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I have had an elevated CPK count now for 17 years.  At first I was diagnosed with polymyositis....cpk count  13,0000 plus.   After several years on prednisone, I got it down to what is now considered a normal level for me 300-600.   However....in 2005, my levels got up again to around 6000.  My Rheumatologist said that I should be "flat on your back".  But I wasn't.  I was running around planning a graduation party for my daughter and having lots of activity.  At that point he said that if my count rose again to that level he would want to do another biopsy to see if I had been misdiagnosed years earlier.  Well,  haven't had a flare like that since, but I have heard about a disease call Mixed Connective Tissue Disease.  It is worth looking into.  I am going to ask my doc next week when I go in.  In effect it mimics lupus, scleroderma, and polymyositis.  I also have Myofascial pain syndrome.  Talk about pain.  Here is something that might help you too....go to Maxgxl.com/earners    I have been taking this product for a while and am really feeling better.  Good Luck.....