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Hi, Well we went to Tucson, Catalina Pointe Rheumatology, What can I say, The dr said he is 1000% sure my son does not have Osteomalacia because when he had his bone biopsy he was not given Tetracycline for 3 days then stopped for 2 weeks then take it again, so mainly for this reason the test is inacurate, also becaue his bone density was essentially normal (just alitlle below average) there is no possible way its Osteomalacia. So I am confused.  He said that it may be Shuremenns disease, which we were told that 2 yrs ago by one of his orthapedic doctors, due to the fact that Jacob has a compressed vertabre with wedging on a few other vertabres. He states that Shuremanns disease is congenital and painful and plus his first rheumatologist has also diagnosed him with Fibromyalgia.  Since Jacobs pain started he has gained 45lbs since he can not exercise, if he did he hurts more.   Well, his advise to Jacob was, loose weight, exercise, eat better, see a rheumatologist in Phoenix and continue pain management. I do not know what to think any more. Every dr says a different thing.  But I must say Dr Maricic was very nice and took his time with us.  Jacob has not had many fractures. He had fracture of his T12 and an avulsion fracture of his left hip. The back was from jumping in a trampoline when he did a flip and the hip was from twisting when throwing a basketball. My son actually wants to get of his meds and stop going to doctors, he is tired of it.  But I am afraid of getting him off the meds because I dont want to see him in pain. I don't think he has facebook, he does have myspace, but I will ask him.  My email is tepamari@yahoo.com. And yes I would like to talk,  I will be out of town this weekend as I am taking my son to see his father but I will be home next week.  602-233-2376. talk to you later.
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