I have the same pain situation as you all do. We may be in pain for different reasons, but it sounds like the majority of people here are suffering from a pain disorder that has taken on a life of its own. My pain doctor tells me that pain is a disease. A central pain syndrome is one in which the pain becomes a part of mixed messages being sent around your central and peripheral nervous systems, resulting in constant, exquisite pain, often described as "everywhere" in the body. For me, nearly 200 mg of morphine, 120 mg of oxycodone, and 3600 mg of neurontin daily, everyday, has brought my pain experience from 100% suffering to about 40-50% suffering each day. Some days are better than others.
I also have pain "everywhere", including numbness and tingling that is profound, painful, and peripheral-meaning my arms and legs. It also imparts a burning sensation. Sometimes my pain is so bad I can't even stand to have air go over my sking.
I have had numerous falls and have obtained two broken, displaced rib fractures, two grade three concussions (loss of conciousness up to three hours), a separated clavicle, two broken wrists, a broken toe and finger, damaged cartilage and meniscus tear to both my knees, one requiring surgery, as well as too many bruises, swellings, cuts and scrapes, all from falls, in the past two to three years. My left foot is now nearly totally and completely paralyzed.
I also have post-polio syndrome, but the pain is not related to that at all. Weakness is and falls are related. So the two together are not good to have. I have a degenerative spine and disc disease. I have two herniated discs, one cervical and one lumbar, both cervical and lumbar disc disease, spinal stenosis throughout my spine, spondylolistthesis, bilateral foot drop. I have had surgery on my lubar spine for a discectomy years ago and also spinal traction on another admission. I have had several surgeries on my legs and feet as a child due to abnormal walking and weak legs, supposedly from polio.
I, too, have lost my life. I was a registered nurse for 20 years but finally had to quit after numerous falls on the job (and off). I lost my career, my husband (he left for another woman), my children as they didn't believe me so turned their backs on me, my parents wouldn't help me at first, any friends I had evaporated into space, I was left alone in my apartment, barely able to walk, in agonizing pain, and no one called, no one answered their phone, ever, if I called, and I was in excruciating pain, so much I was bedridden. I didn't even have a car, so couln't get to the store and even had to arrange to rent one to go to the doctors. I was just beginning to work with the pain clinic at that point.
As an aside, I thank God for my pain clinic and the doctor who has the courage to stand up against all odds, including impossible red tape from the government that is involved in running a pain clinic. He is dedicated, kind and above all professional. They have at least given me some of my life back , although it will never be the same. I will never go to the beach again, or take part in my favorite active pursuits, which were hiking and camping. I am housebound and largely bedbound. I require forearm crutches to walk or an electric wheelchair for longer distances. The problem is I can't afford a wheelchair van, so this also keeps me housebound. Oh, Lord.