Saturday, February 11, 2012

All SharePosts Relating To "MECFS"

Expert_badge Karen Lee Richards

Karen Lee Richards

(Profile)
Co-Founder of the National Fibromyalgia Assn.

Help Advance ME/CFS and Fibromyalgia Research!

This is a really big opportunity for each of us to play an important role in funding more research for ME/CFS (chronic fatigue syndrome) and fibromyalgia – and it won't cost us a penny.  But we have to act quickly because the door of opportunity closes Wednesday.  Chase Community Giving (funded by JP Morgan Chase) was introduced in... Read moreChevron
posted 05/24/2011, comments (0)|
Expert_badge Karen Lee Richards

Karen Lee Richards

(Profile)
Co-Founder of the National Fibromyalgia Assn.

PACE Trial Results Misleading: Part II – Flaws in the Study

In “PACE Trial Results Misleading: Part I – Background,” I discussed the media coverage of the study's results and the disturbing history behind the UK's PACE trial.  Now we'll take a look at some of the specific problems with the study itself.  In all the years I've been reading research reports, I don't think I have... Read moreChevron
Expert_badge Karen Lee Richards

Karen Lee Richards

(Profile)
Co-Founder of the National Fibromyalgia Assn.

PACE Trial Results Misleading: Part I – Background

In mid-February, the UK's Medical Research Council, with great fanfare, issued a press release announcing, “UK’s largest CFS/ME trial confirms safe and effective treatments for patients.”  The two treatments they claimed were so effective are Cognitive Behavioral Therapy and Graded Exercise Therapy.  Most of the... Read moreChevron
Expert_badge Karen Lee Richards

Karen Lee Richards

(Profile)
Co-Founder of the National Fibromyalgia Assn.

Off-Label Prescribing Enhanced by Patient-Reported Outcomes

I recently came across a rather unusual, but quite interesting study that looked at the PatientsLikeMe Web site and analyzed how the information reported by patients on the site could be a useful tool for both doctors and their patients when it comes to prescribing medications off-label.  Identifying the ProblemAlthough off-label prescribing... Read moreChevron
posted 02/28/2011, comments (0)|
Expert_badge Karen Lee Richards

Karen Lee Richards

(Profile)
Co-Founder of the National Fibromyalgia Assn.

Spinal Fluid Test Distinguishes Lyme Disease from Chronic Fatigue Syndrome

Unique proteins discovered in spinal fluid can distinguish neurologic post-treatment Lyme disease (nPTLS) and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) from one another and also from people in normal health, according to a study published last week in the journal PloS ONE.  There are many similarities between nPTLS... Read moreChevron

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