I know exactly where ur coming from! It is so hard and I have been this way, since I had a neck surgery(C5-C6) spinal diskectomy. I have only gone downhill and can't seem to get back up.
I just want to know what this is and hearing that there is someone else out there, who is suffering with the same kind of pain...IT is horrible! I am so sorry to hear, to know anyone could live with this kind of pain. I know, mine has been with me so long that I feel, I will be like this the rest of my life.
I am getting to where I can't control my muscles all over my body. My left arm/hand shakes uncontrollalby, as well as my left leg and I am afraid this is some nervous disorder that they are just not finding. I don't understand how they could miss something that hurts this bad. I am so miserable most of the time, I don't go anywhere, but to a Docs appointments, lay in bed most of the time and am losing all of my muscles, in my whold body and feel like I am losing my mind...right along with it.
The Docs that I have seen most of the time, are Neurologists. I am finally getting tired of going to see them, because it seems like I am getting nowhere. So, I made appts. with an Oncologist and a Cardiologist. Thus far, they have ruled out "tumor markers", by a test called a CEA. I asked them to run it, just to make sure that there was no Cancer in my organs, but they usually don't run this test, unless they feel the need. I was told by a professional lab tech, u could say, because she works for a prominent Lab facility, that I needed to have that test run, because from what she could see from the bloodwork that I had done @ 9 mos. ago, my Iron, Serum test(110) was double what it should have been and she frowned upon my Alkaline Phosphatase #.
All I know is that there is definitely something wrong with me that is pretty bad and no one can find it! What!?
What is going on, when what u have can't be figured out...IT is pretty bad to have to suffer and can't get well. All I know is that I am tired of being sick...yes, I am definitely SICK of being SICK!
The only thing now, is that I am getting chest discomfort and it hurts for me to lay on my left side. It feels like it is my heart. I think that maybe that is because I have Chronic Bronchitis, like I have had b4 and put in the Hospital for a week, when I was 12. It could be Pheumonia, but Lord knows when a body hurts so bad that u only want answers...there is just not any Docs that are giving ANY or relief. I only want to feel like me again and not be in so much pain anymore, but I have had so many tests and they can't give me an answer...and that is hard on a person, when it takes so long to feel healthy again.
It is bad that I hurt ALL over and it is not just in one area and that is why they THINK it is Fibro, but it is something else...I can feel it and I know there are many others that feel the same way. THe Docs are only treating the symptoms and NOT the CAUSE!!
I pray that ur doing better now and can tell me what they found. Take care and God Bless always.:))<3 Karen