poly-myalgia-rheumatica.....

CATHERINE E SHINE Community Member August 12, 2008
  • FOR 7 YEARS NOW, I HAVE BEEN TREATED WITH PREDNISONE FOR POLY-MYALGIA,

    I ALSO HAVE BARRETTS ESOPHOGUS, AND TAKE NEXIUM. FOR 7 YEARS.

    LAST NIGHT A DISTURBING REPORT CAME OUT ABOUT NEXIUM CAUSING BONE PAIN.

    THE REPORT WAS ON THE NEWS WITH KATY COURIC.

     

    I AM WONDERING IF MY PAIN IS FROM NEXIUM?

    DOES ANYONE KNOW ANYTHING ABOUT THIS DILEMNA?

    THANK YOU FOR ANY INFO.

    RENEE

10 Comments
  • pskall
    Sep. 08, 2010

    I too have polym. and wonder why predesone hasn't helped.  This is my 2nd flare up in 20 years.  I thought it came for a fall I took which really stressed my body.  Any thoughts thanks phyllis in San Diego

     

    I also just got a book on eating for your blood type.  Mine is B.  Interesting and will see if that does any good

  • Morgan
    Aug. 13, 2008

     

                Renee,

                        As I think that I mentioned before, I have been on nexium for three or four years now. My pain issues started about eleven months ago. I was diagnosed with FM &...

    RHMLucky777

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                Renee,

                        As I think that I mentioned before, I have been on nexium for three or four years now. My pain issues started about eleven months ago. I was diagnosed with FM & CFS. I'm wondering the same as you. Could this drug have caused all of my health issues? It's hard to manage my acid reflux without the meds. I had reasearched this topic before the news broadcast and said something to the doctor she said that there was no such side affect. She said I'm the doctor I know the side affects of all the meds that I perscribe. I knew that her statment was not true. Previously she had put me on conflicting medicines. At the time of my reasearches the nexium company had lawsiuts pending agianst them. I hope that this medicine and the lack of our doctors knowledge did not cause our chronic pain issues. Good luck to you! I hope that you can find something else to help your stomach issues.

                                       Wishes of good health . . .

                                              Morgan : ) 

    • CATHERINE E SHINE
      Aug. 13, 2008

      MORGAN;

      THANKS FOR YOUR GOOD WISHES, AND I AM SENDING THEM BACK TO YOU.

       

      I SOMETIMES WONDER ABOUT SOME OF THE DOCTORS, AND I THINK ITS WORRISOME, THAT YOUR DOCTOR WOULD NOT GO ON THE INTERNET, AND RESEARCH THIS DRUG, SO THAT SHE/HE IS AWARE THAT THIS INFORMATION IS OUT THERE.

       

      I HAVE A WONDERFUL DOCTOR, AND HE IMMEDIATELY STOPPED THE NEXIUM, (SO...

      RHMLucky777

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      MORGAN;

      THANKS FOR YOUR GOOD WISHES, AND I AM SENDING THEM BACK TO YOU.

       

      I SOMETIMES WONDER ABOUT SOME OF THE DOCTORS, AND I THINK ITS WORRISOME, THAT YOUR DOCTOR WOULD NOT GO ON THE INTERNET, AND RESEARCH THIS DRUG, SO THAT SHE/HE IS AWARE THAT THIS INFORMATION IS OUT THERE.

       

      I HAVE A WONDERFUL DOCTOR, AND HE IMMEDIATELY STOPPED THE NEXIUM, (SO FAR NO PROBLEMS WITH THE REFLUX, TAKING TAGAMET, AND MAALOX.)  I HAVE PEPCID, AND THEY ARE THE CHEWABLE ONES, BUT ONLY 2 A DAY.

       

      WHAT ARE YOU TAKING?  I ASSUME YOU ARE STILL ON THE NEXIUM. 

       

      I AM IN THE BOSTON, MA AREA, AND I HATE THE THOUGHTS OF THE COLD WEATHER COMING...........WITH THIS POLY-MYALGIA...........BUT HAVE LIVED HERE ALL MY LIFE, AND I SHOULD BE USED TO IT BY NOW, BUT I  AM NOT.

      ARE YOU IN THE NORTHEAST?            

       

      MORGAN, WISHING YOU A PEACEFUL DAY, AND SENDING ALL OF MY GOOD THOUGHTS TO YOU....................BE WELL.................RENEE

    • Morgan
      Aug. 13, 2008

       My friend,

           unfortunatley I'm not taking anything for my rerflux. My last appointment with my stomach doctor she put me back on the nexium. Prior to that appointment I found the horrible truth about the nexium.My mom told me to stop taking it, so I did. My

    • Morgan
      Aug. 13, 2008

       

        As I was saying...

                   My mom figured that when we told the doctor about the side affects and about the on going pain issue, that the doctor would change the meds that I was on. But as I said before she didn't believe what we had to say. At that time the doctors believed that...

      RHMLucky777

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        As I was saying...

                   My mom figured that when we told the doctor about the side affects and about the on going pain issue, that the doctor would change the meds that I was on. But as I said before she didn't believe what we had to say. At that time the doctors believed that I had RA, but now I'm going to a very very good doctor who diagnosed me with FM & CFS. I know that I should be on something for the reflux, but nothing over the counter works for me. The nexium didn't help me either. Every two years I have to have an endoscopic surgery to check on the linning of my stomach and my throat. I have been told that if I'm not carful that the scar tissues can build up too much and then cause cancer. But I just have to take one step at a time just as everyone else.

               I live in Martinsburg, West Virginia. It is located in the eastern - panhandle of WV. It is also hard to live here with a chronic pain condition. The winters are really cold and the summers are really hot and humid.The humidity is just as bad as if it were to rain. I know that ther are probably people out there that are having more severe problems than I. Thus, I do not like to tell people about my problems. I'm very shy and I don't really like for folks to see me. That is why I enjoy this site so much. I'm super self - conscience. I've been loosing weight for about a year. I have lost about 75 pounds. I want to loose about 25 more pounds. Hopfully after I'm cofortable with my body, I won't be as self - conscience.

             I try to work at a nursing home. I'm a waitress. I only work about two hours per work day, but my body can only take about two to three days of work. Then I get super sore and really fatigued. My boss is one of those people who only care about herself. She dosen't care that I have a chronic pain condition. It's hard to hold up her leadership when she is so rude, but I 'm sure that you have had to deal with folks like that before. Do you work anywhere?

            If you don't mind me asking what kind of treatments are you on? I was just told this month that I have FM & CFS. The doctor put me on meds to help me sleep. I've only been sleeping about a half hour or hour of sleep a night. The meds do help. I go back to the doctor on the 26. He said that there was no reason to start treatment until I was sleeping a few more hours. That made since to me. Your body heals at night, why take meds when your body has no time to allow the meds to help your body heal. Hopfully I will be able to find a combo of meds that will put my issues in remission. Well I'm sure that you are busey. Talk to you soon!

                                             Wishes of good health . . .

                                                     Morgan

    • CATHERINE E SHINE
      Aug. 14, 2008

      MORGAN,

      I JUST READ YOUR LITTLE NOTE, AND I WANT TO TELL YOU THAT WHEN I WAS YOUNG, I WAS VERY SHY TOO.  THEN SOMEWHERE ALONG THE JOURNEY OF MY LIFE, AND MEETING GOOD PEOPLE, AND MY FAMILY, ESPECIALLY MY MOM, WHO PASSED AWAY IN 2002, REALLY HELPED ME TO REALIZE THAT THERE WAS NO REASON FOR ME TO FEEL INFERIOR TO ANYONE.

      WE ARE ALL FIGHTING SOMETHING,...

      RHMLucky777

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      MORGAN,

      I JUST READ YOUR LITTLE NOTE, AND I WANT TO TELL YOU THAT WHEN I WAS YOUNG, I WAS VERY SHY TOO.  THEN SOMEWHERE ALONG THE JOURNEY OF MY LIFE, AND MEETING GOOD PEOPLE, AND MY FAMILY, ESPECIALLY MY MOM, WHO PASSED AWAY IN 2002, REALLY HELPED ME TO REALIZE THAT THERE WAS NO REASON FOR ME TO FEEL INFERIOR TO ANYONE.

      WE ARE ALL FIGHTING SOMETHING, WHETHER IT BE HEALTH ISSUES, OR FAMILY, OR MONEY PROBLEMS, JUST TRYING TO SURVIVE IN THIS CRUEL WORLD IS SO HARD. 

      I APPLAUD YOU FOR LOSING THE WEIGHT.  BLESS YOU, I AM FIGHTING THE WEIGHT TOO..AND WOULD LOVE TO LOSE ABOUT 30 POUNDS.  ITS HARD TO DIET WHEN WE HAVE THESE HEALTH PROBLEMS, BUT JUST THINKING ABOUT PORTION CONTROL,  FOR INSTANCE, IF YOU HAVE LUNCH, JUST EAT HALF OF WHAT YOU WOULD ORDINARILY EAT, AND 2 PIECES OF FRUIT.

      I AM THE LAST ONE TO GIVE ADVICE ON DIETS, BUT MORGAN, DO IT FOR YOURSELF, AND DONT BE SO HARD ON YOURSELF.

      I AM NOT TAKING THE NEXIUM ANYMORE, BUT I HAVE HAD A COUPLE OF BOUTS OF REFLUX WITH SOMEPAIN IN MIDDLE OF CHEST.  I AM TAKING TAGAMET, WITH MAALOX, AND 2 PEPCID TABLETS A DAY.  I HOPE I CAN SURVIVE ON THAT REGIMEN, WITHOUT GETTING ANY MORE PROBLEMS WITH THE ESOPHOGUS.

      THIS MORNING I HAD LOTS OF PAIN, AND THE STAIRS IN MY HOUSE ARE A PROBLEM, ESPECIALLY COMING DOWN. 

      I HAVE A PAIN PILL THE SPINE DOCTOR PRESCRIBED, AND THAT HELPS, BUT I DONT WANT TO GET DEPENDENT ON PAIN KILLERS.

      AS FOR THE "BOSS-LADY" -- THERE ARE PEOPLE IN THIS WORLD WHO ARE MEAN-SPIRITED, AND ITS ALL ABOUT THEM.

      SO, MORGAN KEEP A GOOD ATTITUDE ABOUT YOURSELF,  REMEMBER TO BE KIND TO YOURSELF.  I DIDNT MEAN TO GO ON AND ON, BUT I WANT YOU TO CHANGE THE WAY YOU THINK OF YOURSELF. AS A SWEET YOUNG LADY,

      YOU ARE BATTLING A VERY PAINFUL DISEASE, AND THANKFULLY, YOUR MOM SOUNDS LIKE MY OWN MOM.

      YOU ARE LUCKY TO HAVE HER..........SHE WILL BE YOUR BEST CHEERLEADER, SO TAKE HEART, MORGAN.  DONT EVER GIVE UP..............BLESS YOU.  WILL KEEP YOU IN MY BEST THOUGHTS...

      YOU WILL BE GOING BACK TO SCHOOL SOON?  WHAT YEAR ARE YOU IN?

      I HAVE 6 GRANDCHILDREN, THE 3 BOYS ARE IN HIGH SCHOOL, AND 2 OF THE GIRLS WILL BE GOING IN 2009.

      BY THE WAY, I LOVE YOUR NAME.........IS THAT A FAMILY NAME?

      BEST WISHES FOR GOOD HEALTH...........PAIN FREE

      RENEE

    • Morgan
      Aug. 14, 2008

       Renee,

          I attend a private Baptist school that is ran by my church. I'm a junior this year. As far as the loosing weight issue, I started loosing weight for me. I had lost about 45 to 50 pounds. Then I started to have these health issues. I just tried to maintain what I had lost, but unfortunatly I was put on tons of steroids due to...

      RHMLucky777

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       Renee,

          I attend a private Baptist school that is ran by my church. I'm a junior this year. As far as the loosing weight issue, I started loosing weight for me. I had lost about 45 to 50 pounds. Then I started to have these health issues. I just tried to maintain what I had lost, but unfortunatly I was put on tons of steroids due to the misdiagnosis. I thought to myself that when I got better I would loose agian, but then I realized that what ever I had it wasen't going to go away I began to loose agian. I hope that the diagnosis of FM & CFS is correct. This is my forth and hopfully final diagnosis. Though it more difficult to loose while being on meds that cause weight gain it's so totally worth it. When I was told that I had RA I was told that I had to loose weight to relieve some of the pain.  There has be no change in the severity of the pain. The meds that I'm on now to help me sleep are working though, I don't feel as fatigued as I originally did, but it is definatly still there. I praise God for that little bit of relief. Right now I having problems with my reflux. My chest burns from the reflux and is sore due to the FM. The medicine that I 'm taking to help me sleep is reeking havic on my digestive tract. Now I' m taking laxitives for those issues. Hopfully that won't be a side affect that stays long. I think that I go to the gastro doctor in October, I think that the appointment is a little too far away for my comfort.

             How are you doing? Are your meds helping you? I really hope so. There really isen't a big change for me to stop taking the nexium. It really didn't help me how about you? I was on the highest doseage for my weight and age. I'm sure that you are busey, so I will talk to you later. Sorry for gabbing so much!                                                                     

                                                                                                                                     Smile

                                                   Sending prayers & wishes of good health . . .

                                                                          Morgan

    • CATHERINE E SHINE
      Aug. 14, 2008

      HI MORGAN;

      I LOVE YOUR NOTES.........YOU DONT GAB TOO MUCH........NOT AS MUCH AS I DO.  I AM A GEMINI, AND THEY ARE VERY TALKATIVE, BUT THATS A GOOD THING FOR A FORMERLY SHY PERSON.

      KEEP ON LOSING WEIGHT, ITS A SLOW PROCESS, BUT IN THE END, IT WILL BE A BOOST FOR YOU.  WE ALL NEED GOOD SELF ESTEEM, AND THATS MY WISH FOR YOU.  I DIDNT HAVE IT...

      RHMLucky777

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      HI MORGAN;

      I LOVE YOUR NOTES.........YOU DONT GAB TOO MUCH........NOT AS MUCH AS I DO.  I AM A GEMINI, AND THEY ARE VERY TALKATIVE, BUT THATS A GOOD THING FOR A FORMERLY SHY PERSON.

      KEEP ON LOSING WEIGHT, ITS A SLOW PROCESS, BUT IN THE END, IT WILL BE A BOOST FOR YOU.  WE ALL NEED GOOD SELF ESTEEM, AND THATS MY WISH FOR YOU.  I DIDNT HAVE IT FOR A LONG TIME, AND I HAVE STILL HAVE BOUTS OF NOT FEELING AS GOOD AS EVERYONE ELSE, BUT I DISMISS THOSE FEELINGS AS SOON AS THEY SHOW THEIR UGLY HEADS. 

      I HAD A NEIGHBOR IN FOR LUNCH, AND WE HAD A NICE VISIT.  SHE IS KIND, AND ALWAYS WATCHES OUT FOR ME.

      I AM A WIDOW, AND MY DAUGHTER KATHY WHO NEVER MARRIED, CAME HOME TO HELP WITH HER DAD WHEN HE GOT VERY SICK 9 YEARS AGO.  NEEDLESS TO SAY, SHE GAVE UP HER APARTMENT, AND CAME HOME WITH ME.

      WE GET ALONG GOOD, AND NOW I HAVE TO WORRY THAT I WILL NOT BE A BURDEN TO HER WITH ALL OF THESE HEALTH ISSUES I HAVE.

      SHE IS A COMPUTER PROGRAMMER, AND WORKS IN DOWNTOWN BOSTON.  SHE IS VERY SWEET, AND SHY TOO, JUST LIKE YOU AND I........SHE HAS A LOT OF FRIENDS,  AND A PRETTY GOOD SOCIAL LIFE.  JUST TOOK UP GOLF, AND LOVES IT.

      MORGAN, I DO TEND TO GO ON AND ON.............SORRY, SWEETIE.

      I GO TO THE NEW ENGLAND BAPTIST HOSPITAL, SO THAT IS MY BAPTIST CONNECTION.

      WELL, MORGAN, WILL SIGN OFF FOR NOW..............WISHES FOR A PAIN FREE DAY AND WEEKEND..................GOD BLESS..............RENEE

       

    • Morgan
      Aug. 14, 2008

        Renee,

             I don't think that you ramble or talk too much. I 'm sorry that I complain alot when I write. I just don't like to talk about my problems out loud, so I have a tendentcey to write alot about my issues. I'm glad to hear that you had a good visit with one of your friends. I'm not usually on the site as much...

      RHMLucky777

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        Renee,

             I don't think that you ramble or talk too much. I 'm sorry that I complain alot when I write. I just don't like to talk about my problems out loud, so I have a tendentcey to write alot about my issues. I'm glad to hear that you had a good visit with one of your friends. I'm not usually on the site as much as I have been today. I signed back on because I got the e - mail that you had written back. I hope that you have a really good evening. I will talk to you very soon.

                                                     Prayers & wishes of good health . . .

                                                                   Morgan

                                                                                                                 Smile

    • CATHERINE E SHINE
      Aug. 14, 2008

      THANK YOU, MORGAN...............I WILL GIVE YOU A BREAK, AND I DONT THINK YOU COMPLAIN AT ALL.

      SO MAYBE WILL SIGN ON IN A FEW DAYS AGAIN, SO I DONT GET TOO BORING.

       

      HAVE A GOOD WEEKEND.............AND BE GOOD TO YOURSELF.

       

      WinkRENEE