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Don't be surprised if your medical professional does not know about Dercum's....most do not. If you go to Dr. Karen Herbst's web site you can read about Dercum's. I am in two support groups and that is very helpful. I was so glad to finally at least put a name to my terrible pain. I have lumps all over in my fat layer. I am disabled by the pain and other symptoms of DD. It is interesting how we all have the same symptoms. You will be amazed. Good luck and I am sorry that you have this terrible disease. Hugs, Grandma Sylvia

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