i dont know how much more i can take

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Tuesday, May 20, 2008
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my name is wezzie I am a 35 year old female who has suffered with chronic pain for more then 20 years. i sleep one to two hours a night . some times not at all. its now 2:03 am Tuesday may 20th. on a scale of one to ten my pain right now is a 10. i have constant pain all day on average a 7 . somethin...

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i dont know how much more i can take
jody
Friday, May 23, 2008 at 12:30 AM

Hi Weezie

I am so sorry to hear about how much pain you are in. I can type much longer tonight I am too sick but I wanted to tell you please dont give up, do you go to a Pain Clinic? If not you should try and find one. You have a complicated history and they would be the ones to be able to help you the most I think. I will keep you in my prayers and hopefully we will talk again,

God Bless and Good Luck with everything.

Jody

re: i dont know how much more i can take
jaz
Tuesday, May 27, 2008 at 10:58 PM

Hello Weezie! I can only imagine what you are going through. I have fibromyalgia and suffer from extreme insomnia. You really need to be getting your sleep. Ask your doctor about something for your sleep. I would be careful about going to Pain Management. If you make them mad they will cut you off and leave you cold turkey!

I am praying for you. jaz

re: i dont know how much more i can take
MSBLANN
Friday, September 19, 2008 at 03:49 AM

hi im glad to meet you not much has change for the better in my life i went to court june 6th for my disability i was denied agian altho 5 doc ar pushing for it. i have been homless living with othther people since july .this makes me proud to be an american yeah for a while i thought no one would care . i want to say thank you. i was glad when i logged in to day i had four comment. from people like me who unnder stand my fight.

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Scarlett
Friday, July 18, 2008 at 11:28 AM

Hi Wheezie,

I am 46 years old. I too have Fibromyalgia, and Bipolar syndrome, PTSD as well as sacroilitis, herniated disc, spondoloarthrapathy, chronic severe heaeches and the hyperextension in the joints that you mentioned. I have not been tested to see if I have anything heriditary, my mother was in chronic debilitating pain her entire life, so I would not be surprised. I too suffer from severe insomnia due to pain...and am told the same thing...lack of sleep makes the pain worse..a vicious cycle. I cry all the time too. I can relate to your comment about your toes hurting...no one seems to understand how painful I am...from head to toe. In fact some of my worst pain is in my feet. I too rarely leave the house. My son is 25 years old and lives out of state, so I am not caring for children as you are....I don't know how you are doing it. I see a pain management doctor, but pretty much have to beg and grovel for 8 percocet a day. Not nearly enough of course, which is why I never have enough relief rom pain to go out and shop or do anything...I don't even eat some days if it is too painful to stand long enough to prepare anything. 10 minutes is my standing/walking limit before nerve pain in back, thighs and legs is too severe to bear. I have seen so many doctors and they have all been completely insensitive to my pain or the fact that I have no quality of life. I too feel at the end of my rope and wonder why I continue to fight and struggle with this. The same doctors who diagnosed me fibromyalgia, don't even take it into consideration when measuring the pain I'm in. No one has found an adequate explanation for the nerve pain in lower back, left leg and feet...now I have much numbness in left thigh all the time. I don't know what to say except that I understand...especially the bipolar part making it all worse. God Bless and Take care.

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MSBLANN
Friday, September 19, 2008 at 04:03 AM

hi thank you for your comment i just want to respond to you yes i have had a pain management doc in 2006 after yelling at a doctor to do his job and actually test me for something pain related and stop giving me pills. i don't want to cover it up i want to fix it well at least know what is causing it. my pain management doctor did more for me then any other doctor but she specialized in pain. she set the ball rolling for me. but when i met her i told her i don't like pills too many side affects plus after a while the don't work. help me limit the pain so i don't need it i have hurt so long i pain tolerance is high and i limit my activities i take my blood pressure pills somtimes my bipolar pill if i can find one that don't give me side affect . i was just started on something new this month and i only take somthing for swelling , fluid , and aleve advil stuff like that . i m sick of pillsim 36 how much lonnger do i have to do this

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Anonymous
Friday, September 19, 2008 at 03:40 PM

Hi Weezie,

I know exactly what you mean..I hate taking the pills too. I want to know what is wrong and get at fixing the problem , not just treating the pain. On the other hand, without the pain medication I would have no quality of life at all...I would not even be able to write this e-mail. I could not stand or walk or function in any way..so I have to take them. My tolerence is high too...and that is a problem in itself. The worse that gets, the less pain relief I get. I also have terrible problems with side effects from the bi-polar meds. I have been through ALL of them. I have finally ended up on Topamax, Welbutrin and Clonapin. So far, this conbination has had the fewest, mildest side effects and I have been able to tolerate them all pretty well. I'm sure that some of the other drugs that I was on were probably more effective...but the side effects were not worth it. These are working okay..I'm not the best I could be..but I'm not at my worst either...and I think with all the pain I'm in it's impossible to tell how well my mood stabilizers are working...between constant pain and terrible insomnia...who knows what is causing any changes in mood. I don't know how long you will have to keep taking mecication..some people who are bipolar have mild enough cases that they don't need to take meds all the time..they just take them if the start to feel symptomatic...or there are some who use herbal treatments like magnesium and St. Johns wart and they do okay too. But I think for most people with bipolar disorder..some medication will always be necessary. As for your pain..I don't know the answer to that...I wish I could tell you. I am going to see an accupuncturist. I have decided to go in a different direction since I can't seem to get any answers the traditional way...maybe I can at least get some pain relief in a different way. I will continue to pray for you...you said that your pain management doc was good to you..perhaps she can help with your disability claim if you're still having trouble with. God Bless and take Care,

Wezzie
syl c.
Friday, July 25, 2008 at 04:57 AM

I know what a difficult time you are going through. I suffer from severe lower back pain I have had three surgeries and each surgery just leaves me in worse pain. I take alot of pain medicine without the pain medicine I would not be able to function. I hardly ever go out as I will come back in severe pain and have to deal with it until the next day when it starts all over again. My sleeping medicine is the only thing that keeps me from feeling pain as it puts me to sleep for four hours and then the cycle starts all over again. I hope you were able to get your soc. sec. I know how hard that is to get. I don't know what to say to make you feel better maybe knowing that others suffer too and its hard to read your post and know how you are feeling.

EDS
Anonymous
Saturday, May 23, 2009 at 06:24 AM

Hi Wezzie, I can't say I know exactly how you feel but I can definitely sympathise. I have HMS/EDS and wondered if you had looked at http://www.hypermobility.org/ It has loads of useful information and forums filled with people going through the same sorts of things. They also have information on how to see professionals in the right field to really help you manage your condition. Unfortunetly I know what it is like trying to deal with constant pain and all I can say is that I hope you manage to get some help.

Take care and try to keep your chin up :)