rsd treatment question

Have you gotten in touch with the Reflex Sympathetic Dystrophy Association? They have support groups. I wonder if you could get in touch with some people that way who've been through this and can give you some advice about treatment possibilities and doctors?

http://www.rsds.org/index2.html

Good luck.

I also have RSD, for 20 years now.  I see a very good Rheumatologist.  I found that Neurontin is much more helpful for me than Lyrica but each of us is different.  It is not easy to find a rheumatologist that is also an expert in RSD.  Some of them don't even believe it is real. 

I also receive cortisone shots every 3 months and have medication for the swelling (Diazide) and to help me sleep (Zanaflex - muscle relaxant).  Sleep is the most difficult part for me.

NO MATTER WHAT, it is vital to keep moving as normally as possible no matter how much it hurts.  That's the only way to keep the muscles working and it will actually lessen your nerve pain if you can stand to keep at it.

Hope this helps.