Need more info on this Syringomyelia disease as my daughter has it
Heres some information of syringomyelia on Health Central.
http://www.healthcentral.com/ency/408/001398.html
The national Syringomyelia Patient Alliance can provide you more information as well as a message board, etc. Good luck!
http://www.asap.org/syringomyelia.html
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