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Thanks, Sylvia, for recommending Dercum's be added to this site. I have just received a tentative diagnosis by my family doctor and am waiting to see several specialists, a neurologist and a rheumatologist. Most doctors have never even heard of this disease and it has taken me over 20 years to find out what is wrong with me. I am now 46 years old and the pain is so intense sometimes there is nothing I can do but sit and cry for a bit. None of the OTC pain meds work. I am trying Low Dose Naltrexone (I think it is helping me sleep better) and something brand new and not yet on the market called Cobroxin. (www.cobroxin.com). Cobroxin is a very dilute formulation of cobra venom, enough to dull the pain without being toxic to the system. I was told it works as well as morphine, but it has NO side effects (hallelujah!) and will be sold over the counter in most places when it hits the market. It only became FDA approved last month and is a medical breakthough in pain management" I has been working reasonably well for me by bringing the pain down from an eight or nine to a three to five   I am also going to try Neuragen, a topical pain reliever which is absorbed and quiets the overactive nerves.   Dercums Disease (aka Adiposis Dolorosa aka Anders Disease) feels like nerve pain, muscle pain, tendonitis, bone pain and many people get migraine-tension headaches. The pain is much worse than Fibromyalgia in my opinion. I have been told that the pain cannot be as bad as I describe it, but as my doctor is seeing my health and my ability to function deteriorate over the years, he is beginning to understand that I need answers now before I become totally disabled by it.