Friday, April 18, 2014

Wednesday, April 22, 2009 Hrurts Too Much (Rick), Community Member, asks

Q: What could it be? Severe leg pain in bone

I am a 51 y/o male that was diagnosed with Osgood Schlatters disease in my youth, then in my young adulthood was diagnosed with ostioarthritis in both knees which later progressed to both hips due to my gate, weight and activities. currently I have been experiencing a cramp in my extreme lower leg near my ankle below my shin on the side of each leg in what feels like the bone.  The cramps are so severe that the only releif is to rub each leg bone where the cramp is with my forefinger and thumb as hard as I can almost feeling like I'm going to break the bone.  What could possibly be causing this pain I've never had before.  I might mention that I also have several back problems, multiple spurs throughout my body and heels, bad shoulder and arm pain from ostioarthritis and severe spinal pain from desicating disc. I'm just a basket case of ostioarthritis everywhere in my body.

 

I have had several exams, MRI's, CT's, bone density test, lower extremity blood flow exams and multiple other exams to no avail.  I was diagnosed with type 2 diabeties just on the verg and could be taken off the medication any time if my count stays low enough.  I've been on a diet and trying to lose weight to help manage the pain, but it comes and goes whenever it wants and is uncontrolable without causing a worse pain in my leg bones by rubbing them as hard as possible.  Any kind of help will be beneficial in trying to find an aide in helping reduce the pain.

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Answers (8)
EC, Community Member
1/13/10 7:25pm

i am 51 and not too keen on going back to docs.  i have pain in right leg that either keeps me from sleeping, or makes me cry.  i am not overweight, i do yogo, pilates, weight training, and walking, all at least 6 times a week.  i hurt right now.  have had xrays. shots for bursitus, nothing else.  wondering about pulmonary thrombosis, but i have absolutely no med backround.  if i come up with anything, and likewise, let us each other know.

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msgirl, Community Member
4/23/09 3:17pm

Hi Rick, I too have that terrible bone crushing and exploding pain in my legs. I have MS and assumed that was the cause. But I also have ruptured/torn/crumbling disc in my back. To get to the point, my pain Dr. told me that the leg pain results from nerve damage in my back. It's so bad at times that I wish I could chop my legs off. I've never met anyone who felt that pain in their legs, besides me. I'm sorry that I have. But ask your Dr about nerves in your back. I dont know if anything can be done. I see a pain Dr and still experience it. Good Luck. Jennifer

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Karen, Community Member
5/ 3/09 1:02pm

If you don't already go to a pain clinic, get there as fast as you can.  My adult son has this same pain.  He is always rubbing his thigh where his pain is located.  He had a spinal cord lesion that damaged the nerves to the legs.  He is on methodone, Klonopin, and Lyrica.  He also has oxycodone for break through pain.  He is able to get enough pain relief to sleep.  He cannot work, and is not pain free, but is able to get some good days this way.  He also takes cymbalta for the depression that comes with chronic pain. I pray for a miracle for all those in chronic pain.  It is devastating to them and to the ones who love them. I wish the best for you.  Karen

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a mom, Community Member
5/24/09 8:20pm

Karen, I am sorry to hear about your son, I am sure this is very difficult to cope with, I have a 17 yr old son, who has severe bone pain, # 1 area is his back, his legs, hips, joints, ribs (sometimes breathing makes them hurt), shoulders, at times even his teeth hurt, basicly he has severe all over bone pain, hx of vertabre compression, avulsion hip fracture, some of his doctors say its mental, his pshyciatrist said to me (and my son) he is making it up for attention, needless to say my son was hurt about his comments, he wanted to cry!! I don't have this pain, but it hurts to see my teenage son on morphine and oxycodone every day just to get through the day, his pain is controlled but never pain free.  He has a vitamin D dificiency that took one year to normalize, he has had multiple studys.  His nuclear bone scan demonstrated degenatrive shoulders, clavicular, sternum, and joints.  The xray from the orthopedic showed weak and abnormal ribs. the reumatologist said he has fibromyalgia.  Any one out there with bone pain should have there vitamin d levels checked as well as calcium.  Currently I am trying to get the doctor to send hin for a bone biopsy (which was recommended a year ago and can not get it ordered yet) I was told a possibility of Osteomalacia for which the bone biopsy would be needed, but his doctors disagree, although he has every single symptom.  Just the thought of my son being on these types of medications makes me cry, Its not easy to see him take this just to be able to function day to day, other wise he is in severe severe pain.

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Microbechic, Community Member
3/24/12 4:22am
Hello, I am now 21 and have the same exact symptoms. My doctors first thought it was Lupus and nOw my rhematologist specialist says fibromyalgia. I am in so much pain at this point in time. I have resorted to drinking when it gets unbearable. The pain can be anywhere but currently it is in my right shin. I am not sure what to do anymore. I have a vitamin d deficiency as well. I am finally over my anaemia. My specialist doesn't believe that it is lupus. Idk. I have polycyclic ovarian syndrome as well. Some days it so bad that I can't even move. I am at a stand still. I travel 2 hrs every 3 weeks and I get 0 updates. I am tired of being in pain. What should I do? Sincerely, C.F. Reply
ICHIKIREILVRN, Community Member
7/ 9/12 4:48am
Im so sorry to hear that you have this pain!! AND, that you are so young! I know what its like to struggle EVERY day even just to get up, even just to comb your hair or bathe. I also started to drink more at one time.  BUT, alcohol often makes the pain worse!! So, because of this I stopped. Please search the internet for a pain management doctor or clinic #1. If you do not have insurance look online for the location of your state health dept. They will be able to direct you to a free or low cost clinic that you can go to that is supported with state taxes, etc for the needy.  Also, you may go to the ER. They must provide you with care, insurance or not... # 2 get your vitamin D up by taking a D3 supplement. Low levels of vit D can cause bone pain, loss, and low immunity. #3 go to the clinic you find and have them run the following tests:  RF, CRP, ESR, ANTI-CCP, ACE & a complete AUTOIMMUNE PROFILE INCLUDING ANA.  Autoimmune profile should consist of: anti-Ro, anti-La, anti- ssdna, anti- dsdna, and a few others.  ALSO run a CBC with Differential, Complete Metabolic Profile & Electrolyte Panel including Magnesium, potassium, Calcium, Sodium, Chloride &Phosphate. This will tell you or give you clues to what may be going on. The results of these blood tests will tell your doctor which direction to go from there. ALSO, make sure the doctor orders an MRI of the painful area. Good Luck! I feel for you, as I suffer as well..... For many, many years.... and its no way to live 😥 Reply
BayAreaStoner, Community Member
1/15/10 9:20pm

Hello there, I am a mom but I have the same pains that these people are going through and it sounds like your son is in  alot of PAIN medications and not any kind of preventative medications. I just wanted to make a suggestion to try Cannabis for the pain. You do NOT have to smoke it for it to work for him. I volunteer on a Cannabis Awareness website that I think you and your son would benefit from. www.420magazine.com Its a great place to start some education on how ot get your sons pain to go away without killing his insides with the chemicals that are all in the medications you get from pharmacutical companies. They are slowly killing our body while they pretend to fix us. Please look me up on the site if you get a chance to get there and read up on some stuff. Im known on there as BayAreaStoner. Im sorry for all your pain but Cannabis changed my life for the better and I think it would help yours sons greatly! Thanks for taking the time to read my comment! ~BAS~

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mph, Community Member
4/17/11 11:04pm

hi Karen, anything come of a diagnosis yet? Email me as my son has severe pain finally figured out benign bone tumors but getting them out is another thing. Pain meds,etc. 

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Dwight, Community Member
2/ 9/10 2:15pm

I am a 28y/o female. I just recently was diagnosed with Arnold 1 Chiari Malformation which is a few steps down from spinal bifida, but was asymptomatic. Just this year I have been experiencing weird pains in my legs that radiate to my ankles; however, I thought they were just cramps or maybe a Charlie Horse. After having this reoccurring pains I began to observe them and it feels like the bone. I've been taking all sorts of pain meds to cope day by day, but they don't bring me any relief just a couple of hours of sleep! I can feel the pain traveling thoughout my leg. I don't know what it could be, but I can empathize!

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Joanne, Community Member
12/28/11 10:06am

Hi my name is Joanne i also have chiari and leg pain most of the time it is when i am lying down i do not know what the cause is but you are not alone. chiari is a bad disease it steals ur life from u tremors headaches breathing problems neck pain heart problems loss of motor function thier are so many symptoms i could not possibly list them all but you are still young so keep up on ur treatments with a neruo and may be discuss surgery they took to long to diagnos me i suffered a bought 17 years be for a diagnosis now its permanent. all my symptoms so please! keep after doctors to give u the treatments u need

 

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lexie, Community Member
5/19/10 12:24pm

I have a disease called Ehlers Danlos Syndrome (ednf.org) which might be an answer to some of your own issues. I have all the same symptoms and have an alphabet soup list of diagnosis as well. I am currently pursuing a trial of cannibis, either as a medical preperation or smoked. I am working on the blessing of my pain doctor. Thanks for the information in your posts and may the peace of Christ be with you.

 

 

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Exhausted, Community Member
12/12/10 4:39am

Hello Rick,  I am a 49 year old female and am experiencing the same symptoms as you. My pain is excruciating at times. I started out a couple of months ago with two very painful knees and diagnosed with moderate osteoarthritis in my knees.

Over a very quick period of time my knees pain has progressed to severe pain in the back of my legs and now this pain in the lower legs. I am unable to sleep much at night.

Sad to say I have had little help from my doctor save to say to me to lose weight  as then the pain should not be so bad. I am at my wits end, and am very busy with a young family. I feel as tho' I am disabled as the pain in my foot prevents me from driving the car. So frustrating

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Patrice, Community Member
1/ 4/11 10:45am

Everyone, I'm reading your posts, and truly feel for all of you.  I have been experiencing pain in my right knee for about three months now, that was progressive.  I have no health insurance (have a masters degree, with 20 years of experience, and I haven't found f/t work for six years.  So, no health insurance).  However, I did finally discover some free healthcare at our county clinic.  A doctor told me simply to "lose weight".  Granted, I am severely overweight right now.  And, because the pain was initially in the knee, apparently the bone, I thought that the combination of my weight and potentially arthritis was causing this pain, which typically started first thing in the morning.  Bones would be cracking, and walking down steps was painful.  However, this doctor didn't bother to take any X-rays to confirm if it wasn't something else.  It is now January, three months after seeing her, and I have been in increasingly debilitating pain.  The pain has moved to the back of my thigh, and particularly hurts in the nook of the back of my knee/inner thigh.  There are certain positions, even lying down, that absolutely kill me.  Just lifting my leg a certain way, at a certain angle, as well as bending my knee, KILLS the back of my knee and hamstrings.  It's very strange, and I can't sleep at night.  Yesterday it was feeling a little better, I ran an errand, I put something in the trunk of my car, and just bending over, at my waist, to push something to the back, I did something to my leg that made me scream in pain.  I could barely hobble all last night.  It has subsided only minimally this morning.

 

I have a doctor's appointment tomorrow (which I have been waiting for for TWO MONTHS), but I don't know if they're scheduling me for an x-ray.  I really want one, to know exactly what's going on.  I'm never going to find a job hobbling up to the interviewer.  I'm still trying to find what this brand of bone-and-severe muscle pain is.  It moves from the front of the knee (bone-like pain) to the back of the knee and thigh (feels more like muscular pain).  Any thoughts would be most welcome.

 

 

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Patrice, Community Member
1/ 4/11 11:01am

I wanted to add that there is also a type of thickness and slight numbness in the right leg, especially when I sit (I hope it's not diabetes).  I just don't know what it is.  If there is a clot, could the presence of that cause the slight numbing sensation?

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Exhausted, Community Member
1/ 5/11 7:11pm

Just wondering how you got on at the doctors yesterday?

Trish.

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Patrice, Community Member
1/ 5/11 8:16pm

Thanks, Exhausted!

 

Actually, he was certain I didn't have any type of embellism or blood clot (which apparently was his specialty).  He wrote me an order to get X-rays, which I did immediately afterward at Good Sam in the Chicago area.  They'll send him the results tomorrow. 

 

One thing he did say was that if it was just arthritis, he would simply prescribe Ibuprofen, 600mg 3x/day, which he already had me start taking (and which I was taking before).  However, if he does find a fracture or worse, my surgery would not be covered at all by my healthcare assistance program....they don't cover any type of surgery (so much for healthcare in this country).  So, I would still have to pay thousands out of pocket, which I simply don't have.  He said that I could "wait until I find a job and get insurance" to have the surgery, if, indeed, I need it.  Yes...wait, just like I've been looking for the past SIX YEARS to find a job with benefits.  I have a masters degree, two degrees from the US and two from Europe, and twenty years of marketing experience, but I can't find a decent job here anymore. It's as if I'm on some blacklist, and I really don't know what I've done to deserve this.  I used to work a minimum of 16 hours per day for my career, always bringing work home, every night...and for what.  To get shut out now. 

 

Anyway, thank you so much for your note and your concern.

 

How are you feeling?

 

Patrice

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Patrice, Community Member
1/ 5/11 8:18pm

Trish:

 

I mean he looked like a young Anthony Perkins!  (yes, of "Psyco" fame...that one).  He was very nice, but, I don't want any surgery.  I hope it's just arthritis, but the muscular pain at the back/hamstring area confounds me, and I know the x-rays aren't going to pick that up.

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Exhausted, Community Member
1/ 5/11 10:19pm

Sounds exactly like what I have been experiencing. Also when I sit down it is like the bone is splitting in two down my leg or I get little shocks. I work in sales, (party plan) and have noticed a lot of others lately tottering around when they stand up as well with joint stiffness.

This pain that I have been experiencing is chronic though. Hope I get some relief soon, as a matter of fact, I hope we all do.

Love Trish.

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Patrice, Community Member
1/ 5/11 8:17pm

Trish:

 

I also wanted to add that he was a doll, and sort of looked like a young Anthony Hopkins!:)

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ICHIKIREILVRN, Community Member
7/ 9/12 5:01am
Go back to doctor and DEMAND an XRAY & then an MRI WITH CONTRAST AND WITHOUT CONTRAST! Remember its your life! Take control of it! Research every test, every medicine, research your symptoms and make that doctor order the appropriate tests! Yes we all could probably lose some weight, but thats a lazy excuse! Dont walk out of that office until that doctor takes you seriously! Tell him he is insulting you and you want the proper tests done. If he ignores you or says its in your head, you are overweight, whatever, file a complaint with your STATE MEDICAL BOARD! Making these excuses and not ordering any tests is NEGLECT!! Doctors must check you for your symptoms, it is the law, it is part of thier scope of practice to be a doctor! IF NOBODY REPORTS BAD DOCTORS THEY CONTINUE TO PRACTICE AND HURT OTHER PEOPLE BY NEGLECT. THEY CANNOT BE PUNISHED IF THE MEDICAL BOARD DOES NOT KNOW OF THIER ACTIONS. Good luck 😊 Reply
ellen, Community Member
2/11/13 5:06pm

thank you for that imformation,because that is exactly the problem I am having and its so maddening! I write questions to ask him and he ignores me,listens to my heart and out the door he goes! Iv'e had chronic back pain for years,but in the last 5-6 months horrible pain has been attacking my calves,it makes me cry.Pain pills are not even touching that pain.They just did the routine blood work tests and they came out fine,but thats not my problem,I want to know what is wrong with my "LEG'S". I'm afraid it might be ms or lupas or some other dibillitating disease.It sure is'nt like that phony Drs show where they act like they care,they have become actors.It's all about the "MONEY"..You are the only person I've ever heard about getting a mri with and without contrast.Iv'e had corstine shot's been on lyrica,gone to physical therapy and nothing work's.I'm starting to live like a hermit, because nothing is fun anymore.

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Patrice, Community Member
1/ 4/11 10:47am

Dear Exhausted:

 

I meant to give you a special shout-out.  I'm 49 as well, and our symptoms seem a bit similar....pain starting out in the knee, and then moving to the back.

 

If I hear anything new from my doctor tomorrow, I'll post it here.

 

Good Luck.

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Exhausted, Community Member
1/ 4/11 4:30pm

Thanks Patrice. I am convinced though that they know very little about it. One thing that has helped me to sleep at night is one of those velcro leg braces. It cradles the bad leg (in my case, the right leg) and is not so painful to move around in bed. The hospital gave it to me. (I am in Australia in Queensland and we have access to free hospital treatment if we can't afford insurance).

It protects it and gives it a good rest through the night.

Feel very sorry that you are having difficulty getting work. That adds insult to injury when you have this kind of injury and the chronic pain that accompanies it.

I am only able to work part time with it. I work for myself and my husband drives me to and from wherever I am working that day.

Hope things get better for us all.

 

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mph, Community Member
2/ 7/11 12:30pm

Hi, do you have a diagnosis? My son is 22. Undiagnosed now 12+ yrs. Severe localized left knee bone pain and now 3 herniated discs ( @6 yrs). We live in No. California and all docs say yes its something but what and can only treat the symptoms which is excruiating knee pain. Tried epidurals, a no go. Now decompression which is working somewhat. He did nothing to cause all this.....

If you or anyone else have a clue or docs to see or anything helpful please email me..... Mom.....    tahoebeanies@hotmail.com     thankyou in advance!

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Patrice, Community Member
2/ 7/11 12:58pm

Hello, mph.

 

Yes, I did finally get a diagnosis.  Apparently, I have "normal wear and tear" in my bones and some arthritis for a a 49-year-old.  I have to say, my extreme pain has somehow gone away, but it still hurts a little.  And, I'm often still stiff in my right leg.  I can't go down the stairs normally, walking as if I have a wooden right leg (I sometimes try to bend it and put my weight on it, as I do the other, but I find myself always pampering it, and that's not good).  I know I HAVE to lose weight, and I have started to do so, ever so slowly.  Where the extreme, debilitating came from a few months ago, lasting pretty much through the first half of January, I really don't know.  Perhaps I pulled a muscle on top of having the arthritis creeping up.  I'm grateful it feels better, but I'm definitely still worse than I was about a year ago.  I need to exercise more (but the last time I did regular exercise is when the bad pain came back in spades.  So, I need to watch that too).

 

I'm imagining swimming and regular massages would help it significantly; however, my health club has no pool, and I can't afford a masseuse of any kind...even the ones at the health club.  If I ever get a job, I might start going to another club that has a pool, and schedule a few massages now and then.  The rich really have no idea how lucky they are.  And in this country, they just keep getting wealthier, while the middle class has basically slid into poverty.  We really have no middle class any more.  I attribute MANY of our illnesses and pains to our work schedules, our low pay (even "white collar" middle class workers, as myself (professional, degreed, etc. are not making at all what we're worth.  Raises have been non-existent for droves of people), the stress that people carry from their jobs alone, let alone personal/family issues; and our very poor healthcare, and skyrocketing health care costs.  Have you ever seen a really wealthy person without a tan, without a regular massage, manicure, pedicure, hair appointment, without the ability to purchase healthy fruits and vegetables on a regular basis?  If you're wealthy, you're basically set on everything, including your "basic" health.  Yes, of course, the wealthy are not completely immune to cancer, alzheimers', etc.  However, they're certainly in a FAR, FAR better position to prevent all sorts of health problems that the middle and poverty classes can't...at all.  I can't even afford an eye appointment at this point, and my eyeset has definitely gotten worse in the past two years. 

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KRISJO, Community Member
3/30/11 2:42pm

I Have severe chronic pain both Calfs, both knees, I am looking for answer as well. have you studied Lyme Disease?

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Elizabeth Lee, Community Member
6/21/12 11:31pm

Hi, My name is Elizabeth. I am 18 years old, and I was just diagnosed with Congenital Kyphosis, Degenerative Disc Disease, and Hoffmanns.

They also say that I might have a bone disease, but I have to wait 6months before I have an  apt with Genetics. I am always in pain, I cant sit in a car, or at school. And I have always had leg pains which the doctors have always said "Its just growing pains." And now my legs are in so much pain that my legs just stop working. I live in a 3 level home, which I am always falling down the stairs.

Im just glad to hear that Im not the only one having Issues.

 

I hate being in pain, I have tried Narcotics to help with pain but I hate that feeling of not being in control. So Im not sure what to do.. Frown

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By Hrurts Too Much (Rick), Community Member— Last Modified: 01/17/14, First Published: 04/22/09