While I wish nobody had to know this unpleasant reality, it is comforting to know there is someone who acknowleges the problem. I suffer from TMJ, 2 failed reconstructive surgeries, now it is degenerative osteoarthritis in the TMJ joint. Along with the TMJ, and getting worse with time are the conditions of fibromyalgia, CFS, trigeminal neuralgia, MPDS, severe dental problems (no dentist will touch me as I am considered a high risk, complicated case patient), have herniated discs and arthritis in my neck, an auto accident resulting in severe costochrondritis. My insurance company covered the MRIs that show the brain anomoly, the neck problems, but the neurologist said there were no serious problems, it was my chiropractor who wanted me tested as she felt it was very possible I was suffering from MS, all symptoms present, and it needed medical treatment. MS was ruled out as the problem. The insurance company does not cover Lyrica, I am prescribed Neurontin, which I have side effect problems with it, and 9 Relpax per month for the headaches. The insurance company, Medicaid, does not cover TMJ or any TMJ related issue, nor do they provide speciality dentists who understand TMJ. I am allergic to steroids and cortisone, antidepressants, in network pain mngt doctors use those types of nerve blocks and insist one take antidepressants. The neurologist(s) told me the pain is "anxiety, depression, and social issues" to a large degree, that I should "talk to someone profressional", there is nothing they can do. The insurance companies special need unit case worker with whom I spoken to has told me no matter what, any treatment for TMJ, related issues, speciality dentist is something that is not covered under any circumstance, nor will they lift the limit of 18 doctor visits, to all doctors in total allowed per year. At age 47, I am a prisoner of my physical self, chronic pain, which gets worse with time, I've lost any real quality of life, I can force basic functioning for short periods of time, on bad days, it is only the taking of Vicodan upon awakening that allows me to remain upright, even while sitting in this computer chair. It is a feeling of intense frustration, to know what the problems are and to be denied treatment for them by the insurance company, my quality of life and ability to function decreasing too rapidly. I've pushed for treatment, to be told that while "acute and terminal pain issues are covered, treatment of chronic pain is simply not cost effective, and will never be covered", if anyone has insight on how to get past this brick wall, it would be so greatly appreciated

re: A sense of comfort in that someone realizes this problem
TedG
Wednesday, September 30, 2009 at 10:22 AM
Hi BarbB,
Sorry to hear about your extensive problems.
I suggest you contact a Kinergenics Practitioner and have a session or two.
It is 'alternative' medicine, but it works. Hope one is near you.
http://www.kinergetics.com.au/PracList.asp?s_Country=USA&s_State=&KinLocationPage=1
Good luck,
Ted
While I wish nobody had to know this unpleasant reality, it is comforting to know there is someone who acknowleges the problem. I suffer from TMJ, 2 failed reconstructive surgeries, now it is degenerative osteoarthritis in the TMJ joint. Along with the TMJ, and getting worse with time are the conditions of fibromyalgia, CFS, trigeminal neuralgia, MPDS, severe dental problems (no dentist will touch me as I am considered a high risk, complicated case patient), have herniated discs and arthritis in my neck, an auto accident resulting in severe costochrondritis. My insurance company covered the MRIs that show the brain anomoly, the neck problems, but the neurologist said there were no serious problems, it was my chiropractor who wanted me tested as she felt it was very possible I was suffering from MS, all symptoms present, and it needed medical treatment. MS was ruled out as the problem. The insurance company does not cover Lyrica, I am prescribed Neurontin, which I have side effect problems with it, and 9 Relpax per month for the headaches. The insurance company, Medicaid, does not cover TMJ or any TMJ related issue, nor do they provide speciality dentists who understand TMJ. I am allergic to steroids and cortisone, antidepressants, in network pain mngt doctors use those types of nerve blocks and insist one take antidepressants. The neurologist(s) told me the pain is "anxiety, depression, and social issues" to a large degree, that I should "talk to someone profressional", there is nothing they can do. The insurance companies special need unit case worker with whom I spoken to has told me no matter what, any treatment for TMJ, related issues, speciality dentist is something that is not covered under any circumstance, nor will they lift the limit of 18 doctor visits, to all doctors in total allowed per year. At age 47, I am a prisoner of my physical self, chronic pain, which gets worse with time, I've lost any real quality of life, I can force basic functioning for short periods of time, on bad days, it is only the taking of Vicodan upon awakening that allows me to remain upright, even while sitting in this computer chair. It is a feeling of intense frustration, to know what the problems are and to be denied treatment for them by the insurance company, my quality of life and ability to function decreasing too rapidly. I've pushed for treatment, to be told that while "acute and terminal pain issues are covered, treatment of chronic pain is simply not cost effective, and will never be covered", if anyone has insight on how to get past this brick wall, it would be so greatly appreciated