Thursday, June 20, 2013

Tuesday, October 13, 2009 tracyt asks

Q: how to live with chronic pain

Can someone please give me some advice I am desperate! I am a 47 year old mother of a 10 and 8 year old boys and a disabled husband. First of all I have no medical insurance which is depressing in it's self. I have a severe case of tmj my dr. said the worse he has seen. On top of that I have a big toe joint that is got a huge knot and needs surgery. I have neck and upper back pain due to a injury a couple of years ago and it causes my right arm to have numbness and I am losing strenght in it. I had a motor cycle accident when I was 17 and injured my lower back. I know I probably have disc problems and maybe nerve damage. I have never had a MRI done on anything because of insurance reasons. My family Dr. has been kind enough to give me lortab 7.5 three times a day and motrin, but it does'nt help much. I have been taking it for 2 years. I dont have money to go to all the different specialist that I need to see. I also have carprul tunnel and really really bad headaches. I am almost at the end of my rope!! Everybody thinks your either a drug seeker or its all in your head! well I hope it never happens to them! Is there anyone  out there that can offer some hope!! Thanks Tracyy.

Answer This
Answers (13)
Cort, Health Guide
10/14/09 9:42pm

I think your situation you really have to become very good  at managing pain without drugs. This  can be done. In fact a course called  Mindfulness-based Stress Reduction (MBSR) was created for people who did not respond well to pain reducing drugs. It  utilizes mindfulness (meditation-type)  techniques turned down the state of arousal in  your system allow your  body to relax and you to feel less pain. It can  be quite effective. MBSR classes are taught around the country or you check out the book on MBSR by John Kabat Zinn called Full Catastrophe Living: Using the Wisdom Of Your Body And To Face Stress, Pain And Illness. Good luck!

 

http://www.umassmed.edu/cfm/mbsr/

Reply
10/16/09 3:50pm

This was very helpful information for me as the pain meds hurt my stomach, liver damage and constipation. I will get this book and try to use this information. Thank you again

Reply
10/16/09 11:37am

I am so sorry. I am not in your shoes as I am well insured and have a wonderful doctor, who has given me adequate pain coverage and really excellent care. However, I do understand your question as to how tolive with chronic pain. I hve learned through the help of a pain psychiatrist thatyour question that one asks regardless of insurance or not, money or not. We do have a purpose in life and one has to have faith in some sort of higher beingtobe angry with, pray to and most of all feel that someone is listening. There are a lot of people who care and love you and sometimes if you could just bask in the love that surrounds you from your boys and you husband. It helpsto be needed but sometimes that even feels like a burden. Look in your community for clinics, try the old cliche to thik of or do somethin to distract yourself. I know its not much but at one time I was in the same boat. Try to laugh at least once a day. Get sunshine at least 15 minutesa day. Sounds stupid, but just try these little things. We all have crosses to bear and bellieve it or not, there are a WHOLE lot od people worse off. Look for joy. You have nothing to lose and all these things are free. Good luck!

Reply
10/16/09 11:49am

Tracy,  Stress reduction is a big key like Cort mentioned, but when you are in so much pain, it tends to make stress worse.  I think you need some relief before you can be successful at redussing stress and connecting with the mind and body.  Can you get on a state insurance program for a little while so you can see a pain specialist?  You need to get control of your TMJ or it could get to the point that you need surgery.  I had it last summer, and even though I had it really bad, it was not the worst case....and I was in misery!  I can only imagine how bad you must feel, plus dealing with all your other issues.  Definitely start today with stress reduction techniques, but more importantly, try to get assitance so you can see a Dr. who can help you get your pain more managable thru meds.  After your body has calmed down a bit, really apply stress reduction techniques and slowly cut back on your pain meds.  Take good care of yourself!  I wish I could take all your pain away...I will be thinking of you and hoping for the best!!  Big HUG!!

Reply
10/16/09 12:33pm

Tracy - I live with chronic pain caused by RSD, it's the nerve endings misfiring and it is unimaginable pain 24/7 unless you live with it. I am fortunate that some of my symptoms are visible like skin color and temp changes. My situation is neither here nor there except that I understand that you are at the end of your rope and don't know where to turn. So far most of the response you have gotten are basically useless and you are no better off then when you started with your question. I just happen to see the Dr. Oz show on tv yesterday about the country's largest free clnic day he participated in and some stories of individual people they helped during the course of this day in Houston. The reason I bring this up is if you go to doctoroz.com, on the home page right now there is a place to click "find a free clinic near you". His whole philosophy is that everyone is entitled to quality health care with dignity and respect and too many people are not covered or under-insured due to being unemployed, pre-existing conditions and a host of other reasons. There is also a place for you to email him and ask him questions if you need info. My brother and sister went to a taping of his show and my brother was chosen as his assistant. He is really into informing people and spreading the word about health. I hope this gives you a little better info then the answers you've been given previously. I know how it feels to have people think you're either a phony or a drug addict looking to score when you have pain coming from something that isn't obvious like a broken bone. I hope you get relief and just know that if nothing else I believe you and can sympathize with you.

Reply
10/16/09 1:05pm

Hi Tracy,

 

First I'm so sorry you have to deal with that. I was just talking with a person at our doctor's office who has RA and no insurance.

 

Have you tried to get disability benefits? With that you can get healthcare.  It takes a while but you need to try to get help. Most disability attorneys don't need any money up front. In fact, many will give you a free consultation to help you get started in the process. If they want money up front, say good bye and try another. Sometimes fibromyalgia or arthritis support groups will have a list of attorneys that are most helpful.

 

Now what a lot of people don't know about getting disability benefits is that you can also work "after" you get the benefits. The best thing is to get that consulation with a good disability attorney to get you on the right track for help. I know it will take time but it will be worth it in the end.

 

Perhaps with the right meds you can work full time again one day. But in the meantime you need some care that you are obviously not getting.

 

Stress relief is something helpful but being so stressed out over all your issues kind of precludes not being able to get stress relief.

 

Good luck, Granny

Reply
10/16/09 2:03pm

I have been living with chronic pain for over 20 years.  First of all go to your county welfare dept and get medi-cal.  Second of all if your hubby or you have been out of work for more than 1 year apply for SSI Social Security.  Now Everyone gets denied so get an atty that does SSI.  They only get paid when you get you SSI, so don't worry about paying him beside Social Security actually pays him.  Then you will get medicare.  Then you will qualify for prescription coverage (Part D) then you can get some really medication to help with pain.  This will improve your quality of life.  It sounds like you are going to need some surgery to help with pain.  This should help you out a lot.  Also check you local area for meditation/yoga classes most of them are free.  Also look for a local support group they would probably have more info. 

 

Once you have done these thing I think you will be feeling better physically & mentally.

Tammy 

Reply
10/16/09 2:26pm

My heart goes out to you, and I understand.  Fortunately, I DO have insurance; however, chronic pain is almost impossible to eradicate.  I have been living with it for 12 years.  I would suggest meditation, relaxation techniques, and possibly low levels of yoga.  Any one of them, or small amounts of each,  could help you relax your mind and  your muscles.  I try different things depending on my pain level for the day.  Try to find a time of day when your boys are at school, or outside playing, to make YOUR TIME.  No phone, no computer, no  one asking for YOU.  You can research meditation techniques on-line.  I wish you luck!  God bless.Smile

Reply
10/16/09 6:58pm

Tracy,

 I don't if you are someplace where they have a free clinic or not. But they can help octor's you need with out charge. Or maybe you could apply for medicaid though the goverment. Just  some thoughts .

Reply
10/17/09 2:07am

Hello,

Sounds like you need to apply for disability, the insurance alone will give you a few more avenues to pursue, alternate pain therapy is awesome IF it works for you, get a SSDI Lawyer and get the ball rolling.

The alternative drug therapies are awesome now adays but to tap into more than you have takes insurance and you will most likely need a few surgeries which will help in the long run.

Good luck to you and take advantage of all your resources.

Jean

Reply
10/18/09 12:21pm

SurprisedHey Tracy:

I think you've gotten alot of good advice so far, but, I only wonder if you have the time or energy to follow through with them hearing about your situation.  You will have to take a good look at your daily schedule and start handing out responsibilities to Everyone in the house! This in order to allow you less stress and more time to practice your relaxation skills and meditation.  It may not take away the pain for a long period of time, but, it will give you some peace and that's the best place to start.....once you become familiar with your new routine you may find it a little more easier to cope with all of the challenges.(no promise!!) But, it's worth a try I think.  I too suffer from a lineage of painful illnesses and disorders; even with the help of doctor's and meds, I still feel the stress and heavy burden of pain everyday, and my situation isn't even as stressful as yours, (I'm sorry).  I hope you will consider taking the step of giving some of your responisibilities up to other household members for your own sake.  It will not only help them to respect all that you do for them but it will also prepare your two young men to be more self sufficient in the future and a good husband to someone in the latter!!  And we all would like to see that..Laughingam I right?  I myself have two adult sons and a daughter..and have no regrets giving them responsibilities after their father and I divorced.  Being ill and finishing raising them on my own forced us to have to share the responsibilities in the house, and now they have some sense of how things get done around them...(there are no cleaning fairies that come in after we go to bed!!) Anyway, I truly do sympathize with your situation and hope things come to a better change for you and your family.  It is so hard out there for us that suffer from pain....people who have their health, just don't get it.  They think if you look good, you're just as healthy as they are and should be capable to handle it all.  It's not a very compassionate world, and we have to change that, one person at a time I guess.

Take Care Tracy, your in my prayers, ladibugcrazi

Reply
10/19/09 10:51pm

You really do have your hands full. I am so sorry that you have so much on you right now. I have been suffering from Post Polio Syndrome and Ehlers-Danlos Syndrome for most of my 60 years now. I survivde the chronic pain and disability by taking one day at a time. Set small goals and try to focus on these goals. I do this to distract myself from the pain that is still there even though I am well medicated. But if I don't focus on my goals and where I want to be going then I just drown in all the pain and problems I have to deal with. You cannot choose the problerms you are having but you can choose your direction and your goals.

 

There are resouirces available to you. Others have spoken about SS Disability. That is certainly at the top of the list  for you. I did not have to get an attorney and was able to be accepted with total and permanent disability on my first try. I think the reason it worked for me is that I took the process of applying in a very step by step manner, making certain I had missed nothing plus I obtained letters from 6 of my doctors and surgeons to attach to the application supporting my pain and disability.. Now this may not have been the reason it went so smoothly for me. But I have to believe that it did help my case and good attys can be very expensive. So go ahead and give it a try.

 

Once you have your disability you will then be in a good position to access many other services which could provide you with some needed support in different areas.

 

You are not alone. Please remember that. Once you have described your condition here, you will have many of us who have fought and continue to fight many of the same battles you face each day. We will remember what you have told us and we will hope that you will be able to try the different suggestions we have offered you.

 

Another thing that keeps me going is knowing that there are reasons that these things happen. I may not know those reason right now but that does not mean that these things are just accidents or random happeniongs. I wish these things were not happening to you just as I certainly wish my things were not happening to me. But they are andf I can choose to fight against them or I can try to work with those things I do have and use those things to help me manage my stuff. Work with your strengths to manage the bad stuff.

 

My thoughts and prayers will be with you. Keep in touch. We will be waiting to hear from you again,

Sandy

Reply
10/20/09 9:53am

Can you send me a private email telling me what county, and state you live in? I am pretty good at researching the various programs that help ones that are in your situation.

I really don't care that my email address is visible, as I have a few different ones..lol.

 

You and I are the same age, and our stories sound similar.

Please contact me at: 4gregforever    verizon      net

 

I left the signs out.

 

God Bless Us All!

Reply
10/21/09 9:35pm

Hi Tracy, You certainly have my attention and my sympathy. To suffer with TMJ, which is a living nightmare and horribly painful, a large painful bunion, carpal tunnel syndrome, and old back injuries, you are in a pain nightmare called chronic pain.

There are two kinds of pain, acute and chronic. Acute can be treated and will go away, eventually. Chronic is around to stay. I can logically say your pain is chronic because TMJ is a nightmare. If it is as serious as you say, major surgery and a long recuperative period is usually necessary. Carpal tunnel can be corrected, but it requires surgery.

A bunion on the foot usually requires SURGERY. Old back injuries usually spell

trouble in the future, and probably surgery. If your husband is disabled, and you have young children, you likely have some relationship with DFACS. Whether you do or not is irrelevant. Go to them with your problems and apply for EMERGENCY Medicaid. If you are refused, your state has elected Senators and Representatives to whom you can take your case and get some help and establish an immediate need for medical help.

I do not know what state you live in, but regardless of where you are in the USA, you will have a state senator or representative who will gladly look into your situation and assist you with getting emergency help, even if you have a low paying job with no insurance because you cannot afford to pay for it. Do not sit back and suffer and sink into a pain induced oblivion of depression. Go for help according to the guidelines specified and you will ultimately get the help you need. I know that with TMJ alone, bio-feedback and ansaids are not going to give you any real relief.  Pursue the help you need while you can still think and function and deal with the pain at the same time.  You have my sincere best wishes.

 

Reply
Answer This

Important:
We hope you find this general health information helpful. Please note however, that this Q&A is meant to support not replace the professional medical advice you receive from your doctor. No information in the Answers above is intended to diagnose or treat any condition. The views expressed in the Answers above belong to the individuals who posted them and do not necessarily reflect the views of Remedy Health Media. Remedy Health Media does not review or edit content posted by our community members, but reserves the right to remove any material it deems inappropriate.

By tracyt— Last Modified: 11/10/10, First Published: 10/13/09