I am 44 and had the surgery 4 months ago. Have had constant problems and been catheterised on several occasions. I also experience low nagging pain in my groin constantly on the left and also across my lower back and left leg. I am on strong painkillers and are due for another round of surgery on Nov 19th with another surgeon who took my concerns seriously. One time before being referred to her I ended up in an emergency dept as I was unable to void my bladder. The doc who examined me told me I wasn't very full. 4 attempts later at getting a catheter in there was over 1300mls drained from my bladder. His response to that was "Oh you were quite full weren't you". Hopefully this round of surgery can remedy the problems associated with the tape and I can go shopping again without fear of wetting myself as I have done. The intense pain would hit right before my body would tell me I needed to pee and by then it was too late to get to a loo. Humiliating and embarrassing. I have learned to manage things a little better with time but it has had an enormous impact on my self confidence and love life. Not good considering I have only been married 6 months.
Me too! Had my op approx 8 yrs ago and it has been very successful but in the last year have had groin pain on both sides but worse on the left. After unsuccessful physiotherapy and with the pain increasing in intensity particularly with prolonged sitting and in bed at night .. I have begun to wonder if it could be the tape attachment site and possible adhesions.
Have you had any joy diagnosing your groin pain and / or any cure? I would be most interested to hear.
My gynaecologist thinks I'm barking up the wrong tree!!
Long story short, I was ignored by doctor that there was a problem. The mesh became unattached, then attached itself to tissue causing a major infection that spread to the deep tissue of the upper thigh. Hospitalized for 9 days, 2 surgeries, major antibiotics that wouldn't touch this infection because it originally manifested itself like necrotizing fascitis and ended up with MRSA. I now have bladder and kidney complications. I have nerve damage due to the antibiotics. DO NOT IGNORE PAIN OR BLEEDING! In my case, there was a recall on the mesh, but because I had moved and the doctor that had done the original surgery didn't have my address, I had no recourse. Good Luck.
I had my surgery June 1st, 2011. Im 40 years old and mom of 4. I had sever leg pain after the procedure. Felt like I had injured or stressed both groin/leg muscles while I was under. The nurses did tell me I got combative when I was going under so I attributed the pain from that. Although all they said was I pulled out my IV. Anyways, I was doing good for a few days but today I have found that my lower back is feeling a lot of pain. May call the DR tomorrow and see if this normal. I am thinking it is not normal to go from feeling good to feeling bad so quickly. Infection scares me. Hope you are all having better days now. :)
i had tvt operation done on jan28 2011 i have had pain all the time just went back to work after 7 months .i feel worse have to keep going back to the doctors now i am having trouble going to the toilet and in pain .i am sorry i ever got it done i am waiting to get more tests done been waiting ages i feel it has ruined my life .
I am 35 yrs old and I had a tvt mesh urethra sling put in, in February of this year. I have had no more problems with urinary incontinence and leaking. I have been so happy to have had this surgery and I had read about possible issues people had with mesh erosion, etc. but my Uro Gynecologist assured me that was a small percentage of people who get that. I work in an office and sit at my desk througout most of the day. The other day I noticed that butt cheeks were hurting like I was sitting for too long. So I would get up and walk around thinking it was sitting for too long. Well when I left work today it is primarily only the left butt cheek and is hurting down my left leg. I have done nothing out of the ordinary that would cause this. The ONLY thing is I had a sinus infection and took the antibiotic Augmentin for 14 days. I am VERY prone to getting yeast infections from anitibiotics, although I have NO symptoms of a yeast infection. Now I'm so afraid this pain has something to do with the mesh sling. Could the antibiotic I took caused some sort of infection, like a yeast infection? If anybody has any advice please let me know. I'm not sure whether to wait this out or call my surgeon.. :(
I had TVT-O surgery 3 months ago and it was completely successful as far as stress incontinence was concerned. Unfortunately I too have had pain every day that is only relieved by prescribed pain medicine. I try to put off taking a pill as long as possible but when I start getting pain I know it won't be long until it's up to an 8 or 9. Fortunately I find that one pill a day holds the line and I'm able to function and feel more like myself the rest of the day. I get pain in my groin on both insides of my legs. My thigh muscles are often sensitive to touch (think pain!) and my pelvic area gets very painful.
The surgeon is very experienced in this surgery and chose this procedure because I had had abdominal surgery in the past and it's recommended for this type of patient. However, had I known the limitations I'm experiencing to my life, activities and happiness I would have asked for the more tried and true procedure, even though there's a slightly higher risk of bladder injury. My MRI was negative and now I'm off to physical therapy for possible pelvic floor muscle spasms as the culprit. I'm also getting another expert surgeon't opinion. I honestly think the incisions in the groin on the TVT-O are more destructive than reported in the research and by the doctors- I'm also not ruling out having the tape removed if there's a problem with it being accepted by my body too. Such a frustrating and disappointing outcome to a surgery that I thought about for several years before going through with it.
I'd recommend to anyone thinking about having this surgery- ask, ask and ask again about outcome symptoms and how they might be corrected because we're the ones who have to cope with discomfort. Best wishes to everyone trying to cope with a similar situation as mine.
I had a TVT done in January of 2007. The incisions were in the bend of my legs just below where your ovaries are. The only problem after surgery was pulled muscles and I figured it was just because the way I was positioned for the surgery. This pain went away completely within a coupld of weeks. I didn't leak for almost a year. Unfortunately, my stress incontinence returned with a vengence.
Fast forward, had to have a hysterectomy in August and told my GYN I was leaking now in addition to my stress incontinence. She said the right side felt as if had loosened up and that she would do another TVT at the same time as my hysterectomy. I said great. However, the morning of the surgery, I had this gut feeling tell me not to have the TVT done. I pushed the feeling aside thinking it was just because you see so many commericials about lawsuits agains the TVT mesh company and went ahead with the surgery.
Well, since the surgery in August 2011, I have had severe pain (pulling pain and nerve pain) at the incision sight on my left side. This time she went much lower and my incisions were in the perinium area. I have had to take pain meds daily I tried neurotin and 800mg ibuprofen and tylenol nothing works but the pain meds unfortunately. I try not to take over 2 a day and push my first dose off until 5 pm at least, but by that time I am really hurting. Then I usually take another around 10pm before bed.
My doctor went back in and removed some of the tape in the left side 3 weeks ago and cut loose an area that hurt during intercourse to relieve that pain. My husband and I have had sex 2 times since August. I am 44. My doctor now has me going to Physical Therapy for pelvic floor therapy. My first appt was last Monday. She was very good and thorough. However, I am very sore from the experience and have to go 2 times a week. In the meantime, I am still on pain meds WHICH I HATE.
I still have the pulling and nerve pain and it radiates as many have written down the inside back of my leg. Sitting on hard surfaces is the worst. Sometimes just sitting down to pee takes my breath away.
My doctor didn't take all the mesh out and what I thought was strange is that when she didn't the second TVT surgery she left the previous mesh in place and just worked around it. But, I don't think the mesh is the problem, I think it was the location she used the second time.
I hope this physical therapy works. I can't even imagine going in for another round of surgery to remove it especially since, I have had very little improvement since she removed the mesh in the area that hurts me. It is so frustrating. My incontinence is better, but the pain isn't worth it.
Next time I get a GUT FEELING I need to listen to it.
OMG. I am so shocked and worried to see all the awful stories on here and other sites. I was told by one friend about the TVT who had it a few years ago and she has had no problems with it. So I enquired about it and had the op last tuesday. I woke up after 50 extra minutes under anaesthetic with a catheter (which had not been mentioned to me at all) only to be told that the surgeon had put the tape in and pierced my bladder, so removed the tape and put a new one in. I have had to wear a catheter for 6 days and been in extreme discomfort and extra sore from the extra tissue trauma. I am due back at the hospital in 2 hours and I just thought I would look up the op before I go.... and I am so scared with what I have found out now. Why are surgeons allowed to do this to women without giving us the facts. I wasnt even given a leaflet about it and I didnt even know I had to have general anaesthetic until the pre-op. My friend had an epidural so I assumed I would have the same. Aparently they dont do the epidural now because you would take up a bed for a few extra hours, so they give you risky general instead. I was the last op of the day and when I woke up the day surgery was ready for shutting, so I was given no time to recover, I was wheelchaired out to my mums car within an hour with my head still spinning. The surgeon didnt even explain to me himself what he had done wrong. He was probably at home having his tea by then. I wasnt even told I had stitches until I found them when I got home. I hope to god I get this catheter removed later today. I am going to have a few words to say to the surgeon, thats if I get to see him. I wasnt aware that it meant 6 weeks with no exercise or no sex so thats bad enough, but now to hear that there could possibly be all these complications and problems with the tape itself.... it's shocking, it's less than a week and I am already wishing I had never had it done.
I had the procedure done 11/2011 and it was obvious early on that things were worse- intense pain urinating and no indicators I had to urinate before it was too late. I was severely humiliated in many stores before I stopped drinking water and would quickly do one errand before racing home again. Before surgery I only had incontinence starting a mower, exercising or other strenuous activities. Now my standard of life was drastically worse. At my three-week checkup my doctor told me it appeared he got the tape too tight which was causing the issues. He was very kind and assured me he would make it right. Week four of recovery from the first surgery I had surgery again and he loosened the tape. It appears all is well now. Apparently when the tape it too tight it prevents the bladder from emptying fully and so he stated he cut a portion of the tape out to lower the sling. I have not had any consistent groin pain and am concentrating on a positive recovery and quality of life.
I had TVT-O surgery on March 30/12. I have had severe pain in my right thigh since; worse than having natural childbirth for my third child. I went back to my surgeon but he CLAIMS he has never seen anyone with pain like mine and he has done over 5000 of these surgeries. Right now I wish I never had it done.
Hello, I had a TVT fitted almost 2 weeks ago now. I was so dissapopinted when i went for my first outing, it was only a shopping trip, i did not carry anything heavy or walk very far, but when I got home my pants were wet and I had leaked! I am now noticing that when i need to wee it hurts, as if my full bladder is pushing on something causing pain and I am sure my bladder is not emptying properly. I t feels very different than before when I go wee, it is more of a struggle to push it out and tingles. I have been wondering if it has not worked or if it is just symptoms after the surgery. I am at my post-op in a week and due back at work 2 days after that and am so worried! i work in a nursery and constantly lift babies and young children, sit on the floor or stand for long periods and I do not think I will be able to. Is it possible that I have just done too much! I am a single mum and so have done ironing and cleaning etc (as have no choice). Is it my own fault? will it get better? should I contact the surgeon?
Im very nervous now, eeek!!
Hello everyone,im 41goy my tab and a burch procedure i see that most of us are complaining not only about the tape my case is totally the same ,groin pain,leg ,back,caf,etc.
i got every single test mri,ct etc, all came negative nothing shows the surgeons just backed up they sent me topai managent people,which is crazy because before the surgery i was fine my only complaint was abnormal periods .
I amsureand possitive after allthe reasearch pain and discomfort come from sutures all these sutures areattached to ligaments and muscles,so probably pain come from there that is why itdoesnot show in any damn test,sutures disolve in 4 weeks and there is nothing we can do to prove that we are right ,the only way will be going to get cut open again,cant even get this case taken by a lawyer there is not enugh proof,i rfused to get a surgery again and takepainkillers when i was fine 3 months ago,now im afraid to even try sex,i feellike an old woman ,pain every day and no desire to even go food shooping.
stiches and sutures miss placed are the reason and doctors dont care they got the money and damage is done .
just ask to god to helpme and release my pain in time ,i took a wrong move getting this operation .
i feel all your pain and i know exactly how you ladies feel emotionally hope that in time
we find a cure or we can be pain free like before.
god bless us all.
I had this procedure just two weeks ago tomorrow. I was originally sent home with a catheter and it was removed three days later...I've been to the ER twice for Acute Urinary Retention since the surgery. In both instances, I was sent home with a shiny new catheter. My phyiscian scheduled another surgery for me this Thursday and I'm nervous. When they sent me home the last two times the catheters were removed, I could adequately void...so they allowed me leave. In both instances, within 8 to 12 hours, things shut down and I was retaining all fluids. It was very painful, I likened it to childbirth (and I've had some rough deliveries), strangly, the catheters were a God sent.
My GYN stated she's never had a patient with this outcome and she wasn't sure how to proceed...stating she need to do some research. She was the one who scheduled me for surgery and I didn't know about it until her office called me for my pre-op appointment on Saturday. When I met with her, she stated she was going to go in and cut the tape (sling) to relieve som tightness. She also indicated she believed the scaring from the original surgery would help act as a sudo-sling and provide some relief from incontience. I don't know whether I should trust her or get a second opinion. Time is short, does anyone have any feedback?
Had the same TVt op 3 months ago, also getting stabbing pains on left side in groin, i also experience pain slightly higher up on left, and pain on the left hand side at the base of my bottom going into the leg, does anyone else get that latter pain as most people are saying hip pain,
My stomach has felt bloated, went back to the doc and he gave me medication for damage to the nerve and then sent me to a gynaecologist, who said all looked ok.
BUT ALL IS NOT OK, and now am concerned it could be something more serious , when I put into the computer the issues it keeps showing ovarian cancer???
Hello ladies I had my TVT tape surgery back in 2010 and I have had nothing but problems since and it seems to be getting worse. I am suffering painful intercourse and sever dryness. Has anyone else had a problem with sever dryness? I keep calling my OBGYN and they keep telling me it has nothing to do with the TVT but I know that something with that is wrong because I never had this problem until the TVT surgery!!!!! I had a hysterectomy several months before the TVT surgery and everything was great after that surgery but once I hadt the TVT it has been hell. I have started working out and now I am having sever pain when walking and some issues with even going to the bathroom. It has really put a strain on my marriage because sex is so painful!! When I finally call the OBGYN last time they told me if I still had any issues I would have to go and see a Urologist and I now have any appointment on Monday. And I would just like to know if anyone else had the dryness before I go into see the Urologist on Monday!!! Any help would be great!!!!
Hi my name is loz, I had a tvt op in 2004 when I came round I was in awful pain in my leg. They said they had torn a muscle by not letting my legs out of the sturrups properly. When this settled down about 4 days later I went home, I didnt feel right, when I sat down I could feel something sharp and it was painfull. To cut the story sort I eventually got the doctor to have a look and he said the tape was exposed. I had op done again and this time I couldnt wee after op and ended up with a very painfull infection. They then told me the tape was too tight and I would have to self caterize, so after a week in hospil I was sent home to use catherters myself. Eventualy i was able to stop using them. The problem now is that i get tummy ache and have pain down my right leg and into my foot. The worst is that I now leak all the time and have to wear pads. A while ago I had blood from my vergina and in my urine I have had a hysterectomy so my doctor checked and I had a bad water infection. My question is could the tape have stopped doing its job and what can I do about it. thanks.
I had TVT about three years ago now initially it was fantastic and worked 100%. I was never warned about the risks of this op with erotion of the tape and over the past 4 months I have been suffering with leg pains, left hand groin pain that feels as though its burning bloated stomach left hand lower back pain, pain in my kidney area and urgency to wee again. I contacted my sugeon's secretary who told me that the TVT tape that was used on me was nothing to worry about and totally safe to use. I went away and did some further research only to discover that there are several law suits happening in Kentucky on the company that made the tape that I have inside me. Armed with this information I called my sugeon's secretary back and I also emailed her the information that I had located and her reaction was, oh that's unusual!
I also sent the article to my local doctors surgery and the very helpful secretary there sent it to all of the doctors there. I am not going to lie down and be quiet about this as I am digusted to discover that there isnt any research done on these materials that are used in operations. Yet we trial drugs before use it seems crazy. I am awaiting an appointment with my sugeon and will be insisting that they take the mesh out and give me something else that is safer. It is my body that they have messed with and I am not happy. Col
My name is Lesley and I'm from Australia. I had the tvt prolapse op around 4 years ago. At first it was like a miracle! I had a bad prolapse after 3 difficult births.
Well 4 years later and I can say its no longer a miracle but a nightmare! Sex is no longer part of my life. My husband has had to accept that. We have tried less than 1/2 doz times in 4 years but the pain is agonizing.
Urinary Tract infections are also something I am having to learn to live with but its difficult. Urge incontinence is now almost as bad as the stress incontinence was before the op.
I'm starting to get a pulling sensation when I sit. It can also feel a bit like a 'chinese burn'. I am also starting to get intermittent sharp pain in my lower abdomen and I am sick with worry that the tape is eroding.
I wish I had researched more before I chose this procedure. I have now read that the tape is made from a filthy petroleum waste by product??? WTH??? Surely that cant be good? I have read that the tape can 'mutilate women internally with a foreign body polymer that shrinks, hardens and moves at will within their pelvis mercilessly destroying their lives.
All I can say to all those contemplating this procedure is DONT DO IT! :(
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