I am in need of understanding from my doctor about my medications

ashhenry1 Community Member December 20, 2008
  • I am currently on Vicodin 7.5/325 evry 12 hr. I have been on this for about 10 months after trying all the other non narcotic meds my doc wanted me to try. He will not listen when I tell him my body has built up a tolerance to the meds. He will not even call me back himself, he has his nurse call me, and then he wants me to come in to talk to him and pay another 50.00 when I just saw him 2 wks ago and talked about the same thing. He wanted to refer me to another doc who knows more about Fibro. So at first he sends me to one that does not take insurance at all and wants 350.00. then he sends me to a Neurologist who only is interested in my sleeping and my headaches, and says she thinks I have MS, and wants me tested for Narcolepsy!! I mean Im always tried, but NEVER do I involantarily fall asleep?? So I called him agaim yest, and his nurse said he will not try a diff pain killer only a muscle relaxer which I already take but only at night due to sleepiness. So his nurse tell me he wants to send me to an accupuncturist, so I ask just find a pain center and send me there pls, and she then says if I come in and bring the rest of my Vicodin that he MIGHT give me another opiod med. So I go over there a lunch, and a sign on the door says they are closed for the day. Im being treated like an ADDICT, and Lied to by a person who is supposed to be helping me not letting me suffer in tremendous pain, due to me being a nurse and on my feet all day, walking all day, and using upper and lower body mvmt all day, at the end of my work day I dont want to do anything but laydown and not move, but then that's not fair to my 2 kids to have a mom who is in pain, and who cant play w/ them. Im all out of ideas for this doctor. I have even given him literature offline about Fibro, and opiod meds PLEASE HELP ANYONE

24 Comments
  • Mattsmon
    Feb. 10, 2009

    I am so sorry for what you are going through....most of the people on the site know EXACTLY what you are experiencing, unfortunately.

     

    I have been on the " pain journey " for 16 years now and the treatment in this country for pain is ridiculous and laughable.  Most people don't understand the difference between 'ADDICTION' and 'DEPENDENCE' and it...

    RHMLucky777

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    I am so sorry for what you are going through....most of the people on the site know EXACTLY what you are experiencing, unfortunately.

     

    I have been on the " pain journey " for 16 years now and the treatment in this country for pain is ridiculous and laughable.  Most people don't understand the difference between 'ADDICTION' and 'DEPENDENCE' and it sounds as if your doctor belongs to that group.  So many doctors are terrified to prescribe the kinds of drugs chronic pain patients need to literally survive because they are afraid their license will be taken away.  I won't make this long.....FIND A NEW DOCTOR!!  DO IT NOW!!  Do not, however, report the doctor you are seeing currently, because there is a chance you will be "black balled" by doctors who may be able to help you.  Doctors stick to each other like glue and watch each others' backs even though they are aware of what is going on.

     

    It took me eight years to find someone who was a decent pain management doctor.  My problems are all lower back (had a rare spinal cord tumor, thankfully benign) which continue to worsen.  I am lucky enough to have a morphine pump for the last 6 years.  It works to a certain extent, but I still have to take oral morphine as well every 3 days.  The last surgery I had (June, 2008) left me with nerve damage which I have never before experienced.  It is the worst pain I have ever had and the doctor put me on LYRICA.  If you are suffering with Fibro, Lyrica seems to be the answer.  It DOES help me with the nerve pain but it also causes weight gain---so in addition to all the other drugs I take (i.e., Crestor, Ambien, Cymbalta, etc.) I now have a 35 pound overage in my weight.  That is extremely depressing as I work out as much as I can and eat very little.  I know things could be much worse, so I usually keep my pain to myself.

     

    I will close before I start to ramble here, but if you are suffering from Fibro, dump your current doctor and find another one your insurance will cover and ask about Lyrica.  As a nurse you should have access to doctors who DO treat Fibro (if that's your problem--I didn't see what other things you are suffering from) and who take your insurance.

     

    Best of luck to you and God Bless.  DON'T GIVE UP!! You know your body better than anyone else.  Listen to it.

    Mattsmom

  • Surviver48&counting
    Jan. 03, 2009

    Your Dr. is trying to pass the buck.  He does not sound like he has any training/experience with chronic pain.  I am also a nurse who worked for 14yrs lifting, tugging, moving, and helping the sick, injured and dying. The price I am now paying (in part) is bulging disc's in my cervical spine as well as my lumber spine.  I have been dx'ed with...

    RHMLucky777

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    Your Dr. is trying to pass the buck.  He does not sound like he has any training/experience with chronic pain.  I am also a nurse who worked for 14yrs lifting, tugging, moving, and helping the sick, injured and dying. The price I am now paying (in part) is bulging disc's in my cervical spine as well as my lumber spine.  I have been dx'ed with fibro but I also have degenerative disc disease, I have also been told I have an autoimmune disease.  As you can probably figure out, my experience has been less than stellar.  I would be given pain meds, which improved the quality of my life a great deal, then I had to eventually stoop to practically begging for pain control.  I was also shuffalled around from Dr. to Dr. whom al basically ignore anything I told them about my symtoms.  Anyhow I feel for you.  My advice is to dicth your crappy DR.  He sound like a winner all right.  I hope you get a Dr. who understands chronic pain because that is what you need right now.  Good luck.

  • Surviver48&counting
    Jan. 03, 2009

    Your Dr. is trying to pass the buck.  He does not sound like he has any training/experience with chronic pain.  I am also a nurse who worked for 14yrs lifting, tugging, moving, and helping the sick, injured and dying. The price I am now paying (in part) is bulging disc's in my cervical spine as well as my lumber spine.  I have been dx'ed with...

    RHMLucky777

    Read More

    Your Dr. is trying to pass the buck.  He does not sound like he has any training/experience with chronic pain.  I am also a nurse who worked for 14yrs lifting, tugging, moving, and helping the sick, injured and dying. The price I am now paying (in part) is bulging disc's in my cervical spine as well as my lumber spine.  I have been dx'ed with fibro but I also have degenerative disc disease, I have also been told I have an autoimmune disease.  As you can probably figure out, my experience has been less than stellar.  I would be given pain meds, which improved the quality of my life a great deal, then I had to eventually stoop to practically begging for pain control.  I was also shuffalled around from Dr. to Dr. whom al basically ignore anything I told them about my symtoms.  Anyhow I feel for you.  My advice is to dicth your crappy DR.  He sound like a winner all right.  I hope you get a Dr. who understands chronic pain because that is what you need right now.  Good luck.

  • Anonymous
    Linda K.Melzer
    Dec. 29, 2008

    I feel your pain. Chronic severe pain. Finally, after years of compaining  my physician sent me to a pain management doctor. What a miracle. He listens to me, is competently familiar with my compaints, and prescribes what I need. I also have Fibro. I have been taking Elavil for years and have not had a bad flareup since.

     

     Good luck with your...

    RHMLucky777

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    I feel your pain. Chronic severe pain. Finally, after years of compaining  my physician sent me to a pain management doctor. What a miracle. He listens to me, is competently familiar with my compaints, and prescribes what I need. I also have Fibro. I have been taking Elavil for years and have not had a bad flareup since.

     

     Good luck with your search. Pain management doctors are specialists. Hopefully your physician will honor your request and refer you to one. If he/she thinks you are an addict, the pain mgmt physician will be able to diagnose it. Therefore, when the p. m. p. prescribes the best treatment for your pain, your physician will feel comfortable with his/her diagnoses and he/she will not be accused of overmedicating a patient. I know that there has been a "crack down" on prescribing pain meds. The p.m.p. will relieve your phy from being seen as an "over-prescriber" and get him/her off the hook.

     

    Again, good luck. I took me a few years, but I can honestly say that I am now being helped by a caring professional.

     

    Linda Melzer, California

     

  • angelsher57
    Dec. 29, 2008

    IM SO SORRY.....I have been where you are.  I searched for literally 20 years.  I, too, was treated like an addict, even to the point of being sent to rehab where (alas, I got my meds, just had to stand in line with people who were hard cord addicts - cocaine, meth, etc.) Ridiculous.  I took in article, after article....from Dr. to Dr.....this...

    RHMLucky777

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    IM SO SORRY.....I have been where you are.  I searched for literally 20 years.  I, too, was treated like an addict, even to the point of being sent to rehab where (alas, I got my meds, just had to stand in line with people who were hard cord addicts - cocaine, meth, etc.) Ridiculous.  I took in article, after article....from Dr. to Dr.....this specialist to that one.  I finally got an appointment with someone "Physiatrist"... after a ten minute appointment I left with a diagnosis of Fibromyalgia.  I broke down crying, I thought I was crazy......  I still had to search for a Dr. to get meds.  But now I had something to go by.  I have been disabled since 1995, due to the lengths of my search and the pain that increased minute by minute.... I found a Rheumatologist who would manage my meds with a contract that I would only get my meds from them.

    No Problem.  Now after years of being on meds. I recently moved to VA and MD and they are VERY non-pain meds......  The new search began.  I finally got to a pain center and they are managing my meds....again with a contract.

    Honey, I'm so sorry, but you MUST change Doctors.  I must go in every month for a new prescription, but then I must find a Pharmacy who carries the medications.  I've had to go miles to find a pharmacy.  I have finally found a pharmacy and looking for for a full time Doctor. I have a pain specialist but he is in MD and it is a two hour drive which kills my back.  I cannot (will not) drive knowing I'm on meds. I need to rely on my family which afer all these years still leave me feeling guilty instead of deserving.  I'm sending a copy of my response to you to Barak Obama who is asking for information on health issues.  I wish you the best of luck and will be praying for all of us in chronic pain.  God Bless.  You can contact me by email at angelsher57@gmail.com  I'd be happy to reply. 

  • Anonymous
    CrazyCanadian
    Dec. 28, 2008

    Find another Family Physician that is a little more knowledgeable about Fybromyalgia.

     

    We live in Canada and it is my wife who suffers from this condition. Just like you at the end of her workday as an education assistant with special needs children she has to lay down for at least 1.5-2 hours the minute she walks in from work.

     

    My wife will not...

    RHMLucky777

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    Find another Family Physician that is a little more knowledgeable about Fybromyalgia.

     

    We live in Canada and it is my wife who suffers from this condition. Just like you at the end of her workday as an education assistant with special needs children she has to lay down for at least 1.5-2 hours the minute she walks in from work.

     

    My wife will not take any pain medications that contain any type of opiad (stems from having an alcholic and pill popping mother), the only thing she takes is Advil liquid gels.

     

    Everyone knows that after being on a certain dosage of an opiad pain medication for any length of time you become tolerant to the dose. If it is helping you control your pain they will likely have to up the dosage at some point. Ten months is a fair amount of time to build up a tolerance to the dosage you mentioned.

     

    It sounds like your doctor is a quack..... I would force him to recommend you to a pain clinic and once they have your pain under control they could likely recommend

    a family physician who is more in tune with the pain caused by this disease.

     

    If you have to, call hospitals (i.e. ask for someone in the administration department) and found out which ones have a pain clinic. Tell that person your situation and give them written permission to request your file from your current "quack" and ask them to review it and see if they are willing to take you on as a patient.

     

    Up here (i.e. Canada), once you are sent to a pain clinic they do the assesment exams and once a treatment plan is decided on all your follow up is done through them. Any medication changes and patient follow up is done directly with the pain clinic.

     

    Also, referring back to my statement about somehow getting your file to the doctors at a pain clinic, I believe you can ask at your current doctors office for them to give you your own file (this falls under the idea that the file your doctor keeps actually belongs to you not him).

     

    He may make a copy of everything contained in the file to cover himself

    against insurance problems (and he'll likely try to charge you for doing it).

     

    Bottom line..... get away from this guy.......

     

    P.S.

     

    My wife does take Trazadone (150 mg one tablet) at bedtime and Clonazepam (0.5 mg one tablet) also at bedtime. These are mostly to try and help her sleep. Trazadone is actually an anti-depressant but it has a wicked hangover effect. Clonazepam is actually an anti-seizure medication but it supposedly has a secondary use as an an ani-anxiety medication (it's not like lorazepam, diazepam, xanax, etc) but she refuses to take anything that makes her feel "goofy", just like she won't take the opiad type meds.

     

    Also, in researching treatments for this on the internet I came across the holistic pill called ACTIVIVE. I got some of this for my wife and she has been taking it for about 3 weeks. No benefits as of yet. Of course on any of the websites there are user testimonials that PROFESS "major" pain relief, better nights sleep, clearer mind, etc.

     

    If you are willing to try this just google the word ACTIVIVE and you find all kinds of

    Naturopath sites selling this stuff. Who knows, maybe you'll be one of the people it "magically" works on.

     

    Good luck to you...

  • Anonymous
    SOFYY
    Dec. 28, 2008

    HELLO DEAR MY NAME IS SOFYY. I HAVE FM FOR ALMOST 8 YEARS NOW. WHEN I FIRST STARTED WITH THIS ILLNESS MY DOC DIDN'T UNDERSTAND ME AT ALL BECASUE HE DIDN'T KNOW ANYTHING ABOUT FM, HE SEND ME TO THE PAIN CLINIC TO WASTED MY TIME BECAUSE I DIDN'T GET ANY GOOD RESULTS AT ALL, MY PAIN GOT WORSET ALL OVER MY BODY, AND LIKE 2 YEARS AFTER HE REFER ME TO A PHYSICAL...

    RHMLucky777

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    HELLO DEAR MY NAME IS SOFYY. I HAVE FM FOR ALMOST 8 YEARS NOW. WHEN I FIRST STARTED WITH THIS ILLNESS MY DOC DIDN'T UNDERSTAND ME AT ALL BECASUE HE DIDN'T KNOW ANYTHING ABOUT FM, HE SEND ME TO THE PAIN CLINIC TO WASTED MY TIME BECAUSE I DIDN'T GET ANY GOOD RESULTS AT ALL, MY PAIN GOT WORSET ALL OVER MY BODY, AND LIKE 2 YEARS AFTER HE REFER ME TO A PHYSICAL MEDICINE DOC(SPECIALIST) THIS IS WAS THE FINAL ANSWER FROM HIM(FM) AND SINCE THAT HE STILL MY SPECIALTY DOC HE IS THE ONE THAT REALLY KNOWS ABOUT FM, BECAUSE MOST OF THE TIME PRIMARY CARE DOC DON'T KNOW ABOUT FM.. THEY NEED TO GET  EDUCATED NOT BECAUSE THEY ARE GOING TO BE TREATING YOU BUT BECAUSE THAT WAY THEY DON'T HURT ANYONE FEELINGS. FOR FM I TAKE CYMBALTA BECAUSE IS ONLY 1/2 A DAY HELPS ME WITH DEPRESSION AND ALSO TO EASE MY PAIN LEVELS, AND AT NIGHT I TAKE TRAZADONE HELPS ME SLEEP THRU THE NIGHT. GOOD LUCK TO YOU. ATTE. SOFYY.

  • Lu Pensinger
    Dec. 27, 2008

    First of all sounds like you need a new doctor.  If your dr doesn't have time to listen to what's going on with you then you need to find someone who will.  Your insurance company should have a list of providers that accept your insurance.  Most of the time it can be found on line.  From your provider list you should try to find a PCP that...

    RHMLucky777

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    First of all sounds like you need a new doctor.  If your dr doesn't have time to listen to what's going on with you then you need to find someone who will.  Your insurance company should have a list of providers that accept your insurance.  Most of the time it can be found on line.  From your provider list you should try to find a PCP that will listen to you.  If you don't need referels for specialist and you think you have Fibromyalgia then you need to see a reumetologist (arthiritis Doctor).  I have Fibro and have been doing well with Lyrica though it does take some time to get used to it. (can make you very tired any dizzy till you get used to it)  There are several very good sites about Fibromyalgia that gives you lists of symptoms that a lot of other sites don't list.  And you can always ask your pharmisists questions about your meds, he can't change them but he can answer other questions.  And as far as the Vicodin (it's a low dose) goes you probably aren't taking enough if your still experiencing pain.  My doctor has me on 5mg of Percocet 3 times a day helps some but nothing takes the pain away completely.  But between the Percocet & the Lyrica I have dropped several notches on the daily pain scale.

  • haircuttinpro
    Dec. 27, 2008

    hi my name is cynthia , i pray u get a lawyer and report him to the medical ass. he needs to loose his license and u have a right to be treated with repect i have been thru hell myself with all doctors THAT I FIRE THEM ,,, i tell them off then they listen, WHEN IT IS TO LATE ,go to american pain foundation .com u can copy stuff from there about how...

    RHMLucky777

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    hi my name is cynthia , i pray u get a lawyer and report him to the medical ass. he needs to loose his license and u have a right to be treated with repect i have been thru hell myself with all doctors THAT I FIRE THEM ,,, i tell them off then they listen, WHEN IT IS TO LATE ,go to american pain foundation .com u can copy stuff from there about how pain patients have rights and for me to find i have many other diseases other than fibro i belive u do too ,, that can cause severe pain. do they know u r a nurse??? it is also child abuse, cause he is not helping u be the  mother u want to be . my 14 year old daughter cries when she sees me in pain, i told them that, and ur med is not enough to help ur pain every 12 hours it can be taken every 4  i will pray u get to another doctor that will listen to u and help u. xoxo

    • Anonymous
      yeti105
      Jun. 18, 2009

      her doc WILL NOT lose his license he is CYA and not all towns have enough doc's that cover pain management let alone doc's in general. she is a nurse yes but believe it or not they feel that people like her and i that are nurses "know" how to "be in pain" and therefore a lot of the time it is more of a hinderance vs. an asset for medical professionals. i also...

      RHMLucky777

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      her doc WILL NOT lose his license he is CYA and not all towns have enough doc's that cover pain management let alone doc's in general. she is a nurse yes but believe it or not they feel that people like her and i that are nurses "know" how to "be in pain" and therefore a lot of the time it is more of a hinderance vs. an asset for medical professionals. i also feel, if i read correctly, she is a single mother and if she has no one near her to help her, not with the children per say, but i truly truly feel when you hurt ALL THE TIME you are trying to take care of others, you lose your voice, you lose the ability to fight for yourself you have spent your whole shift fighting for your patients rights, needs, wants, pain control, bed pans, whatever, damn jello, you lose what you need for YOU. i know i gave up i had a perfect nurse plan to off myself. obviously i did not finish the job. it took my mother to get after my doc to do something, i had no fight left in me she had to do it. my fight is gone now too, i am tired, that happens. thank you for listening,reading my yada yada yada.

  • randy100
    Dec. 25, 2008

    I can empathize with your problem and it is one that you should not be having or dealing with.

     

    Personally, if I were being treated that way I would find another physician that might have better understanding of my medical problems.

     

    As for your pain control, I always recommend that a person find a good pain management specialist at a larger hospital. ...

    RHMLucky777

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    I can empathize with your problem and it is one that you should not be having or dealing with.

     

    Personally, if I were being treated that way I would find another physician that might have better understanding of my medical problems.

     

    As for your pain control, I always recommend that a person find a good pain management specialist at a larger hospital.  These doctors specialize in pain treatment and know all of the latest things to try that might be effective for your particular situation.

     

    If you go to one and it is not a good match, then go to another one and find one that you can work with. 

     

    I have had the same pain management specialist for nearly two years who is board certified in pain management and also board certified in anesthesiology and is located at a good hospital.  I have always found that his treatment to be the best available and have never been made to feel bad because I have chronic pain, quite the contrary actually.

     

    I get the medication that I need to control my pain and I have many options available to me should I choose one of them and I feel very well taken care of.

     

    My recommendation to you is that you don't settle for second or third best and that you find a good, competent pain management specialist at a good hospital and let them help you manage your pain, that's why they are there and yes, good ones do exist.

     

    I wish you the very best and hope that you can get your pain under control soon, nobody deserves to be in pain.

     

    Randy.

    • stephaniesue
      Dec. 26, 2008

      I have so many problems that cause pain that I'm sick and tired of tyring to find a doctor who will help me.  I have a cardiologist for myxomatous degeneration of my mitral and atrial valves, a podiatrist for Morton's neuromas in both feet and a mucoid cyst on my toe joint, a pulmonary specialist for a nodule on my lung, a rheumatologist for my fibromyalgia...

      RHMLucky777

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      I have so many problems that cause pain that I'm sick and tired of tyring to find a doctor who will help me.  I have a cardiologist for myxomatous degeneration of my mitral and atrial valves, a podiatrist for Morton's neuromas in both feet and a mucoid cyst on my toe joint, a pulmonary specialist for a nodule on my lung, a rheumatologist for my fibromyalgia and osteoarthritis in my spine causing bulging and disintigrating discs with bone spurs, an allergy speciaist for asthmatic bronchitis and other allergies, a neurologist for migraine headaches and painful restless leg (and plm) syndrome, insomnia (surprise), a shoulder that has been smashed twice and gets capulitis, TMJ pain, an ENT for laryngoesophageal acid reflux, and a gastroenterologist for chronic gastritis, gastric stasis and Gerd.  NONE of these doctors have any empathy for the pain that these conditions result in.  I live in Florida and because of drug abuse here, you are considered guilty as soon as you enter their office.  I have switched doctors to try to find someone who is willing to help which lables me a s a drug seeker and doctor switcher to no avail.  I was sent to a pain doctor who gave me horrific injections in my cerivcal and lumbar spine which helped only for a short time if at all.  When I had to have a molar extracted due to the lousy work of a dentist here, I went through the proper channels of having my oral surgeon call the pain specialist for permission to give me adequate pain meds.  She told him I could only hasve Darvoset which didn't begin to help with the pain of having the tooth ripped out of my mouth and the pain afterward.  I have to have the implant done (to help alleviate my TMJ) in a couple of weeks and I'm scared to death to go through the pain it's going to cause.  I'm so disgusted with the medical community.  They no longer have the spirit of helping people who are truely suffering, just earning their high fees without any involvement.  Sorry for the rant but I'm scared about the implant surgery and the pain I will again face without any help.  How does anyone go about finding a doctor who is symphathetic and willing to help with pain issues.  I'm so tired of the struggle!

      Peace be with all of you........Sue

    • randy100
      Dec. 26, 2008

      Sue,

       

      I do think that there is a lot of apathy in the medical community and that is not getting any better as time goes on.  I constantly see that around me and the way I have gotten around it is if I don't find that a doctor is understanding or accepting or just can't deal with whatever my medical issue is then I find someone else that can.

       ...

      RHMLucky777

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      Sue,

       

      I do think that there is a lot of apathy in the medical community and that is not getting any better as time goes on.  I constantly see that around me and the way I have gotten around it is if I don't find that a doctor is understanding or accepting or just can't deal with whatever my medical issue is then I find someone else that can.

       

      You certainly have multiple medical problems, each needing their own specialist to take care of them.  If you find that your doctors are not giving you the treatment that you need, then my suggestion would be you go elsewhere.  I know it is very frustrating and you shouldn't have to do that but unfortunately that is how the system is set up.  I have certainly gone through my share of doctors until I have found ones that I can work with.  And, there is a lot of ignorance in the medical community, especially about chronic pain.

       

      I have found that I have had to do much of my own research on my medical issues and I find that I get much better information and care that way.  And, when I look for a doctor I actually do try and find out information on them and what other doctors and patients think of them.  There is information out there if you take the time to look and that will give you good ideas of whether they are right for you or not.  More than once I have "fired" a doctor for poor medical care and I have not regretted doing so.  I also will meet with a potential new doctor and see if I like them and vice versa and see if I feel it will be a good match.  Usually first impressions are best I think and that works well for me.

       

      I have a great team of doctors and medical providers that I trust and like and I do think that one does best  finding a good pain management specialist at a larger hospital.

       

      Every area is going to be somewhat different as to what is available and where, I choose to travel a few extra miles to find better medical care and I think that is advisable for people that can't find what they are looking for closer by.

       

      I think the hard thing to deal with in regards to chronic pain is it is fairly constant and does not get better, we always struggle with that.  However, with the right medical help we can get through it.

       

      I appreciated you sharing your story and I can understand what you must go through each day.  Nobody wants to hurt.  This is a good, safe place to talk about your pain and the feelings and problems that it creates for you and I am glad that you chose to write about it.

       

      Take care and I wish you the best and hope you get relief from your pain soon.

       

      Randy.

    • stephaniesue
      Dec. 26, 2008

      Dear Randy,

       

      Thank you for your words of wisdom and encouragement.  It does help to be able to voice my dilemma and have someone validate my feelings.

       

      Sue

    • randy100
      Dec. 26, 2008

      Sue,

       

      You are very welcome, I hope it was of some help.  What we all live with isn't easy, but somehow we make it and it can be minute by minute.

       

      Take care.

       

      Randy.

  • Anonymous
    VAO485
    Dec. 25, 2008

    I understand this widespread problem thoroughly. I have been on narcotic pain meds for almost 20 years having suffered 6 desintegrated/herniated discs since age 31, had 3 back surgeries at multiple levels, chronic migraines, neurological deficits, and digestive disorders.  It took me years to find my current neurologist who specializes in pain management;...

    RHMLucky777

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    I understand this widespread problem thoroughly. I have been on narcotic pain meds for almost 20 years having suffered 6 desintegrated/herniated discs since age 31, had 3 back surgeries at multiple levels, chronic migraines, neurological deficits, and digestive disorders.  It took me years to find my current neurologist who specializes in pain management; he's located at a large urban University Hospital/Medical School in a city two hours from where I live, but a trip well worth it. The DEA, medical boards and current societal beliefs make the long term prescription of opioids difficult for doctors. They are afraid. Hopefully this travesty is beginning to change, though slowly, so my advice is to keep looking and eventually you will find one of these truly dedicated and compassionate docs who have chosen to take the risk of treating those of us who truly need them. I don't know where you live but there are places you can begin to get referrals to the right kind of physician to help you.   I sympathize with you as a nurse, I trained as a RPT, requiring me to lift, bend, stand and move all day too- and the need to go home and lie still is exactly how I feel.  It has been 20+ years since my first MRI showed $ herniated discs. I no longer work full time. I feel grateful though for the work I can do which is only because of the pain mgmt I get from my very competent and thank God, unafraid pain doc. Yes, I still have some pain even with my meds.  But it no longer rules my life and I have had to learn how to work with my body and its signs as to what I can and cannot do that will send me into an acute migraine attack or paralyzing pain that leaves me in a cold sweat in the ladies room at I work. Good luck in your search.

  • Anonymous
    RJR
    Dec. 25, 2008

    I have a contition called CIDP and am in constant pain.  I found that Norco is the only drug that relieves it to enough of a degree so that I can function.  My Neurologist decided he didn't want to treat me for pain anymore (he was prior to this) and sent me to a Pain Center.  I was treated like an addict also.  The doctor was rude, accusatory,...

    RHMLucky777

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    I have a contition called CIDP and am in constant pain.  I found that Norco is the only drug that relieves it to enough of a degree so that I can function.  My Neurologist decided he didn't want to treat me for pain anymore (he was prior to this) and sent me to a Pain Center.  I was treated like an addict also.  The doctor was rude, accusatory, and made me feel awful.  I tried another Pain Specialist who would only give me the drug if I went to a therapist he reccommends.  She wanted $150 a session and medicare only covers $22 of it for a limited time.  He won't give me the drug without going to her.  Are doctors here to help us with our pain or so concerned about government regulations that they won't prescribe needed drugs.  I don't even smoke weed or do any illegal drugs.  I don't drink and am certainly not someone who sells pills on the street.  Why are we treated this way by doctors who are supposed to help us?

  • Anonymous
    elfaba
    Dec. 25, 2008

    Hi, I am so sorry to hear about your problems with your doctor.  I can't believe anyone could treat a patient in so much pain in such a manner.  I was in a car accident almost 10 years ago and after a neck fusion and five shoulder surgeries, I am in constant pain, especially during the night.

    From the beginning my orthopedic surgeon has been an angel....

    RHMLucky777

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    Hi, I am so sorry to hear about your problems with your doctor.  I can't believe anyone could treat a patient in so much pain in such a manner.  I was in a car accident almost 10 years ago and after a neck fusion and five shoulder surgeries, I am in constant pain, especially during the night.

    From the beginning my orthopedic surgeon has been an angel.  I went through the Vicodin stage and became addicited because I needed more and more.  After coming off of that I was sent to a pain clinic at a major hospital in Boston and they have been wonderful working with me.  It has been a long course to find something that works, but I know find some relief on a day to day basis.  I do go every 6 weeks for a new course of treatment and each time it might be different depending on where the pain is located, but it works.  I am not pain free, but I can be comfortable at times.  

    ANd my orthopedic has made sure I have stayed in physical therapy for the entire time even fighting the insurance companies to pay for it because it is a medical necessity.  He did refer me to a neouroligist and he told me the same thing, they are focused on certain things and are not skilled in the art of pain management.

    Many pain clinics have groups or studies you can join, I would suggest you investigate these options.  

    Please look into a new doctor immediately.  This one is not providing you any medical help and is especially damaging to your emotional well being, which is as important as your treatment.

    I am available any time to chat or offer some suggestions on the treatments I have had, what worked, what didn't, etc.

    Hopefully, you will find the right treatment in the New Year.  

     

  • Anonymous
    steve ring
    Dec. 25, 2008

    I know how you feel, I have had a hard time finding a doctor as well. I have had my neck and lower spine fused, as well as a knee replacement; a motorcycle accident and a cement truck accident. Then five years ago I had some teeth pulled, and didn't do so good. One of the teeth had an infection in it, which caused me to pass out at my kitchen table for three...

    RHMLucky777

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    I know how you feel, I have had a hard time finding a doctor as well. I have had my neck and lower spine fused, as well as a knee replacement; a motorcycle accident and a cement truck accident. Then five years ago I had some teeth pulled, and didn't do so good. One of the teeth had an infection in it, which caused me to pass out at my kitchen table for three days; a friend found me sitting at the kitchen table still bleeding and unconsious. Because I had been sitting that way for that period of time, I developed Compartment Syndrome on my Thigh and my Heel. They had to remove the entire muscle on the back of my thigh from my knee to my buttocks, and my hel from just above my ankle to about half way up my foot. They used a Woundvac on the two of them, and it grew back a bunch of the skin; the rest they removed from my belly. When I sit down now, there is no flesh between the bone in my leg and my syatic nerve, so it get pinched there all the time. I wear a brace on my ankle and knee, and can;t feel anything from the knee down.

       This is a long way around telling you how I found my doctor, but it's worth it. After my accident, from getting hit by the Cement truck, I was in a nursing home for about five months, while there I had a doctor. After talking to him about his insurance requirements and talking to the staff in the home, I became his patient. I have several friends that have become patients of doctors that they have met in a nursing home. Surely if you are a Nurse, you know somebody that works at a Nursing Home.

       I really hope this has helped a little bit, I know your pain. By the way, I use a Pain Patch called Fentanyl, and since using it, I would have to say, "Where have you been all my life?"

  • jimc9154
    Dec. 25, 2008

    Hi,

    Sorry to hear about your difficulties. I have had ten orthopedic surgeries including a neck fusion, both hips replaced and a knee replaced. I also suffer from severe arthritis especially in my lower back (Football injuries and I got hit by a car...very bad accident.). As a former athelete I have remained diligent at maintaining an exercise and nutrition...

    RHMLucky777

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    Hi,

    Sorry to hear about your difficulties. I have had ten orthopedic surgeries including a neck fusion, both hips replaced and a knee replaced. I also suffer from severe arthritis especially in my lower back (Football injuries and I got hit by a car...very bad accident.). As a former athelete I have remained diligent at maintaining an exercise and nutrition program that has helped me enormously. However, that hasn't taken away all my pain. It just reduced it. I currently get a script each month for #90 15-milligram oxicodone which I take at a rate of 3/day. I have days where I probably need ten pills but I never vary from what I have been perscribed. Overall the quality of my life is good.

    Like you I have had to deal with Doctors that wouldn't perscribe a TY3 even if you had a bone sticking out of the skin. They are either to afraid of getting pummeled by the DEA (very stupid thinking) or they have what is now becoming a dying trend amoung physicians....a God complex. It sounds like you are dealing with the later. Your Doc is offended that you would challenge his course of treatment and is more concerned with his own ego versus helping a patient in pain. Those kind of Doctors should be outlawed. My Dad is a retired surgeon (served in the Korean War in a MASH unit) and says those kind of Doctors should have their licenses taken away.

    What I finally did was get agressive. I started talking to friends to see if they had friends or family members that suffered from chronic pain and if they were happy with their Doctor. I had a heart to heart with a few pharmacists in the area and asked them who they thought could handle my situation. I also checked the internet and actually found a site that listed Doctors simpathetic to pain sufferers.

    I had to go to a few appointments before I found the right Doctor but now I am ecstatic. In truth Michelle is actually a nurse practitioner but after 20 years is a sgood as any physician I have ever had. I have to sign forms each month regarding my narcotic usage that protect her and she doesn't listen to garbage about lost pills or things like that (When I first started it took me a month to get regulated so I took a few extra pills over my 30 days. I came up one day short and she said I still had to wait a day for my refill. Now I know the rules and I stick by them.). The bottom line is that if you get aggresive you will find a Doctor that will take care of you. It may take a while but you will find one.

    Good luck. 

  • Anonymous
    Anonymous
    Dec. 25, 2008

    It is so frustrating and upsetting to be treated this way by doctors.  Unfortunately, many doctors are not compassionate and understanding about pain conditions.  Continue to try to find a doctor who will work with you in a more collaborative and understanding way.  They do exist.  It takes time and energy to do this, but it is worth...

    RHMLucky777

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    It is so frustrating and upsetting to be treated this way by doctors.  Unfortunately, many doctors are not compassionate and understanding about pain conditions.  Continue to try to find a doctor who will work with you in a more collaborative and understanding way.  They do exist.  It takes time and energy to do this, but it is worth the effort.  I have Lupus, and it took me nearly eight years to find a doctor who listens and understands what I experience.  There is hope out there.  Good luck!

     

  • Anonymous
    ann f
    Dec. 25, 2008

    I take loartab 10/500 up to 6 a day. Now that I have moved states. I can't even get 30 a month. I cant see an artistis dr for 3 months and they have my old records. I had being treated for like a addict. Luckly no doctor in TN was not like that because his wife has firbo. but I know your fustaration. I go thought it every day.  peace and blessing I hope...

    RHMLucky777

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    I take loartab 10/500 up to 6 a day. Now that I have moved states. I can't even get 30 a month. I cant see an artistis dr for 3 months and they have my old records. I had being treated for like a addict. Luckly no doctor in TN was not like that because his wife has firbo. but I know your fustaration. I go thought it every day.  peace and blessing I hope you find something that will help.

    • Tammy
      Oct. 22, 2010

      I am having the same problem, so far I have been diagnoised with endometriosis and siactriac joint pain, but each doctor wants to treat me with naproxan which does nothing at all for me.  Is your doctor in east tennesse, I would love to find a doctor how has some understanding of pain.  I am not addicted to pain meds, how can I be, no one has ever...

      RHMLucky777

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      I am having the same problem, so far I have been diagnoised with endometriosis and siactriac joint pain, but each doctor wants to treat me with naproxan which does nothing at all for me.  Is your doctor in east tennesse, I would love to find a doctor how has some understanding of pain.  I am not addicted to pain meds, how can I be, no one has ever given me any.

  • dockside
    Dec. 21, 2008

    Dear Ashhenry1,

    I was just checking new postings this morning and was touched by your message.  I am so sorry you are being treated so badly by the doctors in your life.  It must be even more frustrating for you because you are a nurse working in the medical field.

     

    It sounds like a proper diagnosis hasn't been made yet and in the mean time...

    RHMLucky777

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    Dear Ashhenry1,

    I was just checking new postings this morning and was touched by your message.  I am so sorry you are being treated so badly by the doctors in your life.  It must be even more frustrating for you because you are a nurse working in the medical field.

     

    It sounds like a proper diagnosis hasn't been made yet and in the mean time your pain isn't being properly treated either.  I don't have any answers for you but I can offer to listen and support you through your medical trials, either privately through messages or you could write / participate in a group I belong to here, called the daily Grind.  If you want to write to me privately, just click on my picture.

     

    We are a small group of people who live with pain 24/7.  In common we all have spine problems.  Some also have MS and Fibromyalgia as well.  My problem is sciatica complicated by prior surgeries so I personally am not as knowledgeable about the other conditions your doctors are suggesting you may have BUT if you want to consider joining our group, I know you will get better answers from some of the others.

     

    I live in Canada and chronic pain is treated differently than in the US.  So many people in the US who have severe pain have to struggle with the medical system / doctors who seem to assume you are an addict first rather than a patient whose pain is not being treated sufficiently.  One of the experts here wrote a very good share post on this topic.  Her name is Karen Lee Richards. http://www.healthcentral.com/chronic-pain/c/5949/45554/innocent

     

    Karen has written many many articles that you may find helpful in your situation.  I hope you will take a look.

     

    I also hope you will consider joining our little group.  You can write daily, weekly or when ever you want and you will get understanding and support.

     

    I wish you relief from your pain.  It is so hard to try to keep it all going in a busy life like yours and impossible not to be exhausted from pain.

    Gentle cyberhugs,

    Deb