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Bless your heart, Zoe!  I think you've done an amazing job of staying positive and hopeful in the midst of all you're going through.  I can understand why you feel so frustrated and fed up with the medical quest.  What I can't understand is why your doctors aren't willing to do the most thorough and complete EEG possible given how long this has been going on.    Have you ever had a 24-hour EEG where they send you home with the wires and equipment attached?  My 4-year-old grandson was recently diagnosed with epilepsy and they did that with him to get a better picture of what was going on over a longer period of time and while he was doing various activities.  My daughter had to push a button on the equipment whenever he had a visible seizure.  I'm not an expert on seizure conditions, but it seems like that would be a better way to track what's happening with you.  Then you could do some of the things that often trigger seizures – like riding in a car – to see what shows up.    Are you able to ask the overseeing neurologist why he doesn't braoden the scope of the test?  Is he aware of the things that trigger your seizures?  I think if it were me, I'd try to insist that he do the most comprehensive testing available.    I'm so sorry that you're having to go through all of this.  When is your EEG scheduled?  You'll be in my prayers.  – Karen
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