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Thursday, November, 26, 2009
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Temporomandibular Joint Disorder (TMJD): Tangled Up With Fibromyalgia

Dr. Mark Borigini
Dr. Mark Borigini
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Chronic Pain Specialist

Mark James Borigini, MD, graduated from Hahnemann University (now...

Dr. Mark Borigini

Friday, December 05, 2008
View All of Dr. Mark Borigini's Posts
It is rather common for patients to complain of suffering chronic fatigue along with all the pain of fibromyalgia, but it seems to me that too often perhaps doctor and patient neglect to discuss the pain of TMJD, which is also seen commonly in fibromyalgia patients.  Perhaps this is because the ...
  1. A sense of comfort in that someone realizes this problem
    BarbB
    Monday, December 08, 2008 at 11:19 AM

    While I wish nobody had to know this unpleasant reality, it is comforting to know there is someone who acknowleges the problem.  I suffer from TMJ, 2 failed reconstructive surgeries, now it is degenerative osteoarthritis in the TMJ joint.  Along with the TMJ, and getting worse with time are the conditions of fibromyalgia, CFS, trigeminal neuralgia, MPDS, severe dental problems (no dentist will touch me as I am considered a high risk, complicated case patient), have herniated discs and arthritis in my neck, an auto accident resulting in severe costochrondritis.  My insurance company covered the MRIs that show the brain anomoly, the neck problems, but the neurologist said there were no serious problems, it was my chiropractor who wanted me tested as she felt it was very possible I was suffering from MS, all symptoms present, and it needed medical treatment.  MS was ruled out as the problem.  The insurance company does not cover Lyrica, I am prescribed Neurontin, which I have side effect problems with it, and 9 Relpax per month for the headaches.  The insurance company, Medicaid, does not cover TMJ or any TMJ related issue, nor do they provide speciality dentists who understand TMJ.  I am allergic to steroids and cortisone, antidepressants, in network pain mngt doctors use those types of nerve blocks and insist one take antidepressants.  The neurologist(s) told me the pain is "anxiety, depression, and social issues" to a large degree, that I should "talk to someone profressional", there is nothing they can do.  The insurance companies special need unit case worker with whom I spoken to has told me no matter what, any treatment for TMJ, related issues, speciality dentist is something that is not covered under any circumstance, nor will they lift the limit of 18 doctor visits, to all doctors in total allowed per year.  At age 47, I am a prisoner of my physical self, chronic pain, which gets worse with time, I've lost any real quality of life, I can force basic functioning for short periods of time, on bad days, it is only the taking of Vicodan upon awakening that allows me to remain upright, even while sitting in this computer chair.  It is a feeling of intense frustration, to know what the problems are and to be denied treatment for them by the insurance company, my quality of life and ability to function decreasing too rapidly.  I've pushed for treatment, to be told that while "acute and terminal pain issues are covered, treatment of chronic pain is simply not cost effective, and will never be covered", if anyone has insight on how to get past this brick wall, it would be so greatly appreciated

    Reply
    re: A sense of comfort in that someone realizes this problem
    starryeyed
    Thursday, January 22, 2009 at 08:30 PM

    BarbB

    Hi

    I also have TMJ actually it has gone beyond that as the right joint is pretty much gone and it  is bone on bone.  This was discovered about 15 yrs ago.  You are right about the insurances.  You could try to find a medical dentist or a medical doctor that specializes in that kind of thing they are called someting that I forgot how to spell but Malia facial or something like that (sorry major sleep deprived and fibro fog this week) but this doctor advised me against inplants and made a mouth piece for me.  I just recently had to get a new one and dentist made copy for me and worked a payment out for me since insurance would not cover it. But you should check with you insurance and ask what medical doctor they would cover, they don't seem to go with the dentist.  Also watch what you eat, nothing hard or cruncy and especially watch how you sit at computor and how you hold your neck.  Causes major problems.  I am sorry you have this i hope you find some relief.

    sincerely

    starryeyed

    Reply
    re: A sense of comfort in that someone realizes this problem
    TedG
    Wednesday, September 30, 2009 at 10:22 AM

    Hi BarbB,

     

    Sorry to hear about your extensive problems.

    I suggest you contact a Kinergenics Practitioner and have a session or two.

    It is 'alternative' medicine, but it works. Hope one is near you.

     

    http://www.kinergetics.com.au/PracList.asp?s_Country=USA&s_State=&KinLocationPage=1

     

    Good luck,

     

    Ted

    Reply
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