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Lisa Emrich, in her post, “ MS and Politics ,” quoted Michelle Obama talking about her father, who had MS, “ He never stopped smiling and laughing - even while struggling to button his shirt, even while using two canes to get himself across the room to give my Mom a kiss. He just woke up a little earlier, and worked a little harder. ” Lisa questions the image this conjures up, and points out that MS is anything but a “little” disease. Well, Lisa, I have to agree with you. With all due respect to Michelle Obama and her personal association with multiple sclerosis , MS once again came off looking like a “just grin and bear it” disease. I really don’t believe that’s how Michelle meant it, but it could be interpreted that way by those who know little about this disease. It is unfortunate that the image we often see in the media is that of “MS Heroes.” The folks who just go on with life despite MS. Some don’t bother wit...
Today I am going to talk about Sylvia Lawry. Sylvia Lawry (1915 - 2001) is my favorite hero, at least so far. I started this series with Dr. Martin Charcot he named this disease, unidentified until then. His beginnings led to his designation as the father of MS research. He facilitated the future of research, advancements, and hope. Today I choose to talk about another pioneer. My hero's story was told Thursday this week on MS Central. Lisa Emrich chose to begin a series of articles about MS organizations worldwide by starting with Sylvia Lawry who created the first MS organization. I wrote an essay in May last year about ways the Internet is important to me, and that included Ms. Lawry and Lisa's Brass and Ivory . Sylvia Lawry was studying law (a woman in law school in 1945!) when her brother Bernard experienced vision and balance problems and was diagnosed with MS. After years of his ineffective treatments and cure attempts, Ms. Lawry placed a classified ad in the New York Times...
George Jelinek shared some valuable information in his post - The critical part of the jigsaw of the diet in MS is Professor Swank’s work - which touched on the nature of clinical trials.
When we think of clinical trials, the image of pharma-sponsored drug trials immediately come to mind. Perhaps this is because we hear most about drugs in trials, drugs which have been tested for use in MS, and drugs which receive that important FDA approval before hitting the market. But drug trials are not the only types of clinical trials.
Clinical trials fall into several categories, including:
Treatment trials: These studies test new treatments for diseases or conditions. These treatments can include experimental treatments, new drugs, new combinations of drugs, or new approaches to surgery or radiation therapy.
A treatment trial may also study "off-label" uses for an existing FDA-approved treatment. Off-label means the drug is being use as a treatmen...
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