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Lisa Emrich, in her post, “ MS and Politics ,” quoted Michelle Obama talking about her father, who had MS, “ He never stopped smiling and laughing - even while struggling to button his shirt, even while using two canes to get himself across the room to give my Mom a kiss. He just woke up a little earlier, and worked a little harder. ” Lisa questions the image this conjures up, and points out that MS is anything but a “little” disease. Well, Lisa, I have to agree with you. With all due respect to Michelle Obama and her personal association with multiple sclerosis , MS once again came off looking like a “just grin and bear it” disease. I really don’t believe that’s how Michelle meant it, but it could be interpreted that way by those who know little about this disease. It is unfortunate that the image we often see in the media is that of “MS Heroes.” The folks who just go on with life despite MS. Some don’t bother wit...
How does your hand held techie device (PDA, iPhone, Blackberry, etc.) make a difference in your life with MS?
It seems t he whole world uses hand-held devices. Which ones do you use, how do you use them, and what difference do they make in your life? Are there some you would like to use?
What about your cell phone? How do you use it? Calls only, texting, storing addresses, Internet surfing, listening to music, playing games, tracking family members?
What about laptops, ipods, mp3s, Blackberries, language translaters, Kindles, or other techie devices? Some devices have very specific purposes, and some can do almost everything.
Many hand held devices are taking advantage of technologies that may be helpful for people with disabilities. There are speech and voice recognition, the ability to synchronize the phone or PDA to a computer, and connect to a wireless network almost anywhere. Of course there are touch screens to make selections easy.
What do you use, a...
George Jelinek shared some valuable information in his post - The critical part of the jigsaw of the diet in MS is Professor Swank’s work - which touched on the nature of clinical trials.
When we think of clinical trials, the image of pharma-sponsored drug trials immediately come to mind. Perhaps this is because we hear most about drugs in trials, drugs which have been tested for use in MS, and drugs which receive that important FDA approval before hitting the market. But drug trials are not the only types of clinical trials.
Clinical trials fall into several categories, including:
Treatment trials: These studies test new treatments for diseases or conditions. These treatments can include experimental treatments, new drugs, new combinations of drugs, or new approaches to surgery or radiation therapy.
A treatment trial may also study "off-label" uses for an existing FDA-approved treatment. Off-label means the drug is being use as a treatmen...
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