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Saturday, November, 14, 2009
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Just wondering if you know anything about the possible connections: Fentanyl, bleeding, seizures.

zoe ashcraft
zoe ashcraft
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zoe ashcraft is living over the rainbow~
I live with a myriad of mostly rare conditions and am isolated...

I've got to be thankful~ for most of my life I was 'as healthy as a...

03/26/09

fentanyl, bleeding and seizures - a connection?

 

I know even before I ask you're going to tell me I need to ask a neurologist- one who specializes in seizures. But it's going to be a long while before I get to one. So, in the meantime, I have to try and learn as much as possible for myself. 

 

I just got over a very, very long seizure- grand mal- only I remain partially conscious- so I'm assuming they are still non- epileptic. I do have periods of unconsciousness- but well- my question is this- I do get an aura usually, there are signs beforehand- this time it was different and it's got me to wondering. 

 

I'm on a Fentanyl patch- that I plan to ask my doctor to decrease in dosage to see if that's what's making my seizures worse or not- right now 75mg. Sometimes, like today- when I take it off I am bleeding some- my connective tissue disorder makes my skin very sensitive. It's not a lot of blood. This was more than usual. (It was below my bra line on the right rib cage)  I was cleaning off all the glue with rubbing alcohol and kept getting this itching on my eyebrow/eye. Next thing I know I'm on the floor having a grand mal. (lasting oh, maybe up to 15 minutes) 

 

Does anything about this scenario stand out to you? Keeping in mind my recent chest pain- (I asked a question yesterday and I'm sorry to inindate you with questions, but I'm thankful that you're here.) 

 

Thanks, 

zoe

 

ps. in case you're wondering I've already been to ER- 3x recently for these seizures. I have an app. with a neurologist but it's not until the end of April. Until then, I just have to wing it, and over-medicate with my Valium and Ativan, Neurontin. 

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Answers (2)
Karen Lee Richards
Karen Lee Richards
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Co-Founder of the National Fibromyalgia Assn.

Karen Lee Richards’ career as a writer and patient advocate grew...

Friday, March 27, 2009

Zoe,  I've forwarded your question to Dr. Krusz, who is one of our medical experts.  I'll let you know as soon as I hear from him. 

Karen Lee Richards
Karen Lee Richards
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Co-Founder of the National Fibromyalgia Assn.

Karen Lee Richards’ career as a writer and patient advocate grew...

Sunday, March 29, 2009

I heard from Dr. Krusz.  He:

 

•  said that your seizures need to be evaluated independently of any pain issues.  

 

•  suggested that you not use the patches that make you bleed, but switch to another non-patch pain medication.

 

•  said you need an epileptologist in your corner ASAP.

 

•  said many of the newer seizure meds are also great for neuropathic pain and better than the opiate class of analgesics.

 

•  doesn’t know how the chest pain fits into this at all.

 

•  can’t think of a direct connection between the 3 parts of your question.

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