Friday, June 01, 2012

The Unleashed Monster (p.i.o.g.)

By bzmomkfor Wednesday, January 02, 2008

I use to be described as the "go to girl" because I always managed to get it all done. I was climbing the professional ladder of success, I had 2 beautiful young children & even through divorce, juggled everything effectively. When migraine prodromal symptoms had me going blind, I didn't know it had anything to do with the ensuing major headache 20 or so minutes later, nor did I tell anyone - I tried to hide that too. I'd survived being threatened, being stranded in snowy, cold conditions with my children, survived the gammut of physical/emotional/sexual abuse. I'd even learned to hide my diagnoses of Reynauds, Restless Leg Syndrome, Chronic Fatigue, Fibromyalgia & Osteoporosis as I continued to soldier on as sole provider for my children. Later the hypermobility & bursitis diagnoses also came.
Of course, that was in the beginning & 15+ years can do a lot to a person. I gave up medications & treatments to have 3 more beautiful children once I had been remarried for a while. I was a willing lab rat trying anything to get better. Yet, the opposite seemed to be happening. I routinely took myself off meds so as not to become addicted. I developed a resistance or a tolerance & meds often needed changed. I had several bad reactions to meds & some pretty close calls, still, I tried my best.
I use to be described as kind, patient, loving, a wonderful mother & care provider. But now, I wonder, was I ever that person? Or was it thanks to a gammut of pharmaceuticals?
Living in the beautiful Pacific North West, often called "God's Country" rightfully so, the weather has recently fluxuated from 4* to 18*. I remember my first winter in a different town of this state when the weather got up to 0* & actually felt warmer. Now, the barametric pressure changes cause me great pain & stiffness within my bones & often trigger severe headaches or migraines.
Back in the day I worked 4 10hr shifts so I could volunteer 1 day a week at my childrens' school. Now, without working, I cannot even volunteer 1/2 a day a week. The unrelenting pain. My nerves are on edge, I'm hypersensitive to sound & recently smell. The smell thing is odd because I've always had so many sinus infections I could never smell anything, now, this distasteful smell seems to predominately take over my nostrils.
I cannot remember how long I've been without pain meds but it was at least 3 weeks prior to my giddy-girl-like hopefulness toward my initial patient appointment at our local pain clinic. I had worked for the main doctor about a decade ago, for a year before my 4th child was born. She is a truly gifted healer, it is her calling. I had suffered a horrid migraine shortly after that 1st appointment & was given #30 vicodin to help with that. I ended up also having to use it for my dislocated wrist & rolled/sprained/strained tendons on my ankle as well. It was better than nothing but not by much. I try, no, I TRY to soldier on, to cowgirl up. Yet the tears pour down my face just attempting to walk a treadmill or do simple exercises.

1/ 6/08 1:21pm

Dear bzmomkfor,

I really need to answer you-you sound so alone!  I am so sorry for your pain and I really don't know what to say.  You sound so much like my daughter who is only 32, a single mom of a 12 year old and has been in chronic pain for almost 6 years now and nothing has worked for her-

I feel so helpless-please tell me what to say to you and my daughter.

This is my desparation morning, searching for anything that will help.  Jan

1/ 6/08 7:27pm
Well I finally stood up to my doctor & made it clear: " I want to do all the things you want me to do to complete this program, but I need you to help me to be able to do that. I am in insurmountable pain & it is unrelenting. I am not a drug seeker nor lazy I am not just sitting on the couch all day trying to get out of exercising, I need to be able to take care of my family!"  She wrote me prescriptions & I'm feeling much better.  I hate taking meds but if its' what I have to do to not be a monster & act more like my real self then by golly that is what I will do.  I am so sorry for your daughter's pain as well.  It is all encompasing, hurting family members at various levels in many different ways.  I wish you the best.  Thank  you for your reply to my post.  Love, ~kat
1/11/08 1:29pm

Dear bzmomkfor,

I know you are not lazy or drug seeker-it is soooo terrible the way most people-doctors included, think that chronic pain sufferers can just talk themselves out of the pain.  In trying to help my daughter I find that some doctors do not want to except the failure on their parts to help their patients and so they blame the patient either consciously or unconsciously.   Good job in standing up for yourself, you do not have to prove anything to me or anyone else.  Just keep on keeping on.  My prayers are with you.  Jan

1/11/08 2:56pm
Jan, thank you so very much. I am trying my best.  Thanks to some new anti-anxiety medication I'm finally starting to get to where I care much less what other people think of me, I know the truth.  I just fear doctors & social security denying me / my condition / my help / the truth.  One day at a time, I'm trudging forward ever so slightly but with great effort trudging forward just the same.  Be well & be blessed & thank you again for your comment.

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By bzmomkfor— Last Modified: 09/03/10, First Published: 01/02/08