I have a very high CPK test result. My doctors say, "that's probably where "I live".

Thats interesting. I assume you've been checked for a disorder called polymyositis? That's a disorder that has similar symptoms to FM but with high CPK levels according to the page below. 

http://www.medicinenet.com/fibromyalgia/page3.htm

However according to the site below while your CPK levels are higher than normal, they are not nearly as high as in autoimmune conditions such as polymyositis, dermomyositis where CPK levels are in thousands. This suggests you're kind of in a limbo area where somethings going on but not at a severe level.  Medicine is not really good at explaining this kind of abnormal but not disease causing test finding. 

http://www.hopkins-arthritis.org/ask-the-expert/myositis-011/elevated-cpk-427.html

My elevated CPK was running in the 900-1200 range for over 17 years before I was finally referred to a Rheumatologist who knew to check my lactic acid for a diagnosis

of McArdles Disease, which is a glycogen storage disease. The lactic acid test is 2 parts.

1st they take a blood sample with you at rest then a blood pressure cup is put on your arm and they jack up the pressure. Then you sqeeze a ball repeatly for 2 minutes. Then

they draw another sample. If your lactic acid is flat that says that your muscles lack the enzyme phosphorylase which allows your muscles to convert glycogen into glucose. There is no treatment or cure..but Vitamin B6 does help..along with having some hard candy for the availabiliy of sucrose..Neither will make your muscle pain go away but they will help a little bit...for me the B6 is the difference between being incapacipated and being able to at least enjoy a little bit of my retirement..I had to take disability.

I just got back from the doctors and had a CPK count of 2225. I am 25 years old, female. My doctor didn't explain it very well and is just running more blood tests for a recount. Is this extremely abnormal and what should I expect?

Hi there,

I am 37 years old and have been living in chronic pain for over two years, yes I have a CPK of 600- 900.(Plus, other symptoms).  I have been trying to get an exact diagnosis in order to recieve treatment so I can feel like a human being once again.  I have seen Rheumatologists/ Auto-immune specialists/and now a Neurologist.  All the Dr's tell me is that I have some type of Auto-immune disease, possibly MS.  I sincerely hope you feel better soon.

Take care,

Tina

I have had an elevated CPK count now for 17 years.  At first I was diagnosed with polymyositis....cpk count  13,0000 plus.   After several years on prednisone, I got it down to what is now considered a normal level for me 300-600.   However....in 2005, my levels got up again to around 6000.  My Rheumatologist said that I should be "flat on your back".  But I wasn't.  I was running around planning a graduation party for my daughter and having lots of activity.  At that point he said that if my count rose again to that level he would want to do another biopsy to see if I had been misdiagnosed years earlier.  Well,  haven't had a flare like that since, but I have heard about a disease call Mixed Connective Tissue Disease.  It is worth looking into.  I am going to ask my doc next week when I go in.  In effect it mimics lupus, scleroderma, and polymyositis.  I also have Myofascial pain syndrome.  Talk about pain.  Here is something that might help you too....go to Maxgxl.com/earners    I have been taking this product for a while and am really feeling better.  Good Luck.....

My daughter is almost 9 years old & has had an elevated cpk level for about 5 years now. Not one specialist can come up with an answer. No one agrees & we finally stopped taking her to all of them. I didn;t want her to be a guinea pig anymore. We've been to rheumatologist, neurologist, MD clinic, & have been given many different bones to chase. You are lucky you are an adult, pediatric specialists are hard to come by. We deal with her pain & treat as needed. She's been hospitalized, bee on steriods a few times but mostly we treat her like a normal child. Good luck, it's not an easy journey through the medical spiral even in this & age.

i'm 49 years old male and my cpk levels have run in 2000 and i had lots of pain in my chest and throw out my hold body . i do have Fibromyalgia . and my dr has taking  lots of blood test . I'm on lots of meds . i have high blood pressure and high cholostal and diebetes .. but i been trying to find out why i'm am in so much pain . i have some good days and bad days.. Rob

I was just had a CPK blood test and it was 400.  My dr. said there could be musle damage and this could be why I have chronic pain all over my body.  I was also diagnose with Fibromyalgia.  He is sending me for further testing; i.e., EMG etc.