I have lived with Chronic pain 8 years now as a diagnosis of FM and CFS came after I went to have my gallbladder removed at 42 and woke in such pain in my back I thought they dropped me. For all these years my mris read Tarlvoc cyst the neuro I went to told me the pain in my back was from the djd and FM I never would get a answer why my rt leg was losing feeling but as this neuro was gone for ten days and due to a massage therapist who only works on my shoulders to losen the tightness pulled on my leg due to my back hurt so bad I was unable to move and found that I have a rare disease called TAD where cyst on the spine fill with fluid and one was pushing on my nerves so 6 mos now I am a little better only now my son is dealing with leg pain the inability to function and much more only he lost his insurance and he has to deal with many stupid drs saying they dont have answers for a man 26 years old This began about 2 years ago he was so happy moving in with his girlfriend starting aviation school then some very emotional things happened his sister lost her baby to sids he witnessed abuse being done to me by my son in law who had gotten away with it twice now and my son tried to stop but was pushed to the floor, he slid into a guardrail with his pickup and when pain started in his legs neck and back and was not able to cope he threatened his life but due to this and a few drs that helped while he had insurance but since he lost it and this dr who was not managing his pain to well and sadly my son tried to smoke a little marajuania due to breakthru pain while this dr had him on a duragesic patch and did not believe in breakthru pain. This is in his medical records as my son was honest with this dr, and truely he knows the mistake he made but now as months pass and he is living with me and my elderly parents he crys often and is fed up with remarks from drs regarding his condition. He has no help from his father I am it and am so weak at times just not knowing who will help us or listen. I faced many of the things he is now hearing from ignorant uninformed people but if someone does not get his pain under control and find out what is causing the legs to buckel and his hip to pain I am going to lose my son because of stupidty of those who do not suffer from chronic pain that goes untreated and eventually takes your life. My finances are limited as I live on SSD my car is broke down and we live about 50 miles from KC MO my dr cannot take him due to her amount of patients already and is not to forthcoming with anyone who takes uninsured people. I think I am just venting and looking for a kind uplifting few words. I guess I can top this off with the fact that as I was seeking help for myself I began to have problems with my teeth and due to my divorce did not have dental insurance, I began going to a dental school and slowly this sturdent was trying to do bit by bit only every time they had to pull a tooth I flared so bad I was in so much p6 trips in a two week span finally they had worked up a plan for me and my x husband was going to make payments great right then my grandson was born and was in icu for two months and I had to help my daughter so I called the student but upon my return in that April where I had been waiting for a crown for a root canal I was having bone loss in the bottom jaw line and two teeth came loose this guy pulled them out them told me since my health was not great they had a fm dentist he was sending me to I waited and waited in July I went in and found that I had been transferred to Faculity practice there was no FM dr they could work better with me since I could not hold my mouth open long nor sit for extended periods great I had creidit from payments my x was paying and the dental resident went to work on me giving me a partial root canal on a frt tooth and filled a big cavity the student kept putting off only she was leaving in august but someone else would take over....Yeah and they did not take any payment plans it was due at the time of service. And after what they did I owed them 80.00 dollars Well in Nov 08 the tooth in frt broke right off and my whole bottom mouth has shifted, prior to my surgery I wanted them to look at what they had done only to open my mouth would cost me 150.00, nice isnt it to know those of us that live with disabilities and little money cant do much when we have no dental insurance and so many more bad things can happen with poor oral health only we dont have anyone to assist in our help You know now I eat very little since anytype of food just maakes my mouth hut so much more..........................Thanks to whoever took the time to read how my life is pretty pathetic these days
Q: Where can I turn I have no help and I try to be strong yet I feel I am the only one
You have had a very difficult time these past years and you really deserve a break! It's fine to vent - you have to vent somewhere. Alot of people come to this site because they are in big trouble and at times it's heartbreaking. For me, the anxiety and stress of simply coping with such a huge alteration of one's life adds just another layer of problems. I used meditational and mindfulness techniques to try and keep my mind off of my problems if, to try and avoid get sucked into a whirlpool of stress. I find them very helpful and I can't imagine that you -with your difficult situation - wouldn't as well.
There's if a book called 'Full Catastrophe Living' that explains how to do this and quite a few other that illustrate how to deal better with such stressful situations. The interesting things is researchers now know that stress and anxiety actually accentuates one's pain levels - so getting the stress under control could actually reduce your pain.
Good luck with that tooth!
Dear Gwen,
I felt just like you a few months ago, not knowing where to turn. One important avenue you need to explore are support groups and sites such as this one.
I discovered very quickly that there are others out there dealing with the same issues, symptoms and hardships as I. This had a beneficial affect as I came to realize I was not alone and that there were people out there willing to share my difficulties and support me with great compassion and concern.
I have become a part of this community and also support others when they are having flares in pain, feel depressed, need an ear etc. I don't know if this begins to answer your question, I just know there are people that care and would readily embrace you with love and understanding. Never fear reaching out, the response will surprise you.
Even me across the ocean in Australia, distance means little on the web.
Take care lovely lady and all the best to you. Ozigal
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(I just have to redo this because there are so many typo's. I'm using a voice activation system that for some reason often adds words when I'm not looking).
You have had a very difficult time these past years and you really deserve a break! It's fine to vent - you have to vent somewhere. Alot of people come to this site because they are in big trouble and at times it's heartbreaking.
For me, the anxiety and stress of simply coping with such a huge alteration of one's life adds just another layer of problems. I've used meditational and mindfulness techniques to try and keep my mind off of my problems and to try and avoid get sucked into a whirlpool of stress. I find them very helpful and I can't imagine that you - with your difficult situation - wouldn't as well.
There's a book called 'Full Catastrophe Living' that explains how to do this as well as other books that illustrate how to deal better with such stressful situations. The interesting thing is that researchers now know that increased levels of stress and anxiety actually accentuate one's pain levels - so getting that stress under control could actually reduce your pain.
Good luck with that tooth and everything else!