Friday, June 01, 2012

Wednesday, December 01, 2010 BAE asks

Q: Hi~I have been diagnosed with CRPS and have been passed from DR to DR. My husband & I are looking to move to a place that has a special DR or clinic but need to know where to go.

We're in SoCal and not getting much help (our insurance is pretty bad too so he's looking for a new job). We've looked into Seattle but the DRs there seem to not like pain control & really like prayer & meditation as treatment which is great but I don't think that's going to work. I am currently trying acupuncture, lyrica (which I'm very allergic to so I am also on high doses of Rx antihistamine & hydro-cortisone cream), PT, narcotic pain control, oils & meditation, sympathetic nerve blocks (5 so far) ~ they want to put in a spinal cord stimulator but all the research I've done into that has shown it's not really the right option for me. Anyway, I would appreciate any help. My husband is kind of limited by his industry but Colorado is an option, parts of Canada, etc. Thank you so much!
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Answers (3)
12/ 4/10 8:40am

BAE,

I also have RSD/CRPS in my left arm. I suggest you find a good pain management clinic. I also suggest you do research and learn as much as you can about this disorder. It is a very complex disorder that does not follow any standard timeline nor do all patients exhibit the same symptoms. This disorder is more than just pain and acan affect your whole body. www.rsdrx.com has the best explanation in Dr. Hooshmand's CRPS Extract.

 

I would go to RSDS.org, RSDHope.org, RSDFoundation, or rsdrx.com for the best information and a list of doctors and hospital/clinics that specialize in RSD/CRPS.

 

I would not go to Canada, many of my RSD/CRPS friends there wait up to a year to get into a pain clinic.

 

Reta

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12/ 2/10 12:34pm

My friend who lives with severe chronic pain suggest going to where she lives which is canada. Most of the pain care policys are here in the US in general maybe this helps.

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12/ 2/10 4:16pm

Thank you ~ I've heard Canada in general has better/more accessible healthcare. We've been looking into Vancouver a little but don't know much about healthcare policies ~ from what I understand they don't have HMO/PPO so we'd need to find out what type of costs we're looking at.

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3/ 8/11 9:04am

Health care, in Canada, varies from province to province.

 

In general, we can see whatever doctor we choose (if they're accepting new patients), whenever we need to, and aren't charged for doctors' visits, most prescribed medical tests or procedures and hospital stays. The cost of medications is covered or subsidized, in some circumstances; generally, depending on need.

 

@Reruho

No doubt you do have friends, in Canada, who wait up to a year to get into a pain clinic but that, I think, is unusual.

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12/ 2/10 4:46pm

Dear BAE,

hope i got your name right.

i am a nurse who runs a chronic pain support group in manchester,NH. we have 2 members with your Diagnosis. from what i can gather after learning more about this problem, is that each patient is differently depending his/ her issues. But one of the people i know personally who doesn't like to take meds , has started getting acupuncture treatments and she says that has helped her.

Also, be aware that depending on where you live in the country your treatment for a particular illness varies. studies done by a research hospital here in NH have shown this fact. We have excellent hospitals in this area and for your diagnosis you may want to get a consult with a large research hospital like the Mayo Clinic or one in Boston,MA.

hopes this helps and best of luck to you.

Gale.

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By BAE— Last Modified: 03/08/11, First Published: 12/01/10