Wednesday, February 15, 2012

Sunday, September 28, 2008 deborama2 asks

Q: Has anyone had complications from tvt bladder surgery ie. persistant groin pain??

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Answers (12)
11/ 8/09 4:31am

I am 44 and had the surgery 4 months ago. Have had constant problems and been catheterised on several occasions.  I also experience low nagging pain in my groin constantly on the left and also across my lower back and left leg. I am on strong painkillers and are due for another round of surgery on Nov 19th with another surgeon who took my concerns seriously. One time before being referred to her I ended up in an emergency dept as I was unable to void my bladder. The doc who examined me told me I wasn't very full. 4 attempts later at getting a catheter in there was over 1300mls drained from my bladder. His response to that was "Oh you were quite full weren't you". Hopefully this round of surgery can remedy the problems associated with the tape and I can go shopping again without fear of wetting myself as I have done. The intense pain would hit right before my body would tell me I needed to pee and by then it was too late to get to a loo. Humiliating and embarrassing. I have learned to manage things a little better with time but it has had an enormous impact on my self confidence and love life. Not good considering I have only been married 6 months.

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11/ 9/09 2:05am

I am so sorry that you are having problems with your TVT.  I too had nagging groin pain but could explain it away with allot of things.  To make a long story short I ended up getting the tape removed.  I had it out March of this year.  I also developed another condition called avascular necrosis  of my left hip which contributed to the pain greatly.  My advice to you is to get the tape out as soon as possible before you get any other problems like erosion and a host of others that women who have had this horrible thing put in.  There are other bladder repair procedures like a burch repair that are tried and true and work allot better than the TVT.  Now I have some stress incontinence but not anything like it was before.  I must have developed some scar tissue that is holding everything in place.  Another place you should check out is TOPIX  the subject is lawsuit filed by gynecare TVT bladder suspension tape.  There is so many women out there that have had severe problems with the tape.  I am so glad that you found someone to listen and help you with your problems (that is half the battle).  Please let me know what happens and if I can help you any further. 

Deb.Smile

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11/23/09 3:20pm

I do not know what tvt is but I myself have had surgery involving Interstim Therepy and let me tell you that my muscles on my left lower extremities as well as my lower back has been so excrutiating at tims that I just want to jump out of my own skin! The pain mngmt. Dr. that I see has had me on tramadol and flexoral for over a year now and he continues to tell me that they are OK to take for long periods of time and I constantly question his theories. He now also administers trigger point injections in 5 areas of my buttocks, one being my tailbone. I have been diagnosed with coccydynimia along with other problems. I do not recommened this Interstim Therepy to anyone knowing what has happened to me. the Dr.'s have lied to me and I cannot seem to find representation from the att. that i have contacted, now I'm stuck taking meds for the last year and 8 months, to control the pain from my muscles that were damaged from this op.

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1/ 4/12 11:44am

yes. i too have had this tvt bladder op a few yeras aqo now about 3-4 years ago, and i'm in complete agony all the time in my lower groin, pelvic area too, terrible lower back pain too, i cannot lay on my right or left side either in bed or on a soft chair/sofa, without having to keep switching the sides i'm sat/or laid on, it's been hell! and still is, yes i get all the dragging/nagging pains constantly, i've been to and fro from my doctors on several occassions about the persistant pain/discomfort i'm in, but feel that the doctors are not taking my problems seriously! they know all my medical problems and all the ops i've been through so why are they not listening to my ongoing problems to which i and a lot of other woman out there to which like me, have experienced the 'aftermath' of post complications of this tvt surgery, well i'm not putting up with it anymore! suffering in constant pain/discomfort to which has resulted through their negligence1 so i'm going to go back and see another doctor at gp practice(a woman this time!) as i feel that being a woman. she will understand better than a male doctor!, i am going to explain everything to what i'm experiencing, and go from there, to see if the doctor refers me for further advice/treatment to get rid of this terrible pain/discomfort that i'm in, and have suffered for several years because of this tvt sling procedure!, i do believe, that the tvt sling tape, has eroded into my body tissues, i have looked up tvt post op complications, and have found out what this sling tape can do to a woman's body after this procedure, and that many woman out there, like myself, have found this out after they have been advised by the medical profession that this procedure is the only option for them, to correct their bladder leakage/problems, we put our trust in the medical team, thinking that they are making the right choices on our behalf, but we now know that they do not tell us the truth of what they are really doing to us woman, and we only find out the problems after we've all gone through it!.also i would like to mention that i have also noticed a terrible smell of what i can only discribe as rotting eggs! and stale blood! this being in the vagina area!, and i do believe that this is the sling tape that has eroded into my body tissue! i also have bowel pain, i believe this has all come from this procedure! so  i must go back to the doctors in order to get this tape out of my body! i also have pain down my legs, again this has never happened before my tvt operation, so all these problems ARE the problems associated with this dreadful operation, to all the woman out there to whom have been advised to have this tvt tape sling procedure, my advice is please do not go ahead with it! get a second opinion! by another doctor! if i had known what i know now, i would had REFUSED the tvt sling op completely, so ladies, please take our advice so you too don't become another medical victim like myself, and so many other woman out there, i hope to report back to you with an update of my medical situation on the tvt saga, as soon as i have been back to my doctor, and spoke to her in detail, my only hope is that she will be the doctor that listens to me! and that actually does something about it!, we all need to stand together on this one, and their should be an online petition to which we can all sign, and send to government, and also to the makers of the tvt sling tape used!, to which i believe is called gynaecare, made by johnson and johnson, please correct me on this if i have the name wrong, but i've read up on it, and this is what i remember seeing, there may be a few types of tapes used, but i'm in no doubt that the tvt sling tape used on me IS the tvt sling tape that is causing all these problems! to our bodys, and they expect us to live with the complications to which it has caused our body's, and to our lives, regards margaret, (uk)

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12/17/08 1:00pm

Yes, I have. About 15 months after the TVT procedure I have a sharp low abdominal, groin pain that has not been successfully diagnosed. CT scan showed nothing. I suspected a hernia, but nothing has been found. Recently I'm wondering if it could be associated with the tape?

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9/20/09 4:59am

Me too! Had my op approx 8 yrs ago and it has been very successful but in the last year have had groin pain on both sides but worse on the left. After unsuccessful physiotherapy and with the pain increasing in intensity particularly with prolonged sitting and in bed at night .. I have begun to wonder if it could be the tape attachment site and possible adhesions. 

Have you had any joy diagnosing your groin pain and / or any cure? I would be most interested to hear.

My gynaecologist thinks I'm barking up the wrong tree!!

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3/23/10 10:15am

Long story short, I was ignored by doctor that there was a problem. The mesh became unattached, then attached itself to tissue causing a major infection that spread to the deep tissue of the upper thigh. Hospitalized for 9 days, 2 surgeries, major antibiotics that wouldn't touch this infection because it originally manifested itself like necrotizing fascitis and ended up with MRSA. I now have bladder and kidney complications. I have nerve damage due to the antibiotics. DO NOT IGNORE PAIN OR BLEEDING!  In my case, there was a recall on the mesh, but because I had moved and the doctor that had done the original surgery didn't have my address, I had no recourse. Good Luck.

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4/21/10 3:08pm

I HAD THE TVT PROCEDURE DONE IN SEPT.2009 AND HAVE AD NOTHING BUT TROUBLE FROM IT.I LOST MY JOB NAD INSURANCE BENEFITS BECAUSE I HAVE NOT BEEN ABLE TO WORK. I TOLD THE DR EVERY TIME I SAW HIM FOR MY CHECK-UPS THAT MY RIGHT GROIN AREA AND LEG HURT.HE TOLD ME IT WAS NORMAL AND WOULD GO AWAY.IN NOV 2009 I WAS HOSPITOLIZED WITH CHRONIC LOWER BACK AND LEG PAIN.I COULD NOT WALK.CTS WERE DONE AND PAIN MANAGMENT HAD ME ON A PAIN DRIP. THEY SAID IT HAD TO BE SOMETHING GOING ON WITH MY BACK. I DID NOT HAVE THIS PROBLEM UNTIL THE TVT SURGERY.I CAN FEEL IT PULLING WHEN I SIT AND STRETCH MY LEG OUT.MY INCISION WERE ON EACH SIDE OF MY GROIN AREA (INNER THIGHS)i NEED SOME ADVISE IF I SHOULD HAVE THIS TAPE REMOVED.

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4/23/10 12:01am

I HAD TVT PROCEDURE IN 2004, ALL WENT WELL UNTIL SEVERAL MONTHS AGO I STARTED WITH VAGINAL DISCHARGE,HAD VAG HYST WHEN I HAD TVT. SEVERE PAIN IN BLADDER AREA,PAINFUL INTERCOURSE,TEMPERATURE SPIKES.iN MARCH 2010 HAD A MASS PALPAPLE IN LOWER LEFT ABDOMEN.BY THIS TIME I WAS SEPTIC.THE TAPE HAD ERRODED MY BLADDER AND CAUSED A HUGE ABSCESS.I WAS HOSPITALIZED FOR 8 DAYS ON 3 DIFFERENT ANTIBIOTCS AND PAIN MANAGEMENT.I AM NOW DOING WOUND CARE TWICW A DAY.I AM STILL RUNNING FEVER AND AM NOW ON MY 3RD ROUND OF ANTIBIOTICS. SURGEON IS NOW TRYING TO FIND A DOCTOR THAT HAS EXPERIENCE IN REMOVING THE TAPE. THIS WILL BE A MAJOR UNDERTAKING SINCE THE TAPE HAS BEEN IN FOR ALMOST 6 YEARS. I FEEL YOUR PAIN........ALICIA

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4/ 5/11 9:13pm

Have same issues if anyone finds a good Dr. that can remove the tape please post the name or hospital.  I have been looking for months to have mine removed.

Left leg pain, damage to nerve using cane and constant pain.

cmp482@msn.com

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4/24/10 5:42pm

I had bladder surgery in 1997...and something went wrong...I lost my husband, my busineses, my friends and family when I had to move away to get another opinion...My ex canceled my insurance...I had to marry my good male friend so I could get insurance....I gained about 50 pounds and I tried to sue the doctor but they just kept saying that I would be ok and it would take a long time for my surgery to heal....etc....Nobody wantedf to help me...I almost got a blockage from constapation and all the pain meds...Nobody told me to make sure I drank a lot of water and walked and took fiber and soft laxatives....I tool some ex-lax and had to call 911...I almost died...I still can't go to thge bathroom without using supoisitiories and enamas and I also eat a lot of fiber and drink lots of water and I drink the laxative you drink before preparing for surgery sometimes...My aunt did die after back surgery bedause she got constipated after surgery and she had a blockage....I didn't know how many people did die from not knowing what to do....

 

Fast forward....a lawyer finally told me after the statue of limitations ran out to file for disability....Thank God I got that! It helped me emotinally more than anything....I don't have to live with a man I didn't love....I mean I loved him but not like he loved me...And I can't have sex anyway so why be married?

 

You know, life is not fair....but we should at least be able to sue the doctors that hurt us...Now, I do know that there is a difference between them accidentally hurting us and ding it on purpose. To sue a doctor, you have to show outward signs...like if I were a man, I would not have a penis...then every lawyer in the country would come to my rescue. But I am a woman and nobody cares!!!!!!!!!!!!!I wish woman would stop letting doctors talk them into surgeries that they realiy do not need. I went for a pap smear and got a postera repair and a bladder tuck...I did like the idea of having a tight vagina but why if I can't have sex from all the pain....I do not want to be the guina pig for any doctor practicing...I want to be 10,000th patient. I guess somebody has to go first. I will never  go first again unless I am unconcious.

 

I hear that they had lawsuits against the tape company used in a lot of the bladder surgeries. I also had mesh and staples all over my bladder. They kept stretching my bladder and finally it just got distroyed....I will never be the same EVER!!!! I deal with depression everyday of my life. I live alone and I go for weeks without seeing anyone. My life is over. It is................I don't have any moeny   so I can't go anywhere. Remember, I lost everything when I couldn't work anymore and keep my businesses going....And my ex pulled a slick one and dropped me from his insurance the month after I got the surgery....I didn't even know it until the bills started cominbg in and now I have a prexisting condition.....Oh my!!!!

 

One day, I hope the government takes over the health care profesion....I really do....when it comes to elective surgery that is a different thing.........I also wish we had more dentist. We need a lot more dentist in this country....I men a lot more. I have spent every dime I could get my hands on to try to keep my teeth. I have to tell you, if I lost my terth, I think I would kill myself....They have clinics, but now where I live....and by the time I traveled for a $20 filling, I would spend more than it would cost to get one from a regualr dentist. maybe I should just go ahead and  go to dental school..........

 

I know I got sidetracked, but sometimes I just do that....Now back to the bladder surgery problems....I have nerve damage that makes my bladder area hurt all the way to my feet.....I was just looking to see if there was something maybe I could do to relieve the burning achy feeling in my feet....I can't take anything to surpress my bladder---OMG---that hurts so bad...I can't take Lyrica either...and a host of other meds I have tried...I do take three Lortabs a day two when I sleep and one during the day and I also take bone meds oce a month, and I take clonzapan 10mg to help me sleep and I also take Seroquil...I think that has caused me to gain weight...I have to make myself be good when it comes to eating....I just want to eat for comfort because I dont have the love of a man anymore....I really miss that...I used to be a beauty queen, and I modled bathingsuits, and I just lost it all..........I have to stop now...I have made myself feel worse instead of better...........I wish more women would write about their medical problems...it sure helps when I do see that I am not alone. If any one wants to chat,  my email is thDothn@yahoo.com   in the subject line just type "bladder surgeries" so I will not think it is spamSmile...Have a great day!!!!

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4/28/10 5:46pm

What diagnosis did you use to get disability? I think Im gonna have to do that also.

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9/10/10 8:02am

Hi I have just had TVT surgery this year, June 2010 and I too have groin pains and persistant infections plus I have gained over a stone in weight. I am tired all the time and get awful sweats and temperature which gets put down to maybe the Menopause. Yes could be the Menopause but still have regular periods. I am absolutely fed up. Does anyone else suffer from these sweats that come on if doing nothing and pour off your face? Has anyone suffered all these sypmptoms together.

 Emma 

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11/30/10 6:49pm

I had the procedure over 6 years ago while I was in the hospital having a hysterectomy.  About a year ago I was having groin pain and went to the doctor.  I had a vaginal ultrasound and they said they couldn't see anything.  The pain is a pulling pain low in the pelvic area.  I felt it occasionally and a couple of weeks ago I really started feeling it primarily when I got up to walk.  Over the weekend I was really busy and on my feet alot.  Both evenings the pain was so bad I almost went to the ER.  It feels like an enormous weight is sitting on my vagina and there's pain all around.  I just know it's from the TVT procedure and just started researching it.  This makes me ill to see how many women are suffering.  Doesn't sound like its an easy thing to have it removed.

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1/10/12 1:33pm

hi i had this tape fitted in october last uear,i too have severe pain in my groin,and hot sweats mainly at night,and if i stand to long the pain in my groin is worse and the bottom of my back aches. went to drs today he examined me and said healing inside the vagina was good as for the groin pain to take strong painkillers. night time in bed i cant just sit up without my groin giving me pain.

also i kept in touch with a woman,who had the same procedure and shes having the same problem.

 

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12/12/10 4:09pm

I am a 39year  old who had the tvt o sling put in on Nov 16, 2010.

After the surgery I thought I felt great so happy I didn't need a foily bag to go home with. All that great feeling was short lived on my way home I began to feel the hip,leg and back pain .It was worst than labor pain to me.  all 3 of my births were natural.After my husband parked the car I was trying to position my legs to exit the car. I couldn't lift my own legs and getting up the steps was a real joke! I felt hopeless  at this point my hips felt like someone had broken  both of them the pain was unreal. I began to take 600 mg of Ibuprofen it only gave me enough relife  to lay still in bed not to walk .Each day I would feel a little better although though once the hip pain got better the groin and back began to hurt more .I went for my 2 week follow up and told the Doctor about the pain I was still having in my lower back and groin  she said it would go away.I hope I will continue to heal in a positive way  because I have yet to resume sexual activities with my husband .My heart goes out to all the ladies who had such bad results after their surgery but I pray things don't go bad for me because I will get this mesh sling out of me  and be one leaking when I cough and sneeze  person.     

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1/ 7/11 4:03pm

OMG!!! I wish I had seen these responses before I went in for the TVT op this morning.  I am now at home because I felt fine as regards the emptying the bladder and having the one scan to check it was empty.  Well I too started with the left leg pain .... terrible. I got this while in the hospital waiting for my hubby to pick me up.I asked several nurses if this was normal and got told that it was sometimes.  Since then as the consultant never actually saw me when I left (I did think this strange and asked the nurses again ... should the consultant not see me to which they replied "Not neccesarally")  The hospital has rang me to go in and see him in the morning!!!  Not sure what is going on, unless they have got into trouble for letting me come home!!  I am going to mention this site and why I was not told about these side affects. ;o)

I shall keep you all updated.

W M (Scarborough) 

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4/ 1/11 4:12pm

HOW THEY GONA REMOVE THE TAPE ?

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6/ 2/11 9:51pm
I just had surgery May 20/2011 and did experience groin pain on the left side. I went for my check up and asked the nurse about it. She said not to worry about it. It's just your body telling you that you've done too much. If you think about it years ago you would have been in the hospital for 2 weeks. So I have been taking it easy no laundry, no vacuuming and no heavy lifting. It will take up to a month before I will start to feel normal. I'm so glad I had the surgery, its nice to sneeze and not pee my pants!!!! Reply
12/ 2/11 1:42pm
It is so nice to find a comment on here that's positive. I have come home from the hospital today having had a tvt procedure & am feeling fine :-) Know its early days but will also be happy to cough or sneeze without peeing my pants!!!! Reply
1/18/12 11:20am

It is nice to see a comment that is positive.  I just had my TVT 3 weeks ago today.  Right now I feel fine.  My doctor told me that it has a 80% fix rate and a lot depends on the patient.  He told me not to bend, stoop or squat for 6 weeks and to stay away from anyone that is coughing or throwing up.  I had my Ovaries took out along with having the TVT sling put in on Wednesday and came home Thursday night.  I got a virus Monday and was nauseated all day.  When I thru up I made sure that I sat on the bed and didn't squat at the commode.  I hope everything is going to work well.  Thanks for the positive.  Praying God will keep it where it needs to be.  Have a great day!!!!!!!!!!

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1/18/12 11:22am

It is nice to see a comment that is positive.  I just had my TVT 3 weeks ago today.  Right now I feel fine.  My doctor told me that it has a 80% fix rate and a lot depends on the patient.  He told me not to bend, stoop or squat for 6 weeks and to stay away from anyone that is coughing or throwing up.  I had my Ovaries took out along with having the TVT sling put in on Wednesday and came home Thursday night.  I got a virus Monday and was nauseated all day.  When I thru up I made sure that I sat on the bed and didn't squat at the commode.  I hope everything is going to work well.  Thanks for the positive.  Praying God will keep it where it needs to be.  Have a great day!!!!!!!!!!

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6/ 9/11 11:18pm

I had my surgery June 1st, 2011. Im 40 years old and mom of 4. I had sever leg pain after the procedure. Felt like I had injured or stressed both groin/leg muscles while I was under. The nurses did tell me I got combative when I was going under so I attributed the pain from that. Although all they said was I pulled out my IV. Anyways, I was doing good for a few days but today I have found that my lower back is feeling a lot of pain. May call the DR tomorrow and see if this normal. I am thinking it is not normal to go from feeling good to feeling bad so quickly. Infection scares me. Hope you are all having better days now. :)

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8/12/11 7:38pm
I had the TVT proceedure done in 2001. For the past 2+ years I have had right pain at the groin where the leg meets. Also pain down the inside of my leg. One time it was so bad I could not walk. I have had ultrasounds for hernias, MRI's for hip problems, my right ovary out. Still my doc looks at me like I am crazy. I recently started having pain on the left pubis border. I am now thinking it is coming from the tape. Reply
8/14/11 11:52am

I had mine done Jan 2008.  Right after surgery I had left groin pain and pain to my perineal area radiating into the backside.  I also had a hysterectomy at the same time.  The groin pain improved for a little while but then it got really bad!!  I ended up having the tape removed Mar 2009.  After the pain improved for a little bit, I tried to go back to work (I am an ER RN)  but that was short lived.  All kinds of thoughts were presented.  A physio was convinced I had a herniated disc in my back so I was treated for that.  I had a MRI of my back that showed nothing wrong.  So now everyone was starting to think it was all in my head.  I had lidocaine infusions in the pain clinic which were unsuccessful.  I was on gabapentin and other pain meds.  I ended up finding out that I had a vascular necrosis in my left hip and had a left hip replacement Apr 2010.  I went back to work in the fall and had to quit work again spring 2011 due to persistant groin pain that is also in the left lower quadrant of my abdomen.  The pain goes into my butt and down my inner left thigh and into my big toe.  I am fighting with disability for payment.  I have uregency and urinary frequency all of the time.  I have to take large amounts of pain meds to make it through the day.  I have had it.  It is so hard to continue to get thorugh everyday.  \i have one large bout of pain everyday that lasts for 2 to 4 hours. \my life has been ruined.  I am a shell of my former self.  I watch people enjoying life and am so sad that I can't go to BBQ's, shopping movies etc.  I can't sit for more than 15 minutes as it exacerbates the pain.  I beg anyone thinking of having this procedure to explore other options!!!!!!! 

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8/16/11 1:29pm

i had tvt operation done on jan28 2011 i have had pain all the time just went back to work after 7 months  .i feel worse have to keep going back to the doctors  now i am having trouble going to the toilet and in pain .i am sorry i ever got it  done i am waiting to get more tests done been waiting ages  i feel it has ruined my life .

 

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8/16/11 5:07pm

I am so sorry that you are amoung the people who have had their lives ruined by just not wanting to pee when you cough.  Persist with the Dr appts and tests.  Remeber you are the only advocate for yourself!!!  Take care!!

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8/16/11 7:59pm

I am 35 yrs old and I had a tvt mesh urethra sling put in, in February of this year.  I have had no more problems with urinary incontinence and leaking.  I have been so happy to have had this surgery and I had read about possible issues people had with mesh erosion, etc. but my Uro Gynecologist assured me that was a small percentage of people who get that.  I work in an office and sit at my desk througout most of the day.  The other day I noticed that butt cheeks were hurting like I was sitting for too long. So I would get up and walk around thinking it was sitting for too long.  Well when I left work today it is primarily only the left butt cheek and is hurting down my left leg.  I have done nothing out of the ordinary that would cause this.  The ONLY thing is I had a sinus infection and took the antibiotic Augmentin for 14 days.  I am VERY prone to getting yeast infections from anitibiotics, although I have NO symptoms of a yeast infection.  Now I'm so afraid this pain has something to do with the mesh sling.  Could the antibiotic I took caused some sort of infection, like a yeast infection?  If anybody has any advice please let me know.  I'm not sure whether to wait this out or call my surgeon.. :(

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8/27/11 6:42pm

I had TVT-O surgery 3 months ago and it was completely successful as far as stress incontinence was concerned. Unfortunately I too have had pain every day that is only relieved by prescribed pain medicine. I try to put off taking a pill as long as possible but when I start getting pain I know it won't be long until it's up to an 8 or 9. Fortunately I find that one pill a day holds the line and I'm able to function and feel more like myself the rest of the day. I get pain in my groin on both insides of my legs. My thigh muscles are often sensitive to touch (think pain!) and my pelvic area gets very painful.

The surgeon is very experienced in this surgery and chose this procedure because I had had abdominal surgery in the past and it's recommended for this type of patient. However, had I known the limitations I'm experiencing to my life, activities and happiness I would have asked for the more tried and true procedure, even though there's a slightly higher risk of bladder injury. My MRI was negative and now I'm off to physical therapy for possible pelvic floor muscle spasms as the culprit. I'm also getting another expert surgeon't opinion. I honestly think the incisions in the groin on the TVT-O are more destructive than reported in the research and by the doctors- I'm also not ruling out having the tape removed if there's a problem with it being accepted by my body too. Such a frustrating and disappointing outcome to a surgery that I thought about for several years before going through with it.

I'd recommend to anyone thinking about having this surgery- ask, ask and ask again about outcome symptoms and how they might be corrected because we're the ones who have to cope with discomfort. Best wishes to everyone trying to cope with a similar situation as mine.

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11/ 3/11 2:31pm

I had a TVT done in January of 2007.  The incisions were in the bend of my legs just below where your ovaries are.  The only problem after surgery was pulled muscles and I figured it was just because the way I was positioned for the surgery.  This pain went away completely within a coupld of weeks.  I didn't leak for almost a year.  Unfortunately, my stress incontinence returned with a vengence. 

 

Fast forward, had to have a hysterectomy in August and told my GYN I was leaking now in addition to my stress incontinence.  She said the right side felt as if had loosened up and that she would do another TVT at the same time as my hysterectomy.  I said great.  However, the morning of the surgery, I had this gut feeling tell me not to have the TVT done.  I pushed the feeling aside thinking it was just because you see so many commericials about lawsuits agains the TVT mesh company and went ahead with the surgery.

 

Well, since the surgery in August 2011, I have had severe pain (pulling pain and nerve pain) at the incision sight on my left side.  This time she went much lower and my incisions were in the perinium area.  I have had to take pain meds daily I tried neurotin and 800mg ibuprofen and tylenol nothing works but the pain meds unfortunately.  I try not to take over 2 a day and push my first dose off until 5 pm at least, but by that time I am really hurting.  Then I usually take another around 10pm before bed.

 

My doctor went back in and removed some of the tape in the left side 3 weeks ago and cut loose an area that hurt during intercourse to relieve that pain.  My husband and I have had sex 2 times since August.  I am 44.  My doctor now has me going to Physical Therapy for pelvic floor therapy.  My first appt was last Monday.  She was very good and thorough.  However, I am very sore from the experience and have to go 2 times a week.  In the meantime, I am still on pain meds WHICH I HATE. 

 

I still have the pulling and nerve pain and it radiates as many have written down the inside back of my leg.  Sitting on hard surfaces is the worst.  Sometimes just sitting down to pee takes my breath away.

 

My doctor didn't take all the mesh out and what I thought was strange is that when she didn't the second TVT surgery she left the previous mesh in place and just worked around it.  But, I don't think the mesh is the problem, I think it was the location she used the second time. 

 

I hope this physical therapy works.  I can't even imagine going in for another round of surgery to remove it especially since, I have had very little improvement since she removed the mesh in the area that hurts me.  It is so frustrating.  My incontinence is better, but the pain isn't worth it.

 

Next time I get a GUT FEELING I need to listen to it.

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11/29/11 12:32pm

Mine was done Jan of 2007 as well!!  I have similar problems to yours.  I had mine removed completely and am still having left groin pain.  It is on the left side of my abdomen runs down the inside of my left leg and have pain in my left calf.  I am a RN and am unable to work.  I am waiting to get a spinal cord stimulator to help with the pain.  No sex for me.  I have trouble with my bladdder as well sometimes I can't empty it completely and always have urgency and frequency.  Right now I rely on painkillers to make it through.  I am fighting with disability to  get some money.  I rue the day I had this done.  My Dr at the pain clinic told me that this surgery is no longer done in my town due to so many problems. 

I watched an Oprah life class on trusting your intuition!!  Good luck to you!!

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11/28/11 8:17am

OMG. I am so shocked and worried to see all the awful stories on here and other sites. I was told by one friend about the TVT who had it a few years ago and she has had no problems with it. So I enquired about it and had the op last tuesday. I woke up after 50 extra minutes under anaesthetic with a catheter (which had not been mentioned to me at all) only to be told that the surgeon had put the tape in and pierced my bladder, so removed the tape and put a new one in. I have had to wear a catheter for 6 days and been in extreme discomfort and extra sore from the extra tissue trauma. I am due back at the hospital in 2 hours and I just thought I would look up the op before I go.... and I am so scared with what I have found out now. Why are surgeons allowed to do this to women without giving us the facts. I wasnt even given a leaflet about it and I didnt even know I had to have general anaesthetic until the pre-op. My friend had an epidural so I assumed I would have the same. Aparently they dont do the epidural now because you would take up a bed for a few extra hours, so they give you risky general instead. I was the last op of the day and when I woke up the day surgery was ready for shutting, so I was given no time to recover, I was wheelchaired out to my mums car within an hour with my head still spinning. The surgeon didnt even explain to me himself what he had done wrong. He was probably at home having his tea by then. I wasnt even told I had stitches until I found them when I got home. I hope to god I get this catheter removed later today. I am going to have a few words to say to the surgeon, thats if I get to see him. I wasnt aware that it meant 6 weeks with no exercise or no sex so thats bad enough, but now to hear that there could possibly be all these complications and problems with the tape itself.... it's shocking, it's less than a week and I am already wishing I had never had it done.

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12/12/11 1:59pm

 

I had the procedure done 11/2011 and it was obvious early on that things were worse- intense pain urinating and no indicators I had to urinate before it was too late. I was severely humiliated in many stores before I stopped drinking water and would quickly do one errand before racing home again. Before surgery I only had incontinence starting a mower, exercising or other strenuous activities. Now my standard of life was drastically worse. At my three-week checkup my doctor told me it appeared he got the tape too tight which was causing the issues. He was very kind and assured me he would make it right. Week four of recovery from the first surgery I had surgery again and he loosened the tape. It appears all is well now. Apparently when the tape it too tight it prevents the bladder from emptying fully and so he stated he cut a portion of the tape out to lower the sling.  I have not had any consistent groin pain and am concentrating on a positive recovery and quality of life. 

 

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