I have a Medtronic pain pump in with Dilaudid. Any side effects from anyone else with the medications? I would like to hear, as I am having side effects and need to find out if they are pump related or not. Thank you!
I have a Medtronic pain pump in with Dilaudid. Any side effects from anyone else with the medications? I would like to hear, as I am having side effects and need to find out if they are pump related or not. Thank you!
I would love to talk to you. I have had a pump for almost a year now. I have tried Morphine and am on Dilaudid. I have given Dilaudid a good try and am going to change it to Fentinyl (sp?). I have been so sedated on dilaudid. I have fallen asleep with iced coffee in my lap. I was getting ready to go drive to my mother's house and fell asleep for two hour on the couch while putting my shoes on. Also, we have not been able to get it high enough to help the pain. I have fibromyalgia along with other problems. This pump is my last hope. I would love to hear your story or anyone elses. How long have you had your Pump? Is dilaudid the first med. you have tried?
i have had my pump now for 8 weeks and the first 3 were magic! I would kiss the dr. but have had a gradual decrease in the effectiveness. i have it for chronic back pain and it is located right over my si joint and it quite painful. I can no longer lay on my back nor can I sit with my lumbar spine against a supportive chair, ie Car seat with lumbar support. I am experiencing sexual difficulty where I find that I now have ED which was never a problem before. No dietary issues either but I also have a full colectomy so i have dietary issues to begin with. My neurologist who implanted the pump will not let me take anything for pain besides the pump, b/c he says it degridates the effectiveness of the morphine. Hope things are getting better for you! Robert
I don't know about yr side effect, but here are mine, Got my pump on 4/19/2010. They put morpine in the pump, I can't take morphine by mouth get deathly ill very weird side effects.Now I have dilaudid first days were okay still had morphine side effect,so now it has been 6day and I have weird side effect.My eyes sight as different fuzzy,nauesa really bad, rining in my ears, I know this sounds werid but I have not urge to go the bathroom,I must tell mtself to try to go and it feels like I am filling upall over ,lost 20 pound taste has changed. It is very hard to tell the drs they don't quite believe it. I want it out
I just read about you having A pain pump with Dilaudid and I had one implated over 6 years ago. I have had a few side effects the 1st. few months but luckily have an excellent physician that specializes in this area. Some of the side effects that I had at first were:nausea,tiredness and weakness.I also had a very weird side effect when my doctor initially gave me something in my pump to try to counter my nausea.My feet swelled up. This was temporary and lasted only a few days (until he removed this medicine out of the pump).
The thing that I am dealing with right now is withdrawal!!!!!
Man oh Man!!!! My pump stopped working after 6 and 1/2 years and the withdrawal symptems are excrusiating.I had to deal with stomach cramping like no tommorrow.Also,insomnia,severe weakness and tiredness as well as tremors and shakes. So,I suggust that you replace the pump implate before it gives out.
Hope this helps !!!
I have had the Medtronic pump for 6 + years and I also have Dalaudid in the pump. My dose is 30mg concintrate per cc. I haven't had any side affects with the meds except for I don't get enough sleep.If you tell me what side affects you have been experiencing it's possible I had the same effects but I chalked them up to oral meds.
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I AM53YR OLD MALE.GOT MY PUMO IN 2003. DILADID. I WENT FROM 2MG A DAY,HAD TO TUUN IT UP EVREY FEW MONTHS, AND ENDED UP ON 12MG A DAY?(DONT NO FOR SURE ABOUT DOSSAGE, JUST THAT I WENT FROM 2 TO 12 AND I THOUGHT MY BACK WAS JUST GETTING WORSE) AFTER ABOUT 2 YR I COULDN'T STAND ON CONCREATE ALL DAY ANYMORE AND HAD TO GET ON DISABILITY. LOST MY INSURANCE AND HAD TO PAY OVER $800.00 A MONTH! COULDN'T AFFORD IT SO I HAD TO EASE DOWN AND TURN IT OFF. NOW I REALISE MY BACK WAS NOT GETTING WORSE, MY BODY WAS BUILDING UP A TOLERANCE TO DILADID(50 TIMES STRONGER THAN MORPHINE, I THINK) NOW I'M IN CONSTANT PAIN 24/7! AND THREE 10MG PERCOCETS JUST DULLS THE PAIN A LITTLE BIT.MAYBE 25% AT BEST. SO MAKE SURE YOU WILL BE ABLE TO AFFORD IT IF YOU LOSE YOUR INSURANCE LIKE I DID! I NEVER HAVE ENOUGH MEDS FOR MY PAIN! AT BEST I HAVE ENOUGH FOR 1 DOSE A DAY, AND 2 DOESES EVRY 3RD DAY! I HAVE TO BUY MEDS OFF THE STREET AND ITS VERY EXPENSIVE! I DON'T NO WHAT I'M GOING TO DO! I DON'T HAVE MUCH OF A FUTURE TO LOOK FOWARD TO. JUST MORE PAIN!!!!!!! I HOPE THIS HELLP'S SOMEBODY!!!!!!!!!
Hello, It great to chat to someone that is going throught what I am. I have had my pain pump for around 7 years now and there are side effect that I have everyday. Just like the rest of you I am drowy alot of the day and I have falling a sleep doing just about everything. I have failed back surgery in 3-2003. My other side effects are constipated, hard to urine,and I get headache that do not go away that easy. I just came across this site by incident but I want to let you and other know the side effects that I have had most of the time and to hear what side effects you guy are having. Thank you Rodney
Hi to everyone out there in the same type of situation that I am in. I have had 6 back surgeries which include a spinal cord stimulator and fussion and now have a pain pump, I am still at a lower level now on the pump then before, I was taking 100mg fent patch every 48hrs and 30mg oxy every 6hrs. I now have Dilaudid and a numbing drug in the pump. But i still take the 30mg oxy every 6hrs along with a relaxer and a fibromialiga drug. I still get sick alot and have no appatite or sex drive but the pain is now about a 5-6 steady instead of 9-10 but I do still have bad spikes that will stop me cold. I can sit for abour 10min then I have to move or the pain keeps going up. I get 2-3 hrs of sleep a nite if i have a good nite. I am only 35yrs old and not being able to work is killing me. I am hoping that this will allow me to be able to get back to work when we get it all figured out. I do know that fent is the top dog when it comes to helping with the pain but its also hell to get off of. When I got my pump I went from the 100mg /48 and pills to the pump set at .015 with dilaudid with my pills but no patch, it was hell for 5 days but better now. I still need adjustments done on my pump but with the pump and the SCS (its always on shocking my spine) that I might be able to get back to a normal type of life I ahve a wife and 2 girls. I am also very depressed and most of the time just want the pain to stop no matter what so I not the happiest person but I try for my family. I hoe that anyone with thsi type of constant pain might be able to find something to help.
It is not pump related. It is the medicine. I had a pain pump put in me 5 months ago and used Dilaudid as my first medicine. Although I am glad I have it now, there was alot of issues at first. It had been very difficult for my body to adjust to a small hockey puc inside your body... until now.
Also... You have to get the medicine... that is right for you and it may take alot of trial and error before you can settle into the reason you got it. To relieve chronic pain. It is NOT EASY !
The usual side effects of Dilaudid is itching alot, and a sedating effect. Otherwise... the doctors say, " it is thier drug of choice for patients." It gives you the best and long relieving control for your pain. Moriphine( may work for you however you have itching.) or Fentinol.(which is too short acting.)
I also had trouble with the placement area of the pump, so I had a 'pump revision' done just last week. Thank God for medical insurance!. I had the pump placed higher up on my right side. It is now more snug and it seems to fit. I lost my nice figure over this, but there had to be a trade off.
My medicine now is Fentinol. Again it is too short acting for my chronic pain. I am going back to Dilaudid Is your pump truned up too high or turned too low. That, you need to consider.
I was wondering if anyone was having problems like I am. First I had trouble with urination.Or should I say trouble urinating. I have to catherize myself most of the tim. I now have drop foot on lt. leg and numbness and tingling in my hands and both feet. For the last month I now have burning in my hands. They feel like they are burnt.I have had so many test to determine my diagnosis and not one Dr. agrees. The only thing they say is "You have a very complicated case"? I have been told I have MS, Fibomyalgia and perpherial neuropathy. I wish someone would help me.Tell me your side effects.
Well, I'm new to all this so please bear with me...I have a pump with Dilaudid and Rivibacaine, which I understand this is just a numbing agent. Since I have had the Dilaudid I have had a fit with staying awake. I can go to sleep in the middle of a sentence. I tried to read a book to my son last nite before bed and he just finally put his fingers to my lips and said 'tomorrow mommy'. I don't dare drive especially with my son in the car. Bad thing is, I'm getting no pain relief. Seems like I sleep to get relief from the pain. Now what do I do?
I also have a Medtronic pain pump with dilaudid and ribivacaine. I also have some weird side effects that my doc just shrugs off. For one, I'm not getting much relief from the pain. No. I'm not getting ANY relief, period. Sometimes I have tinnitus so bad that I scream, cry and smack my forehead trying to make it stop. Sometimes it's tolerable and sometimes it doesn't show itself at all. I have gained a bunch of weight but most of it comes from a distended stomach. It's so big I look like I'm about to have a baby and it is as hard as a rock! I have to stay flat in order to breathe. I can't eat a lot in one sitting. The scariest thing though is my fingers jump and jerk all the time, my lips, and tongue do the same thing and it makes me scared when my words won't come out. I lose my words, too. My short-term memory is shot. Just makes me wonder with that foreign catheter running up with my spinal cord...
I have a spinal cord stimulator now for 4 years. Dec 20th they are going to replace it and put in a new stim since this one is having a hard time holing its charge lately. They are also going to put in a medtronic pain pump. However, they are going to use this new medicane called PriAlt. I am nervious because they going to put the pump in my stomach and the stem in my back. I was told they I will have to be real carefull for at least 2months. because I was told today that the pump will flip if I bend over to put on my shoes etc.. Has anyone I had anything like this happen with their pump. Also, has anybody had any expericne with this new medicane in the pump ( PriAlt )?? Thank you everyone
I recently had a Medtronic pain pump implanted. I had problems with the morphine that was initially in the pump. I had hives, itching, urinary retention, and swollen feet. The doctor switched me to 0.5 dilaudid and started turned the pump down to 0.05 ml/day. All the side effects went away except the swollen feet. But, I was getting no pain relief.
This week, he turned the pump up to 0.08 ml/day and I'm stll getting no pain relief, but my feet are stills swollen.
I go in again next week to have him turn the pump up again.
Are swollen feet and ankles a common problem with dilaudid when administered intrathecally? I have taken oral dilaudid and by IV before with no swelling in my feet.
Also, at what rate do you folks get some relief when usuing dilaudid?
I'm very glad I found this forum!
Hi, my name is Chris. I broke up my back pretty bad. Nine years ago about six months ago they put the pump in me, and there is a lot of side effects different for different people, but a lot of them the same. If you would like to know more about this. You can e-mail me at my e-mail address firstname.lastname@example.org
I AM ALSO HAVING SOME PROBLEMS. MY DOCTOR KEEPS TRYING DIFFERENT THINGS FOR SKIN CONDICTIONS. AFTER SEARCHING STAFF INFECTIONS. I BELIEVE I HAVE A SERIOUS INFECTION. I HAVE ANOTHER APPOINTMENT LESS THE FOURTEEN DAYS AWAY. I PLAN TO HIT HIM WITH WHAT I HAVE FOUND OUT ABOUT STAFF INFECTIONS. I LIKED TO KNOW SOME MORE ABOUT YOUR SITUATION ALSO. I HAVE HAD MY PUMP FOR A LONG TIME. HOWEVER I FOUND OUT I HAD BREAST CANCER IN 2008. ENDED UP HAVING TO HAVE MY RIGHT BREAST COMPLETELY REMOVED. WHEN I GOT HOME WITHIN A FEW DAYS I REALIZED THAT I HAD A STAFF INFECTION. I ENDED UP HAVING TO HAVE A PORT PUT IN SO I COULD DO THE ANTIBIOTICS AT HOME. THAT LASTED ABOUT SIX WEEKS. IT WAS SOMETIME LATER I NOTICED A LITTLE REDNESS. NOW IT JUST KEEPS GETTING LARGER AND ANGRIER LOOKING. HAS YOUR PUMP HELED YOU AT ALL WITH YOUR PAIN. MY PAIN, IS LOCATED IN MY LEFT SIDE LOW BACK AND HIP. IT IS NOW RETURNING TO MY LEG ALSO. I HAVE BEEN BEEN FIGHTING THIS BATTLE FOR OVER FORTY YEARS. THE PAIN PUMP HAS HELPED. HOWEVER I AM STILL NOT AT A PAIN LEVEL THAT I AM VERY COMFORTABLE WITH. GOOD LUCK TO YOU AND MY GOD BRING YOU PEACE AND COMFORT, TO WHERE EVER YOU ARE.
I have had my pump, since Feb. 3rd. I started out with dilaudid, and was semi comatose until June. I could not wake up, and could not stop vomiting.
I was changed to Fentanyl, and although I am still tired, it is not nearly as bad as it was, and hopefully I will get use to it. I now have no problem with N/V.
I pray that this works, so far, so good.
Hi all. I hope this thread is still active. My story is long. I will give as much info as possible to hopefully get some good advise.
I am almost 40 and broke my back at L4 and L5 when I was 13. I lived with chronic daily pain and even gave birth. Over the course of years my pain level escalated. I was sent for pt and chiro. In 2006 I was to the point I could no longer raise my right leg and I was rapidly gaining weight and loosing sleep. I saw a surgeon who ordered a CT Myelogram but the radiologist disregarded the order and did ANOTHER MRI. The surgeon was furious because he couldn't see well enough from those images to ascertain what the problem was. He could tell from X-Ray that my pedicle and facet seemed abnormal and even saw that I didn't have a visible L5. My insurance would not authorize any more imaging. My GP said I likely had degenerative disc and loint disease and I would probably have to resign myself to the fact that I would be on pain medication the rest of my life. As a person recovering from cocaine addiction (awesome for pain management!) I was disheartened by the idea of being on pain meds long term. At that point I had already been on Tramadol 50mg increased to 200mg daily for almost a year. I found a new doctor!
My new doctor agreed that pain meds were a poor choice for a long term solution. She sent me for epidural injections and pt to see if the combination would help. The doctor administering epidural injections had a hell of a time placing the needle and complained of hitting bone where there should not be. I had close to a dozen injections at different locations throughout my lower back L3-S1 and in the SI joint. Every time I had an injection I would feel releif for a few hours from the Marcane but the next day and for a week after I felt like I had been kicked by a mule! PT was crippling me to the point I needed assistance to my car after a session and I frequently vomited from the pain. I would have to take it easy for several days and by the time I felt able to move again, it was time for my next PT session. My life was spiraling out of control. I was frequently falling or losing my balance. Standing to make a peanut butter snadwich was sheer agony. In 2008 my doctor determined it was time to send me to a specialist. I had to put that on hold though because I discovered I was pregnant. I cannot even describe how painful it is to be overweight and pregnant with a lower back problem! Then liek a crazy person or a cruel joke of nature, I found myself pregnant AGAIN 4 months after my (4th son) baby was born! The pregnancy was unexpected but my husband and I were determined to make the best of it. 4 months after my daughter was born I saw a surgeon who ordered a CT. He was able to readily see from the images that the majority of my L4 was crushed and my L5 was completely obliterated. He also noted a large (7mm) cyst/tumor on my L5 nerve root which he blamed for my inability to raise my right leg. He was uncertain that surgery would relieve my pain but we both felt that a fusion and removal of the tumor would be at least moderately beneficial. In Oct of 2010 I had surgery. I was supposed to have 2 small (2 cm) incisions on either side of my spine and be to the recovery room within 3-4 hours. 7 1/2 hours and a 5 inch and 7 inch incision later I was wheeled to recovery. The surgeon told my anxious husband that it was "UGLY in there". Apparently bone fragments had been migrating around and irratating tissue. The tumor was a combination of different body materials that were collecting on my nerve roots. Initially I was in an inordinate amount of pain but by Thanksgiving I was off all pain medication! I could walk and bend and do normal daily activities with just a small amount of soft tissue surgical pain. I saw the surgeon at the beginning of Dec and he charted that he was shocked at the degree of sucess and speed of my recovery. By the New Year I was planning hiking trips for the spring with my husband. Then...
In march of 2011 I was hit by a VW bus...HARD! He t-boned me on the right side of my Hyundai Accent and pushed me over three lanes of traffic. I knew right away that all my plans were crushed. My body immediately hurt again. Imaging revealed that he had caused whiplash fractures throughout my lumbar, sacrum and coccyx. I saw the surgeon and he encouraged me to take it easy for a few months and hope that my pain would resolve. It didn't. I was sent in for diagnostic injections to isolate the location of my pain, which had migrated almost entirely to the left side. After 6 or 7 more injections, my physiatrist suggested rhizotomy (nerve cauterization). HELL NO!!! I asked about a spinal cord stimulator and we decided to give it a try. The trial waas difficult to place because of stenosis. I had a lot of ribcage stimulation but the physiartrist and Med-Tronic rep assured me that would resolve. I was sent to a neurosurgeon that has performed 1000's of stimulator implants. I was to get the paddle lead. Again, the procedure was not as simple as they had anticipated. My initial post surgery complication was excrutiating chest pain that literally took my breath away. My stim wasn't even turned on yet so I was sent in to have heart and gall bladder checked. All my organs seemed to be fine. The only relief I got was when I would lay on my stomach, not a practical position for a mother of two toddlers! My Med-Tronic rep theorized that it might be because of swelling and the paddles were pressing on and irritating a nerve path. At 3 weeks post-op he turned on the stim to see if the irritation would resolve. It didn't and after about 4 days my battery died. They had forgotten to give me the charging system when I left the hospital. UGH! I tried tracking it down but nobody knew where it was. I had a follow up scheduled with the neurosurgeon and hoped maybe he had the charger. Meanwhile, getting any refills was a nightmare. The staff at my GP's office couldn't seem to wrap their minds around the idea that I was still in pain, both from the surgery, two long incisions, and my chronic pain from the accident. What a circus! They treated me like a common street junkie and all I asked for was a refill on my usual medication, Tramadol, which at this point I was up to 400mg daily, the maximum. Anyway, the charger wasn't with the surgeon, it had never been ordered! Two weeks later it arrived. I had miserable rib stimulation that felt like I had a psychotic ball launcher in my chest and my legs and feet felt like bags of Jiffy Pop on speed with pins and needles. Worse was the fact that the only way I could get it to calm and redirect the stim to my lower back was to lay flat on my belly like in the operating room or to bend backwards like I was doing the limbo. Again, not practical! Med-Tronic rep tried multiple times to re-program to no avail. He finally threw up his hands and sent me back to physiatrist who again recommended rhizotomy. Again I said no. Rhizo offers a few months of relief if any and needs repeat procedures. The gut that hit me only had $300,000 worth of coverage and I was rapidly approaching the quarter million mark in medical expenses and still have an attorney to pay. There is no way I can afford to pay for repeat procedures. Besides, I have a stim in place, lets make it work! He suggested several other options including one that would require switching to a different stim manufacturer. UGH! That brings us to about late June of 2012. At that point I refused to recharge my stim because I could no longer tolerate the sickening punches and the leg stim was making it difficult to walk plus, I still had NO lower back pain management. My Tramadol no longer works, I've started taking 150mg in the am and 100mg around noon and another 150mg in the evening. Not the recommended dosing structure but it is pointless otherwise. I am afraid to take more than 400mg because everything I've read states that 400 is the maximum daily dose. On July 23 my original back surgeon sent me in for a CT Myelogram---hmmm, seems I was ordered one of those before. The CT showed that my fusion was complete at L3-S1 on the right side but the replacement bone matter had been knocked out and I had zero fusion on the left side. My stim is palced at T6-8 and one doc (the one that placed it) says it is in the right place and the other (the one thaqt did my fusion) says that it isn't and that is why I am getting rib/leg stim. I am in limbo now. My GP has referred me to a pain med management doc to try Suboxone which I am reluctant to do. This morning, September 6 2012, my neurosurgeon calls he is recommending a trial at a different level and/or a pain pump. I have been opposed to the pain pump because I want to be off meds but now I realize it may be my only hope for some semblance of normalcy and freesdom from pain that limits my life so much and interferes with my sleep, sex life, work, playing with my small children, making dinner, cleaning house...notice all those things are normal life stuff, nothing extraordinary like biking or hiking or bungee jumping. I just want to function!!! Lastly, I am allergic to Morphine and Dilaudid. Both have put me into anaphylactic shock. I have not yet had a reaction to Fentanyl but it seems there are a lot of precautionary notices on long term use of Fentanyl. And it also seems that people have to switch around with medications quite a bit. Baclofen and Methacarbamol seem to help a bit for the muscle spasms but my GP won't refill my prescriptions for either of those.
johnb 8507 had a pump put in back in 2009 the pump filled with dilauded the problems started with in a week . severe diarrhea urinary retenion hot flashing and as time went it made my pain worse not better so the doctor kept increasing my dose cousing me to lose three years of my life it was not till my medicare lapst and he dropped me as a a patient that i noticed some thing is wrong i was going in to a rage over nothing and could not fiqure out why it was the meds after i looked into it the pump was not meant to use dilauded in it and after 6 months of withdrawl they admited that they could not stop my constant flu and throbbing body pain they put a low dose of dilauded back in . this med is not meant for long acting pain relief it is meant for end of life cancer pain if you can do not let them start it good luck .
I really hate to see so many people struggling with their pumps and or the medicine. I am glad I didn't come and visit this site before I chose to get a pump. I was in a wheelchair at 32 due to pain and 13 surgeries. A girl hit me while text messaging and driving. She was fine but I had knee, wrist, back, and neck surgeries. Needless to say, I've only had my pump since July 5, 2013, and just got my staples out. I have Prialt in my pump I am at .49 a day and ALL of my pain is gone except when night rolls around then it is hard to sleep. I do a lot of tossing and turning and can't get comfortable. The surgery wasn't bad in fact I guess because my pain tolerance is so high, I didn't really have pain from the surgery...EXCEPT for the horrible spinal leak that made me feel debilitated! I have never had such a migraine and thrown up so much in my life! But the blood patch worked great. My question is, will I ever be able to sleep on my side where the pump is? Does anyone know if eventually I will be able to do this? Thank you for any help You are all in my prayers. God bless you!
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