I was diagnosed with CRPS in April of this year. I may have first developed CRPS in 2004 after a deep tissue injury down the left side of my body. I had the same sypmtoms, burning pain, sharp shooting pain, alydonia, constant inflammation and zero pain relief. This all developed after I thought I had healed from the injury. It lasted for seven months and then gradually dissappeared until I felt back to normal. In December of 2008 the same symptoms reappeared but this time in my right leg. swelling, discolouration, constant pain, and an overall flu like feeling etc all unresponsive to pain medication. After doing bloodwork the doctors discovered my blood is positive for anti ana and anti ena as well which they thought may be related to a connective tissue disease. I saw a scleroderma specialist in April 2009 who diagnosed me with CRPS. By mid May the symptoms began to subside and gradually dissapear but not before causing mirror pain in my left leg and what felt like charlie horse pains in my arms. The swelling went down but would return if I over did things. The burning pain remains in my knee and I seem to have some nerve damage in my right foot and toes now. When I returned to my doctor in May to discuss the diagnosis he all but laughed me out of his office. Because the visible swelling was down and I didn't have alydonia at the time he completely disagreed with the diagnosis. He said the only accurate diagnostic tool for CRPS was a tryphasic bone scan. I asked him to send me for one to verify the diagnosis (or not). I have read about cases of CRPS that go into spontaneous remission and flare up in the future as a result of trauma or whatever. I wonder if this could be the case with me. I feel much better now than when I was in that horrible pain but I work in a locked psychiatric hospital Unit with very dangerous patients and am on my feet for 12 hour shifts. I want to make sure I can handle going back to that full time. I still have the flu like feeling and am achy. I still feel the burning in my knee only on a much milder scale. I even have pain walking on occasion still by the end of the day. I have not returned to work as my employer wants to have a difinitive diagnosis and wants me back to 100%. I feel as if I cannot ask my doctor questions as he doesn't believe I have it and he seems old school with the belief that CRPS soen't spread and that ALL of the commom symptoms must be present ALL of the time. If I have this bone scan an am in remission will it even show up that I have it. Is there a blood test that would be more accurate? I just want some answers so that if it is CRPS I can know right away the next time this happens what is going on and how to manage it. My family has a history of raynaud's, fibromyalgia and rheumatiod arthritis but I have not been diagnosed with these.





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Than you for your answer. I had the triphasic bone scan on May 20th. It was the most interesting test I have ever had done. I asked if the results would be effected by a possible remission or decrease in symptoms. I was told that the scan only sees the bone so the other symptoms don't have an impact on its results. My right knee lit up like a lightbulb whereas the other areas of my body were not as bright. The Dr. in the nuclear medicine department said he would not rule out CRPS as it is a clinical diagnosis and all my history and symptoms seems to point toward it. He also said that as most everything else had been ruled out he was in agreement with the diagnosis. The scan proved to me that I am not in remission but am fortunate that the pain level has decreased quite a bit over the past month. My leg is still 2.5 inches bigger than the other one and I still feel all the same pain feelings, they are just turned down in intensity. The doctor was suprised that I had been in remission for 4 years prior to this occurance and stated that often remission states are few and far between. I'll keep taking things one day at a time and get into some physio thereapy to try to work this through somehow.