“You look so good!” What is it about that phrase that makes those of us with MS cringe? Visit any MS related website or blog and you'll find this among the top complaints. It has had a place at the top of my own list. It is meant to be and is, in every sense of the word, a compliment and I take it as such more often than not, with a smile and a thank you. Why would anyone object to being told that they look good? It is because we feel like impostors. We can't we possibly look good when we feel so bad. Last week a nurse, upon hearing that I have MS, told me that I look so good. So far so good. “Thank you”, I said. Then she followed up by saying, “It's really great that MS isn't effecting you much.” And there it is. That is the statement which gets our dander up. We feel it is implied even when it remains unspoken. I felt compelled to explain that just last week I was hobbling around on a cane, in a much different state. ...
How does your hand held techie device (PDA, iPhone, Blackberry, etc.) make a difference in your life with MS?
It seems t he whole world uses hand-held devices. Which ones do you use, how do you use them, and what difference do they make in your life? Are there some you would like to use?
What about your cell phone? How do you use it? Calls only, texting, storing addresses, Internet surfing, listening to music, playing games, tracking family members?
What about laptops, ipods, mp3s, Blackberries, language translaters, Kindles, or other techie devices? Some devices have very specific purposes, and some can do almost everything.
Many hand held devices are taking advantage of technologies that may be helpful for people with disabilities. There are speech and voice recognition, the ability to synchronize the phone or PDA to a computer, and connect to a wireless network almost anywhere. Of course there are touch screens to make selections easy.
What do you use, a...
George Jelinek shared some valuable information in his post - The critical part of the jigsaw of the diet in MS is Professor Swank’s work - which touched on the nature of clinical trials.
When we think of clinical trials, the image of pharma-sponsored drug trials immediately come to mind. Perhaps this is because we hear most about drugs in trials, drugs which have been tested for use in MS, and drugs which receive that important FDA approval before hitting the market. But drug trials are not the only types of clinical trials.
Clinical trials fall into several categories, including:
Treatment trials: These studies test new treatments for diseases or conditions. These treatments can include experimental treatments, new drugs, new combinations of drugs, or new approaches to surgery or radiation therapy.
A treatment trial may also study "off-label" uses for an existing FDA-approved treatment. Off-label means the drug is being use as a treatmen...
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