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Sunday, November, 22, 2009
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Please remove any and all dr.s names and insurance companies...i'm sorry I sent the wrong file..

Son in Pain
Son in Pain
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Son in Pain is Trying to go back to get out of Pain & Go Back to Work
Son in major pain having problems w/ Recalled Med. 8627L18 Pump

Son had failed l4-l5 fusion w/ hardware - doesn't respond to oral...

11/05/09

Mom suggested I submit this to seek help and/or help another with my story so here it goes - please delete previous e-mail as it contained names of dr.s & insurance companies accidently...hear is the generic version:

 

My Son had  a failed l4-l5 fusion w/ hardware, surgery never helped w/ lower back pain or sciatica in left leg.  Took every prescription over 2 years; duragesic patches worked best 75 mg but had problems passing out w/ Texas Heat.  Did medtronics pain pump, significant relief w/ morphine.  Had pump implanted in 2004 and had great success but as I was adjusting up they increased concentration from 5% to 10% began to experience minor  nausea.  Dr. put lioresal (baclofen) for nausea - helped a great deal at first.  Then dr. forgot to put in on 1 refill; I had major nausea for 3 months until the pump was refilled & never missed the lioresal with the Morphine.  However at 7mg Morphine nausea started all day long...morning, night, noon w/ no relationship to eating - could eat but had nausea afterwords.  Had personal physician of 10 yrs do full workup, did every test & advised problem must be pump - Dr. replaced Morphine & Lioresal with Dilaudid - had major drug reaction, couldn't eat, lost 40 lbs in 2 weeks, bladder stopped, loss of bowels, fever & was hospitalized & pump refilled w/ saline drip for 2 weeks - presc. 30 - 120 mg Morphine daily until pump was refilled with Morphine only .05 mg daily at 10% concentration.   Was bedridden, increased pump 20% every week until 2 mg & went back to work - still major pain with sitting, driving, bending & no sleep; had to leave my job & been in major pain ever since w/ increased pain.  I'm upset I was not advised by my dr. that my specific pump was under FDA Level 1 recall (especially since I had problems w/ it over 2 years & constantly inquired about the condition of the pump & excessive adjustments increase the risk of pump failure) and second I  had a MRI to rule out cathadar problems - Dr. told me everything was just fine - no problems - When I go pick up copy of MRI for second opinion I discover there is a Lipoma of the Filiume over l4-l5 and I was never even told.  Dr. first advised wait 1 yr & f/u; then flopped & wanted to refer me out to another dr. asap for possible surgery - However Workers' Comp claims it is not related to the surgery????  I have spoke w/ Medtronics extensively & they advise my specific pump is not approved for Dilaudid, Lioresal or any other drug not Preservative Free - which I suspect could be a cause to my current problems.   Dr. prescribed neurotin & I started experiencing major tooth pain from jaw to top of head - worst pain ever - dentist diagnosed as trigeminale...Discovered site below on drug interactions & find several major drug reactions with past drug prescriptions - neurotin & morphine specifically.  Don't know about the possible relationship but I stopped neurotin & have not had trigeminale since.  So now, I have major lower back pain, difficulty sitting, riding, urinating/bowels after sitting and/or riding, major problems walking, very painfull; feel like something crunchy is in lower back and feels like walking on ice barefoot...very quick walk on toes.  I'm no drug addict, don't drink and used to enjoy life.  Now I can understand why some people become addicted to drugs, become alcoholics or even take their own life.  I'm very stearn on my philosophy on the Choice to Live or Die - I have a standing DNR; I love my Daughter & 4 yr old Grand Daughter but this is not living, it's a burden on others.  I Pray this 2nd dr. will help; it's a shame I have a pump and my dr. only wants to reduce & take out to avoid his liability - insurance company was told pump was not under recall when I personally verified by serial # w/ Medtronics and the FDA website - link below - beware serial numbers listed in batches & not by numerical order - so if your searching go thru the entire site to search for your serial number.  If my story helps only 1 person; then it's been worth the most horrrible pain I'm in now after 2 days of no sleep and constant yelling & screaming - help, help, help, help - desire to go to emergency room asap but they cannot help me with my problem.  I have to find out what is causing the problem rather than just treating the symtoms.

 

Thanks for reading my story and if you can offer any help or insite; please I would greatly appreciate you taking the time to send me an e-mail or refer me to someone who could help either with the medical, legal or ssi disab. or workers' comp problems associated with my case.   He is sleeping now with the 20 mg valium but intense lower back pain while sitting or riding, the growth thin lipoma of the filium and the trilmagiala has to be related.  Reducing the morphie from 8 mg daily at 10% concentration to 1.8 mg now is leaving him dibilated...we need to fix what's causing the pain or properly treat the pain or he has not chance.

 

Thanks you for any and all help you can provide.

 

Thanks,

 

 

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