell the pain doc all of your feelings, they have heard it all, and know how to help.  Hopefully you can hold on.  I know when the pain it too bad for me... I go into the warm shower and sit there on a stool letting the water run over me... It helps.. try it. You family should be in therapy a few times too.  With someone that knows about chroinc pain and or chroinc medical problems.  They can learn how to handle it / you and there feelings.  I know it's hard but hold on ....go into the shower .. and lets all hope the pain doc will help.

Best wishes

12/ 5/07 12:30pm

i'm new to this board and i'm not familiar with your particular situation, but i'm very familiar with your feelings and thoughts. some days, some weeks, all i can do is think taking myself out. we get so desperate and feel so alone, especially when the people we've been told all our lives will help us when we're sick, the docs, turn their backs on us and pretend that it's in our head.

but it's not in your head.

i beg you to take advantage of any suicide prevention hotline in your area, or maybe finding a therapist that helps people with chronic pain. i finally broke down and saw one for the first time. i've completely lost my patience when i'm in pain now. i go from 0-totally ****** or suicidal in 60 seconds. i hate it when i'm so irritable and i've already lost two grandparents to suicide-i know my risk is greater than most. maybe she'll be able to help, maybe not.

i think we all go through fantasies of getting out of our pain, but suicide's not the way, and if suicidal thoughts continue to harrass you...please seek professional help. YOU are not your illness and YOU are worthy of being here on earth!

heidi

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By bzmomkfor— Last Modified: 12/15/10, First Published: 11/10/07