Friend BZ mom
My mom has really bad sleep apnea and I have also cared for a stroke victim back when I was able to work still. I had to stay over night with him at his sleep study and they can really tell you alot of information from all the electrodes attached to your head & body.
I'm sure you already know how poor sleep is connected with FM. I think I would do the sleep study and find out about your sleep.
if your not getting enough oxygen to your brain and I'm sure you already know that when we are in a certain stage of sleep, it's when our body heals it self and normally Fm patients bodies have stopped going into that state of sleep for what ever reason. But if you have a chance of sleeping & receiving enough oxygen, you may really see an improvement in your pain & over all health.
My own personal thought, is that mothers can easily slip into these poor sleep habits, as all through their child bearing years, they have went through times of serious sleep deprivation, they often or most times put themselves in a heightened awareness for they have an infant to care for and need to hear it crying through out the night, some of us have had children or infants that have breathing problems, which makes us even more elert in & during sleep. We kind of develope conditioned lite sleeping mode and don't allow ourselves to get into a deep enough sleep stage. With your many beautiful babies, I would tend to think maybe with all the infants you've raised, what if your body has forgotten and you've unknowingly are preconditioned not to allow yourself to drop into any deep sleep, incase one of the kids need you???
It's just my own silly theory. After reading a great deal of articles on FM and how sleep issues are connected with FM flares and pain, as our bodies don't get the needed sleep for the body to repair itself and most of us FMer's have had babies. I'm not saying that it's impossible for younger women & men, I'm just saying that those of us with children have learned to listen for a babies cry in the night, so we're always half way prepared to jump & run to our babies and maybe since you just had your last 4? years ago. Maybe your body has forgotten how to sleep? Just my thoughts.
I too have issues with waring something on my head to sleep. But I wonder if we could learn to sleep all over again, maybe will could partially control our pain some? Maybe we'd not have such severe flare ups?
Of course I have ins to pay for it and have no clue as to how much a sleep study would cost, so I may be all full of hoooie too. LOL
Betty
i have a sleep disorder, the sleep study validated it, showed I get 64% normative restful sleep when I report "best night of sleep, so this study probably not valuable..."
It clearly demonstrated that apnea is not the issue, but repositioning due to discomfort is the issue.
No amount of anything to date is solving my sleep disorder. That I have so much better pain control in general is a remarkable gift.
The sleep disorder is quite disabling with fatigue, cognitive impairment, etc such that I live a very quiet life.
However, I truly value the validation the sleep study offered ME.
Just my expereince in hopes it can be informative re the non-hypoxic/apnea results of the study.
Sincerely,
Jerry
I can't tell you how upset i am to hear what you are going through.
I am in Henderson Nevada, I think too far to be of help.
I would drive you to: (perhaps the order should be rearraned???) a Cardiologist and if that did not get an answer a Pulmonoloist...or a hopsital for an Emergency Room ADMISSION in a reasonably sized community (I simply mean of size such that there is a large number of specialists at hand). I do not practise medicine, but I know an emergency when I read one. please, impose on someone near and dear and run and get help. We all think it has an answer and that you have not been given that answer and most likely it is easily treatable...but only in the hands of competent physician. Please, do this for your children and please, please can someone more competent than myself chime in-that I am having to write this is bewildering. Were you my wife, my mother, my neighbor the above would have already happened.
If you want to call seven zero two five five eight six zero one one.
forgive my languae but i have the balls to care, the balls to be wrong the balls to speak, the wisdom to defer to a higher authority (ER Admit, Pulmonology, Cardioloy) and the compunction to act.
Hi Kat,
Hypoxia is a broad term and it refers to the availability of oxygen to the body tissues. There are so many causes. I think I remember you mentioning anemia in a previous post? Well, that is one cause. Circulatory deficiencies and edema are two others. The symptoms vary according to what's causing the problem. But usually they include rapid pulse, difficulty breathing, dizziness, cyanosis (bluish color to the skin). Treatment depends on the cause. Oxygen therapy is used sometimes. But for me, it was simply a case of prescribing vasodilators to help increase my circulation. Unfortuately, I had to stop because my blood pressure is so low to begin with that it caused me to feel faint all the time. So now I am back dealing with numb fingers and toes on a daily basis. Not fun. Anyway, please let me know how you make out.
By the way, I just love reading your posts, Kat
. You are quite the writer.
Hugs,
Mear
Thanks Mear,
I have had anemia several times in life & I usually have low blood pressure but it has been normal lately. I was diagnosed with Reynauds about 15+ yrs ago (cold hands & feet, can turn blue) I wonder if it's all part of the same thing? You are very knowledgeable, thanks for sharing the info with me. Also thank you for the kind words regarding my writing. Luvs ya muchly~kat