Wednesday, December 02, 2009 joanna asks

Q: My Psych. wants to put me on Cymbalta. I'm scared about it. Please help!!

I have really seen this drug 'bad-mouthed" alot around here. I am really scared to get hooked on another bad drug that nearly had me commiting suicide like Lyrica has, (Honest)! Please, please help me and tell me of any of your experiences with Cymbalta  that were bad. I need to make a desision soon.  Thanks, JoAnneUndecided

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Answers (15)
12/ 5/09 12:06am

hello joanna,

 I am so glad you were able to post this question, OMG WHAT I NIGHTMARE IT WAS FOR ME ,, but the key word is,,,,EVERYONE IS DIFFERENT,IE:,some people can take medications that others cant,,some can take aspirin,some cannot.EVERYONE IS DIFFERENT. I was diagnosed with F.M. just this past September. I have been in chronic pain for as long as i remember,mostly its my back. I am 45 years old. When the Rheum. Dr. diagnosed me, and saw the list of meds i was on ( fent.patch 100 mg/hr every 48 hrs, soma 350mg every 8 hours, hydromorphone 4mg every 6 hours, as well as klonopin for p.t.s.d.,also, i get injections (mostly trigger ) ever six weeks, that doctor looked at me as if I was a druggy,, I told him my goal is to get off all pain meds. He wrote me a script for cymbalta, and i was sooooo happy that Finaly finaly there is hope. I started off with 30 mgs and he wanted me to work my way up to 90mgs. Well i did not make it past my first 60 mg dose, this is what i experienced. I was falling asleep constantly at work. I was falling asleep while driving, i was seeing double almost killed myself or someone else one day on my way home from work. I was commenting on things that were not said (hallucinating. pardon my spelling) i went to the store only to be woken up three hours later, i never got out of my car, fell asleep in the parking lot in my car, with engine running and a concerned customer and store clerk were banging on my window to wake me up. I can go on, but i think thats enough. Those were my perosnal experiences with Cymbalta.,recently i tried Savella, again, same thing, then there is Lyrica, i took that before, it just did nothing at all. I personaly think that these drugs have been recently approved by the FDA, and have not been around log enough. and they are being pushed on us as the wonder drug,, to me it was a wonder drug,, i wondered how i am alive right now to write this. THANK GOD I KNEW HOW TO TAKE MYSELF OFF OF THIS AS I AM IN THE MEDICAL FIELD, dont ever try to take yourself off of anything PLEASE!!!!. now i am trying Neurontin i feel safe with that,but, right now i dont have any antidepressants yet, and i need them,, its just that my body has been through soooo much these past couple of months. I honestly need to learn to deal with more doors closing and less opening at this stage. No matter what anyone says to you joanna, always go with your FIRST INITIAL GUT FEELING, it is never wrong, I wish you the best of luck. I am going to read what the others wrote, as i am curious (exscuse my spelling please)                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                   

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12/ 5/09 2:09am

I am also in the Medical field, or rather, I use to be before everything went to hell after my back surgery and now I can barely walk even with walker. Funny, what you describe about being sleepy all the time. I am not on Cymbalta and I have the contant sleepiness. I get up get cleaned up etc. feel pretty good to go and an hour or less later I am ready to go back to bed. falling asleep wherever I am. I also have tingling in my hands.  

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12/ 5/09 5:56am

hi joanna,

  what kinda back surgery did you have if you dont mind me asking? i am off to work, i will be thinking of you, hope you have a low pain day........

   Linda

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12/21/09 11:59pm

FrownThis may be a good thing, maybe a bad thing. What he is doing is gradually increasing my Mg to see how that works. Boy, something is not working. I have continued to fall out of bed and not realize it until morning when I wake up on the floor, experiencing aches in back side and down the backs of my thighs. Pretty bad too. The most important thing  I think is I can't always say what I want to, came home the other night and started ripping all the clothes out of my drawrs and throwig thrm on the floor. I then told m son to get those clothes out of here. He said but mom that's your stuff. See I had it firmly in my brain that those clothes  belonged to someone else. I halluncinate also. This is some scary stuff.  I hope you don't go throw what I am and I hope you have a great holiday! What happened to your writing my dear?  

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12/ 2/09 7:05am

Hi Joanna,

I can tell you about my experience with Cymbalta. I started on it at 30 mg last November due to depression and FM along with severe back, nerve and joint problems. I am now taking it twice a day. I now take 60 mg in the morning and at night, and it makes me really feel better. I feel like I can cope now.

At one point I was having bazzare dreams and questioned the cymbalta possible causing this. I am also on several other different meds for pain, and I was told some People have reported having this occur and to try to continue on with it which I did. I later learned in working with my Psychologist with psychotherapy that it was something to do with my past that kept surfacing up and we worked on that and that ended the dreams that I was having, so I can't contribute to the Cymbalta in my case after all.

This medication has honestly helped me alot and a side effect from it is weight loss as well which I did end up losing 8 lbs so I have to watch my weight because I only weigh 107lbs and I am 5'4 so they monitor my weight while on the cymbalta.

I hope this helps you, and again, this is my own personal experience and everyone can have different side effects with any type of medication.

You are in my prayers.

If I can be of any more help, please let me know.

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12/ 2/09 5:17pm

Thank you so much for telling me your experience. It helps me with my decision.

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5/22/11 11:45am

Hi Ladybey, I was simply waiting to hear someone say that they went to a psychotherapist to take care of their porblem.  I was thinking to do this and my daughter wants me to also before I start any medication such as" klonopin "that the doctor prescribed me because I have been diagnosed by him of having RBD and my vivid dreams have continued and  I have  gotten hurt by them. I am also 61 and going thru full blown menapause, so it's hard to connect one with the other but I'm still trying to see the simpler alternative and more natural way to cure myself of these reccurent dreams.

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12/ 2/09 2:04pm

Hi Joanna, I will tell you of my experience w/ Cymbalta, over the past 4 yrs. I've been on 120mgs. once daily. While it has helped marginally w/ my depression, it has not helped my pain in any way. Now that's just my experience, and yours may be entirely different. I would like to get off of it but I'm too scared to try since I'm on such ahigh dose and I I'm not sure what will happen. Is your doc wanting to prescibe this for pain or depression or both? Hope this is helpful, Pie.

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12/ 2/09 5:16pm

Thank you for your in-put Pie. He wants this only for an anti-depressant, any "good" side effects such as pain relief is a plus.

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12/ 5/09 12:18am

Hi Joanna,

 I highlyyyyyyyyyyyyyyy recommend ZOLOFT, for an anti depressant, it is so well tolerated, hardly any side effects either,,, and has been around for a long time,,, i dont know what other meds your on, or i could make another suggestion,, please keep me posted, if i can help i will be more than happy to.

                           linda

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12/ 5/09 1:43am

When I first went on antidepressants years ago, I tried Zoloft and Wellbutrin. One made me feel like a space cadet and the other did nothing. Then, I went on Paxil which was wonderful stuff as lonf as I was on it which was about three years before it didn't work any more. Getting off Paxil is a nightmare!

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12/ 5/09 5:53am

wellbutrin has alot of side effects, i believe the "space cadet" feeling you got was from that,,wellbutrin is usually always given with something else, i dont personaly like it, my patients take it, and their side effects have shown that spacey feeling, i think zoloft ALONE,, 50mg and up to 100 works well, then again,, everyone is different,

 thanks for sharing

 Linda

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12/ 3/09 3:45pm

Hi Joanna

I also can only express my experience with cymbalta ... but mine was negative.

I was on it for 6 mos ... it helped with depression but did nothing for pain.  Unfortunately the side effects were terrible.  I began having high bp (always before was low to normal) and it fluctuated constantly, also body temp fluctuated constantly, I started having panic attacks (I had never had them before), it effected my taste and cravings.  Once I realized and could convince the doctors that cymbalta was to negative for me I weaned off of it.  But the withdrawal was horrible.  It took nearly a year for my bp and temp to stop fluctuating.  I either was sweating or shaking with chills.  I had brain shocks (since I suffer with migraines this made it much worse).  It has been 2 years since I stopped taking it and I still feel that there are minor areas that have never returned to normal (most having to do with taste and anxiety).

whatever you decide good luck.  Just remember to listen to the little voice inside of you. You know your body better than anyone else.

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12/ 8/09 5:26pm

I also had been on Cymbalta for 9 months. It helped with pain and depression. I was having cravings and my family thought I was on other drugs. I quit Cymbalta abruptly and ended up in the ER.  I was then sent to my family Dr. to help with weaning. It has been horrible, I'm having anxiety attacks, sweating and nausea for no reason. If I had known the side effects, I would never have started it.

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12/ 8/09 5:45pm

HI

I'm sorry to hear what you're going thru ... I sympathize - it is hell.

the problem with many of these new drugs is that they affect the neurotransmitters in the brain ... cymblata as well as other new ones affect both neurotransmitters at the same time ... they are the area in the brain that control the autonomic nervous system ..... for example - body temp, blood pressure, taste, cravings, etc.

Since they can not test for the level of these neurotransmitters they are prescribing blind - so depending on your particular balance of these neurotransmitters the drug may help, not help or cause havoc.

that is also why when people withdraw from the drug it adversely affects the balance again and everything goes haywire.

It takes quite a while for the body to balance these again ... especially if you have a condition that causes a constant imbalance.

So that is why it is important for anyone taking the drugs to be aware of the possible affects and not to ignore them.

Hang in there I know it is hard but little by little you will your body will adjust - but don't try to push too hard as that also affects the balances ... right now you have to baby your body and coax it back to balance.

good luck.

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4/ 7/11 5:15pm

I had the same response.  Was weaning from 60 mg to 30 mg for a couple of weeks and then got my meds screwed up and ended up going without the 30mg at all.  Experienced the "Cymbalta Crash", anxiety attacks, nausea, unable to eat and thankfully got to my pdoc before my GP put me in  the stress center.  PDoc felt I was detoxed enough to stay off the cymbalta and started me on different meds and it has taken me 6 months to feel good again.  While cymbalta mad me feel better and relieved the pain, I would never go back on it again knowing how hard it is to get off.... If you do decide to stop do the weaning just like they tell you...it might take months but it will spare you alot of really bad stuff.  best of luck!

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12/ 3/09 6:20pm

My rheumatologist put me on Cymbalta close to 2 years ago for my diabetic neuropathy and filbermyalgia pain.  It does take the edge off the pain for me.  Chronic pain can wear a person down and so the other use for depression is also helpful for me to have a better out look on life in general.  I have had very little if any side effects.  The only one that I can gather is sometimes strange dreams.  All in all, the drug has helped me.

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12/ 3/09 7:03pm

Hi, I was a pedestrian who was hit by a car in January 2009. I have chronic lumber pain, cervical pain, hip pain and a torn labrum in my right hip. In addition, I have now been diagnosed depression and anxiety, in other words with PTSD (post traumatic stress disorder). My family doctor prescribed Cymbalta. OMG, I felt sick like a dog for the three days that I was on it. By the 3rd day I felt so sick that I was bedridden. I stopped taking it and I felt better after it was out of my system. My doctor told me that 1 out of 10 people have adverse effects on this medication. He now prescribed Cipralex and I can honestly say that I have not had any side effects. By the way, I have been on Lyrica since April and did not have any severe side effects; my side effects are mostly dizziness, sleepiness, very dry mouth...but nothing as serious as being suicidal. Good luck.

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12/ 5/09 1:53am

I think my negative talk about Lyrica may have confused some. It's not while I'm on Lyrica that I get side effects. It's when I try to go off of it. Twice now I've had to go back on because the side effects were so deadly to me. I hate this stuff and wish my Dr. had never tried me on it.

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12/ 3/09 7:17pm

Hi,

On January 20, 2009 I was hit by a car (I was a pedestrian). I have chronic lumbar pain, hip pain, cervical pain which triggers severe migraines and a torn labrum in my right hip. I use a cane and limp. I take Lyrica, Elavil, Tridural (Opiod) and anti-inflammatories to help me cope with my pain. Next week the specialist will let me know if I need hip surgery. After a few months, I started feeling a lot of anxiety and even had an anxiety attack...my doctor diagnosed depression and anxiety...in other words PTSD (post-traumatic stress disorder) and prescribed Cymbalta. OMG, I felt sick like a dog for the 3 days that I was on it. By the 3rd day I felt so sick I was bedridden. I stopped taking it and felt better after it was out of my system. My family doctor told me that 1 out of 10 people have severe side effects on Cymbalta. He replaced Cymbalta by Cipralex and I can honestly say I have not had any side effects. By the way, Lyrica did not make me suicidal. Whatever you decide regarding Cymbalta, good luck. FDG

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12/ 5/09 2:18am

Lyrica doesn't make me suicidal now either because I am still on it and too scared to get off. I have tried to get off twice and that is when I get suicidal among other things. I've never been on a drug before that did something like this to me. While being on ir, I have tingling hands, headaches and terrible sleepiness and severe dry mouth.

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12/ 3/09 9:09pm

Hi Joanna,

 

Here is my personal experience with Cymbalta. I started off like everyone else at 30mg, it was upped to 60, then a few months later to 90. I have found that I gained quite a bit of weight on it, and was told that I might, but that after several months that should taper off, and it really has. Now I'm currently losing weight and I find I don't have as much of an appetite as I used to.

I concur with the strage, weird dreams......I still get them on occasion but it's not a nightly thing by any means. My mood is *much* better, I don't find it really helps my pain levels at all, but in a way it does, because when you have more stabalized moods, your pain doesn't seem to be as bad (or at least doesn't get much worse) at least in my experience. I hope that you weigh all information given to you, and maybe at least try it- you would probably know pretty quickly if you are going to have major side effects......... I wish some peace and pain free moments for you :)

If you would like any more information, please feel free to let me know. I will help in any way I can.

Lisa Rushing~

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12/ 5/09 11:54am

I can only tell you of my experience with both meds.  Lyrica worked great except I gained 40 lbs. really fast and my dr took me off of it.  I lost the 40 lbs. and more (and am still going down) without dieting.  The Cymbalta was a lifesaver for me.  Reduced my pain and helped my "mood".  I guess I was lucky in that I did not have any of the horriable side effects others have had.  You may be too.  You will not know until you try.  I know when he asked me if I wanted to try some of the newer drugs out I was very hesitant to change.  I don't want to go through getting off of cymbalta and trying another drug that may not work when I know cymbalta does.  I can tell mood wise when I don't take it.  Pain wise I can tell if I miss 2 days.  I take 2 60mg. caps every a.m. along with several other meds.  I love my cymbalta but you have to make up your own mind, hope this helps.

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12/ 6/09 9:53am

Hi Joanna,

 

I have a few questions for you regarding your psychiatrist wanting you to start taking Cymbalta.  First, I am assuming that you have some form of chonic pain so I am interested in why your doctor wants you to try Cymbalta?  Is it for depression, anxiety or perhaps a nerve disorder or maybe fibromyalgia?

 

Since you have experienced problems of feeling suicidal in the past while on Lyrica; I would be cautious as well and I think you feeling that way is a good instinct.  There are other antidepressant medications that do treat depression and anxiety that tend to not have any probem with causing one to feel suicidal thoughts so that might be a better consideration since you have had bad experiences in the past in that way.

 

My own opinion is that some of the older medications such as the tricyclics or even maybe an MAOI could be useful but that also depends on the symptoms that you are having.  So, the more information that you can provide would be most helpful to try to anwer your question better if you can respond with more detail as to why your psychiatrist wants to start you on Cymbalta.

 

I think you are very wise to be cautious with your past experiences with Lyrica and I wish you the very best luck and hope that you can find the answer for what would help you the most.

 

If you would like to answer some of these questions and/or make comments, I would be glad to respond to that as well.

 

Randy. 

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12/ 7/09 9:03am

Hi. I don't usually respond, but I felt that your question was something I could offer some sound input from my own experience on.  I was put on Cymbalta back in late July for FMS by my Rheumatologist.  I went from 30 to 60mg and felt FABULOUS.  I've honestly never felt so good in probably a decade if not more.  I did have the sweating side effect, to the point of dripping in any temp over 75, but I could live with that to feel so good. I went on vacation with my boyfriend in August and we walked all over, ran, WALKED UP the steps in a lighthouse and MILES around NYC.  I didn't hurt. BUT, I did have 3 instances of headaches that were unbearable and almost landed me in the ER while I was on Cymbalta and since my BP would go up during these incidents, the rheumy took me off of it and put me on Savella (which doesn't make me feel as good).  Then in Oct, I went to my Psych and he suggested Cymbalta to which I immediately balked because of the headache reaction. He said that this was by and far the best drug he'd encountered in years and many of his patients were having success at the low doses of 20 and 30mg. He all but begged me to try 30mg and see if it got rid of the last bit of pain and settled the depression and anxiety issues.  I agreed to give it a try and have been on 200mg Savella w/ 30mg Cymbalta since then.  The Cymbalta once again knocked my pain down to nothing AND at the lower dose I didn't have the headaches.  Both the Cymbalta and Savella caused me to sweat.. then again, my boyfriend, a pharmacist, is 99% I've started menopause, so the drugs don't matter much on that!  I honestly think Cymbalta is a great drug. I feel so good taking it and know that even after stopping it, I looked longingly at that bottle knowing how good it would make me feel!  I've NEVER had that kind of longing for a drug... and it wasn't an addiction longing, it was the knowing how well it worked feeling.  My psych swears by this drug and I can see why.  It seems to work well for both sides of the house and if you're not one of the very small minority who has the side effects I've suffered, I think it will be perfect for you.  As I said, it's a small minority who can't tolerate it. 

 

Oh yeah, if you do take it and want to get off. The worst thing about it is the withdrawal.  I felt agitated and just generally like every nerve in my body was "awake" during the stepdown process.  But then, I would have prefered to have never quit it anyway!!! Lisa

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12/ 8/09 2:28pm

JoAnn,

 

I was put on Cymbalta for anxiety and for additional pain relief.  I did NOT like this drug at all.  The only good thing I can say is that it did reduce my pain, however it made me NUTS!  I noticed the irrational behavior happening mostly when I would forget to take a dose.  It was bad.  I would freak out over the smallest things and drop into a deep depression and find myself sitting in bed crying hysterically which it not like me at all.  It really really scared me.  I couldn't wait to switch to another medication.  I know all medications affect different people in different ways but I have never had a reaction to a medication like I had to this one.  I hope this helps in your decision and good luck! 

 

Joanne

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12/31/09 1:25am

I've taken Cymbalta for a number of years , the highest dose being 160mg . I'm now taking 90 mg , it is literally a life saver for me with severe debilitating depression ( Bipolar ) so I am very familiar with many of the drugs that are used to treat depression , anxiety and pain . The side effect I was most troubled with was suicidal thoughts off and on for apx. two weeks when I first started taking it but I knew this was possible so I sweated it out , I know that  that sounds terrifing but the depressions I've experienced and the relief this drug has given me was very well worth it . It can make you sleepy , sick to your stomach , dizzy , dry eyes/ membranes etc. , damage liver and Kidneys , severe constipation but they can all be handled easily enough by keeping a regular /early bedtime in a dark room that is comfortable and quiet , eat a well balanced diet with real protien at every meal ( a little soy or cheese as well as 16 oz redmeat sometime in your week ) stay away from white foods as much as possible ( white flour , sugar , etc.) Eat real wheat pasta , breads , cereals , Staying away from caffeine is a must , buy cracked flaxseed ( Wal-Mart carries a good product ) add 1/4 of a tsp to any soft food you like and over a period of 4 weeks gradually increase it to 1 tbs along with at least one large salad of Romaine lettuce with at least 6-7 other veggies of choice , I drink mostly water and a lot of it , apx 1 quart per 50lbs body weight . For dry eyes I take Fish,Flaxseed,Borage oil ( Wal Mart too ) 2 in the morn/2 at bedtime . Know that your not alone and that if your really afraid to try Cymbalta now then don't there are other things that your Doctor can try with you but so far its made my life a joy again and keep in mind that no medication is without risk so help take care of you too , even though we can all give you our opinions remember that that is what it is and he is your Doctor , trust him to get you well . 

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1/19/10 2:58pm

I took a simulair drug.wellbutren not sure how to spell it but WOW! the side effects were terrible! nightmares i thought would kill me so vivid!!!!,I felt like I was on meth and couldnt drive.my eyes got huge.my heart was racing.. I just wanted it out of my system.....like NOW!   hope this helps....Marsha

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5/22/11 4:37pm

I think the right anitdepressant is hard to find.  Lyrica isn't an antidepressant, its used for treating fibromyalgia and nerve pain. 

 

I am on Cymbalta and I've had no side effects or problems and it is helping controll my depression.  As far as it being a pain med, I don't think there is much in that pill for pain and it is not addictive like percocet and oxycodone and pain meds like that.

 

Sorry, I just noticed the date you wrote this question.  I sure hope all is well with you and you've found some relief.

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By joanna— Last Modified: 08/30/12, First Published: 12/02/09