-
Hello & Welcome!
Betty Boop Too
Thursday, September 18, 2008 at 06:30 PM -
Hi Tammy
tonia248
Saturday, September 20, 2008 at 12:59 PMI am new to this web site. I joined for the same reason you did. I can relate to all you are saying. I too have chronic pain, I was in a terrible auto accident which almost took my life and as a result was left with some serious pain to live with! Its been a long haul and it gets lonely and depressing at times and its hard to talk to people who have no clue what you are going thru, they think you complain for nothin. Anyway I wanted to say hi, and I am also taking mscontin(morphine er) 60mg 2xday, and percoces for break thru. I hope we can share and help each other as we live day to day with the pain and knowing that it will never end is sometimes the hard part. I hope your day is good and I hope to hear from you! Tonya
H TONIA AND BETTY BOOP!
bassguitar
Saturday, September 20, 2008 at 05:54 PMSo nice to meet both of you. I feel for both of you with being in pain. It's so nice to have accidently stumbled on this site through and e-mail and chat with some wonderful ladies! Right now I am draining my pool to close it with my hubby tomorrow. It's always a sad time for me as it is a lot of work too. I think I am going to make an appointment with this back dr. I really liked that I saw one time. He was compassionate at the time and really felt sorry for my lower back pain. Now that I have herniated 5 more discs with one extremely bulging, I wonder what he would say. I am looking to know will these heal but not even sure as I have arthritis too in spine. Like I said since the time released morphine isnt wotking anymore, i would so hate to increase. I will explain everything to pm when I see her in Nov. Anyway, may we all feel better one day soon, love to both of you and keep in touch Tammy ^j^
-
HI THERE TAMMY
GATHICATX
Tuesday, September 23, 2008 at 07:20 AMHELLO THERE..I TOO HAVE CHRONIC PAIN SINCE A MAJOR TRAUMATIC AUTO ACCIDENT, WHERE I BROKE MY SPINE I 3 PARTS, LEGS,NECK,HEAD, ARMS,JAW,TEETH, YOU NAME ITS BROKEN...SINCE 1991 I HAVE BEEN IN PAIN 24/7...I KNOW THE FEELING OF FEELING USELESS, SUICIDAL, TRIED IT 3X..MY HEALTH HAS BEEN DETERIOTING EVER SINCE...NOW IAM 54, ALMOST BED RIDDEN..MOST OF THE DAYS...I HAVE TRIED ALL THE MEDICATIONS AND REMEDIES AND ALTERNATIVE MEDICINE..THAT IS KNOWN TO MAN.....BUT WILL ALL THE MEDICATIONS IVE ADDED MORE ILLNESSES TO MY LIST...DEPRESSION...CONSTIPATION, BLOATING, CHRONIC FATIGUE,STOMACH CRAMPS, HEADACHES, WEIGHT GAIN, NIGHT SWEATS, AND THE AWFUL TIMES I HAD TO DETOX FROM METHADONE..MORPHINE, HYDROCODONE,OXY-CONTIN..TOO NAME A FEW...ITS A ROUGH RIDE..AND ONLY THE STRONG IN SPIRIT SURVIVE.....IAM AT HOME NOW..I CHAT WITH PEOPLE ALL OVER THE WORLD THAT ARE LESS, LIKE, AND MORE THAN ME....THATS ALL WE CAN DO..COPE AND FIND A GOOD DR THAT WILL BE ABLE TO KEEP US FROM SUFFERING AT LEAST LESS PAIN...HOPE THIS HELPS..MY STORY IS TOO LONG TO TELL..BUT.. AT THE END...THIS IS MY ADVICE...GET SOME MEDICATIONS.THAT TREAT CHRONIC PAIN...GET SOME MENTAL HELP OR SOME ANTIDEPRESSENTS...YES..THEY DO HELP..SOME PEOPLE THAT ARE LIKE YOU...WETHER A CLUB, CHAT ROOM, FRIENDS OR GO TO A BIG HOSPITAL, THEY HAVE INFORMATION WHERE YOU CAN GO AND GET ASSISTANCE...DONT BE A VICTIM..BE BRAVE...GET ALL THE INFORMATION OF WHAT IS YOUR ILLNESS...GET INFORMED..STAY ON TOP OF NEW MEDICATIONS..ETC..
THE WORS THING YOU CAN DO IS FEEL SORRY FOR YOURSELF...STOP BEING THE VICTIM..DO SOMETHING FOR YOURSELF..ACCEPT THE WAYS THINGS ARE NOW...AND ADAPT TO THE CHANGES...DONT DESPAIR..GET HELP.....WE ARE HERE FOR A REASON...
FIND SOME MEANING TO YOUR LIFE AS IS.....
AND LIVE ONE DAY AT A TIME...REGARDLESS OF HOW YOU FEEL....
ITS HARD, BUT AS YOU ACCEPT IT..DEAL WITH IT AND GET HELP...IT WILL ONLY BECOME BEARABLE..AND THATS A BETTER WAY TO LIVE WITH WHAT WE GO THRU...EVERYDAY...
TAKE CARE...AND MAY DESTINY SHOW YOU THE WAY...
SILVIA IN SAN DIEGO..CALIFORNIA
HI SYLVIA1
bassguitar
Tuesday, September 23, 2008 at 11:22 AMMAN HAVE YOU BEEN THROUGH A ROUGH TIME! OMG! YOUR STRENGTH IS UNBELEIVABLE! I AM GONNA SEE MY PM SOONER THEN NOV. BECAUSE OF STILL BEING IN A LOT OF PAIN. THANK YOU FOR YOUR ENCOURAGEMENT. I ALSO MADE ANOTHER DECISION TO TALK TO MY LAYWER AND SEE ABOUT FILING FOR DISABILITY NOW. I JUST DON'T WANT ANYTHING TO SCREW UP MY LAWSUIT SGAINST OLD EMPLOYER. IT'S HARD FOR ME TO DO ANYTHING AT THING AT THIS POINT WITH CONSTANTLY FEELING THE BACK PAIN. RIGHT NOW TYPING I AM THROBING AND RAN OUT OF PERKS ALREADY. BOY ASPIRIN DOESN'T CUT IT! I JUST BUMPED UP MY APPT. WITH PAIN MANAGEMENT DOC TO OCT. 14TH. THAT'S THE SOONEST I COULD SEE HER. THANK YOU FOR EVERYTHING IN WHAT YOU SAID SYLVIA. IT REALLY HELPS AND THANK GOD FOR THIS WEBSITE AS I HAVE MET SOME REALLY WONDERFUL LADIES HERE!!! GOD BLESS ALL TAMMY ^j^
-
Lower Back Pain
Dakotadan07
Wednesday, September 24, 2008 at 06:46 PMhello i too suffer back pain and fibromyalgia pain 24 hours a dayand get very little sleep due to sleep apnia. has any of your doctors checked your leg lenght to see if one is shorter than the other? this can cause a lot of pain and can be easely corrected by ajusting you leg length at the hip gate. very simple to do and painless but i have never talked to a doctor who knew what i was talking about. it can be done in about 20 to45 seconds and is painless. you just have to know how to do the lifting of the leg and the correct motion to move them to be successful. sometimes the pain is gone immediatley and other times it may take a little while maybe a few minutes. anyone can be taught to do this procedure if that have the energy to lift the weight of your legs. you can e-mail me and i will be glad to answer any questions you might have and how i learned this simple procedure and other things i do and take for the pain releif of fibromyalgia. hopefully i can help someone who suffers from these things as i do. thank you, danny
Hi Dan!
bassguitar
Thursday, September 25, 2008 at 10:25 AMI just read your message and no doctor has ever looked to see if there was a length difference in legs. What doctor does this? My mri is showing 5 herniated discs in mid section known as thorasic part of back with one severly bulging and the lower back 2 discs that are rubbing together because gel is gone. I don't know if something like that can be corrected as easy as you say, but worth a try! Let me know who I have to see, just to let you know I have been the chriopractor route and car not to go back that way as I didn't have any good experiences. I don't like the cracking either and they crack you enough to have you feel good, then you have to keep going back to continue to feel good. With my co-pay being high and the fact I don't like cracking, that's why I gave up. I do want to go back to this wonderful back surgeron, orthopedic I once saw and get his oppinion. I just moved up my pain manangement appt. Thanks for the info, Tammy ^j^
re: Lower Back Pain
prayingforrelief
Tuesday, November 10, 2009 at 10:47 PMHello, I believe we have a lot in common. I also suffer from chronic back pain and fibromyalgia 24/7. I do not get enough sleep because it is so painful. I had surgery several months ago for a herniated disc the doctors were afraid was causing permanent nerve damage down my leg. Unfortunately, I am in more pain now than before! Today I had a lumbar epidural. I hope it begins to work soon, I am still in a lot of pain. I just took one of the new meds that was prescribed; Avanti 30mg and I have ice on it as I write this. It is getting much harder to function on a daily basis. I am told I too have a short leg and I would be very interested in learning more about the technique you mentioned. I look forward to hearing from you soon!
-
Living in Chronic Pain
Cathy
Saturday, September 27, 2008 at 10:08 PMHi Tammy:
I too live in chronic pain with spinal arthritis and degenerative disc disease, and FM. I think I've finally gotten a handle on it though. For years I moved from Dr. to Dr. trying to find someone who would listen to me and help me with the pain. Finally I found a PM Dr. who does give you pain meds but it is strictly controlled. He tried me on everything under the sun and finally I'm on Methadone and Hydracodone for breakthrough pain. I agree with you that nobody should have to be in pain, nobody. Espically when there are drugs out there that can help. But then there are the "ones" who make it bad for those of us who really need them. It's sad too that people don't take your word for it that you are sick and hurt. Even my own grown kids couldn't see that I was suffering. They kept telling me to get out of the house and get a job. "Hello, I get Disability", I'm not supposed to be working... I think that was the worst part of having FM....that can almost make you suicidal. Then you go to the Dr. and they treat you like a criminal because they think you're a drug seeker.
But here's something you need to do. Find one Dr. and stick with him or her...Don't go from one to the other. I think you said you were going to go to a "back Dr." he was compasionate or something like that. You need to find one Dr. and stick with that one. I can't tell you how important that is. How else can they help you if you don't stick with them. They won't get to know you!!! You'll find that once they know you things will change and you'll feel validated. Honestly, I know I've been there. I've been going to the same one now for 6 years...I'm on a first name basis with everyone in that office, but I know that they believe me. Nobody doubts my pain...That's half the battle won...You will feel so much better....
Take care of you,
Cathy
-
living with chronic pain
Jennifer
Thursday, October 02, 2008 at 08:15 PMI have chronic back pain and neck pain which lead to arthritis. I am on avinza and percocet from a pain management clinic. I read Tammys story and can relate to her story. I am a nail technician also for seventeen years. I can no longer proceed with my profession due to my pain.I just started taking the avinza but have been on percocet for a while now. i was very concerned when my doctor put me on the avinza because I am very leary of strong meds as this. He wanted to put me on oxycontin and I refused. I understand so many people are out there taking many pills everyday and abusing them. I am on these for reasons to cope with everyday chores in life. Chronic pain is so hard to deal with.
-
Pain Management
Macygray
Friday, October 17, 2008 at 12:48 PMHello,
I cant believe we have the same condictions. Having Fibro and spinal stenosis, keeps me in constant pain and misery. I was just prescribed Avinza 30mg. Is there any help or hope?
-
Started Avinza to
sammy001
Monday, October 20, 2008 at 01:47 PMHi Tammy,
I started Avinza last month & like you am on the percocet to. I was able to cut out 2 doses of percocet depending on the day. At first I felt like I had abit more control of the pain, although in the last couple weeks my back has started to bother me pretty bad, so the avinza is not helping much at this time. I noticed I could go longer between the doses of percocet but not until I was on the Avinza for several days.
I can take up to 6 percs. aday & was thrilled to go down on the number needed.
Its a real bummer to not have enough pain control & makes it hard to get through the day.
Can you tell me if you found it took a few days for the avinza to work?
I am on the same dose as you.
My PM is sending to a back surgeon for his opinion before doing anything else so I have to schedule that appointment today. Since he is on vacation for the next couple of weeks he does not even know about my back. I am scared at the pain level & am barely hanging on at work. I am only working 1/3 of what I use to & wish I had more pain control.
Good luck & hope you get some better control. Sammy
-
chronic pain avinza vs fentanyl and percocet
lewy
Monday, May 04, 2009 at 01:13 AMI also live in chronic pain. I am a 45 year old male that has an addictive personality. I've had alcoholism problems in the past. I went through the AA process in 1996 and learned a tremendous amount about myself and addiction. At that time I was in also abusing ativan, ambien, and had gotten myself where I wanted to change. I remained sober for 4 years, then slowly and gradually got back into alcohol with no pill abuse. In 10/03 I fell/slipped off a a pool deck and landed in an upper level of an empty concrete pool. The fall was about 6 feet and included breaking my right leg in two places and blowing out the cartilage in my right ankle. No surgery was performed. My right leg healed shorter on the instep than outside. During that time I took Percoset, was allergic to Vicodin and took codeine, then down to darvocet. I did not drink alcohol during that period. Six months later I began drinking more and more often. My wonderful wife stepped in and stopped me. Her or booze. I chose her and my son. Back to AA with my tail between my legs. I had stopped drinking 15 days at at time then 30 days then 45 days. I've now been sober again for 17 months, have been around alcohol use and have no desire to drink. In Feb of 08 after taking my son to school, I came home with some groceries before going to my office where I employ 14 people. There was light snowfall covering ice and I slipped on a marble walkway of our home and landed on my butt and back. From that point on I've had horrible right-side sciatica and lower back pain and basically been bedridden managing my business from home as best as I can while placing great burdens on my wife and father who both work with me. I was misdiagnosed for 2 months, told to take some skelaxin and lay down for a couple of weeks by prompt care and later my general m.d. that didn't catch a problem on my xrays. A chiropractor looked at them and showed me in a side view that there was no space between my L5 and S1 vertebrae. I contacted my m.d. and was immediately brought in and given an MRI, guess what a major disc herniation pinching my S1 nerve root. Out came the tylenol 4 with codeine. An orthopaedic surgeon diverted me to a pain management division m.d. for 3 shots into the lower back. The shots were worse than the pain. I am also a type 2 diabetic but am diet controlled. I used to be excercise based also but can barely ambulate walk 100 feet without severely aggravating my lower back. The 2nd shot pushed my blood sugar above 380 and on the last shot either a nerve root or a vein was hit as blood flew and covered the floor beneath the table I lay face down on. At that point my m.d. had me on 4-6 10mg oxycodones per day. In 7/08 I had a discectomy and partial laporectomy. After the surgery, I continued to have pain and cramping. After several ER visits, 1 with a 4mg shot of morphene where I hallucinated horribly and 2 to 3 times with dilatid iv's. Thus I know morphene makes me hallucinate. I was then forwarded to a neurologist who performed a nerve conductivity test on my right ankle, calf, thigh, buttock and lower back. He found several problems areas, where my disc herniations had damaged my S1 and other nerve paths, including some left-sided issues. I have been on up to 60mgs per day of oxycodone while attending rehab. Rehab initially helped some but not much.My neuro prescribed me oral steroids, I ended up the 2nd day in the hospital er with SVT, 206 beats per minute and then to a heart m.d. for blood pressure. MRI's showed alot of scar tissue and fibrosis abutting the S1 nerve root. Multiple Tarlov cysts were also noted on S2 nerve root inside my sacrum. My neurologist reduced my daily allotment of oxycodone to 40mg in Jan of 09. At that time I incurred left-side severe foot pain that I have never before felt. My general m.d. thought perhaps I had a stress fracture or fracture that didn't show on the xray but sent me to a sports m.d./orthopaedists who thought the same, looked at my xray and grabbed the spots that hurt. For nearly 5 days this excruciating pain existed then went away. I did not ask for additional pain meds at that time, and ran myself out of oxycodones, 16 short. Some of the pills were also used by others in my household without my approval. My neurologist refused to refill them early based upon a written pain contract. I contacted my general m.d. and he gave me 4 days of oxycodone. When I next met with my neurologists again he was pissed beyond belief. On this visit he chewed my mother, who brought me to my appointment, wanting to know what she knew about these pills missing, etc. What I did not remember was that my mother had brought me in a wheel chair due to severe cramping in my right calf, which i had taken 3 flexerils and 3 oxy's to try to overcome but they did not touch the pain. He renewed the prescript for another month of 40 mgs per day. The next month he wanted to convert me to fentanyl and lowered oxycodone to 20mg per day. Fentanly duralgesics started at 12.5mcg then to 25mcg then 37.5 and finally to 50mcg. The fentanyl overwhelmed me at 50mcg but helped cut me down on oxy. I did receive some additional oxy's from the neuro to get me to an appt on 5/1. I told him the fentanyl wasn't working it was too much for me to handle. I had been to work maybe 1 day in a month. He asked me about the last time he saw me how did I come in to his office, I said no I didn't. He told me it was with my mother pushing me in a wheel chair. I told him I didn't remember that. Now recall this I am on 50mcg's of fentanyl at the time. I walked across the room was slightly able to lift my feet on my toes and heels. I had some flexibility in my left leg and slighly better in my right leg. He told me so you are better, which is not what I was trying to get too. I wasn't offered anything else but morphene 30mg XR. So I went from fentanyl 50mcg patches and 20mg of oxy for break thru to 30mg of morphene only. My sciatic pain and lower back pain is horrible. I also saw a neurosurgeon a few days before my neurologist appt who ordered 2 more mri's and discussed possible implant of an electrical precision plus spinal cord implant. I take the MRI's this week 5/6/09. Neurologists told me it won't work and he can't help me. I am a financial professional, with my own business, with a cpa cert, intelligent, and litigation background. I am also a musician with a gift for guitar and singing. I have never sued a doctor of mine before even when they've made mistakes because they've dealt with the screw up straight-up and moved on. It is difficult to be an md., I know that. I don't need litigation advise. I do need opinions from anyone out there regarding the comparability of 30mg of morphene XR actually Avenza 30mg vs. 20mg of oxycodone and 50mcg of duralgesic fentanyl daily. It appears to me that my neurologist has intentionally cut me off putting me in terrible pain to force me to look for another m.d. I am looking for a way to control my pain so that I can function in everyday life. I mean drastically searching for relief. Why would any sound m.d. ever cut a patient in extreme pain off and leave them hanging for 4 days intially, and now completely? I try to walk. I try to go to work. It always results in severe aggravation and sciatic pain, cramps. Also on two other occasions I've had the severe left foot pain on the outside again and am seeing an podiatrist 5/12. I don't believe it is gout, perhaps its diabetic nerve pain. I do not know.
In addition to those meds I take 450mg of Effexor XR and 30mg of Remeron at night for depressive disorder. The 150mg bump in Effexor just happened two weeks ago as my psych told me he believed this would help damaged neural pathways in my brain, or reroute them. I take 3200 mg of gabapentin per day, 1 mg of mirapex for restless legs at bed time and 1-2 mg of xanax at bedtime. I do not abuse my meds. I don't get a kick out of pain meds, but no that at this time I am unable to physically function without them. I'm trying to find the right mix. I also feel like the move to fentanyl for me at age 45 is almost equivalent to saying, f life, just lay in bed overwhelmed for the remainder of your life..I know I am opiate tolerate. Sorry about the long ramble.Needed to get this one of my chest. Borrowing an AA statement, I'm sick and tired of being sick and tired.
-
Chronic pain
Anonymous
Wednesday, June 03, 2009 at 10:52 PMI was just prescribe the same medication Avinza 30 mg. I am scared to take it due to the side effects and I dont it to become habit forming. Can you give me side effects that you had from this medicine
-
Chronic pain
Paul
Sunday, June 21, 2009 at 07:50 PMHello Tammy, I too am in Chronic pain, I am a Police Officer and 2 years ago blew 2 discs out in my back at work, Anyway i am on Vicoden ES and am taking 4 a day(or supposed too) I have been taking more like 5 and at the end of every prescription i too am scrounging to make my meds last, I feel like a freaking junkie, I do have surgery coming up so hopefully that will help. I too was on 30MG of Avinza but have asthma and had breathing problems with it.........If you need someone to talk to my email address is coltsfan8116@verizon.net I am very happily married so u need not worry about someone just trying to pick u up...LOL....Paul
re: Chronic pain
bassguitar
Wednesday, June 24, 2009 at 11:46 AMHI EVERYONE! PAUL, I E-MAILED YOU PRIVATELY, ENJOY MY REALLY LONG LETTER! I AM SO SORRY 2 X FIRST FOR ALL OF US BEING IS SO MUCH DAMN PAIN AND SECOND FOR IGNORING THIS BOARD FOR SO LONG! I HAVE BEEN CRAZY ASS BUSY! I AM CURRENTLY NOT WORKING AND MY LAWSUIT IS STILL UNDER WAY FROM BEING FIRED FROM LAST JOB FOR HAVING EMERGENCY SURGERY. WE ARE TOO THE POINT WHERE I WAS ASSIGNED AN INVESTIGATOR THROUGH THE EECO, AND SHE IS NOW FINALLY AFTER 14 MONTHS JUST REVIEWING MY CASE!
WISH ME LUCK! I WILL KEEP YOU POSTED. SORRY FOPR THE CAPS, BUT DAMMIT, I LOVE CAPS! I AM DOING SIDE JBS FOR EXTRA MONEY, DOING NAILS ON REGULAR CLIENTS AND ALSO DOG WALKING 2 DOGS, A PIT AND A LAB, BOTH A SAME TIME, IT GETS INTERESTING SOMETIMES,, TRUST ME. TILL IS THE PIT, SHE IS A SWEETIE AND HONEY THE LAB, NASTY WITH OTHER DOGGIES! I HAVE BEEN DOING THIS JAN. 2 ND, THIS YEAR, 3 X A WEEK, YEAH I KNOW I AM IN AGONY PEOPLE, I NEED THE MONEY.
I ALSO BEEN TEARING MY YARD APART, YEAH I KNOW AGAIN, AGONY. I AM THAT TYPE OF PERSON IF YOU KNOW ME PERSONALLY, WILL WORK RIGHT THROUGH THE PAIN. THEN NI LAY ON MY BED AT NIGHT AND JUST CRINGE. WELL WITH 9 BULDGING DISCS, FIBROMYALGIA, AND NOW MY FREAKING NECK IS BURNING LIKE A MOTHER F%%%%%, WHO KNOWS WHY...... WHO CARES AT THIS POINT, I AM SO SICK OF BEING IN PAIN I GUESS I AM USED TO IT.
SAD, ISNT IT? THE PERSON HERE WHO HAD ALL THE BONES BROKEN, GOD BLESS HYOU AND LIVING IN BED IN ALL THAT PAIN AND SO YOUNG IN YOUR 50'S? I AM SO SORRY! OMG!!! I FEEL LIKE I SHOULDN'T BE COMPLAINING ABOUT ANYTHING. SEE THIS IS WHERE THERE ARE MORE PEOPLE OUT THERE WORSE THEN ME. I PRAY FOR YOU AND I DON'T KNOW WHAT TO SAY.
I AM A GREAT LISTENER AND ADVICE GIVER MOST OF THE TIME. I AM SORRY I CAN'T REMEMER THE PERSON WHO BROKE EVERYTHING, I MIGHT HAVE SOMETHING AND FOR ALL OF YOU TO SUGGEST TO TAKE, E-MAIL ME PLEASE. IT'S ALL NATURAL. I JUST LOST 3 INCHES EVERYWHERE BUT MY BOOBS THANK GOD AND LOST A TOTAL OF 50 POUNDS IN 3 YRS! IT TOOK LONG ENOUGH. I AM BACK TO THE BODY I ONCE HAD. SO KNOW YOU SAY, YOU THINK SINCE I AM NOT CARRYING AROUND THE WEIGHT, WOULD THE PAIN BE ANY BETTER, HELL NO!
I AM ONLY TAKING 4 PERCOCET A DAY 5/325 MGS. BARELY AFTER 2 YRS TAKES THE EDGE OFF. I GOT OFF THE AVINZA BECAUSE IT STOPPED WORKING AFTER A MONTH I THINK. DON'T BE AFRAID OF THE SIDE AFFECTS, TAKE IT ON A DAY OFF. WHEN YOU ARE HOME. I HAD NONE. DIDN'T EVEN HAVE TO WEAN OFF. SO I DON'T KNOW WHAT TO DO NOW, DO I TELL MY PM THAT THE PERKS ARENT WORKING? DO I TRY OXYCOTIN LIKE SHE SUGGESTED ONCE? DO I GO THERE? OR JUST DO WHAT I AM DOING NOW AND LIVE IN PAIN AND DEAL WITH IT.
SHE ALLOWS ME 4 A DAY, SOMETIMES I JUST TAKE ONE IN MORNING AND 3 IN AFTERNOON WHEN I NEED IT MORE BECAUSE OF ACTIVITY. PEEPS, RIGHT NOW I AM RIPPING MY YARD APART LITRALLY, REDOING IT MYSELF, DOGWALKING, PEDICURES, ACRYLICS, WEEDING FOR CLIENTS IN THIER YARDS. NOW MY NEXT BIG JOB IS GOING TO BE REPLACING 3 CERAMIC TILES FOR A CLIENT ON HER KITCHEN FLOOR, DIGGING UP OLD ONES THAT ARE CRAKED, REPLACING, THE GROUTING, STREAM CLEANING HER FLOORS AND WAXING HER WOOD FLOORS, ALL FOR EXTRA MONEY.
HOW MANY PERKS FOR THAT DAY??? YOU KNOW IT WILL BE NEXT WEEK AFTER I PICK UP NEW SCRIPT FOR MONTH!!! I WILL TELL YOU RIGHT NOW IT WILL BE MORE THEN 4! NOT ALL AT ONCE, RELAX EVERYONE! ANYWAY, I BELEIVE TO IN KEEPING THE BODY MOVING. VERY IMPORTANT, I DON'T WANT TO ATROPHY EVER. I AM AFRAID.
MY HUBBY JUST GOT DIAGNOSED WITH WHAT MIGHT BE A SERIOUS HEART PROBLEM, WE DONT KNOW YET, HE HAS TWO TEST COMMING UP, I WILL LET YOU KNOW, HE HAS FIBRO TOO. WE JUST FOUND OUT HE HAS LOW TESTOSTERONE LEVELS, WHICH CAN MIMIC FIBROMYALGIA, I ALWAYS HAD THIS IN THE BACK OF MY MIND THAT HE REALLY DOESNT HAVE IT. I USED TO TELL HIM TO GET HIS TESTOSTERONE CHECKED AND WE WOULD FIGHT ABOUT IT AND HE THINKS I KNOW EVERYTHING, WELL I DO, SORRY!
SO I WENT TO HIS DOCTOR AND MAKDE HIM CHECK HIM UPON AND UPCOMMNG PHYSICAL, WELL GUESS WHAT, HE IS LOW!!!! SO AFTER THE HEART THINK GETS CHECKED OUT, HE HAS TO GET THAT FIXED. I HEAR THAT IS A HARD THING TO FIX. WHO CARES, HE WILL FELL BETTER.
I DON'T MEAN PLEASE IN ANYWAY TO CRITICIZE ANY MAN HERE, BUT SOMETIMES I SEE THAT YOU GUYS GET STUBBORN ABOUT THINGS AND DONT GET STUFF CHECKED IF YOUR NOT FEELING GOOD. I AM PROBABLY WRONG HERE AND WILL BE THE FISRT TO ADMITT IT, I AM SURE ALL YOU GUYS GET PHYSICALS, THANK GOD.
BUT GETTING YOUR TESTOSTERONE IS IMPORTANT. I WILL WRITE MORE LATER AND MY NEXT SUBJECT WILL BE ON "DHEA" AND HOW IMPORTANT IT IS FOR OUR BODIES. SO IF ANYONE COULD GIVE ME ADVICE ON WHAT TO DO ABOUT THE MEDS, PLEASE DO. CUTTING DOWN ON MY WORK, IS NOT AN OPTION. I WILL TELL YOU WHY, I CAN'T HURT MY BACK ANY WORSE THEN IT IS! I LOVE WHAT I DO. LOVE TO ALL TAMMY ^j^
re: re: Chronic pain
Bill
Monday, September 28, 2009 at 04:23 PMHi Tammy!! How you doing? Hang in their!! I was on 130 M.G. of methadone for 12 years and it was the worst withdrawal I have ever had!!! Been off 3 years now and will never go back on it again!!Iwould suggest Trying Oxycodone Instant release! Ask your Doctor for Oxycodone 30 M.G. 4 times daily and you will like it and with that dose and I get relief within 30 minutes always!!! The extended release 30 M.G. of Oxycontin never worked on me because I would never ever get Full pain relief!! I have Severe GOUT Which Is a terrible painful form of Arthritis!! My big toe has no Cartilage left at all and both my knees are torn up bad from it and 6 out of my 10 fingers have crooked deformed joints as if my hand looked like I was 90 years old and that is everyday!!! Plus I have 2 crushed vertebraes #11 #12 and the thought of surgury is no chance in hell!! More people wind up worse than before!! Also with the 30 M.G. of oxycodone I do not feel like a druggie at all!!!The Instant Release only!!!!! no Extended release at all! It sucked and did not help my pain relief more than a lousy vicodin The great thing with the medication i am telling you about ?? NO TYLENOL OR ASPIRIN at all!!
Just the pain Medication straight up!!! Good Luck Always Bill
-
god bless you tammy
Anonymous
Thursday, July 23, 2009 at 11:03 PMTammy, I just wanted to say that there is hope for treating your chronic pain. I too have been on pain medication for the last several years. I had no clue that there was even options out there that could help alleviate my pain. Thank goodness for your pm. It's important to find a good doctor who really listens to you. I agree with you that people who abuse the drug mess it up for those of us who really need pain medication to help us with managing chronic pain. thank you for sharing your thoughts and story. it's inspiring to know that I am not alone in this. I used to feel guilty about even having to take a narcotic to help me deal with the pain. But now, I feel empowered to have options to help... that I don't have to live with the amount of pain that I had.
-
avinza
musicman
Tuesday, July 28, 2009 at 06:37 AMI am a left leg amputee and cancer survivor living with sevear debilitating chronic "phantom limb" pain as well as back and joint pain from breaking multiple bones in car accidents as I was younger. My new Pm doctor has just started me on Avinza. I have not tried it yet because the pharmacy in my home town had to order it. I have been taking up to 6 -10mg percocets a day, I'm hoping to lower that to 1 or 2 5mg pills. The percocets have helped me lead a semi normal life except for the fact that the doseages keep going up for me. Every 2 or 3 months it seems the dose before just isnt giving me the same relief or I would have to take my meds early like ever 4 hrs instead of every 6. I know everyone builds up a tolerance, but I wish more pm doctors would alternate our meds so we didnt build up this tolerance. There are lots of pain medications and more being born everyday. I have good feelings about avinza and hope that with its help I can lead a more normal life. Its hell living in pain and its hard to have to carry your meds with you and take so many a day. I like the fact that avinza is taken once a day. I totally agree that people wo do not need the medication and are taking it just to escape reality or get "high" need help and treatment. They are making it more difficult for people who really need this medicine to obtain it without having to jump through hoops and submit to urin scans and all sorts of other things, it makes decent people feel like criminals just because they want to live a normal life. I dont really mind urine scans because I'm not on anyting else, its just an inconvience. Its so difficult to be positive and smile at everyone when your in pain. But also on the same note anyone selling their prescriptions is contributing to the problem and should be sevearly punished. I am a computer tech and a classical musician and had to drop my dream of playing onstage becasue of my sevear pain, over exertion makes it 10 times worse but with this new medication maybe I can still persue these lifelong goals.
-
Avinza
Shane
Thursday, July 30, 2009 at 10:00 AMHey Tammy, I am now on Avinza 30's too....I have actually been prescribed them twice in the mornings but I generally only take 1...I have also went from 6 percs to 2....I was wondering, have you had any headaches when taking the avinza?
Anyway, I have herniated every level of my t-spine, and 3 in cervical, and I have bilateral AVN of the hips, so I am in constant pain also....Peace...Shane
HI ANONYMOUS, MUSICMAN AND SHANE............
bassguitar
Thursday, July 30, 2009 at 10:16 PMTHANKING YOU ALL FOR YOUR THOUGHTS, KIND WORDS AND SHARING YOUR STORIES. MY HEART GOES WHOLE HEARTEDLY TO YOU MUSIC MAN AND WITH A HUG ATTACHED TOO! YOU HAVE BEEN THROW SO MUCH AND STILL GOING THROUGH LIFE WITH ENDLESS STRUGGLES. YOUR PERSONALITY IS VERY STRONG AND FORTH GOING, GOD BLESS YOU EVERYDAY!
I ENJOY THIS BOARD SO MUCH AND SHARING PERSONAL STUFF OF MYSELF WITH OUR FEELING ASHAMED AND KNOWING I HAVE FRIENDS THAT ARE SUFFERING IN PAIN LIKE I AM AND GOING THROUGH OUR EVERYDAY LIVES AND HOPING THAT TOMORROW WILL BE A BETTER DAY. :O)
I WOULD LIKE TO SHARE WITH ALL OF YOU A RECENT INCIDENT I AM EMBARRESED ABOUT THAT HAPPENED AT A VISIT AT MY PM'S OFFICE. I WAS GOING THERE TO PICK UP MY MONTHLY PRESCRIPTION OF PERCOCET. I AM ALLOWED 4 A DAY. I HAD SIGNED A CONTRACT WITH MY PM 2 YRS AGO WHICH STATES AT ANYTIME SHE CAN ASK FOR A URINE SAMPLE TO TEST FOR ANY DRUGS IN MY SYTEM OTHER THEN WHA SHE ALLOWS ME TO TAKE. NOW, THE PROBLEM WITH THIS IS "I CAN'T PEE ON DEMAND" I HAVE A SHY BLADDER. 3 YRS PRIOR I HAD A HYSTERECTOMY AND HAD MY BLADDER LIFTED BECAUSE OF IN CONTIENCE ISSUES WE WOMEN FACE IN OUR 40'S BECAUSE OF HAVING BABIES AND AGE.
SINCE THIS SURGERY, I CANNOT PEE WHEN ASKED TO GIVE A URINE SAMPLE. NOW WHEN I SIGNED THE CONTRACT, I DID NOT TELL MY PM BECAUSE I WAS AFFRAID OF NOT GETTING NARCOTICS FOR MY BACK PAIN AND I WAS EMBARRESED BY THIS WHICH I STILL AM. SO LAST MONTH I WAS ASKED TO PEE, I EXPLAINED TO THE NURSE I COULDNT, SHE DIDNT LISTEN TO ME AND MY SURGICAL STORY AND HANDED ME MORE WATER AND MORE WATER AND I STOOD THERE AND CRIED FOR AN HOUR. I ASKED TO SEE MY PM, BUT SHE WAS BUSY WITH PROCEDURES. BOTTOM LINE, THEY LET ME GO, GAVE ME MY PRESCRIPTION AND MOVED MY 3 MONTH APPOINTMENT UP EARLIER TO TODAY.
I EVEN WENT AS FAR AS SEEING MY INTERNIST ABOUT THIS MATTER BECAUSE I AM IN FEAR OF NOT GETTING MEDS FROM MY PM ANYMORE AND THE CONTRACT DOES SAY SHE CAN CUT YOU OFF. NOW, I ALSO SUFFER TERRIBLY FROM FIBROMYALGIA AND WHEN UNDER STRESS, IT MAKES MY BACK AND BODY HURT MORE. IN ADDITION TO ALL OF THIS GOING, MY HUSBAND JUST GOT DIAGNOSED WITH A HEART CONDITION THAT REQUIRES AN ANGIOGRAM SOON, I AM SCARED TO DEATH.
HE MIGHT NEED A STENT. SO TODAY I SAW MY PM FINALLY AND EXPLAINED TO HER I AM NOT HIDING ANYTHING, I COULDN'T HELP WITH THE WATERWORKS (TEARS) AS THIS IS SO UPSETTING TO ME. I TOLD HER THE PROBLEM IS OS BAD THAT WHEN I AM IN A PUBLIC PLACE AND HAVE TO PEE, IF SOMEBODY IS IN THE PUBLIC BATHROOM, I CANNOT GO. I TOLD HER MY HUBBY ONCE TOOK ME TO SEE MY FAVORITE, FAVORTIE SINGER PETER CETERA AND I DIDN'T PEE FOR 13 HOURS BECAUSE THE BATHROOMS WERE ALWAYS BUSY!!!!
IMAGINE NOT PEEING FOR 13 HOURS! NOT FUN! THE PM WAS VERY SYMPATHETIC THANK GOD AND HOW SHE IS RESOLVING THIS IS SHE IS GOING TO CATHERIZE ME FOR URINE NEXT WEEK. I HAVE HAD THIS DONE BEFORE, NOT PLEASANT BECAUSE I ALSO SUFFER FROM INTERSTITIAL CYSTITIS AND IT IS A VERY PAIFUL CONDITION. YOU PEE RAZOR BLADES WHEN YOU FLARE. THIS PROCEDURE COULD MAKE ME FLARE.
I DIDN'T TELL HER I HAVE THIS AND I JUST WANT IT OVER WITH. SHE ONLY GAVE ME HALF OF MY PRESCRIPTION TODAY. I ASKED HER TO DRAW BLOOD, SHE WANTS URINE, CANNOT BRING FROM HOME EITHER. OUT OF ALL HER PATIENTS I AM THE ONLY ONE GUYS............
THE BEST PART IS HER CONTRACT DOES NOT SAY ANYTHING ABOUT TELLING THE DOCTOR THAT IF YOU CANT PEE FOR ANY REASON, TO LET HER KNOW. SHE SHOULD REALLY PUT THAT IN THERE. WHAT DO YOU GUYS THINK, SHOULD I TELL HER THAT???
ANYWAY ENOUGH ABOUT ME, MUSIC MAN I WISH YOU COULD CONTINUE YOUR DREAMS, I AM SO SORRY ABPUT ALL YOUR PAIN AND SUFFERING. I SING AND THAT PETER CETERA I MENTIONED, I WOULD LOVE TO DO A DUET WITH HIM. LOOK HIM UP ON YOUTUBE, I KNOW YOU KNOW HIS SONGS. HE WAS WITH THE BAND "CHICAGO" BACK IN THE 1970'S TILL 1985.
I DON'T RECALL AVINZA GIVING ME HEADACHES. I TOOK IT FOR 6 WEEKS, TO BAD IT DIDNT WORK ANYMORE AFTER THAT. I DIDNT WANT TO INCREASE, WAS TAKING 30 MGS. THE 5/325 OF PERKS TAKES THE EDGE OFF ONLY. MY BONE SPUR SHOULDER IS ACKING UP ONCE AGAIN AFTER I HAD 3 TRIGGER POINT INJECTION IN IT 9 MONTHS AGO, THEY ARE WEARING OFF.
IT IS KNAWING PAIN IN SHOULDER BLADE. I ALSO HAVE A NEW BUNION WHICH IS BURNING ALL DAY PEOPLE. OH WELL. I AM DOING TWO NEW CLIENTS FOR NAILS REALLY EARY TOMORROW AM. NEED TO GO SLEPPY BYS. LOVE TO ALL AND THANK YOU FOR ALL OF YOUR SHOULDERS TO HANG MY HEAD ON, TAMMY ^j^
re: Tammy and Musicman
Shane Cantley
Friday, July 31, 2009 at 01:49 PMI too, have been a singer/Frontman/Performer for most of my life....I performed at Blackpool Pleasure beach in 2003, Hersher park PA, Florida state and Miami Dade County fair, NJ state fair at Meadowlands, Klondike days in Edmonton AB Canada, and Calgary Stampede in 2004...I developed nodules on my Vocal cords and could not sing for 2years!! I have my voice back now but due to my back and hip issues, I cannot do much....Anyway...I found out the headaches are not from the avinza but from bone spurs in my neck...My Lawyer has hired an outside orthapedic surgeon to review my Case to link the bilateral AVN to epidurals given to me when I 1st got injured....AVN is caused 90% of the time by corticosteroids, yet my WC Dr says I got it from "Dumb Luck!!" He also recommended that I smoke pot for pain. I told him I have a child at home and that I am now a grown man and do not smoke! He said "Just try it"....I didn't...But guess what....He called me in the very next time and pissed tested me!!! Then he interrogated me about why I tested positive for Benzo's and where was I getting them!!! I reminded the a-hole that HE had me on 22mgs of Restoril/Temazepam just so I can sleep at night!! I am praying that they can link my hips and back together so that I can get away from this nutcase!! Enough of my ranting...LOL...I hope you guys have a wonderful, painfree weekend!!!Peace....Shane
re: re: Tammy and Musicman
bassguitar
Friday, July 31, 2009 at 04:15 PMSHANE, SO YOU ARE SAYING YOU GOT BONE SPURS ON THE BACK OF YOUR NECK FROM EPIDURAL, CORTISTERIOD INJECTIONS YOU RECIEVED TO TRY TO RELEIVE YOUR PAIN???? OMG! DO I HAVE TO WORRY ABOUT THIS? I HAD 9 INJECTIONS IN MY BACK SOME CORTISTEROID, SOME EPIDURAL. I FIRST STARTED WITH THE L-4,5 IN LOWER BACK, BONE ON BONE, NO GEL BETWEEN DISCS. THATS WHAT FIRST BROUGHT ME TO FIND A PM AND A FEW WHERE ASSHOLES, THEN I FOUND THE ONE I AM STILL WITH WHO HAS BEEN VERY HELPFUL WITH MAITENENCE MEDS WHEN OTHER PAIN MANAGEMENT DOCS WOULD ONLY WANT TO GIVE CORTISTEROID INJECTIONS BUT NO PAIN MEDS. SO MY QUESTION IS, WHY CALL YOURSELF A PAIN MANAGMENT DOCTOR FOR GODS SAKE!
I DON'T GET IT! ANYWAY, WHILE 2 YRS INTO TREATMENT, MY LOWER BACK WHICH LITRALLY CRIPPLED ME WITH PAINFUL SPASMS THAT STOPPED ME DEAD IN MY TRACKS AT LEAST 10 TIMES A DAY, MIND YOU I WAS WORKING FULL TIME AS A NAIL TECH, WELL THE PAIN SUBSIDED AND THEN I STARTED GETTING ALL THIS MIDDLE BACK PAIN, BURNING, ACHING, DIFFERENT FROM THE LOWER BACK. SO NOW I AM LIKE, WHAT THE HELL IS THIS?
I TOLD MY PM, SHE SENT ME TO AN ORTHOPEDIC AND HE DID AN MRI, COME TO FIND OUT I FOUND OUT THE REASON MY LOWER BACK DOESN'T HURT ANYMORE CAUSE IT FUSED ITSELF! THE REASON MY MIDSECTION HURTS, BECAUSE NOW I HAVE 9 SEVERLY BULGING DISCS! WHAT THE HELL! WHY? NOTHING I DID MYSELF, IT IS GENETIC! NICE HUH?
THERE IS NO SURGERY FOR THIS. THE ORTHO SAID IT WOULD EVENTUALLY FUSE ITSELF TOO IN 10 YRS! HEY CAN'T WAIT, IN THE MEANTIME I AM IN AGONY AND NOW MY F-----G LEFT SHOULDER THAT HAS BONE SPURS AND GOD KNOWS WHAT ELSE IS KNAWING SO BAD IN THE SHOULDER BLADE, AS WE SPEAK NOW. PM GAVE ME NAME OF SHOULDER GUY TO SEE. PEOPLE, I WAS SUPPOSED TO HAVE SHOULDER SURGERY 12 YRS AGO, I DIDN'T CAUSE I COULDN'T AFFORD TO TAKE TIME OFF FROM WORK.
I WILL MAKE APPOINTMENT SOON. PEOPLE WHO DON'T SUFFER IN PAIN HAVE NO IDEA HOW THANKFUL THEY ARE. SHANE, I AM SO GLAD YOU HAVE YOUR SINGING VOICE BACK AND ANGRY THAT THOSE CORTISTEROID/EPIDURAL INJECTIONS GAVE YOU BONE SPURS. YOUR DOCTOR IS A JERK. YOU KNOW, WITH THE PROBLEM I AM HAVING WITH MY PM RIGHT NOW WITH THIS URINE THING, IT ALMOST MAKES ME WANT TO BELEIVE THAT THEY WANT TO HELP YOU IN THE BEGINING, SHOTS, MEDICATION, THEN WHEN THEY SEE YOUR NOT GETTING BETTER, THEY WILL LOOK FOR ANYWAY TO GET RID OF YOU! THIS IS HOW I FEEL.
SO THANKS BUT THANKS FOR NOTHING DOC. WHAT NOW? ANYWAY, KEEP US POSTED SHANE ON EVERYTHING. I WILL DO THE SAME. I AM GOING TO ICE MY SHOULDER. I DID TWO FULL SETS OF NAILS THIS MORNING, NEW CLIENTS. I WISH I WAS FINACIALLY SET, WISH WE ALL WERE SO WE DIDN'T HAVE TO WORK AND JUST BE ABLE TO TAKE CARE OF US FOR ONCE! LOVE TO ALL TAMMY ^j^
re: re: re: Tammy and Musicman
Shane
Saturday, August 01, 2009 at 11:30 AMBassman, thanks for response! The bine spurs were not caused by the steroid shots....The Bilateral AVN in my hips was caused by the shots....AVN can get into any joint, Shoulder, hip, ankle etc...I was given about 7 epidural steroid shots in my t spine and facet joints in about a 6 month period. The only cure for the AVN is total joint replacement. Anyway....Have a great weekend everyone....Peace....Shane
-
Chronic Pain
dancer
Thursday, August 20, 2009 at 11:35 AMHi,
First I am so sorry to hear about your pain and the fact that the medication is not working. I too live with chronic pain daily and at times too don't think there is light at the end of the tunnel. I too was on oxycotin and bextra wich I wishnever came off the market because it is the best antiiflamatory for people who can tolerate it and not abuse it. I also had a muscle relaxer totake. Seems like so much for a 90 lb women. I was able to dance and teach. But one day everything just stopped working and bextra was removed from the market. that was a woeful day indeed. I decided to go vegatatian and slowly cut out the drugs on my own. I did and tried a variety of vitamins and herbs. Chinese, Indian, detoxing herbs. coconut water, wheat grass. I now take asprin with msn. glucosamin.chondroitin, liquid is better. Calicium, multivitams,greek yogurt,smoothies,. I take kava and valarium at night. And drink caffine during the day to stay awake. Ialso use liderm patch,and heat patches. Also capsasian, and biofreeze. At night I sleep with heating pad and a muscle stimulator that shuts off after 15 min. So It is alot of work very self indulgent to an outsider and kills relationships. I had bouts of flareups of sorts, and decided to just treat my self. I recently did an mri which slows servere spinal stenosis, anular bulging, spondylethis, and I defitly saw white bands near my hip flexor where I have a ton of pain that my dr did not address. A total wasted follow up visit where she did not explain the mri and how my spine changed for the worst in a short time, and the fact I had bilateral sciatisa.. I have since been slowing rehabing this myself (so fed up with western med} by walking with incredable pain and yoga specific exercise. ( btw I pulled up the report by using the hippa form to get my records before the visit) She did not know of course. I splurged for a massage twice to get me over the hump which helped so much. And so it is a daily battle and a slient one because I am a ballet teacher who is working far less but hanging in there, I am also so tired of the looks, I get. but I now just totally zone out and ignore everyone. You just have to be your own best friend, listen to your body, and I know one day you will be doing nails, and maybe out of your house. Maybe you will be a special nail designer artist, and only do private appointments for now. Bottom line hold on to your dreams and maybe think about alternative medicine like accupunti ure, massage, or a pliaties ball or roller. Or just a few tennis balls to roll on will help.
re: Chronic Pain
bassguitar
Wednesday, August 26, 2009 at 06:15 PMHI SHANE, DANCER AND MADIA!
NICE TO HEAR FROM ALL OF YOU. HEAR WE ALL ARE IN PAIN AND NO WHERE TO GO. MADIA, THE SITUATION WITH THE PAIN MANAGEMENT DOCTOC IS IF YOU CAN FIND A GOOD ONE AND BY THAT, ONE THAT IS NOT GOING WASTE YOUR TIME BY JUST INJECTING YOU WITH SHOTS. ONE THAT WILL WORK WITH YOU PUT YOU ON A MAINTNENCE MEDICATION AND NOT HAVE A PROBLEM WITH IT AND ALSO EXPLAIN EVERYTHING TO YOU THOUGHLY AS HE OR SHE GOES ALONG WITH YOUR TREATMENT, MAKES SUGESSTIONS AND UNDERSTANDS YOUR PERSONAL LIFE AND YOU IN GENERAL. THIS TO ME IS A GREAT PAIN MANAGEMENT DOCTOR, THEN IT IS ALL WORTH IT. ALOT OF THESE PM'S AS I LIKE TO CALL THEM, WILL GIVE YOU THE SHOTS BUT NOT THE MEDS. SOMETIMES THE SHOTS WON'T WORK AND DIDNT IN MY CASE AT ALL. I HAD AT LEAST 9 OF THEM.
I HAD GONE TO 3 PM'S BEFORE I FOUND THE ONE I AM WOTH NOW. I HAVE BEEN WITH HER FOR 2 1/2 YRS NOW. THE FIRST THING I SAID TO HER AT OUR FIRST APPOINTMENT IS THE PROBLEM I HAD WITH OTHER PM'S AND IF SHE WASEN'T GOING TO PUT ME ON A MAITENENCE MED, THEN DONT EVEN BOTHER WITH OUR APPOITMENT. WELL THAT GOT HER ATTENTION, SHE CARED AND LISTENED. I AM STILL HER PATIENT. I SIGEND HER CONTRACT SINCE I AM ON A NARCOTIC WHICH IS PERCOCET, I TAKE 4 A DAY, 2 IN MORNING AND 2 IN EVENING. THEY BARLEY TAKE THE EDGE OFF AT THIS POINT AND I REALLY DONT WANT TO G ON ANYTHING STRONGER, TRIED THAT ONCE AND MY BODY GOT USED IT AFTER A MONTH. SO I DONT WANT TO GO THERE AGAIN, I JUST DEAL WITH THE PAIN.
ON THE OTHER HAND PMS MAKE YOU SIGN CONTRACT AND THESE CONTRACTS SAY AT ANYTIME THE DOCTOR CAN TEST YOUR URINE TO MAKE SURE YOU ARE TAKING THE DRUG AND ALSO NOT TAKING ANYTHING ELSE. SO THAT IS THE DOWN SIDE. IF IT WASNT FOR ALL THE PEOPLE WHO ARENT IN PAIN AND GO TO THE DOCTOR AND SAY THEY ARE AND GET NARCOTICS AND ABUSE THEM, THIS IS WHY THINGS ARE TOUGH FOR PEOPLE WHO ARE IN PAIN AND REALLY NEED THEM.
SO ITS A PERSONAL CHOICE WHETHER OR NOT TO SEEK OUT AND GET REATED BY A PM. TO ME ITS WORTH IT AS I AM IN INCRDIABLE PAIN. I CANT WORK ANYMORE, GOT FIRED FROM MY LAST JOB BECAUSE I HAD EMERGENCY SURGERY AND REALLY DISGUSTED AND DONT WANT TO WORK FOR ANYONE ANYMORE. I HAVE MY NAIL CLIENTS WHICH I STILL ATTENT TO PRIVATELY. DOING NAILS KILLS MY BACK, BUT I LOVE WHAT I DO AND ALWAYS BELEIVE YOU HAVE TO KEEP MOVING AND I BELEIVE "DANCER" YOU WOULD AGREE WITH ME ON THIS ONE. I ALSO DOG WALK 2 DOGS 3 X WEEK FOR AN HOUR, WHY, TO KEEP MOVING. YOU HAVE TO. NO MATTER HOW MUCH PAIN YOU ARE IN. KEEP MOVING, IT DOESNT MATTER WHAT YOU DO, KEEP MOVING.
I CAN FEEL FOR ALL THE PAIN YOU ARE IN WHEN I READ YOUR LETTER DANCER. EVERY LINE I READ AND I KNOW THE PAIN YOU ARE IN. I SEE WHAT YOU MEAN ABOUT BEING GLAD ABOUT NOT TAKING THE EMDS ANYMORE, BELEIVE ME DANCER, I WISH THAT WAS ME. I CANT TAKE ANYTHING ANTI-INFLAMITORY AS IT TEARS UP MY INTESTINES. I KEEP TRYING EVERY ONCE IN A WHILE. DIARREAH EVERYTIME, WATER TO BE EXACT. I HAVE IBS WITH THE FIBROMYALGIA, SO I HAVE TO BE CAREFUL. PERCOCET HAS TAKEN CARE OF THE IBS PROBLEM, KIND OF FIXED IT. EVEN THOUGH DANCER YOU ARE NOT TAKING THE MEDS, YOU IN AGONY AND KIND HAVE GOTTEN USED TO IT. NO ONE SHOULD BE IN PAIN. REALLY. DONT GIVE UP ON THE DOCTORS. THE ONE YOU SAW WAS AN ASS, YOU MIGHT HAVE TO SEARCH A LITTLE, BUT LOOK FOR A GOOD PM. I FOUND MINE ON THE INTERNET.
CALL YOU LOCAL HOSPITAL. AS YOU AGE, LIKE ME WE WILL GET WORSE. WHY SUFFER LIKE THAT. I FOUND A WEBSITE WHERE I WAS GETTING MY MUSCLE RELAXANTS WITH NO PRESCRIPTION, ALL LEGIT, CHEAP ANYTIME I NEEDED THEM. I WAS ONCE GETTING THEM FROM MY DOCTOR UNTIL HE DECIDED THEY WERE ADDICTING AFTER GIVING THEM TO ME FOR 2 YRS. THE ONE I WAS TAKING WAS CALLED "SOMA' I WAS TAKING THE GENERIC. I STOPPED TAKING THEM IN FEBUARY THIS YEAR AS I WANTED TO GET THE REST OF MY WEIGHT OFF WHICH I DID. THEY DO SLOW YOU METABOLISM DOWN. BUT SOMA IS GREAT FOR SLEEPING AND THE BEST MUSCLE RELAXANT ON THE MARKET! I WILL SAY THAT! YOU DEFIANELTY CANNOT DRIVE ON THIS! I AM IN THE PROCESS OF WORKING WITH A WEBSITE RIGHT NOW FOR VICODIN JUST IN CASE I MOVE IN 3 YRS. MY HUBBY AND I ARE HOPEFULLY GOING TO MOVE DOWN SOUTH IN 3 YRS WHEN HE RETIRES NEXT JUNE. SO THAT MEANS FINDING A NEW DOCTOR AND WHO SAYS I AM GOING TO GET LUCKY THIS TIME AND BE ABLE TO GET NARCOTICS. I NEED A BACK UP PLAN AND HAVE BEEN LOOKING INTO THAT FOR A WHILE NOW.
HEY I AINT GETTING YOUNGER AND I AM SURE THE PAIN AINT EITHER. I AM GLAD YOU ARE NOT TAKING ANYTHING, BUT I ALSO HEAR THE PAIN IN YOUR MESSAGE. DONT GIVE UP ON THE DOCTORS, YOU HAD A BAD EXPERIENCE. YOU HAVE TOO MUCH GOING ON WITH YOUR BACK AND THINK ABOUT IT THIS WAY, BEING IN PAIN MAKES YOU DEPRESSED, IT SHOWS ON THE OUTSIDE. I THINK IT AGES YOU TOO. DESPITE ALL WE DO TO TRY TO FEEL GOOD, AND WE DO EVERYTHING, PAIN STILL TAKES OVER OUR LIVES. DONT LET IT TOTALLY TAKE OVER YOUR LIFE AND CONSUME YOU. I AM NOT ASHAMED TO SAY I TAKE PERCOCET. I DONT CARE WHET PEOPLE THINK EITHER. IF THIS IS WHAT I HAVE TO DO TO MAKE IT THROUGH THE DAY, WELL SO BE IT. I HOPE THIS HELPS YOUR DECISSION. AND YOUR TOO MADIA. SHANE I THINK YOU SUFFER THE WORSE OUT OF EVERYONE. PLEASE KEEP US UPDATED. EVERYONE IT WAS GREAT TALKING TO ALL OF YOU AND SHARING MY STORIES AND FOR ALL OF YOU LISTEING. WE ARE ALL IN THE SAME BOAT, TO LISTEN, HELP, LEARN. MUCH LOVE TAMMY ^j^
-
Untitled Comment
Madia
Tuesday, August 25, 2009 at 07:12 PMHello I also have back pain. I had surgery about 11 months ago and still have pain in my lower back. I also have arthritis in my neck. My doctor wont give me no more pain pills so I have to go to pain management. Do these guys really help you? I dont have pain every day but when it comes on it last for at least a week or more. It just takes one thing to irratate it. My doctor made me feel like I was a drug attic. So can someone please let me know if pain mangement really works with you or against you.
Thanks Madia
MADIA.........
bassguitar
Wednesday, August 26, 2009 at 06:20 PMONE THING I FORGOT TO ADD, DONT EVER LET A DOCTOR INTIMMIDATE YOU OR MAKE YOU FEEL LIKE YOUR A DRUG ATTIC, YOU ARE NOT. IF THESE ASSHOLE DOCTORS HAD 1/2 HOUR OF OF OUR BODY PAIN, THEY WOULD APPOLOGIZE TO EVERYONE THEY EVERY INTIMMIDATED!!!! THIS REALLY PISSES ME OFF!!!!!!!!
re: MADIA.........
Madia
Thursday, August 27, 2009 at 10:07 AMSo should I go back to my doctor and tell him he needs to give me more meds? Should I not take no for a answer? I just hate having to do this. I want to go to a doctor that will understand why im thier in the first place. I thank you for the boost. I really glad someone feels the way I do about these jack ass doctors.
Thanks Madia
re: re: MADIA.........
bassguitar
Friday, August 28, 2009 at 08:31 AMHI MADIA! I WOULD FIND A PAIN MANAGEMENT DOCTOR AND WHEN YOU GO TELL THIS DOCTOR YOU ARE CURRENTLY TAKING ALREADY WHAT EVER PAIN MEDICINE YOUR OTHER DOCTOR GAVE YOU, BRING THE BOTTLE FOR PROOF AND TEL THE PAIN MANANGEMENT, PM THAT YOUR DOCTOR SAID I NEED TO SEE YOU FOR TREATMENT TO CONTINUE MY MEDS AND FOR YOU TO OVERSEE THAT CARE. THIS WAY IF YOU DO IT LIKE THAT, THE PM SHOULD HAVE NO PROBLEM WRITING THE SAME SCRIPT AND BE HONEST WITH THE PM AND TELL HIM OR HER THAT YOU NEED EITHER MORE PILLS OR STRONGER. THIS IS WHAT THEY ARE THERE FOR MADIA. THIS IS WHY THEY ARE CALLED "PAIN MANAGMENT" LIKE I SAID IN LAST POST, YOU HAVE TO FIND A GOOD ONE. YOU MIGHT BE SEEING A FEW LIKE I DID BEFORE YOU FIND ONE THAT WILL MEET YOUR NEEDS. PLEASE KEEP IN TOUCH AND LET ME KNOW, TAKE CARE TAMMY ^j^
re: re: re: MADIA.........
Madia
Friday, August 28, 2009 at 01:45 PMThank you Tammy!!! I will look into this.
-
pain
mary steele
Saturday, September 05, 2009 at 09:41 AMHi Tammy,
O know what you are talking about. Today seems to be one of those days and we plan on going to the beach, I have to take a couple of soma and itale neurontin for the nerve pain, also I am interested in seeing a pain management dr are they more helpful than a regular md. I am in the prcess of filing for disability I was an activitry coordinator and I just cant seem to handle the stress or being on my feet so much. It is good to know there are others out there going through the same things. Mary
-
sever chronic back pain the call fibro
onna
Sunday, September 20, 2009 at 02:37 PMHi Tammy, Its nice to meet you, I too have horrible back pain and I know exactly were your coming from living with this condition has been hell to say the least. Please if you need someone to talk to about it do let me know ok Im here...=) I have a hard time dealing as well and it hard to find friend or anyone who can understand exactly what we go through. So Please email me anytime I am here pretty much morning noon and night your friend onna
re: sever chronic back pain the call fibro
onna
Sunday, September 20, 2009 at 02:47 PMomg there is alot of us here, well I just wanted to post another note to all of us dealing with pain , so I could say hello to everyone
re: re: sever chronic back pain the call fibro
bassguitar
Monday, September 21, 2009 at 08:41 AMHI ONNA, MARY AND SAYING HI TO MADIA AGAIN, YOU LADIES ARE A RAY OF SUNSHINE IN MY LIFE. THANK YOU ONNA FOR YOUR E-MAIL, I WILL E-MAIL YOU LATER TONIGHT AND HOPEFULLY WE BECOME REALLY GOOD FRIENDS TO WHERE MAYBE WE COULD CHAT ON THE PHONE SOMEDAY.
I LIVE IN GARRISON NY, AN HOUR NORTH OF NEW YORK CITY. WELL LADIES GET THIS ONE. I HAVE BEEN SEEING MY PAIN MANAGMENENT DOC ( PM FOR SHORT) NOW FOR 2 1/2 YRS. SHE DROPPED A BOMB ON ME LAST WEEK AND DECIDED SHE WANTS ME OFF THE PEROCET. REMEMBER I TAKE 2 IN THE MORNING AND TWO IN THE AFTERNOON, THE 5/325. SO I LOOKED AT HER AND SAID, "OH SO YOU DECIDED MY PAIN WAS GONE" HER ANSWER WAS( AND LADIES SIT DOWN FOR THIS ONE ) "JUST BECAUSE YOUR MRI IS SHOWING 9 BULGING DISCS AND OSTEOARTHRITIS IN YOUR SPINE ANS BONE SPURS IN YOUR SHOULDER, DOESNT MEAN YOUR IN PAIN!!!!!!
I ALMOST FELL OFF THE CHAIR WHEN SHE SAID THAT SO I LOOKED AT HER AND SAID, DR. MALITIS, WHAT THE HELL HAVE I BEEN COMMING HERE FOR 2 1/2 YRS FOR AND DRIVING 45 MINS EACH WAY WITHA CAR THATS 14 YRS OLD ON ITS LAST LEG? YOU HAVE GIVEN ME 9 PAINFORL INJECTIONS THAT DIDNT WORK AND SENT ME TO AN ORTHO WHO SAID MY BACK WAS ALL GENENTIC AND WASENT GOING TO GET BETTER JUST WORSE, SO HOW THE HELL CAN YOU SIT THERE AND TELL ME I'M NOT IN PAIN! SO SHE LOOKED AT ME AND SAID NOTHING AND THEN CHANGED THE SUBJECT AND STARTED TELLING ME ABOUT A NEW DRUG FOR FIBROMYALGIA SHE WANTED ME TO CONSIDER. ITS CALLED "SAVELLA"
I TOLD HER I WILL READ THE PAMPHLET BUT NOT INTERESTED RIGHT NOW STARTING ANYTHING NEW. THEN SHE WROTE MY MONTHLY PRESCRIPTION FOR PERCOCET AND WANTS ME TO SEE A UROLOGIST TO HAVE HIM CATHERIZE ME FOR A URINE SAMPLE FOR HER DRUG TEST SHE NEEDS SINCE I CANT PEE FOR HER. TIS IS BECAUSE I HAD MY BLADDER LIFTED 3 YRS AGO WHEN I HAD A HYSTORECTOMY AND HAVE HAD PROBLEMS PEEING SINCE. SHE NEEDS A URINE SAMPLE SINCE I TAKE NARCOTICS, I SIGNED A CONTRACT 2 YRS AGO.
I DONT HAVE A PROBLEM WITH THAT. SO BEFORE I LEFT THE OFFICE SHE ASKED ME TO GO OVER TO THE NEXT BUILDING TO HAVE THEM DRAW BLOOD FOR A DRUG SCREENING, SO I LEFT AND WENT THERE IMMEDIATELY, I CHECKED IN SAT AND WAITED, WASENT THERE FOR 3 MIN AND THEN THE RECEPTIONIST CALLED ME UP FRONT AND SAID THE PM JUST CALLED AND SAID SHE CHANGED HER MIND AND DOESNT WANT BLOOD TODAY. SO WHY DID SHE MAKE ME GO THERE????
I AM SO SICK AND TIRED OF THE BULLSHIT RIGHT NOW AND PLAYING GAMES. SO TODAY LADIES I AM SEEING ANOTHER DOCTOR, EXPLAINING MY SITUATION AND ASKING IS SHE COULD EITHER OVERSEE THE PERCOCET OR REFER ME TO A DOCTOR THAT WILL AND IF SHE CANT HELP ME, MY NEXT STEP WILL BE THE INTERNET FOR MEDICATION. I HATE TO DO THAT BUT I WILL BECAUSE I AM TIRED, IN PAIN AND DONT WANT TO BE CUT OFF. TODAY I WOKE UP WITH A STIFF NECK, CAN BARELY MOVE, BACK PAIN IS THROUGH THE ROOF. SO COULD YOU IMAGINE IF I DIDNT HAVE PAIN MEDS???? REMEMBER I ALSO HAVE FIBROMYAGLIA TOO.
I WISH SOME OF THESE DOCTORS WHO DONT BELEIVE THAT WE ARE IN PAIN, COULD HAVE OUR PAIN FOR ONE WHOLE DAY TO SEE WHAT WE GO THROUGH.........
I WILL LET YOU ALL KNOW HOW THE DOCTOR I SEE TODAY GOES AND I SEE UROLOGIST TOMORROW. LOVE TO ALL TAMMY ^j^
"
re: re: re: sever chronic back pain the call fibro
onna
Monday, September 21, 2009 at 12:59 PMtammy so sorry to here that good luck today!
-
Untitled Comment
Eby6861
Thursday, November 19, 2009 at 09:35 PMTammy,
I defintely feel ur pain. I was diagonosed w/ fibromyalgia 6 yrs ago when i was only 23yrs old. I too live everyday of my life in pain. I am currently on Lyrica,Savella, Hydrochrolorine, Flexeril, tramadol, & valium. I am so frustrated because no one seems to really understand my situation. My entire body aches to include my lower back which I have constant sharp shooting pain. Anyway I am sooo feed up. I wish i could just be normal!!!
Eby
- Font size
- Email This
- Bookmark
- Thank you for your input
- Save
- RSS
- Report Abuse
Tammy
Hello and Welcome to the Chronic Pain Connection. It's a plesure to meet you and I think after reading your sharepost, that you & I have a few things in common. I have chornic spinal pain and FM. I'm under the care of my Primary care physician and a PM doc too. When I was originally prescribed with my sustained release meds, it took about a year for my PM doc to finally find the correct dosage. Please don't give up yet hon! Be very honest at your November apt and tell her exactly what milligrams of your Breakthrough meds your needing. She will or should then calculate your sr meds to cover that level of pain and then you should be backed off some of your short acting rescue med. I had nearly the same situation with my sr meds and after that first year of adjusting the dosage, it's been over 4 yrs now and I've been on the same dosage that she titrated me up too. They can't just give you the stronger dose to begin with and although it was frustrating and I worried about it. It's been a blessing to have the dosage and a stable rate for this long.
I watched that Dr. phil show myself and yes it was very frustrating. I'm staying with an elderly friend right now and Dr. phil is her show and so I could not shut it off. GRRRRR that woman made me angry with her too.
My pain is up today, so I have to keep this short, but let me know if you' like to visit. I'm here often and would love to visit you.
Take Care and don't give up
Betty