Im in bad pain,no Dr wants to help me anymore,what do I do.
HI, I was reading the question you answered,and I have a question for YOU.I hope you can help,or give me some sort of advice.I am a disabled former Personal Support Worker (Health Care Aide).,I had to give it up,when my disabilities got too painful,and Im now on Long-term Disability.Permanently. I have MANY health problems.Chronic pain, in my legs,from numerous LIMB LENGTHENING OPERATIONS when I was a teenager.Im 35 now.I was the first in Canada for my form of dwarfism,to have the operations.Im Hypochondroplasia Dwarf.I was basically a "guinea-pig",for my Doctors.Not knowing when the operations finished,it made me 8inches taller...but it would make me disabled,and have severe chronic pain for the rest of my life.I tried living a normal life,but my pain took over,and i am now on long-term Disability.I also,less than 1yr ago,got diagnosed with LUNG DISEASE, pulmonary SARCOIDOSIS.SO PAINFUL.Drs tell me it isnt...but since I had this disease begin,in Oct 08,Its nothing but pain.Breathing,and night/sleeping,have to sleep sitting up.I feel like my chest is crushing,feels like fluid in my lungs,chest/back.NO ONE believes my lung pain.Its killin me.(suicide is considered on a daily basis). I have been on opiods for about 2-3yrs now...Ive started at the lowest,weakest and have gotten to where I am now.I am on Hydromorphone 8mg, about 8/day.(2tab-4xday),Hydromorph Contin 3/day, and Oxycocet, 5-325/ 4-6day....and I am in SO MUCH PAIN STILL! I am no longer getting ANY relief for my pain from my meds,and I go to a PAIN CLINIC,see a specialist..I had a good Dr,but he retired,.and now this new Dr just writes me the same script every month... he dosent want to change or help me.(my last visit,he recommended I move to dry UTAH,(Im in Ontario,Canada)..my meds arent working like they used to,or should.My body is used to them,from being on them for a few years.I havent been offered any other help or options or medications...I sometimes feel it is MY fault,maybe they dont believe my pain.Im hurting NOW MORE THAN EVER.I cant live like this.I consider suicide on a daily basis...thats bad.I want new meds,or something...I cant live in SO much pain anymore.My meds are only making the edge of my pain,1st thing in the morning,easier.The rest of the day,as time goes on,the pain gets worse,til night when I cry,and cant walk (arthritis),or breathe (Lung Disease).This isnt "LIVING" this is "LIVING HELL" Please tell me what you think......... thankyou.
I sent a reply directly to you, so look in your messages.I hope I was able to help some.I've had lots of days I didn't think I could go on, but it was worth hangin in there.Trust me.
- Thank you for your input
- Ranked Helpful (1)
- Report Abuse
Liberty
Tuesday, July 07, 2009 at 12:54 AM
I'm so sorry to hear you're having such awful pain. Have you ever talked with your doctor about the possibility of having either a intrathecal pain pump or a neurostimulator implanted? Here's some information on both: Pain Pumps and Neurostimulators They are often able to control pain when nothing else works.
We also have an excellent discussion on pain pumps in our forum. If you're interested, you might read through some of it and see how others have done with it. Here is a link to this thread on the forum:
http://forums.healthcentral.com/discussion/chronic-pain/forums/a/tpc/f/7251032/m/8491036
(Note: If you've never been to the forum before, you'll have to register separately from your registration here on ChronicPainConnection. You can, however, use the same e-mail address and password if you like to make it easier to remember.)
It concerns me that you mentioned considering suicide every day. I understand how you would feel that way – many, if not most, of us who live with severe chronic pain have thought about it. But I really don't want to see you give up hope. Do you have a counselor, psychologist or psychiatrist that you can talk to? It's hard to be in constant pain and not suffer from some degree of depression. I'd also encourage you to find a support group. If you're not able to go to one physically, try one online. There is an excellent support group in the forum called “The Daily Grind.” It's a great group of friendly people who chat with and encourage one another regularly. Just click on the current month and join the discussion.
http://forums.healthcentral.com/discussion/chronic-pain/forums/a/frm/f/1361017
We do care about you here and want to support you in any way we can.
- Thank you for your input
- Ranked Helpful (2)
- Report Abuse
Liberty
Tuesday, July 07, 2009 at 12:53 AM
Thankyou SOO much for your message back,with your imput.Its SO nice to have people who in some way understand,and want to help,or even just acknowledge my pain issues.Its SO hard.I also,7 months ago,lost my 36yr old husband.He passed away from a massive heart attack.We JUST had our 1st and ONLY Wedding Anniversary about 12 days before he died.We were SOULMATES.We were together for 5years and it has been SO Hard.Im sick,I am in more pain,and getting sicker most days,since losing my husband.My LUNG DISEASE (Pulmonary Sarcoidosis) has gotten worse,and SO PAINFUL.Not just my mental pain,but physical too.I have chronic pain in my legs,back,feet,hands,and its SO hard not to want to give up.Just to be with my husband again,and no more pain.I think about suicide every day...most of the day.Its hard not to.Especially when you've lost your SOULMATE.
I havent yet talked to my Pain Dr about the pain pump or neurostimulator.I will try next visit,but with this dr,like I said in my other post,he just writes me the same script,and almost pushes me out the door,not listening to my complaints.Its hard when no one wants to listen to me.Im getting frustrated.
I DO have a Psychiatrist,whom Ive had for awhile,because I already suffer with Severe Depression,Anxiety (GAD),PTSD,and Borderline Personality Disorder.I also,saw on here,you do therapy for those,and are introducing Marsha Lineahan,and her DBT(Dialectual Behaviour Therapy),and CBT(Cognitive).Let me tell you,I took 1year of DBT and CBT,and what Marsha Lineahan teaches.If you get the oppotunity to learn it, YOU MUST.I was introduced to it,about 5 years ago,when it first started.IT REALLY HELPS.If you want the help,you will benefit from it.HONEST.I STILL use the skills today.
I DO need to find an online support group,or even one in person,for GRIEVING.I am still having a hard time since losing my husband.I thankyou again for your responses,and input and advice.I thankyou.I hope I can make it through this.Its hard. thx
Thankyou SOO much for your message back,with your imput.Its SO nice to have people who in some way understand,and want to help,or even just acknowledge my pain issues.Its SO hard.I also,7 months ago,lost my 36yr old husband.He passed away from a massive heart attack.We JUST had our 1st and ONLY Wedding Anniversary about 12 days before he died.We were SOULMATES.We were together for 5years and it has been SO Hard.Im sick,I am in more pain,and getting sicker most days,since losing my husband.My LUNG DISEASE (Pulmonary Sarcoidosis) has gotten worse,and SO PAINFUL.Not just my mental pain,but physical too.I have chronic pain in my legs,back,feet,hands,and its SO hard not to want to give up.Just to be with my husband again,and no more pain.I think about suicide every day...most of the day.Its hard not to.Especially when you've lost your SOULMATE. I havent yet talked to my Pain Dr about the pain pump or neurostimulator.I will try next visit,but with this dr,like I said in my other post,he just writes me the same script,and almost pushes me out the door,not listening to my complaints.Its hard when no one wants to listen to me.Im getting frustrated. I DO have a Psychiatrist,whom Ive had for awhile,because I already suffer with Severe Depression,Anxiety (GAD),PTSD,and Borderline Personality Disorder.I also,saw on here,you do therapy for those,and are introducing Marsha Lineahan,and her DBT(Dialectual Behaviour Therapy),and CBT(Cognitive).Let me tell you,I took 1year of DBT and CBT,and what Marsha Lineahan teaches.If you get the oppotunity to learn it, YOU MUST.I was introduced to it,about 5 years ago,when it first started.IT REALLY HELPS.If you want the help,you will benefit from it.HONEST.I STILL use the skills today. I DO need to find an online support group,or even one in person,for GRIEVING.I am still having a hard time since losing my husband.I thankyou again for your responses,and input and advice.I thankyou.I hope I can make it through this.Its hard.
thx