Wednesday, March 03, 2010 Skye, Community Member, asks

Q: DEA has a Medical license so NO pain patients are allowed opiate medications?

ER doc refuses to even examine or evaluate pain due to history of chronic pain. I tried to explain that this is new acute pain and was handed a printed message stating that their hospital would not give injections or oral narcotics to pain patients due to DEA pressure.

 

This has been going on for months now, I have been told by some physicians that I truely need pain medications, but they don't write scripts for those due to their clinics directives from DEA.

I can barely walk due to pain and have been to  previous pain clinic and told to go to pool therapy..that is now finished. Pain is still increasing. Went to new Pain Program and was told I needed eval by their PT, psychologist, neurologist, MRI of lumbar spine and pelvis x-ray, and releases signed for medical history. PT at pain clinic told me they could only partly help me as my scans and lab tests show significant painful conditions.  I am still waiting for a decision by the pain clinic if they will agree to treat me. I was told if I got all these screenings done he would see me as soon as possible as it was obvious I was in a lot of pain. I called his nurse AGAIN today and was told that next opening to see doctor was April 5th-2 months from now still! Then I was told he could possibly fit me in sooner, my information was on his desk, but he will not be back in that office until next week.

My GP angrily told me that opiates were only for dying patients. I feel so guilty and weak and ashamed by all these reactions to my request for a modest amount of medicine to help me tolerate the pain.

 

Don't tell me to find another doctor unless you know someone who will prescribe to a new patient! No one does in this area, I can't even get an exam!

 

Maybe I should try to find one of the "lonely street drug dealers" that the DEA has told us about through ADS on TV saying everyone gets high on prescriptions for narcotics from doctors, so Dealers don't have any business. Maybe they should advertise on TV so someone decides my need for medication besides the DEA! Has anyone else seen these "public service announcements"?

 

I would go and get drunk but I went through the self-medication phase and have chosen sobriety for a year and a half so my mind would remain clear, I have no history of problems following prescription medication.

 

My mind is not clear due to severe pain. I became an RN because I respected the medical profession and wanted to be a part of it. Now if I want to practice medicine I have to work for DEA or an Insurance company.

Answer This
Answers (48)
MillieKeyLargo, Community Member
3/ 3/10 5:06pm

I live in the State of Florida and pain management Doctor's prescribe opiods to their patients in chronic or intractable pain. You don't need a new Doctor, you need to move to a new State.

Reply
mollyj, Community Member
3/ 4/10 5:20am

Golly, I have been on opiates for pain for at least 30 years.  I live in Mn.   There must be a way to find you a dr. who will prescribe them for you.  I will keep you in my prayers.

Reply
Skye, Community Member
4/19/10 12:37pm

How about giving me a hint of where to find a doctor who will still prescribe pain meds in MN?

In leau of that, your prayers are always welcome.

Thank you.

Reply
Thomas Grinnell, Community Member
4/11/12 1:03am

GOOD GOLLEY MISS MOLEY, THINGS ARE OFTEN NOT AS SIMPLE AS YOU THINK.  I HAVE OBVIOUS SEVERE DISEASE AND MODERATELY SEVERE CHRONIC PAIN- IT IS NOT AS BAD AS IT WAS FIVE YEARS AGO BUT THINGS CAN CHANGE. EVEN WITH THE X RAYS, BONE SCANS AND OTHER "PROOF" THAT MY CONDITION IS STILL VERY DEGENERATIVE- I AM BEING PUT THROUGH THE CLEANERS. I DO NOT WANT TO LIVE IN CONSTANT PAIN WHILE I AM STILL YOUNG. NURSING HOMES HAND OUT PAIN MEDS, OXI IN PARTICULAR LIKE DAMN HALLOWEEN CANDY, THEN, PEOPLE WHO NEED IT, CANNOT GET IT.  TRY TO MAKE ANY SENSE OUT OF THIS AND BE READY FOR MORE PRINCE CHARMINGS TO REPLY WITH THEIR SAVE THE WORLD ATTITUDES ABOUT CHRONIC PAIN. 

Reply
What does it matter, Community Member
5/ 7/12 7:59am

What is OBVIOUS SEVERE DISEASE??????????????What kind of disease?? No doctor says you have OBVIOUS SEVERE DISEASE, so what are you talking about..what is it?  THAT MY CONDITION IS STILL VERY DEGENERATIVE!!!! That sounds crazy/stupid:MY CONDITION IS STILL VERY DEGENERATIVE!!! YOU ARE WRONG saying : . NURSING HOMES HAND OUT PAIN MEDS, OXI IN PARTICULAR LIKE DAMN HALLOWEEN CANDY, THEN, PEOPLE WHO NEED IT, CANNOT GET IT!!!

Are you crazy physicians DO NOT GIVE OUT pain meds like crazy to nursing home patients!!!! BECAUSE THEY ARE OLD, and can fall, so on !!! WOW you need to get off whatever your on!!! The people that REALLY REALLY need pain meds DO GET THEM!!! Sounds like your doctors needs to discontinue all of your pain meds!!!!!

Reply
TonyP, Community Member
3/ 4/13 9:02pm

Do you have chronic pain?  I doubt it from your rather insensitive response.  You sound like a dinosaur that hasn't seen how the understanding about chronic pain syndromes has increased and that most good physicians that keep up with medical improvements, especially how chronic pain is REAL.  Perhaps this person doesn't quite know how to describe her pain to your satisfaction, but that doesn't mean her pain hurts.  Perhaps you should get a little more empathy and MUCH more education.

Reply
justanothernumber, Community Member
11/16/12 7:32pm

Dear Skye, I know apsolutly what you are going through and I didnt like the response about your grammer,How someone spells has nothing to do with it.I was left bedridden for over a year after an endocrinologist in Nebraska diagnosed me with Addisons Disease and my primary Dr vetoid his prescriptions leaving me bedridden for over a year,I had no testoserone in my body,no Vitamin D,No B12 after an all out fight my primary Dr finally gave me a cortisal am and pm test that came back showing that my cortisal level was 3.1 and 2.1 my body raveged in pain,Finally i was put on hydrocortisone but my testoserone and B12 and vitamin D would not stay in my body,I lost my home and everything i owned to get to minnesota in lake  city and I still have yet to be hospitalized,My weight has dropped from 184 to 149 pounds and continues to drop,im 46 and now I have caderacks in my eyes,my body is  in so much pain and yet my mayo Dr whoms ego is  to big and he is still refusing to have me admitted to the hospital so that they can find out what is killing me,perhaps hes afraid that he might get in trouble when specialists find out what is wrong with me,And for people whom dont understand let me educate you,Oxicotton does not get you high,it simply reduces the pain that many american are living with and many not being treated,Yes you can do things to get high on oxi cotton if your a drug addict but in almost all cases these are real people suffering and many commiting suicide because they are not getting the help that they need and some Dr's are so against giving pain medicine that they will even lie on your medical records,when I was in Sweden they wanted to hospitalize me and find out what is killing me but in america patients are treated like an assembly line at an auto plant,15 minutes is all you get and then they move on to the next patient leaving you still sick and getting sicker,Rather people want to believe it or not,There are so many people living in chronic pain because no Dr will attempt to find out why or what is wrong because its just an assembly line,they get you in and out as fast as possible.It is a shame that people are being forced to buy pain medicine from drug dealers because the Dr doesnt have the time or the concern of what the patient is going through and they dont even try to find out why.All of my thoughts and well wishes goes out to you Skye and my prayers as well.

Reply
fancyod, Community Member
8/ 1/13 11:10pm

Your right unless you have power or lots of money. that what it takes in America today, look at Micheal Jackson and other stars all and any kind of drug they want,America is now for the rich and powerful and medicine is big business.We are becoming CORPORATE STATES OF AMERICA instead of THE UNITED STATES OF AMERICA . ARE WE BUILDING THE MAYFLOWER YET?

Reply
mamacardinal4, Community Member
6/ 5/11 3:42pm

i have been on pain meds for 18 yrs i had a great dr who believed in me.. she and i agreed that i should apply for med marijuana card so i did and recieved one. After that she had a family emergency and moved out of state so i was left to find a new dr.. i have no insurance so i had to go to a low income dr.. He prescribed me pain meds last week and i thought finally.. he new i had a marijuana card before he gave me the meds. anyway the reason i had been there that day was for a bladder infection so i gave the nurse my urine.. then i spoke to the dr informed him of my card he gave me the meds.. one week later i recieved a call from there facility telling me i tested positive for marijauna so i said duh it's in my records i have the card.. so i recieved papers 4 days later and they told me no more pain meds due to the marijuana so im screwed again.. wtf? i only use the pot at night at home.. i have kids a job and have to drive so its  only at night. so the pain meds were for the daytime and when i was at work now i suffer all day and night again. the pot only helps so much.. i have degenerative hip and back disease fibromayalgia and arthritis in my knees so i am in so much pain its ridiculous.. what can i do? do i have any rights or is this the grey area where docs choose based on there own biased opinions? and where jobs can say we dont honor that card here even if i am the most kick ass worker they have wth? this needs to be addressed!

Reply
Thomas Grinnell, Community Member
4/11/12 1:15am

I USED TO LIVE IN NORTHERN CALIFORNIA WHEN PROP 215 WAS PASSED.  I HAD AN EXCELLENT DOCTOR AND HE COULD HAVE CARED LESS IF I SMOKED A LITTLE POT.  WE AS PAIN PATIENTS ARE EXPECTED TO FOLLOW MORE STRINGENT GUIDLINES IN THIS LIFE INCLUDING NO NON HARMFUL CHEMICALS SUCH AS THC.  ALSO, I AM NOT ALLOWED ANY ALCOHOL.  I AM IN FACT SUPPOSED TO BE PERFECT.... I AM A DIABETIC AND HAVE A SEVERE MUSCULO SKELETAL DISEASE WHICH CRIPPLES MANY PEOPLE WHO SUFFER FROM IT. I GET HARRASED BY MY FATHER, NURSES AT MAYO FACILITIES, ALL SORTS OF PEOPLE AND YET I KNOW THE "OTHER SIDE" WANTS ONE THING ONLY- TO STOP PAIN MEDS AND SEE ME IN PAIN.  VERY F_ _ _ _ _ D UP.

Reply
angel1, Community Member
6/21/12 1:24pm

can you tell me where u go. In Alaska it is very difficult to find someone that wont tell to try motrin. Ive had chronic since 1995 and only approx 1 year ago got anyone to listen to me. We are moving to Seattle in July and help with drs

would be great. thanks

Reply
Thomas Grinnell, Community Member
4/11/12 1:31am

I DO NOT WANT TO BE MEAN BUT PLEASE LOOK OVER YOUR POSTINGS BECUASE GRAMMATICAL ERRORS AND MIS SPELLED WORDS JUST PUTS MORE AMMUNITION IN THE ANTI PAIN MEDS SIDE.  THESE KIND OF THINGS MAKE US LOOK HIGH OR NOT IN CONTROL OF OUR FACULTIES SO EVEN MYSELF INCLUDED AS I WROTE ONE REPLY TONIGHT BUT LOST CONTROL OF MY LAPTOP AS THE BATTERY WORE OUT SO I COULD NOT CORRECT GRAMMER ERRORS AND I AM DISAPPOINTED IN MYSELF. I AGREE WITH MEDICAL CANNABIS BUT, THINK ABOUT ONE THING- IT MAKES PEOPLE WITH CHRONIC PROBLEMS LOOK OUT OF CONTROL THIS WE DO NOT WANT, EVER.  PAIN IS NOT DIFFICULT TO TREAT BUT LACK OF EDUCATION AND COMMON SENSE IS.  I AM NOT TRYING TO BE MEAN, BUT LOOK WHAT SOME PEOPLE POST: They mis-spell and argue with VERY poor communication skills and that makes them look NOT very smart. This is too bad.  I am guilty as well but I do try to fit things in one "illegal" paragraph.

Reply
jody, Community Member
11/11/12 5:20pm

Thomas, that has nothing to do with if you have pain or not IMO.. you know a lot of ppl are not good with spelling and that has nothing to do with if you are taking opiates or not.. i don't know where you get that from but i think you must have misunderstood.. Of course if you want to show me what makes you think that or if you have some kind of proof that if you don't know your grammar or spelling you are not going to get pain meds than i would be happy to read it but please don't make those that can't spell well and are not good with grammar feel inadequate within themselves.. thats not very niceFrown

Reply
Tara, Community Member
1/29/13 10:01pm

omg you are funny you are being mean My boyfriend cant read or write well so he is not smart I dont think so education or proper spelling DOES NOT MAKE U LESS knowledgeable He has more experience to know what works than a well written docter I see no need for technical mastering unless its used for a purpose I deem worthy and if u understand the person it does not make their case less important if not spelled correctlly You my friend are societlly brainwashed

 

Reply
pudbrock, Community Member
8/ 2/12 10:43pm

before i got my meds i smoked pot at night like 2 to 3 puffs if i went over my nerves would go bad my husband said if id do it dureing the day it would calm my nerves but, it makes me nervous if all my work isant done id never drive thats just 2 to 3 puffs i have taken more and, prayed to god please if u help me ill never do this again , people we are in trouble i want to see what people are goiing to do  sad day in kentucky for the good people

 

Reply
Norma, Community Member
1/17/13 8:39am

You can take Hemp Oil. Hemp Oil in your diet will make a world of difference! Give it a whole month before you judge, but I'll bet you start getting better in about two weeks.

Hemp Oil, the kind that is made from the seed, can be found in Health Food Stores.

Reply
Thomas Grinnell, Community Member
4/10/12 6:59pm

for some reason, the DEA is becoming more scumlike all the time- pain patients are usually the honest ones. Most pain patients have gone thru the rigors of "doctor shoping" because they are forced to.  IF Doctors would do thier jobs such as providing treatments that do the least harm then we would not have to worry so much.  Instead, the scum people who do NOT need meds for pain management have coellesed into a society of abuse and it gives legit patients bad reputations. This is extrememly frustrating and I do not understand why these people have to make life that is barely tolerable even more difficult. I am diabetic and I refuse my insulin if they refuse to control pain. I suggest legit patients refuse food or other necessities until someone listens and controls pain in the safest, most effective way.  Pain is not difficult to treat, addicts are- most legit pain patients can be identified as their diseases leave the body beaten and broken.  It is not difficult to see this on x rays and other imaging so do not give up. WE PAIN PATIENTS NEED TO ALL GET TOGETHER TO FORM A SOLID POLITICAL BACKING/PLATFORM some may not like it but President Obamma is open to our thoughts. I wrote him and I am not saying it was becuase of me, but he came to Rochester, I asked him to wink on television if he got my message-he did, yet Doctors moved me from room to room, then, they said not to send anymore letters to the President- how democratic, how truly AMERICAN. NOW, MY FATHER TAKES EVERY CHANCE TO TRASH OBAMMA, HE KNOWS IT JUST GETS ME GOING. PAIN PATIENTS NEED TO GET ATTORNIES AND OTHER NECESSARY MEMBERS AND THEN SUE ON BILL OF RIGHTS ISSUES SUCH AS NOT INVOKING OR PROMOTING EXCESSIVE SUFFERING. SUFFERING IN CONSTANT PAIN IS NOT FUN, I DO NOT HAVE TO EXPLAIN THIS TO PEOPLE WITH TRUE CHRONIC INTRACTIBLE PAIN. MY PROBLEM, I AM AN EMBARRESMENT TO MY FATHER BECUASE I NEED PAIN MEDS TO FUNCTION SOME WHAT DECENTLY-MY FATHER BLAMES ALL MY PROBLEMS ON MEDICATION AND NONE ON THE ACTUAL DISEASE PROCESS. MY BROTHER HAS A FRIEND WITH THE SAME DISEASE, I HAVE A HIGH SCHOOL FRIEND WITH THE SAME DISEASE- NONE OF  US A MARRIED AND IT IS NOT BECAUSE WE TAKE MEDICATIONS, IT IS BECAUSE IT IS DIFFICULT TO ASK SOMEONE TO "SHARE" THIS LIFE.  PAIN AND SUFFERING AFFECTS ALL PEOPLE AROUND YOU, FAMILY, FRIENDS, EMPLOYERS, EVERYBODY IS AFFECTED EITHER DIRECTLY OR INDIRECTLY. I HAVE BEEN HARASSED BY NURSES AND OTHER STAFF AT MAYO, SOME FAMILY MEMBERS BLAME THE FACT THAT I AM NOT MARRIED AND HAVE A FAMILY ON THE SIMPLE FACT THAT I AM ON PAIN MEDICINE- NOT THAT I AM DIABETIC AND HAVE MODERATE TO SEVERE CHRONIC PAIN.  WE May have to take things back to the 1960's where we do sit ins or simply refuse food and medication until someone listens. I CAN TAKE A LOT OF PAIN, I AM NOT SUPERMAN BUT I CAN TAKE A LOT-BUT, I CANNOT TAKE CONSTANT, DAILY BOMBARDMENT OF MY BRAIN WITH PAIN SIGNALS OR WHAT IT DOES TO MY BODY- I HAVE HAD ONE HIP REPLACED, IT WILL NEED TO BE REVISED AND ANOTHER WILL NEED TO BE REPLACED AS WELL AS KNEES AND OTHER JOINTS MOST LIKELY.  WHY THIS IS SUCH A PROBLEM, I DO NOT KNOW.  ALL I KNOW AND I HATE TO SAY IT IS I WOULD RATHER BE DEAD THEN LIVE WITH THIS KIND OF PAIN AND THAT IS WHAT PROVIDERS NEED TO UNDERSTAND- IT IS VERY DIFFICULT TO GET ANYONE TO UNDERSTAND THIS YET WE NEED TO GET TOGETHER AND KEEP THIS ISSUE ON TOP OF WHERE IT GETS ENOUGH ATTENTION. EVEN IF I WAS NOT IN CHRONIC PAIN, THE NURSE HERE STEALS MEDICATION FROM THE MED CABINETS- I ASKED FOR A RECIEPT AND FOR MEDS TO BE COUNTED AND THE STATE TO COME IN WEEKLY AND SPOT CHECK MEDS AND DO UA'S FOR THE STAFF NURSE- EVERYONE ELSE I PRETTY MUCH TRUST BUT THIS GUY, HE IS A DRUG TAKING LUENATIC AND THAT IS WHY HE COULD ONLY GET A JOB HERE.  I HAD A RELIABLE DOCTOR IN NORTHERN MINNESOTA AND MY MAYO DOC IS MORE CONCERNED WITH HOW HER PRESCRIBING LOOKS TO THE STATE THEN HOW HER PATIENTS SUFFER- THIS BOTHERS ME VERY, VERY MUCH. THEY USE MY BRAIN INJURY AS A REASON TO DENY ME MEDS. THEN, IN A NURSING HOME, THEY CONSTANTLY PROVIDE OXYOCNTIN TO ELDER PATIENTS WHO DO NOT NEED THE MEDS AND THEN DENY YOUNGER, SICKER PATIENTS MEDICINE THEY NEED TO FUNCTION AT A JOB OR SIMPLY IN THE "REAL" WORLD.  NO ONE HERE USES A PAIN SCALE WHICH SHOULD BE GETTING USED ON A REGULAR BASIS AND IT SHOULD BE CHARTED AND FOLLOWED.  AT MAYO AND THE NURSING HOME, THEY TRIED TO USE PLACEBOS AND I WAS QUITE AWARE WHEN I WAS NOT GETTING THE RIGHT MEDICINE AS MY PAIN WAS NOT CONTROLLED- AS ANY LEGIT PAIN PATIENT KNOWS, BEING IN PAIN ALL THE TIME MAKES IT DIFFICULT TO FUNCTION, HERE, WE DO NOTHING ALL DAY SO THAT IS A PISS POOR EVALUATION OF WHAT A REGULAR DAY IN LIFE IS LIKE- IT IS EASY TO KEEP OTHERS IN PRAYERS WHEN OUR OR YOUR PAIN IS BEING TREATED, BUT, WHEN IT IS SOMEONE ELSE, THEN, THINGS DO NOT HAPPEN- WE HAVE TO BE PERFECT, NO ALCOHOL, NO NOTHING. I AM ALSO A DIBETIC SO I AM SUPPOSED TO EAT PERFECTLY AS WELL. NO SNACKS, NO THIS AND NO THAT, I AM SO SICK OF THE WORD NO I AM GOING TO REMOVE N AND O FROM THE ALPHABET-MAYBE SPEAK CHINEESE.  I PRACTICALLY HAVE TO BEG FOR BREAKTHRU MEDS AND THIS IS OUT OF HAND, THIS DOCTOR, SIMPLY DOES NOT TAKE MY WORD FOR WHAT TOLERABLE PAIN IS- EVERYONE IS DIFFERENT.  AS SOON AS I AM RESPONSIBLE FOR MY MEDS, I WILL MAKE SURE I GET ENOUGH TO BE AS ACTIVE AS POSSIBLE AS THAT IS WHAT I WANT.  PAIN IS TO BE RATED BY THE SUFFERER, NOT THE OBSERVER- SIMPLE AT THAT.  AT THE NURING HOME I WOULD HERE ELDER PATIENTS ALMOST BEGGING FOR OXYCONTIN THAT THEY DID NOT NEED AS IT IS OUT OF HAND THERE- OTHERWISE, OXY SHOULD BE SAVED FOR PATIENTS IN LEGIT CHRONIC PAIN, JUST BECAUSE YOU ARE OVER 70 YEARS OLD DOES NOT MAKE YOU INSTANTLY A PAIN SUFFERER- THIS IS FOOLISH BUT MOST DOCTORS ARE STOCK HOLDERS IN THE MAKERS OF OXI- SO THEY HAVE TO PRESCRIBE AS MUCH AS POSSIBLE IN NURSING HOMES AND THE SUCH SO THEY MAKE MONEY- THEIR ANSWER FOR SUCK FOOLISHNESS IS ALWAYS: THESE ARE OLDER, DYING PATIENTS.  AS IF THAT IS SOME KIND OF LEGITIMATE BOUNDRY FOR PAIN- IF YOU ARE YOUNGER, YOU SHOULD TAKE A DIFFERENT MEDICATION THAT KILLS YOUR KIDNEYS AND FRIES YOUR BRAIN- I HAVE BEEN EVALUATED ON OXY TO SEE IF I COULD THINK, PROBLEM SOLVE, ETC. I PASSED WITH FLYING COLORS SO WHO EVER WANTS TO SAY MY MEDICATION IS INTERFEREING WITH HOW I THINK- KISS MY ASS.  I AM PROBABLY MORE INTELLIGENT THAN YOU AND I KNOW MORE ABOUT ABUSE AND PROPER USE THEN ANYONE.  I SMOKED POT SO IF I EVER DO IT AGAIN- I AM OUT AS FAR AS PAIN CONTROL GOES. I DRANK ALCOHOL ONCE, I AM OUT AS FAR AS THAT GOES, THE DOCTOR WAS QUITE EXPLICIT AS FAR AS THAT GOES, DO NOT DRINK AGAIN! OK, I GET IT, I AM SUPPOSED TO BE PERFECT.  I AM A DIABETIC SO I MUST NEVER EAT SOMETHING SWEET, I AM A PAIN PATIENT SO I MAY NOT EVER USE ALCOHOL OR ANY OTHER "ILLICET" TYPE OF "BRAIN CHANGER" AND MY DOCTOR TOLD ME I HAVE BEEN SITTING AROUND ON MY ASS FOR LONG ENOUGH ON DISABILITY SO I HAVE TO GET MY SHIT TOGETHER- OK, THEN YOU HIRE ME FOR A JOB- EVERYONE ELSE BREAKS THE LAW, THEY LET POTENTIAL EMPLOYERS KNOW WHAT MEDICATIONS I AM ON, ILLEGALLY RELEASING PRIVELEDGED MEDICAL DATA, AND THEN, THEY SIMPLY DO WHAT EVER THE HELL THEY WANT.  TELL ME DOCTORS DO NOT PUT THIER HANDS IN THE "PILL JAR" WHEN THE HAVE SIMPLE PAIN- A SPRAINED ANKLE OR SOMETHING THE REST OF THE WORLD IS SUPPOSED TO LIVE WITH- DOCTORS ARE THE BIGGEST HIPPOCRITS, THEN LAWYERS.  WE ALL KNOW IT, THOSE OF US WITH ENOUGH GREY MATTER TO ACTUALLY PROPOSE SUCH A THOUGHT-THE OATH OF HIPPOCRITES, NOW WE KNOW WHY AND WHERE HIPPOCRITE CAME FROM, SOME OF THE BIGGEST HIPPOCRITES ARE DOCTORS- FACE IT.  ONCE, I WANTED TO BECOME A DOCTOR, NOW, I DESPISE DOCTORS, NOT ALL OF THEM JUST MOST. 

Reply
What does it matter, Community Member
5/ 6/12 9:48pm

You sound like you are CRAZY, and one of those DEMANDING patients, THINKING that will get you what YOU want, NOT what you NEED!! I AM AN EMBARRESMENT TO MY FATHER BECUASE I NEED PAIN MEDS TO FUNCTION SOME WHAT DECENTLY-MY FATHER BLAMES ALL MY PROBLEMS ON MEDICATION AND NONE ON THE ACTUAL DISEASE PROCESS. Think about it, your father is more than likely telling the TRUTH, you probably take too much pain meds, because why else would you father say such a thing? Almost everyone sometime in life gets something that causes chronic pain, more as they get older. But most of them DO NOT go to pain management. Sounds like you just want PAIN MEDS! Also sounds like you  are a TWO YEAR OLD, I am diabetic and I refuse my insulin if they refuse to control pain. I suggest legit patients refuse food or other necessities until someone listens and controls pain in the safest, most effective way........now you sound so childish........you sound like a TRUE ADDICT, in this while post you posted says ADDICT all over it!!! As in:  AS SOON AS I AM RESPONSIBLE FOR MY MEDS, I WILL MAKE SURE I GET ENOUGH TO BE AS ACTIVE AS POSSIBLE AS THAT IS WHAT I WANT.  You are crazy, old people DO HAVE REAL PAIN,   AT THE NURING HOME I WOULD HERE ELDER PATIENTS ALMOST BEGGING FOR OXYCONTIN THAT THEY DID NOT NEED AS IT IS OUT OF HAND THERE- OTHERWISE, OXY SHOULD BE SAVED FOR PATIENTS IN LEGIT CHRONIC PAIN, JUST BECAUSE YOU ARE OVER 70 YEARS OLD DOES NOT MAKE YOU INSTANTLY A PAIN SUFFERER- THIS IS FOOLISH BUT MOST DOCTORS ARE STOCK HOLDERS IN THE MAKERS OF OXI- SO THEY HAVE TO PRESCRIBE AS MUCH AS POSSIBLE IN NURSING HOMES AND THE SUCH SO THEY MAKE MONEY- THEIR ANSWER FOR SUCK FOOLISHNESS IS ALWAYS: THESE ARE OLDER, DYING PATIENTS. AS IF THAT IS . You are a NASTY , NASTY , NASTY, DRUG SEEKING MAN, you tTHINK ARE right about evverything & think you know everything, in fact you are and know NOTHING...................but a SORRY ASS ADDICT that is the ONLY one that has pain, and no one else does. Looks like you are NOT getting what YOU WANT thou, what does that tell you...................YOU DO NOT NEED IT!!!!

Reply
pudbrock, Community Member
8/ 2/12 10:26pm

i agee with u all the way

 

Reply
Apada, Community Member
9/13/12 4:05pm

I think you showed no insight or sensitivity toward the person who you were responding to. He clearly mentions a brain injury or head injury or something, and the points he was trying to make were clearly made. A person does not write that long of a post, restating the same points, with the specific "sound" that it had simply because he or she is a drug addict, so it would probably have been smarter and far more compassionate for you to have either not said anything or at the very least given your opinion without calling names and insulting him.

Reply
What does it matter, Community Member
9/13/12 7:09pm

Frankley my Dear I don't give a da#% what you think!!  I said what I meant and meant what I said, and I stand behind what I said, and continue to feel the same way! It is what it is!!!   Surprised

Reply
Pink187, Community Member
10/24/12 9:04pm

I'm sure glad I'm NOT at the nursing home YOU work at!!

Reply
MMT, Community Member
10/27/12 6:15pm

I work as a Medication Management Technician, I have worked at a lot of nursing homes.

 

I am the one that in accordance to the Charge Nurse and Doctor's orders/pescriptions administer various medications to the patients in these facilities.

 

Patients in nursing homes are sometimes given Oxycontin for pain, ONLY IF prescribed by their doctor. The doses of Oxycontin given to the elderly are very low doses (in comparison to younger people or drug abusers). The average patient is sometimes given 5 mg Oxycontin, some of the others receive Vicodin, at 5 mg, some take Tylenol.  Sometimes these patients may only takes 1/2 or NONE of the above doses, which is dependant on the pain scale rating that the patient is experiencing that day.

 

This may seem like a low dose to many people, but one has to take into consideration that when one becomes elderly, their metabolism slows down, the effects of drug(s) may be potentiated by age and/or present conditions, so a dose of 5 mg should be very effective in pain management under these conditions.

 

Patients that are bedfast, sometimes even do receive the above mentioned opoids and sometimes as necessary receive very strong pain relievers such as Morphine Sulphate, but again at very low doses. Any opiate pain reliever is typically given to the elderly is low doses and the frequency depends on the severity of the pain as the Doctor deems necessary. Nearly all opiates can cause respiratory depression, the administration of any opoid must be monitored closely so as not to impair respiration possibly further. Extreme caution is exercised when opiates are given to anyone, especially the elderly.

 

Opiates used for pain relief in the elderly is used in a way as not not potentially cause organ damage or even failure, since the drug(s) metabolite could cause renal failure, kidney impairment, etc.

 

There seems to be a myth that large doses of strong opoid pain relievers are given to patients at nursing homes. This is definately a myth.

 

 

Reply
uneek1nsc2002, Community Member
6/ 6/12 9:04am

do you think??. its all politics BABY. 

Reply
LynDeisel, Community Member
8/11/12 8:34am

I have 2 thoughts. 1. I would like to oin with you and Lobby against them as a group. 2. How would we do this, without them finding out our names, prematurely and avoiding us as patients, EVEN MORE. Pl;ease write. I am a reired shrink and my fiance suffers terribly, fromn Agent Orange and soldier -related injuries of the spine.

 Lynne

Moderator's note; For your privacy and security, please do not post personal contact information such as email addresses and phone numbers.

Reply
sweetsugar, Community Member
10/ 2/12 1:14pm

you are so right I moved back to NY and they took me off of 2 out of 3 meds and lessened the amount I am now out and very sick Dont know of i should go to ER or not, I think this dea stuff is just as bad they said the same to me only 1 script, I am going to them tommorow and thats 7 days early I dont care i need to fight I am now in pain and now withdRAWING      hELP    LIKE WHAT YOU WROTE

Reply
Tom Tele, Community Member
1/15/13 1:10pm

Actually Molly, you got in before the hysteria. Having a 20 year paper trail as a legitimate intractable pain patient does mean anything. Only if MD's revolt and refuse to treat DEA agents will there be anychange.

Reply
Summer76, Community Member
2/11/14 1:09pm

I read your response to a lady talking about pain meds you had mentioned that you have been on pain meds for the last 30 yrs where do you go Iam having trouble finding a doc. I have so much pain from head to toe is sucks my life is pretty much on the couch please let me know that would be great

Thank You

Tiffany

 

Reply
shay, Community Member
5/ 2/14 5:07pm

Can you private message me with your Dr info...I have been to a couple of pain clinics...I suffer from neuopathy and have a hard time finding anyone who will treat it. thank you.

Reply
jennifer, Community Member
4/15/11 12:49pm

I live in the state of ky, there are so many addicts here, even though i'm in pain every day of my life. I have C34567 thats degenerative and osteo arthritis. T89and 10 the same and L2345 same but L4and 5 i have a disc fragement extruding into the spinal canal, i have has 3 surgerys on my neck and no good, people wan't to say crap on here but, it's really hard to live in every day chronic pain.S o can anyone help me is it illegal to go out of the state to the dr for pain because, i sure would not sell my meds i need them. 

Reply
vi, Community Member
9/ 8/11 2:47am

yes it is leagal go to anouther state Ga. has some good docs and fla too. if worst comes to worst you can get poppy pods in the mail,you can poses them legaly as ornimentals or floral araingements.you can grind the pods up and make a tea that will definently help controol pain for up to 8 hrs. a cup,it is bitter so use sugar.I have used it myself manny times to get me through,you can legaly grow poppies  for seeds to make bread or decoration.I have used morepoppy.com and you can have relief within 3 days that is what people have used for pain relief since the beginning of people. for real,no dr.runaround or geting meds that

 are worthless.just be carefull and do a little research about it.I have grown my oun for 2 years and I thank God for the papavier somniferous poppy.  God bless and get some relief

Reply
Spyz, Community Member
4/18/12 4:14pm

i  agree--i know its been a while since your post but i noticed when i uploaded my mri that countysheriff is part of the installation program--i think that means they can better moniter my pc use so i rarely look online--i live right below you in TN--yes it sucks here--they prescribed me for oxy30mg which TennCare would only cover a few so i paid cash for the rest-my PM rebuked me and i said if ya'll knew how the hell to do your job then ins. would have covered it--I was discharged for language and received a letter refferring me to various rehabs and psych facilities-i wnt to a new PM and it'll be another week for them to determine if they can help me--if not poppies are the way to go----back to the reason for my reply: i understandt they require tons of sun-i live in a shady apt--will they still grow or do i need to move to europe like the rest of my ailing family has?

Reply
Thomas Grinnell, Community Member
4/11/12 1:49am

I am sorry Jennifer- (I love your name) you have been thru hell.  I used to work in Surgery in Norhtern California and have seen many spines all messed up. My spine is auto-fused from lower cervical to my sacroilliac joints and pain is constant so there I can understand but someone ripped apart your spine and failed to put it back together correctly- sounds like one HELL of a LAWSUITE.  I am not sure, but see if you can consult with a attorney becuase someone needs to be sued for everything they have and more.

Reply
wanda, Community Member
7/26/12 11:55am

yeah i agree with jennifer. I just left my dr and he said i can only got to a pain specialist that is board certified to get pain meds . I have fibermyalgia, narcalepcey, broken let with screws backing out and broken arm with screws backing out. I am in so much pain and i have a 5 year old and a sick husband to take care of. In the mean time i will go threw withdraw and be so very sick. I want to just die not and i know that is not an option. if anyone finds someone to help me find a doctor that will see a self pay person that is very very broke please let me know. I hate this new law and the goverment is screwing the little people that really needs medication.

Reply
pudbrock, Community Member
8/ 2/12 10:38pm

i also in the state yeaterday went to doctor she smiled at me and said u have to go somewhere else to get your meds , sounds like your back is worse then mine all i know i cant move in morning and, my back and right leg has we speak is really in pain i still have my pain med has of now they have to take u off 10 perccent at a time sooooooooooo todday i just got angry didnt take it i walked like a cripple very angry grumby by 2oclock i had to take my meds and, still hurting , also each person has a pain tolerence , now if i cant get my meds i need i hate to start drinking nor will it help maybe pot i just dont know this is so unfair to the people that have no back grounds of drugs and, im like u i cant spare my meds to no one i need them cant beleve the united states they will let sick people hurt in pain take care of the trash and, help us u dummys this will change my whole life i dont know if i can live like this my nerves are shot when i cry i cant stop my 3t year old i take care of hears voices i have a 15 year old home a bipolor husband 4 dogs im 52 do u even know what women go through at 52 and even younger women are dangerous u are makeing homes break up my marriage will end i wont be able to leave the house its just over and, i know it  what kind of life is liveing with pain and nerves so bad i cant talk or hear loud sounds im a gonner please if something happends to me let who ever did this know he killed me

Reply
Hammer, Community Member
9/12/11 5:39pm

Please read my reply to the question  you responded to and help me I live in pen. Fla. and need help. Thank you.9/12/2004

Reply
Le musique, Community Member
12/ 6/11 4:13am
I live with in California, 40 years old. For some 9 years now i have contended with, severe Mylomalacia, severe fibromyalgia, severe chronic back of neck pain which results in severe numbness and tingling in the lower extremities. I also contend with sleepless nights due to this kind of Chronic pain. Physical fatigue is also another challenge I must face. My closest relative who suffers from the residuals of a liver transplant drinks opium tea from a lady who distributes it in China town somewhere. How come Opium Tea is unavailable for those of us who genuinely need it? I've spent the last 9 years trying everything from pain relief creams, electro-stimulators, heating pads, accupressure and acupuncture, nit to mention reflexology, had chiropractic work done. My wife and I have also tried all of the fly by night juices from the Amazon jungles, antioxidants, and you name it, we've n doubt tried it. Will there be or is there a way to receive opium Tea for those of us (go already got to pain mangmt, and visit a neuro- surgeon every 6 weeks for an exam) who really need it? Signed, Too old to have to continue overwhelmed-sweating through these problems which don't go away. (help) Reply
Wendy, Community Member
4/ 9/12 11:57pm

I too live in Fl, but no doctors here will even give out pain meds anymore.  I go to pain management for my morphine.  But, when the pain office makes a mistake and I go for my appoitment and the doc is out of town, I have to suffer and I mean suffer, If I were an animal.....then would have mercery on me and put me under.  No other doctor will touch me, they wont even believe...the fact that the doc office forgot to call and reschedulle my appoitment......so I can get my monthly refill of my pain meds.  So because I live in the great pain mill state of Florida..........I suffer like I was in hell.  Its not fair......I even went to the ER and guess what .........I got nothing........but a look as if I was a junkie...its sucks....I can only rely opon one doctor.....why..........because they think here in florida that if you have great pain and get morphine every month for over 3 years.....you are a junkie or selling your meds on the street.  When the truth is ....Im in such great pain...I cant sleep, eat, watch TV, love, live, laugh, enjoy life.  Thanks Florida and the.dea.

Reply
Thomas Grinnell, Community Member
4/10/12 7:30pm

I can sympathize with you Wendy, I wish I could offer you an answer. All I can do is say keep trying and if you can, move to another state with chronic pain legislation. I know I am making it all sound easy, I know it is not. My generation is now the ones who are doctors and such as well as other generations but we do weild the power-so I am VERY disappointed in my generation and their unwillingness to do what is right. This is eventually going to lead to an all out war if things do not change and that is where DOCTORS need to listen and get their act together- endless suffering and pain makes for VERY DESPERATE people/patients. I KNOW, I AM ONE.  I SAY, REFUSE FOOD, REFUSE ALL OTHER MEDS, IF THIS IS THE ONLY WAY TO GET REAL RELIEF, DO WHAT EVER IS NECESSARY UNTIL YOUR LIFE IS TOLERABLE. FORCE DOCTORS AND THOSE TREATING YOU TO USE AND THE 1-10 PAIN SCALE AND KEEP A RECORD, GO OVER IT WITH YOUR DOCTOR(S) WHEN EVER YOU VISIT. BECOME VERY FAMILIAR WITH ALL POSSIBLE TREATMENTS AND ONLY GO WITH THE SAFEST AND MOSR EFFECTIVE- WHICH IS MOST LIKELY PAIN MEDS NOT TRICYCLIC ANTI DEPPRESSANTS, THEY ARE A JOKE AND DO NOTHING, ASPIRIN, TYLENOL AND IBUPROFIN WILL KILL YOU IN THE LONG RUN SO I KNOW THIS IS NOTHING NEW TO YOU- SO IF YOUR PROBLEM IS LONG TERM, MOVE IF YOU CAN, OTHERWISE STRENGTH IS IN NUMBERS SO MY NAME IS THOMAS, I LIVE IN ROCHESTER, MINN AND I AM NOT AFRAID OF PUBLICITY. I AM AT WING HOUSE, A PLACE FOR NEURO REHAB--THE NUMBER IS IN INFO AS I DO NOT HAVE IT ON ME- DOCTORS HATE NOISE AND THEY CANNOT STAND PEOPLE IN NUMBERS. MR OBAMMA IS OPEN TO OUR PROBLEMS, BUT AGAIN, THEIR IS AN ELECTION COMING UP, THIS CAN BE AN ISSUE IF WE MAKE IT ONE- AS I SAID, STRENGTH AND NOISE IS IN NUMBERS- RAISE HELL, USE THE 1-10 PAIN SCALE, KEEP AFoot in mouth RECORD, KNOW YOUR DISEASE AND ALL POSSIBLE TREATMENTS- USE ONLY THE SAFEST, MOST EFFECTIVE ONES- THAT MAY BE NARCOTICS, IT MAY NOT BE, BUT 90% OF THE TIME, IT IS.  DOCTORS JUST HATE THIS BECUASE IT MEANS THEY ACTUALLY HAVE TO USE THEIR PEN NOT JUST THEIR CONDESCENDING VOICE. ALWAYS KEEP A RECORD- AND NOT TO GIVE YOU A HARD TIME, BUT CHECK SPELLING IN YOUR POSTS- THE MORE INTELLIGENT YOU LOOK, THE LESS "MESSED UP" YOU LOOK. I DO NOT THINK YOU ARE, BUT DOCS WILL USE ANYTHING TO MAKE YOU LOOK BAD. I PROBABLY MADE SOME SPELLING ERRORS IN HERE. HANG AS LONG AS YOU CAN- Wink

Reply
Pink187, Community Member
5/25/12 11:22pm

Thomas: I LOVE your posts!!!! I HAD to reply! My brother lives in N. CA & my husband is a med marij user since he cannot take pain meds. I live in IA & up til this week, I never had a problem! WHAT THE HELL IS GOING ON???? Michael Jackson? Doctor shoppers? Pill junkies? What about those of us, through no fault of our own, have to live with severe pain EVERY SINGLE DAY FOR THE REST OF OUR LIVES???? I have always been very careful with my meds, so all the stories I'm suddenly being told (which, if you read my post goes into more detail) have all been LIES! I've been with this same RA doctor for almost 12 yrs! Never lied to get meds, never been dishonest, nothing, EVER! I guess he thought I wasn't smart enough to fight back-HA! The worst thing you can do to me is accuse me of something I DID NOT DO & NO ONE BELIEVES ME! I will throw down at the drop of a hat for that! So, now I will have to go through withdrawals, that without dr supervision, could kill me due to adrenalin spikes, BP overload, etc. I have 3 kids 11-22 & 2 g-kids 4 & almost 1. I can't just stop my life & get off because I can't move from the RA. He couldn't have picked a worse time either. This past year I've had MORE physical damage from the RA that you can actually SEE, than the 20 yrs I've had it (auto-immune disease runs in our family-I have a cousin w/Scleraderma, my Uncle died from RA/Gout, all my kids, my Mom, her sisters & one of my G-kids have Renaud's). I've HAD it with Obama, the DEA & gov't in general. Thomas, your post was an inspiration. I'm always up for a good fight for the right thing....count me IN! Thanks!

Reply
Apada, Community Member
9/13/12 9:21pm

Hi. I know this post is old, but I'm curious to know what happened that week that caused you the problem? I may have just missed it in your post but I didn't see what happened. Also I'd like to know if you made it through okay or if you found a new doctor or some other solution?

 

Thanks and I hope you are well.

Reply
Thomas Grinnell, Community Member
4/10/12 7:43pm

Millie- don't be so rude- not everyone is able to find a doctor so easilly, I have always has decent Doctors until I moved to Rochester, Minn. home of the "GREAT" Mayo Clinic. Mayo has ALWAYS had a reputation for avioding prescribing pain meds for any lenght of time to non- terminal patients- this is a fact- there are always exceptions but you or someone you know may not be one- if you are truly in pain 24/7, you will not speak to others in such a way - where the hell is your compassion? YOU are possibly one of those who believes you are the ONLY one in legitimate pain and EVERYONE else is full of shit. People like you have ALWAYS rubbed me the wrong way- I say that leaving my name and where I am from so if you do not like it- say it to my face or over the phone with some guts and dignity- otherwise keep your non assisting trap shut- the only one your helping is the DEA and non compliant Doctors- TOM Rochester, Minn  Home of the all knowing and "great" Mayo Clinic- that is with complete disregard if you don't get it. YOU appear to be one of those people who believe only YOU are in signifigant pain.

Reply
scdunbar, Community Member
5/13/13 12:59pm

Just don't move to Florida! Sure, you'll be able to get an exam, but forget about getting your prescriptions filled!

 

Reply
Victor Fed, Community Member
1/ 5/14 2:15pm

I have severe sciatica and chronic lower back pain,I had a plate put in my spine F4. My question, are the "red flag" laws more severe or less in regards to prescription drugs,such as pain medications,in the state of California

Reply
sandra foster, Community Member
3/ 5/10 6:15pm

hi i am so sorry that you are suffering so much .i dont live in the states im in england.things are a bit different here .but not that much .i have had fibro pain for two years and have had to fight for pain meds .they dont want to give them to you ;they cost to much.if you run out early its like youve comitted murder.your made to feel like a convict.its hard enough coping with your pain .let alone fighting for pain relief.fibros not taken seriously. the doctors think im overeacting but like you. im in agony .even with pain relief. somtimes i think if this carrys on.i dont want to live anymore .at the moment im on lyrica .that helps .it does reduce the pain. but there are a few side effects.like dizziness and mood changes.but i would take anything to get rid of this pain.i dont know what name lyrica is under in the states but its worth a try.a lot of people say it has helped them.i hope you find some help. and peace .my thought are with you.       sandy.

Reply
jhazel, Community Member
3/25/10 6:43pm

I did not see what state you live in but there are some services on the internet like DoctorsonDemand.com that have pain management physicians in most states that will see patients with current medical records. It looks really good since you only have to see the physician 3 or 4 times a year for  your chronic pain and the physician does Tele-consultation exams instead of traveling to his office or taking time off work. People need to understand that people in pain for years need some sort of relief and the pain is not going away.

 

I hope it helps :)

Reply
Skye, Community Member
4/19/10 12:47pm

Doctors on Demand also require your credit card information up front for billing $299.00 to see their doc with all your medical history. They also do not mention if their services are covered by med insurance, and say that their ability to prescribe 

Schedule II narcotics has been severely limited by legislature. Then they sent an e-mail stating that they are searching for doctors in my area.

 

I am on SSDI the past 9 years due to pain so do not have resources to spend beyond my health insurance and Medicare insurance.

 

All this information raised a lot of red flags for me about if the company was able to provide the help I need. I am glad it seems to be working for you.

Reply
mherron111, Community Member
4/13/10 8:05am

This has nothing to do with the DEA.   The Drug Inforcement Administration does not tell a physician who or who cannot be treated with medication.

 

This is about whether or not the hospital emergency rooms want to take care of patients with emergencies and  acute problems.. or not.

 

The emergency department is for patients with emergencies and acute problems.

 

Chronic pain is not an acute problem and its definitely not an emergency just because you ran out of your pain pills.  

 

You need to establish a relationship with a primary care physician or get your primary care physician to refer you to a pain management specialist.

 

Emergency Departments do not want to be involved in the prescription drug trade.   ER doctors get bombarded with prescription entrepraneurs daily....people trying to get drugs out of them to sell on the street.   They are also bombarded by people who are addicted to narcotic pain medication who need their fix.

 

I understand that people have legitimate chronic pain, but the emergency department is an inappropriate place to manage chronic pain.  I understand that you're frustrated , but if the ER doc knowingly gives you narcotics and also knows that you are a frequent user of the emergency department seeking narcotic pain meds or that you are addicted to narcotic pain medicaion...and something happens to you  like drug overdose, the ER docs can be held responsible and lose their license. ....in some instances doctors have been brought up on charges of murder for supplying known addicts with narcotics who subsequently die from drug overdose. 

Reply
Skye, Community Member
4/16/10 10:27am

Did you take the time to read my message?

 

I am not a "frequent flyer" of the ER for pain meds. I was told to go there for an evaluation for severe pain on top of chronic pain by 2 of my medical doctors.

 

The ER doctor TOLD me that the DEA had been so aggressive about limiting RX for pain meds that they had a written change of policy for the whole state university medical system.

 

He declined to even examine me for new injuries and new types of pain symptoms.

 

Please quit "blaming the patient" for needing help with pain in spite of pain therapy for more than 10 years.  We face enough negative judgements for "complaining" about pain and drug seeking/whining.

Reply
mherron111, Community Member
4/17/10 5:36pm

If you are "in pain", inspite of pain therapy for 10 yrs, then you need to tell that to your pain management physician, not the ER doctor.

Reply
Skye, Community Member
4/19/10 12:34pm

You still did not read my post correctly. I have consulted with BOTH my primary pain doctor and my psychiatrist who BOTH told me to go to ER. I suppose they knew my need was valid yet did not want to deal withthe red tape themselves.

Reply
Skye, Community Member
4/19/10 1:21pm

Since I started this string I have been to a pain management program assessment by a Neurologist, Psychologist and Physical Therapist for terrible foot pain that has been diagnosed as chronic pain from neuropathy for a number of years. 

This foot and ankle pain pain got suddenly more severe and hurting differently in new areas the beginning of last year. Can't you have acute pain on top of chronic pain if something new develops? I don't understand why not.

 

The neurologist said my neuropathic pain was chronic so no pain pills except cymbalta and flexaril which I am already taking with limited relief, and referred me to an Orthopedic Surgeon for Chronic Arthritis! I have to wait another month for that appointment. I have no idea what he can do for me as in the past 10 years I have been through 3 pain clinics trying to find something non-narcotic for pain.

Why is it still regarded as "chronic" pain when obviously the symptoms have become different and I am very afraid of losing my mobility completely due to the current increased pain. I have already started looking at scooters, etc. so I can still go out, but why not allow me less pain if that is going to be my future?

 

Well, I have no idea what the Ortho doc can/will do. I guess he can always refer me to someone else for having chronic fibromyalgia, and then they can refer me to another Physiciatrist for chronic imaginary pain, and then.........

 

 

Reply
mherron111, Community Member
6/ 8/10 8:02am

You should not see an orthopedic surgeon for arthritis...You should see a Rheumatologist.

Reply
maggie, Community Member
11/11/12 1:11pm

I am in a pain management clinic where the doctor does not prescribe much medication and blames me for not being able to succeed with a surgically implanted pain pump. My family doctor can not get me into another pain clinic despite obvious medical evidence of my severe chronic pain. The most often used excuse is that my pain history is too complicated and my pain is too severe. Is there an alternative to pain management? Something like hospice for nonterminal chronic pain patients.I am so tired of jumping through hoop after hoop, and kissing you know what for just a little help, a little help only when my pain doctor has an audience or is in a semi-decent mood. I have lived with pain all my life and the pain became nonstop and very severe about 10 years ago. I have learned that I would rather be considered an addict than hurt to the point of wanting to die. By the way, I have seen a very wide assortment of medical and mental health specialists over the years and I become more hopeless with each one.

Reply
tonyo, Community Member
2/17/11 11:59am

ook. i understand what your going thru only cuz i had to. i hd what drs. said was, rsd, neuropathic pain. this is somewhat a misdiagnosis. it is true, but it may be much more. then it was crps, then fibrimyalgia with arthritis, and more. what i had to do was "GO TO THE BEST PHYSICAN YOU CAN FIND' stop wasting your time, money on counrty or town drs. i finally went to Emory in Atlanta, Ga. it was 215 miles away. on the fisrt visit, they did a skin biopsy and blood work. found i had a nerve disease called "small fiber neuropathy" a devestating disease on top of hepititis C. since then i have had some small success with a new pain management. but you still have the problem of trying to get ahead of the pain. which you or them will never be able to do. good luck. this may be a shortcut thru a lot of waiting and suffering. go get a skin biopsy now! if you havent had one. seriously, this i found to be the best way to determine what and may be the problem. to many cooks spoil the sauce!!!!

Reply
medtruth, Community Member
2/28/11 1:31am

Since you obviously know so much about medicine why in the world did you go to the E.R. for chronic pain?  No wonder the E.R. Physician saw "red flags."  You already mentioned that you have an addictive personality, have you thought that your G.P. and other physicians you have been to could pick up on this as well?  Perhaps you need a straight shot of truth; get over your pity party and cowboy up!

 

There are plenty of Pain Mgmt. Specialist in every state albeit Alaska.  By the way, what is wrong with seeing a psychiatrist for an evaluation?  If what you say is true and your pain is legitamate, then the evaluation will reveal just that but if your looking for your next "candy" fix; well your probably right in not going to that appointment!

 

Reply
Tom Tele, Community Member
11/11/11 11:08pm

I don;t see her knowing any more about medicine than anyone who has had to fight for relief. The snarky, insinuating tone of some of these posters shows the extent of opiophobia. Neuropathic pain can be as intense as amputating a limb without anesthesia. Wrap your mind around that. Pain that intense cannot be lived with. Period. End of story. It shows our lack of empathy that only those who have had intractable pain ( Skye, that is what you have, I think) or have had a family member with pain understand this issue. The reason the doc said go to ER is why my partner is at one now. It documents their pain. This helps any doctor who actually will help some cover. 

Reply
cmistaya, Community Member
9/26/12 12:12pm
I completely agree with you about these people posting thinking they know everything. I also have nerve pain. From my legs, arms, neck and upper back. I also just found out I have severe arthritis in my back also to add to that. My regular Dr. won't prescribe pain meds for the nerve damage because she doesn't believe in that though if you have an injury she will but nothing chronic, and she diagnosed it. She claims she can't see how pain meds help nerve problems since they are suppose to be for muscular problems. She does have me on Tramadol for arthritis. She then sends me to a neurologist who tried to use me as a guinea pig. Some of the meds he put me on I could not function. One was an anti seizure drug that literally felt like it paralyzed my brain. I could hardly think or do anything and then he got mad and dropped me when I refused to take it. His response was do you want something that works or suffer with the pain. That drug was so bad I told him I would suffer since I could not even think for my self on it. Besides it did not work. She then sent me to another neurologist. Now before going any further between both neurologist I took a fall and injured my back. It happened at night and I could hardly move so my son drove me to the ER. They ran X-rays but luckily did not break anything but they could tell I wasn't able to move and put me on a pain med. They gave me Percocet at the ER and a prescription to fill in the morning. I am allergic to two pain meds and they were told those but what do I find when I pick up my script, one of the meds I am allergic too. So I call my Dr. And she has me come in immediately and puts me on Percocet. End of that story. Now back to second neurologist. After talking to me a little bit about my problems and what meds I am on and why he then accuses me of working Drs. For pain meds because of that fall. All because I had two scripts for pain meds. I had to tell him over and over almost at the point of wanting to yell at him what had happened. He disappeared for a while and I know what he was doing. I could hear him on the phone since his office was next to my room. He came back with a different attitude though no apology. He prescribed me on Percocet which I only needed at night since that always seemed worse. I had found out between neurologist that klonopin and tramadol worked well for me during the day just not at night. That lasted a short time because he decided on the 3rd or 4 the visit I was addicted to tramadol and took me off, that was my arthritis med originally. Now my regular Dr. Finds out and gets mad at what he did and tells me I can't see him any more but still won't prescribe Percocet. Right now the only way I can handle it and now it is getting worse even during the day is take a shot of whiskey. It does work but I really don't like doing that. At least with Percocet if it isn't to painful I can cut it and take half a dose and it will last me almost all day until night but with taking a shot it last a few hours and that is it so then I am back to the pain and I won't take another one. It seems the medical field is just against pain meds. I know they need to protect them selves now that there are laws where they can loose their license but why can't they just wake up and when they know for a fact someone has something wrong painfully prescribe what the patient knows what works. Only real reason I can't get them from her I believe is because of that statement she made that pain meds can't possibly work for what I have. The issue is the medical community has just admitted my nerve problem really exist and just gave it a disease name but they don't know how to treat it yet. Why not listen to those who have it. Reply
cmistaya, Community Member
9/26/12 12:13pm
I completely agree with you about these people posting thinking they know everything. I also have nerve pain. From my legs, arms, neck and upper back. I also just found out I have severe arthritis in my back also to add to that. My regular Dr. won't prescribe pain meds for the nerve damage because she doesn't believe in that though if you have an injury she will but nothing chronic, and she diagnosed it. She claims she can't see how pain meds help nerve problems since they are suppose to be for muscular problems. She does have me on Tramadol for arthritis. She then sends me to a neurologist who tried to use me as a guinea pig. Some of the meds he put me on I could not function. One was an anti seizure drug that literally felt like it paralyzed my brain. I could hardly think or do anything and then he got mad and dropped me when I refused to take it. His response was do you want something that works or suffer with the pain. That drug was so bad I told him I would suffer since I could not even think for my self on it. Besides it did not work. She then sent me to another neurologist. Now before going any further between both neurologist I took a fall and injured my back. It happened at night and I could hardly move so my son drove me to the ER. They ran X-rays but luckily did not break anything but they could tell I wasn't able to move and put me on a pain med. They gave me Percocet at the ER and a prescription to fill in the morning. I am allergic to two pain meds and they were told those but what do I find when I pick up my script, one of the meds I am allergic too. So I call my Dr. And she has me come in immediately and puts me on Percocet. End of that story. Now back to second neurologist. After talking to me a little bit about my problems and what meds I am on and why he then accuses me of working Drs. For pain meds because of that fall. All because I had two scripts for pain meds. I had to tell him over and over almost at the point of wanting to yell at him what had happened. He disappeared for a while and I know what he was doing. I could hear him on the phone since his office was next to my room. He came back with a different attitude though no apology. He prescribed me on Percocet which I only needed at night since that always seemed worse. I had found out between neurologist that klonopin and tramadol worked well for me during the day just not at night. That lasted a short time because he decided on the 3rd or 4 the visit I was addicted to tramadol and took me off, that was my arthritis med originally. Now my regular Dr. Finds out and gets mad at what he did and tells me I can't see him any more but still won't prescribe Percocet. Right now the only way I can handle it and now it is getting worse even during the day is take a shot of whiskey. It does work but I really don't like doing that. At least with Percocet if it isn't to painful I can cut it and take half a dose and it will last me almost all day until night but with taking a shot it last a few hours and that is it so then I am back to the pain and I won't take another one. It seems the medical field is just against pain meds. I know they need to protect them selves now that there are laws where they can loose their license but why can't they just wake up and when they know for a fact someone has something wrong painfully prescribe what the patient knows what works. Only real reason I can't get them from her I believe is because of that statement she made that pain meds can't possibly work for what I have. The issue is the medical community has just admitted my nerve problem really exist and just gave it a disease name but they don't know how to treat it yet. Why not listen to those who have it. Reply
Apada, Community Member
1/30/12 10:24pm

Wow. It's amazing how you people do NOT know how to read! She never said she went to the ER for chronic pain, she went because she developed different pain and did not know what it was. Because of this new ACUTE pain, her doctor(s) (both the Psych and GP) told her to go to the ER. What is so difficult about understanding this?

 

And for the record, everybody has an "addictive" personality especially if they take opioids. Opiods ARE the best treatment for chronic pain and the doctor can't just not treat her simply because of a suspicion or paranoia. Not if he is already treating her. The AMA requires a doctor to change the medication if the patient says their pain is not being controlled by the current treatment. If he/she does not, he/she can be sued for malpractice. 

 

And you should really watch your tone with people. You try so hard to shame her about needing her "fix" as if she wants to be the way she is. Having chronic pain is a horrible thing to have to live with. MANY of us would sincerely rather be dead. So we wind up taking prescribed, narcotic pain medication, which is known to cause physical dependency without fail. NOT the person's fault. After you have been taking that medication for any period of time at all, of course you become physically dependent on it. That's what it DOES!

 

At best, the medication only lessens our pain because sadly, most pain doctors do not know yet that one has to maintain an effective level of the opioid in their system 'round the clock in order for it to work properly. (None of this "take as needed" crap).

 

So what commonly happens is a person who is hurting, is hurting so bad one day that they take an extra pill. It would be an abnormal person who wouldn't take an extra pill if their pain was out of control. Only the doctor gives you exactly enough to get to the next month. So the person has now shorted themselves. Still, when you are in enough pain, you will do anything to stop it.

 

Now comes the end of the month and that person is out of their medicine.(This, of course, is not the only reason one might run short on their medications). No matter what the reason, the person WILL go into withdrawals. They will get extremely sick and the original pain they had will increase 10-fold. Muscles will begin cramping, the skin will literally hurt just to touch, they will feel like they have the worst flu in history, they will cry, become enraged, and sleep will not come no matter what. Physical withdrawal is, for sure, hideous to endure.

 

The person will then do just about anything to stop that feeling because it IS agonizing. This will happen to drug addicts who use for fun, and it will happen to those who take prescribed medication only out of necessity for their pain. For those who fall into the second category, it is especially sad that we have to risk that sort of experience just to be able to live and even sadder that we have to endure ignorant comments like yours.

 

Based on your extremely closed-minded, flippant remarks, I presume you do not have to endure such a nightmare every single day of your life. With any luck though, you will.

 

 

 

 

Reply
THOMAS GRINNELL, Community Member
3/ 7/12 9:32pm

I do not mean to be "flippant" or derogatory, but don't ever put yourself in a situation where you are judging some one elses pain. IT is not realistic, nor is it fair- we are called humans for a reason. If we were superhuman, we would not need medcines or drugs, I know 90% or more of LEGIT patients feel this way.  I was JUST denied my pain medication AGAIN and I know it. SOMEONE is either STEALING IT, OR SIMPLY DEINYING IT.  I know the staff here do all sorts of street drugs, which i could really care less, but when you are in a position of passing meds, you damn well better not be doing illegal drugs- it will eventually cost you your job, it will cause your employer major difficulty, in this case the *** deseves it- if you are legitimately taking narcotics for chronic pain, withdrawl should be a minimum- I know becuase I have gone thru it a number of times and never was it a big deal, even when I was taking 240 mgs of Oxicontin daily, and 20-30 mgs of Oxycodone for breakthru every 24 hours.  I know the scumbag RN here is stealing meds, I know it.  The state or the DEA needs to come into this place and drug test EVERYBODY. My meds are going somewhere, and with the amount of street drugs going through this place by employees, I can guess where all the prescription drugs are going- trade anyone? I bet ANY amount of money.  The biggest withdrawl I had, was some sweating, no severe shakes, no vomiting, no nothing- a little sweating and some minor chills- that is all. That IS NOT what happens to drug addicts- they go through SEVERE withdrawl.  They puke all over themselves, they shake and can't even hold a glass of water steady- so when you know what your talking about - post a comment.

Reply
KatherineFromSF, Community Member
7/16/12 9:10pm

Thomas: I suspect the reason your withdrawal symptoms are mild is due to your mental illness...is your dx schizophrenia or bipolar or similar?!  It is a documented fact that many (if not most) patients with comorbid diagnoses of serious mental disorders DO NOT EXPERIENCE WITHDRAWAL like 'normal' people do.  Be they street junkies / addicts / or pain patients, their brains just work differently. 

 

I would bet my life savings that this applies to you. 

Reply
Apada, Community Member
9/13/12 2:44pm

Katherine,

 

This information about mental illnesses and withdrawals can't be accurate because I am most definitely bipolar but on the two occasions that I have been forced to withdraw from my pain medication I went into God-awful withdrawals. Maybe it's just schizophrenia? I don't know. I've never heard such a thing but I sure as heck wish it was true! Smile

Reply
KatherineFromSF, Community Member
12/ 3/12 12:58am

Hi Apada,

No, the absence of withdrawal symptoms is certainly not something ALL persons with (serious) mental illnesses are *lucky enough* to experience.  However, for those whose illness is accompanied by hallucinations (as in some forms of schizophrenia and--though, less often--in bipolar disorder) many of the worst withdrawal symptoms (anxiety, insomnia, restlessness, nerve agitation, etc. etc.) are NOTIcEABLY ABSENT. 

I have witnessed this firsthand--and, subsequently--interviewed many patients and done much research on the phenomena. 

Perhaps further investigation into why such patients are unaffected will lead to treatment for those who are...    

Cheers,

Katherine

Reply
Apada, Community Member
12/ 3/12 1:24pm

Katherine,

 

Fascinating. I often wondered why a "newer" friend of mine was so casual about my withdrawal from opioids and his past withdrawal from opioids and other street drugs. I have learned since that he has a family history of schizophrenia and he, himself, is a little...different though not diagnosed. Now it all comes clear. :)

Reply
Missy, Community Member
9/13/12 2:42am

Couldn't have said that better myself----Ditto! You are right on!Embarassed

Reply
Missy, Community Member
9/13/12 2:46am

Apada---A great response!

Reply
adrianabyars, Community Member
4/15/12 6:15pm

I know this is a tad off the subject...but have you found out what your new "Chronic Imaginary Pain" actually is yet?  I'm wondering, because I have RSD/CRPS in the right side of my body.  It started in my foot (after breaking it...it healed fine) amd then moved up my leg, to my hip, my hand/arm/shouler/neck!  I am in "Imaginary Chronic Pain" as well.  However, I have been diagnosed.  Research it...ask your doctor about it.  Getting diagnosed may help significantly in your search for help with managing your pain and help finding the right pain meds for you.  Let me know if this has been any help at all.  Good Luck!  

Reply
Skye, Community Member
7/10/11 10:23pm

nasty. shame on you sarcastic!

 

Reply
jds6262, Community Member
10/20/10 8:07am

yes you are right i am tired of people calling me a drug addict until you have been in pain for years then dont even open your mouth you dont have a clue what we are going though

Reply
johnson, Community Member
2/16/11 4:19pm

I am 63 been crippled for 19 years  with intractable pain, been operated on 4 times and everytime I go to the dr. or pharmacy they treat me like a criminal! We need to move to another country that treats us better. In mexico the same drugs are 1/7 the cost and a $20.00 office visit.With a copy of the prescription you can cross the border with your medicine.A 90 day supply is reasonable.The dea should be closed because they need to get a real job. They haven,t and never will stop drugs from comming into this country.It's a waste of the taxpayers  money and they make 90%  of there arrests on nickel and dime people who are addicts selling pills to pay for there habit. That should be handled by the police department. Those people should be put in rehab programs with three strikes and then give them six months in jail cold turkey.As long as people want drugs like prohibition there will always be drugs. Each state should have dispensaries and charge a tax and we would lose the criminal element in this country.Life is very difficult for most people and I would rather the taxes from legalizing went to alleviate the real problems in society. like more jobs and food on the table and free medical care paid by the 30-40 million people who use cigarettes, alcahol,grass,and pills.Why let beuracrats tell us what we can and can't do when they have been stealing our tax dollars to fund wars we don't want. I know we lost 3000 people in the twin towers, but 40,000 people died in traffic accidents.and five times that were injured. This country needs to wake up and take this crooked government down and replace it with sincere compassionate people who care .We are Americans and now they treat us like state citizens with different laws for every crime with unequal punishments in each state.Whaqt a load of crap they have been feeding us all. When bush was appointed president by the supreme court the country and constituition ended.Hillary clinton got screwed as did Gore. 16 years of bush crap. What a dictatorship in this country. They switch dictators only  by party name.

Reply
Jen, Community Member
4/ 2/12 3:20pm

"The DEA should be closed because they need to get a real job."

 

Yea, but just look at how many of the politicians buddies have jobs that they ARE NOT qualified for!!! For this to change, we need a all elected officials to be honest and not accept bribes from the companies that they write the laws to regulate and put people from the medical profession in positions at the FDA that understand the difference between physical dependence and addiction, right now the DEA thinks they are one in the same. Until we change who runs this country and EXPECT our elected officials to do what is right for the country and the American People and not just for themselves and we continue to allow them to accept bribes this will never change. The DEA, FDA and USDA along with all other regulatory agencies are run by former executives from the companies that they regulate and when their term in government service is over they will go back to the industry that they just finished writing regulations for, TALK ABOUT THE FOX RUNNING THE HEN HOUSE. If we are ever to be able to expect our regulatory agencies to work for us and not the industry they regulate we MUST chane who works in these agencies. We need a Ralph Nader running every goverment regulatory agency if we are ever going to get them to act in the best interest of America and the American People.

1) 2 Term Limit for ALL Elected Officials

2) Lobbying is Outlawed with severe penalties for the violators on both sides

3) Maximum of a $100 per year per person donation allowed to any politician or political campaign or any person involved in a campaign with severe fines and jail time for ALL violators

4) Puiblicly funded elections with a monitary cap that will allow an average person to be elected

 

Reply
Raven, Community Member
6/ 6/11 10:07pm

i understand your problem i recently was discharged from my pain clinic in ky because they screwed up the urine test and i was on some powerful meds now i will be suffering withdrawl not to mention pain again i have a brain disease and it brings a whole set of horrific problems i aslo wonder can i do anything to this so called dr for just dropping me like he did and not putting me on a step down program so i dont have the withdrawl or what

Reply
THOMAS GRINNELL, Community Member
3/ 7/12 9:04pm

Brain disease or TBI's are a wonderful excuse for Doctors to get you to say what they want, to do what they want, to basically completely screw up the program which works for you.  Somehow, what needs to happen is a HUGE class action lawsuite filed against ALL physicians who refuse to treat LEGITIMATE patients with chronically painful situations or diseases.  It is not for me to determine who is legitimate or not- that is the ENTIRE problem we all face.  I have been told my disease has "burnt out" which is bull- it can easilly be measured by lab tests and other bloodwork to establish what amount of inflammation is currently going on within ones body- it is not always an effective test of pain- I don't mean to say it is- the best way is to ALWAYS use a pain scale of 1-10 but knowing ALL people have different tolerences for pain.  I am in Minnesota and had a wonderful physician who treated me with complete success- I was active, I did as much as I could physically tolerate- now some people will tell you that you have to "play" the role of pain patient.  You have to look like your in complete agony all the time- you have to whine and cry like a newborn baby to look like you are in pain- avoid those people at all costs- they are worthless.  You only live once, everyday pain is not controlled and you cannot be active is a wasted day.  Doctors should have to be responsible for these "wasted" days in chronic pain patients lives. I know a lot of people will just say toughen up and take it- these people usually have no clue what severe chronic pain is like.  There are always the "extrodinarry" people who can take more pain than I personally believe is possible- I simply say good for you if you are one of these people- but do not for a moment think that you can evaluate or believe you can tolerate more pain than someone else- it is not realistic nor is it a humanly respoonsible tactic.  EVERYONE is different, that is why we are human beings, I can tolerate HUGE amounts of sudden short acting pain, but when it comes to days and weeks, I CANNOT.  I do not consider myself special, I do not consider myself tougher than the next person, I make mistakes and get frustrated with people who complain- I apologize for those moments to each and everyone whom I made these comments to- please people, we are all different, we all can tolerate different amounts of pain. Where I am at now- certain people take my medications, some give them to me, some steal them, this happens so frequently in Nursing homes it is pitiful.  ALL of these places need undercover nurses and staff to find out where all the damn pills are going. I was just handed my 8pm meds- no pain medicine.  WHO THE HELL IS TAKING THEM? On a scale of 1-10, my pain is about at a five, I am not crying, I am not whining, but within four or five hours I will be the biggest **** I have ever known, and I have known some real ****heads in my time.  WHat I am afraid of is what I am capable of when this gets out of hand- and it will.  I have had one hip replaced, ten years ago, it will need to be revised, the other one will need to be relpaced within ten years at the most.  I may need knee replacements, shoulder replacements, you name it - I just may need it- or maybe not.  I do not know -  I cannot read the future.  All I know, is that I was just denied my meds, again.  My patinece is wearing VERY thin-  I am near exploding and this would not be good- for me or anyone else.  WHY can people just simply do thier jobs? I am prescribed certain meds- just give them to me when you are supposed to- otherwise you made the "list" and when ALL my patience is gone- the list becomes valid, and my life is worthless- I begin collection and do not be on the list. You only have one life as we all know- you can only make the most of what you have- I pity people who live in constant pain- it makes life rather, hell, I cannot even think of the proper word, but worthless comes to mind.  I won't judge you so do not judge me- if you do, leave your name and address so we can "DISCUSS" the matter.

Reply
What does it matter, Community Member
5/ 7/12 7:39am

You are a DRUG SEEKER...............just listen and read and re-read and keep don reading again and again what you  have wrote!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  You only live once, everyday pain is not controlled and you cannot be active is a wasted day. Doctors should have to be responsible for these "wasted" days in chronic pain patients lives. I know a lot of people will just say toughen up and take it- these people usually have no clue what severe chronic pain is like.  NO PHYSICIAN is responsible for how "much pain you are in", they DO NOT EVEN HAVE TO GIVE YOU ANY PAIN MEDICATION, if they choose not to....it's up to them. No One can make them give you pain meds, that's entirely up to the PHYSICIAN, after all it is there license no one else's !!!! You know there are plenty of people WAY WORSE THEN YOU, that DO NOT TAKE ANYTHING, they but there BIG GIRL PANTIES ON and DEAL WITH IT!!!!! Laughing

Reply
nurseg, Community Member
5/23/12 11:42pm

LOL why r you even rading these posts if they piss u off so bad?  im pretty sure people come her for advice, not sarcasim so if you dont need advice, just stop rading! all you r doing is geting off by being a bitch to ppl! Drs are assholes!!  i am an rn and have chronic pain, from car accident EIGHT yrs ago, sveal surgeries on neck and knees an they want to operate on back, i said NO ! medicine is the ONLY thing at this point that helps get me thru my day, i repeat it helps, does not cure or take away 100%!! so stfu cause you have no idea!! an yea my dad died from cancer an took no meds,so it can be tolerated by some but everyones different! these drs have u by the balls put u on meds an can balil on u without notice, an make u go thru wd! nothing u can do about it, an they know it, but most ppl dont know when tratment is started, so ppl need to know , if they want to drop u or u mess up,even just once,  it is legal for them to let u go thru wd!!  cruel an harsh, but legal!!

Reply
MMT, Community Member
10/27/12 7:29pm

I realize that you pose is old, but I hope the following information to be helpful to you and/or others.

 

It is not that uncommon for false positives to turn up on a drug screen nor is it that uncommon for false negatives to show up, Yes : false negatives.

 

There are a lot of PMD's who are currently using a laboratory called Ameritox. They use a mc/ms to determine the amount of drugs in one's system and by using their "golden, billiond of dollars a year) GuardianRX process Ameritox has been trying to "ease" the minds on doctors afraid of losing their license, etc., who prescribe opiates for cp by stating that the process that "Ameritox" uses is based on a huge data base of compliant patients on the same medication(s), and that Ameritox can supposedly determine how much of the dose and the frwuency of the dose(s) arein the ccp urine. The process does not take into account one's metabolism rate, the amount of fluids prior to submitting a UDT. Many ccp have been being wrongfully discharged for either not having the approprate level of the prx'd drug(s), too much of the drug(s), and also it is common with this lab to show false positives for drug metabolites for drug(s) which have not been taken by the ccp. The lab has also been sued for results indicating false negatives for the prx'd drugs for their cp.

 

Milennium Laboratories won their lawsuit for false advertising against Ameritox this July, 2012 where after many experts in the field of gc/ms analyis testified to the fact that "it is not possible to accurately determine the frquency and exact amount of any drug(s) taken using the GuardianRX process. Reportedly Ameritox did not even have a "huge" database of compliant patients to form a compliance curve from either.

Ameritox was required to submit in writing that to all of their clients, ie, doctors/clinics stating that theor process was not as accurate as advertised.

 

In summary, many people are being cut-off from their doctors wrongfully due to various imperfections, mix-ups and jsut simple bad analysis.

 

 

 

Reply
Pink187, Community Member
10/24/12 9:02pm

Thank you! I get SO tired of being lumped in with the pill popper junkies. I wish the same people who think we don't "need" opiates & that we'll be just fine with Tylenol (I can't take it due to being a transplant patient). Then there are those that want to judge whether or not we need pain meds (I've seen a few on this board). First off, I would never, ever presume to decide whether or not someone's condition warrants ANY type of treatment as I'm not them, plus it's not for me to say whether someone's pain is serious enough to warrant pain meds. Some people have a higher pain tolerance than others, just as some people have a higher tolerance to pain meds & may need a little more than someone else. Once again, it's not my place to judge. What I DO know is that I have Rheumatoid Arthritis & because I have this disease, now I'm a transplant patient as well (bile duct). In the last year (I've had it for 20 yrs) my toes curl under, my fingers are crooked, my hips are older than I am, I have Baker's cysts behind both knees & I'm on my 4th biologic in 11 yrs. I have a house, kids, a husband & pets to take care of, plus I've never been a person who just sits around & does nothing. When I get up, I take my pain meds & watch Steve Wilkos until they kick in, then I can start moving around & getting things done. The meds don't make me "loopy" or sleepy like they do some people, they do the opposite, so I'm able to get the things done I need to. I still have pain, but they make it easier to take care of the things I need to take care of every day. As far as those that want to either judge me or tell me that I don't need them, my answer is: spend an hour in my body & then tell me I don't need anything for pain or that there's nothing wrong with me that warrants opiate pain meds. But then again, I wouldn't wish RA on anybody. Thanks for allowing me to post!

Reply
johnson, Community Member
2/16/11 2:03pm

when i moved from texas the pharmacy in florida would not fill the prescription. I made an appointment with a new dre. as soon as i got here but it was a month down the road. I went to the hospital because i could not breathe and went into severe withdrawals and they said they don't write pain meds. I showed them my texas liscence and gave them my doctors phone number and he told them that i was not an abuser and i really needed my medicine until my  doctors appointment and they did not care. They charged me 350.00 dollars and did nothing for me!Thanks for nothing Aventura Hospital,Aventura,florida.

Reply
gypsyatl, Community Member
1/30/12 6:35pm

Typical of all the bs we have to put up with because of prejudice against chronic pain patients who are prescribed opiates, and pressure from the DEA!  In Atlanta, GA my dr. retired, and won't respond to my numerous requests for records for the last five years, so no dr. will come near me, or they just won't prescribe and I'm in withdrawls, which makes me look insane when I go to a new dr. so the same thing happens!  I've had many doctors over the years, but never had one not give my records, even when two of them died, their offices got me my records. I've been a pain patient for 15 years.  I don't sell or shop, or do street drugs, I don't even drink, but am constantly treated poorly by many medical practitioners, who don't know me or my history, but rush to judgements and assumptons that are not in their field of expertise.  My doctors have all been board certified surgeons and anesthesiologists, and have more training and certifications than these so-called health practictioners, and have seen my mri, labs, and done gross exams every month for 15 years, yet some health care person, can talk to me for 5 minutes and decide I'm a junkie, based on my medications.  F off to all busybody. judgemental persons working in healthcare!

Reply
Anthony Osowski, Community Member
4/17/10 8:14pm

you know nothing about this subject so dont tell others bull s@#t. the DEA is in Afganistan to help guard the poppy fields so the USA can manufacture the increased supply of opium to make morphine. FACT! there are 4 books available on this conspirisy if you look for them on the net. in 2005 the US congress granted the DEA jurisdiction on all pain medicines distributed to pain managements and allow only 58% of the patients in the pain managements morphine. that means if the pain management has 100 patients who need morphine for pain, only 58 of they get it. otherwise they shut you down. get real and stop procrastinating on a very severe problem in aaAmerica. we as people elect these morons who are passing laws to other government agencies to manage our pain managements. this is accually the peoples fault. because we elected them. these people have no idea what real pain is. only those who have or are suffering do. when you give an opinion just on getting your 2 cents in instead of fact...you need to wake up to the real world and read more than just 1 book. America is in crisis, this is an enormous problem, meanwhile we with intense pain and have no other options except to go to the pain managements or suicide. this is the world we live in........or we dont have to............. tonyo

Reply
mherron111, Community Member
4/18/10 9:01am

The entire war in afghanistan is about taking control of the natural resources of Afghanistan.  That includes natural gas and Opium.   The US troops are in Afghanistan to take over the Natural Gas and Opium supply.   The troops are their to protect the opium fields from the Taliban who have been trying to destroy the opium fields.   Under the Taliban, opium production in afghanistan decrease 85%.

 

The Troops are also in afghanstan to to serve as security for (Chevron/Unocal)the proposed Trans Afghan Pipeline, financed by the Asian bank scheduled to begin production in April of 2010.  This (TAPI)pipeline starts in Turkmenistan, goes across Afghanista, down to Pakistan, then to India where natural gas will be sold to India and the Far East.

 

The Iranians have a competing pipeline from  Iran to Pakistan to India, (The IPI pipeline proposal that the US troops see as a threat to the national security to the USA, but the only thing that it threatens is the profits of Chevron/Unocal.

 

 

As far as the DEA telling what physician they can prescribe...thats total BS.   Physician have to have a DEA license to prescribe schedule 1-5 narcotics, but the DEA does not tell you what you can prescribe to a patient.

 

 

As far as suicide, its probably not all that you fantasize it be...no one has ever come back to let us know if they are still in pain.

Reply
IllumiNotI, Community Member
3/22/12 10:34pm

Your information is dated.  Ten years ago, the DEA did not get terribly involved in what doctors prescribed, besides requiring documentation for narcotics.  NOW the DEA monitors doctors RABIDLY and has DESTROYED doctors' lives with 60 year or LONGER PRISON SENTENCES for TRAFFICKING.. when they were only prescribing pain medications to people with legitimate chronic pain issues.  This is why people are turned away for chronic pain.  I was critically injured in the army and have several different degenerative pain syndromes from the injury as well as brutal wear and tear of rucking, marching, training etc.  I was turned down POINT BLANK OVER THE PHONE by no less than FORTY doctors JUST BECAUSE I have chronic pain and doctors are NOT going to risk losing their license for YOU or YOUR PAIN!!  The New Tyranny from the far left wishes to control every aspect of every person's life as well as depopulate as many 'useless eaters' as possible.  If they can get more of us 'worthless breathers' and sworn defenders of the Constitution like veterans to kill ourselves due to the agony of chronic pain, so much the better! See: Bill Gates TED depopulation video on YouTube where he admits vaccines are used to sterilize people (see: FDA Fluvarix PACKAGE INSERT section 13) also: Death Panels, Agenda 21 and New World Order WAKE UP!  

Reply
johnson, Community Member
2/16/11 4:31pm

You are so right. Government is legislating us into a slave country serving the corporations and the rich.If a family cant live on a million dollars a year and the rest goes to taxes you would not see all the problems this country has. We would have no deficits and have free health care,homes to live in and food on the tabl;e. It is obcene that we allow anyone to keep more than a million a year.

Reply
anniesr, Community Member
6/ 7/10 7:45pm

I see...but the ER would be available for someone in a diabetic coma due to not being allowed access to insulin right... or someone having a heart attack because they could not have access to high blood pressure medication...or someone bleeding to death because they did not have access to medication for hemophilia.. right.. but just those SILLY old pain patients thinking they should have access where they shouldn't... God knows pain is all in our heads.... And all those poor ER doctors that have to treat those burdensom pain patients... ANYONE could die being treated by an ER doctor THAT IS WHY THEY ARE IN THE ER!! DUH!  I really hope you or someone you love has to deal with chronic pain one day... and you have to go to the ER and they deny you care.  That would be poetic justice.

Reply
mherron111, Community Member
6/ 8/10 8:19am

The purpose of the Emergency Room is 1) to determine if a patient has an emergent medical condition that needs to be treatment or stablized. 

 

In your examples, Diabetic Ketoacidosis is a life threatening acute emergent medical condition and if not treated immediatly only 5% live for 1 week.    Chronic high blood pressure is not an emergent medical condition.    Hemophillia is not a acute emergent problem unless the patient is bleeding.   Chronic pain is not an acute problem at all.  So while the ER doc should be treating patients with Diabetic Ketoacidosis, Hemorrhaging Hemophilliacs, Myocardial Infarctions,  pneumonia , breathing problems that are life threatening ect ect,  they are being bombared by patients with chronic condition like chronic pain who are in the wrong place for the treatment of their chronic problem.

 

The point here is that the ER is not the correct place to get the care that you seek for this chronic conditions.  Ther ER is there to treat patients who have acute problems , injuries and life threatening emergencies.

 

Primary care physicians, Rheumatologist, and Pain Management physician are her to treat chronic problems.  Pain Managment physician have had additional training and certification to treat chronic painful condition. 

 

The ER will never deny you care for an acute problem or an emergent medical condition.....It is you who deny yourself care by wasting your valuable time and money by going to the ER because you are too lazy to follow up with the pain management physician that the ER doctor told you to follow up with.  Poetic Justice would be for you to get to the right doctor for your condition, not the ER for chronic conditions.

Reply
Lara, Community Member
7/20/11 1:33am

I know this is an older post, but I have to respond.  I have type I diabetes and I have had DKA before.  I also have diabetic neuropathy that is not  being treated because nobody will treat it.  There isn't a pain management in my state that will treat my condition.  So, while I am suffering in pain, and my blood sugar rises due to the pain, and I have the chance of developing DKA because my insulin is not bringing my blood sugar down, how the hell do you suggest I handle that?  I have spent three years trying to find a doctor and taking every medication (other than opioids) in the book.  Anti-seizures, anti-depressants, Cymbalta, Lyrica,and NOTHING has worked.  So please, tell us who suffer from pain how to find the right doctor to help us with our pain, find a pain management clinic who will treat our pain and last but not least avoid using the emergency room becuase our blood sugar rises because of the pain.  So please, feel free to provide all of your expertise to those questions.

Reply
techzilla, Community Member
11/11/13 4:05pm

@mherron111, You're a moralizing complete pice of garbage, I know you will never accept it, but it's just the truth.  People don't call me such things, simply becasue my perception prevents me from thinking in such a manner.

 

You're also very incorrect about emergency appropriateness.  There is one very importnat thing missing from your short list.... pshyciatric emergencies. Why are psyciatric emergencies real emergencies, you may ask?  You ever seen the effect they can have on the community?  They can even end in police executions, and they often do as mentioned on the daily news.

 

Next sever withdrawl is most definitly a health emergency, even though pain alone MAY not be, you're assesment must be corrected.   Mabey your not familar with the symptoms, but to clarify...

 

1. Extremly high Blood pressure, can easily result in heart attacks and stroke.

 

2. Extreme dehydration, vomiting and diarrhea can also be life threatning for regular sicknesses.  Which you should know assuming the degree of arogance you displayed

 

3. Extreme Panic, both very disruptive and even dangerous.  Panic can often lead to paranoia, and panic stricken people MAY lash out violently.  Police are ill equiped to deal with this type of psyciatric emergency, and often resort to the only method they know... which is drawing their sidearm.  The stricken person may not react the way a normal suspect reacts, police become alarmed, and shots are then fired. 

 

4. Extreme Distress, purely psychologcial but can definatly end in suicide.

 

 

NONE of these are even talking about pain, I didn't even mention that aspect, but now I will.  Imagine you're a responsible pain patent, always take your meds on schedule, never even slightly misued.  For whatever reason the DEA taked an injuction on your doctor, you find out at the end of your monthly prescription.  What ever the cause, you now need to get a new prescription and don't have much time left.   So you call other Dr's, but nobody is willing to prescribe a schedule II narcotic without being a specialist... This isn't the 80's anymore, you need to see a pain specialist, but who could possibly see you before your prescription ends? 

 

So now you ran out, and the eariliest day you can see the dr. is about a week from the last dosage.  If you're lucky and your dosage wasnt too high, you may be able to suffer through and get yourself to that appointment....  What would happen if you're withdrawl was sever though, your vomiting everything your try to injest, how could you even drive to the appointment?

 

Please answer, I'm really all ears buster.

Reply
FightingChrPain, Community Member
12/30/10 7:04am

Sounds like the opinion of an ignorant doctor, or spouse of an ignorant doctor because I KNOW that the DEA is cracking down hard on physicians and hospitals in many places in the US, and ALSO that chronic pain sufferers do experience real reasons for needing to get pain treatment beyond their norm at the ER! The lady said she had a NEW INJURY, or were you too distracted to read that part? 

 

In many places, it's almost impossible to get a reliable, caring GP or Pain Management doctor to take on a new patient no matter what. The DEA does have a lot to do with it-my doctor told me that they are conducting rougue investigations of any GP non-pain mgt doctor who prescribes narcotic pain killers in TX. I'm a disabled Veteran, get my meds from them most of the time, but they are under budget, under staff, and don't work well with the patient or the post office to get the scrips on-time. Stop accusing the patient! You should be ashamed!!! We patients do not deserve this abuse. 

 

We're especially vulnerable to extreme pain from a new fall, a small trip, or just a natural pain-flare which can be so painful, you can't walk, or even move. If it's at night, on the weekend, you can't get help from your GP, and in many cases, the pain is too severe for oral meds to help! People with chronic pain have other life-threatening needs sometimes and can't ignore telling the ER physician that they have chronic pain and are being treated for it. I've had that happen to me. There is an epidemic in the millions in the US alone, of chronic-pain sufferers being treated like drug-addicts and psych cases. Actually, drug-addicts and psych cases get treated better than we do. There's no cure for us. No real help, and we're always being treated like we've committed a crime. I wish someone like you could feel what I feel just for one week and see how it destroys you, see how the problems of getting help from a hospital, from a doctor, just blow your mind and leave you feeling helpless! It's been 12 years for me. It's easy to criticize what you do not understand. 

 

Reply
Raven, Community Member
6/ 6/11 10:22pm

everything u said is 100% correct its not right that true pain suffers r treated as garbage or addicts when in fact we r suffering everyday only wanting relief tha never comes only wanting one damn dr to listen and understand and what about those of us who have incurable diseases i have one a brain disease and no dr in the state i live in will treat me with respect or humanly(sp) i was being treated at a pain clinic for a short time then today i am told that i was discharged because i tested for illegal drugs if i could walk i would have kicked thier ass i am 35 and have no life because of pain and ignorant drs. oh yeah i have never in my life took illegal anything now i will suffer like so many of us and ur right actual drug addicts get what they want what is that it is bs. i feel what u feel all my life even as a young child i couldn't go to school half the time never got to graduate or have a life i was born sick and like u and so many others we r left to suffer then die also im trying to find any info about if i can cause this dr i had to be held liable for my suffering since he pulled me off my meds cold turkey any advice would help and if i can help anyone with advice i will thank you

Reply
Nicoletti, Community Member
3/12/11 1:29am

Pain management in our state of Washington,must be approved by state legislature. Soon the amounts of opioids will also be regulated. They will use a analgesic ladder for determining what and how much you can take! The model and amount set is morphine sulfate 120mgs.Guess who is behind this push? A certified pain management specialist. Every person is entitled to freedom from pain.Do you think this amount specified by the state is a one size fits all? I surely don't. I have been to several so called pain specialists.If they prescribe,they will also give you other types of minimally invasive spine procedures also. I  have been a practice model for all of them. I have the injuries to go with! The other joke is that there are not hardly any pain specialist's in our state now! Who will take care of all us boomers,and returning veterans? I must disagree that pain specialists are any better than my G.P. Pain management is not rocket science! It is common sense,and a meaningful relationship between you and your Dr.,not the state health dept.It is absurd and wrong.People will not be served.If any thing it will be an obstacle for people in suffering pain.

Reply
Apada, Community Member
4/18/11 8:27pm

Um, yes, this problem has EVERYTHING to do with the DEA. They have become so ridiculous and intimidating with pain management physicans that those physicians are afraid to do what they have been trained to do.

 

And contrary to what you think, pain management doctors specifically TELL you that if you have any problems with pain and they are unavailable, "go to the ER." And yes, that is a direct quote from my own pain managment doctor, which I have been told twice. Besides, this person was not going to the ER for her chronic pain, she/he was going for an unrelated problem that was causing pain.

 

It is not as simple as you'd like to believe. Running out of medication is not unheard of. It is not something that only happens to drug addicts and if it was a drug addict who ran out, they'd likely not be calling their pain management doctor!

 

Those scripts are numbered to nearly the minute you were last prescribed them. If you drop one, you're screwed. If you choke on one and puke it up, you're screwed. If you happen to be working or unable for any reason to get to the pharmacy to get your script filled on the date they say you can go, you're screwed. They won't even fill it a day early, so if you're due at work on the day the script becomes available, you're screwed (which happened to me). If you are in pain management and you happen to get in a car wreck or you happen to have dental problems or any other extra pain causing thing, YOU'RE SCREWED!

 

And the DEA IS the entity that made all of this happen. The pain clincs are afraid to move because of them.  I went to a pain management clinic as an alternative to suicide from my pain, and they have caused me to actually rethink my decision! The facts are that opioids ARE the best pain medication for chronic pain. Doctors AND the DEA know that the body develops tolerances to opioids, so periodically increasing the dose is just the nature of the beast. It's IN the manual. But if you are human and are responding accordingly, suddenly you're treated like an addict. They deliberately cause a person to become physically dependent on opioids (because that is just what happens) but then they treat you like you are an addict (instead of a physically dependent person who has reached a tolerance level) even though they knew that would happen from the beginning of the treatment.

 

From what I understand, ALL pain clinics treat legitimate patients just the same as if they were some street addict junkie. I, for one, would rather be dead. THANKS, in whole, to the DEA.

Reply
gypsyatl, Community Member
1/30/12 6:06pm

You are so right! Absolutely everything you said is the truth!  Hope you have found some relief! With you in spirit in Atlanta, GA!

Reply
gypsyatl, Community Member
1/30/12 6:09pm

You are absolutely correct!  I hope you have gotten some relief!  With you, in spirit, in Atlanta, GA!

Reply
gypsyatl, Community Member
1/30/12 6:11pm

You are so correct, and it is very sad!  I hope you have gotten some relief by now! With you in spirit in Atlanta, GA!

Reply
Apada, Community Member
1/30/12 9:02pm

Actually, my doctor just increased my meds so I could continue to work. I am grateful, but I know the end result. Every increase in my meds makes me worry about what will happen in the long run, you know? For now, things are okay though. Thank you very much for your well wishes. Hope you are well. :)

Reply
Tom Tele, Community Member
11/11/11 10:58pm

Get real. This has everything to do with the DEA. The DEA's sucessful prosecutions of doctors who prescribe adequate doses of opioids have caused most GP's, even most "pain specialists" to refuse to write strong opioid medication. The greatest of all the pain doctors, the late Dr. Hochmann, said pain doesn't care what generated it, it just cares about how intense. The idea that only terminal patients can get strong opioid leads to many suicides. Really, for most with intractable pain, a Kevorkian approach is the only allowed you.It sound like this sufferer has developed intractable pain. Sometimes it cn be treated without opioids, but usually strong opiods are the answer, are safe if titrated correctly, and rarely lead to addiction, tho dependence is common. Intractable pain patents are collateral damage from the war on drugs and our evil health care system. There are very few doctors who will treat patients like this. They recognize the need, but are cowards and won't stand up. I am sorry to have such bad news but right now my partner and I (partner has RSD/CRPS) are again searching dfor a doctor. Pain such as this cannot be endured, it will spike your blood pressure and you will die if the pain is bad enough. Intractable pain patients who benefit from opipid medice ahve no rights that need be respected by anyone and anyone who says different is lying.

Reply
gypsyatl, Community Member
1/30/12 6:16pm

That's right!

Reply
kemsworth, Community Member
3/ 1/12 6:48pm

the dea is the only reason that it is hard to get your medication.  my wife suffers from chronic pain and started seeing a new doctor last week cause the dea revoked her previous doctors license for over prescribing narcotics.  my wife or i have no knowledge of what why or how much he treated his other patients but my wife was not over treated, but just treated adequately.  she seen other pain specialist in the past that had her on some combination of the meds she currently on.  she switched doctors as our insurance switched and current doc no longer accept our insurance.  her first time she got prescription filled at new doctor, the dea called and notified him that she was a patient of the doctor who lost his dea # for over prescribing.  her doctor then preceeded to tell her that he could no longer treat her cause he didnt want the dea breathing down his neck.  even tho he practices medicine at the highest standard, he does not want the stress that the dea brings by prescribing this medication.  they didnt tell him not to treat her pain, they just said they would be breathing down his back waiting for him to slip up.  so he will no longer see my wife and is refering her to someone else.  then the dea will call that doc and they wont want the hassel and refer her to someone else.  they all know how much pain she is in everyday but yet the dea wants to play doctor and strongly suggest to the real doctors that they are not prescribing pain meds properly to their patient.  know tell me if that doesnt sound like the dea being the problem.

Reply
Thomas Grinnell, Community Member
4/11/12 12:53am

YOU JUST DON'T GET IT, DO YOU? I, YOU AND ANYONE ELSE IS NOT ON THIS EARTH TO JUDGE SOMEONE ELSES PAIN. IT IS NOT APPROPRIAITE AND IT IS NOT ALRIGHT.  GIVE ADVICE BUT DO NOT JUDGE ANOTHER PATIENT- IT IS WRONG AND COMPLETELY UNFAIR.  I HAVE HAD ENOUGH OF PEOPLE LIKE YOU, THE DEA THIS AND THE DEA THAT, DOCTORS THIS AND DOCTORS THAT- JUST WHERE THE HELL DOES THE PATIENT COME IN?  THAT IS ALL I HEAR ABOUT IS "PROTECT" THE DOCTOR.  HOW ABOUT DO WHAT IS RIGHT.  FOR A DOCTOR, THE HIPPOCRATIC OATH SAYS: "DO NO HARM".  IF A PATIENT IS IN SO MUCH PAIN THEY CANNOT LIVE A NORMAL DAY, HOW IS PROVIDING PAIN RELIEF DOING MORE HARM.  IF PAIN EVER GETS BETTER, STOPPING PAIN MEDS IS NOT DIFFICULT AND ANY REASONABLE DOCTOR KNOWS THIS. PAIN PATIENTS ARE NOT USUALLY ABUSERS- NO, THERE IS NO PERFECT RECORD, BUT FOR ALL OF THIS-ENOUGH PATIENTS SUFFER AND SUDDENLY STOPPING MEDICATIONS IS CRUEL, INHUMAN AND OUTRIGHT PATHETICALLY OUT OF LINE. THE ONLY THING SOME DOCTORS CARE ABOUT IS HOW THEY LOOK IN THE PRESCRIBING "RING", THE REST, HOW THE PATIENT IS DOING, THAT DOES NOT MATTER TO THE AVERAGE PHYSICIAN.  I HAVE BEEN CONSTANTLY NAGGED AND HARRASED AT A MAYO AFFILIATED HOSPITAL BY A NURSE, SHE DOES THIS OVER AND OVER WITH NO SANCTIONS OR NO PENALTIES, WE PAIN PATIENTS, IF WE EVEN HAVE SOME ALCOHOL, WE ARE ON THE SHIT LIST. THE NURSE FROM THE PREVIOUS SENTENCE, SHE CONTINUES TO HAVE A JOB AND DO NOTHING BUT HARASS PATIENTS. THIS IS SO PATHETIC AND I CANNOT GET A LAWYER TO RESPOND TO MY QUESTIONS. THERE ARE CONSTITUTIONAL VIOLATIONS HERE THAT ARE BEYOND CONVICTION. I AM TIRED OF DOCTORS MAKING MONEY OFF OF PURDUE STOCK, TELLING PATIENTS THAT THEY HAVE TO SUFFER, AND ALL ALONG THERE WAS PLENTY OF SAFE PAIN CONTROL IN EXISTANCE. I SIMPLY HAVE TO REALIZE IN MY CASE, MAYO IS NOT GOING TO LET UP AND DO WHAT IS RIGHT- I AM A DEAD MAN, I CANNOT LIVE LIKE THIS. NO WAY- DOCTORS WILL CONTINUE TO MAKE MONEY OFF OF PHARMACEUTICALS AS LONG AS THEY ARE USED IN THE NURSING HOMES WHERE THEY VERY OFTEN ARE NOT NEEDED. YOUR OLD SO YOU GET PAIN MEDICINE.  YOU ARE YOUNG, SO YOU SHOULD BE ABLE TO TOUGH IT OUT.  NO DAMN SENSE AT ALL- WHO REALLY GIVES A SHIT IF I TAKE MEDICATION X, Y OR Z? APPARENTLY EVERYONE.  

Reply
mherron111, Community Member
4/13/10 8:09am

RN are notorious for becoming addicted to narcotic pain medication because of access to the medications.  You need to get into a pain management clinic, find out the underlying cause of your problem, and treat the underlying cause of your problem so that you can possibly get off these narcotics forever.

Reply
Skye, Community Member
4/16/10 10:18am

Sorry, but you don't become "notoriously" addicted to pain killers because you are a nurse, there are doctors,preachers, truckers, etc. Anyone with a physical/mental high stress job. Nursing jobs have become notoriously physically hard work due to not having enough staff to lift and turn heavy patients or being short-staffed. My lower back was injured while transferring an adult male patient who spasmed and I protected while lowering him to the floor.

 

Fully half of the patients in pool therapy were nurses.  If you can't do your job because you are injured, you don't have a job.  

 

Saying that NURSES are notorious for being addicted to drugs is insulting and assuming I can't get pain meds because of being a nurse is ignorant and as unhelpful as the many professionals that assume anyone who asks for pain meds is an addict.

Reply
mherron111, Community Member
4/17/10 5:43pm

Anyone can become addicted to narcotic pain medication....even Tiger Woods, Rush Limbaugh, Michael Jackson, professional athletes ect ect ect.  Not just nurses.

 

However, but not all people have access to  an unlimited supply of narcotic pain medication.  Nurses do.   If you have ever attended a meeting of the state licensing board (You pick the state), you will see that a high number of nurses lose their license or have their licenses suspended because they are taking the medication that they are supposed to be giving their patients.  These drugs are being diverted from the hospital supply to the nurses pockets, or even worse, their veins.

 

This was not intended to be directed specifically at you.  Again, if the shoe fits, wear it.   If it doesn't, it wasn't intended for you.  In this particular case you were not talking about anyone...you were talking about someone with CHRONIC PAIN.  The emergency department is an inappropriate place for the treatment of chronic pain.  You should establish a relationship with a primary care physician, or more specifically a pain management physician concerning this chronic pain condition...not the ER.    Why continue to go to an emergency room for this problem...they cannot help you.  You need a plan and frequent follow up for control of your pain.  There is no continuity of care int he emergency department.  You are bound to get addicted to narcotic pain medication if you jumjp for ER to ER seeking medication for a chronic condition.  You should go to the correct place for control of your specific chronic painful condition.

Reply
anniesr, Community Member
6/ 7/10 7:49pm

I am sorry but you are an idiot!  You do not know what you are talking about.... NO ONE is BOUND to GET addicted jumping from ER to ER.... If you had any clue, you would know that people using medication for chronic pain DO NOT get high or euphoria from pain drugs....ONLY people using it for recreational purposes that do not have chronic pain... GET REAL OR GET LOST!

Reply
mherron111, Community Member
6/ 8/10 7:58am

Actually, I know very well what I talking about and I am far from being  an idiot.

 

Some people are just in denial.   There are many reasons that people jump from ER to ER to get pain medication.   The number 1 reason being that they have built up a physician dependence or tolerance to narcotics and have used up the entire supply from their primary care physician or pain management physician and now they are jumping from ER to ER to get more pain medication...Narcotics were never meant to be used on a chronic basis simply because of the fact that this tolerance, needing more and more of a drug to get the same effect or pain control, will develop quickly.

 

The second group of people who go fro ER to ER seeking pain medication are what we call prescription entrepraneurs....They don't even use pain meds.  They get medication from ER's, Pain Clinic, and any doctor possible so they can sell it on the street

 

http://www.youtube.com/watch?v=2L1kxT0DqrU&feature=player_embedded

 

 

Physical dependance to narcotic pain medication has nothing to do with Euphoria.  You are now taking the medication because you have built up a tolerance ....OR worse... you want to avoid withdrawal symptoms.

 

I would suggest that if you have chronic pain you do 5 things:   1) Establish a relationship with a primary care physician.   2) Get your primary physician to try to find out the underlying cause of your pain.  3)  Get your primary care physician to refer you to the appropriate specialist to treat the underlying cause of your pain....if you need surgery.. get the surgery.  If you have a medical condition that is causing your pain, this condition needs to be treated.

 

4)  If your primary care physician cannot control your pain, you need to be referred to a pain managment physician.

 

5) If your pain is not being controlled by your pain manangment physician, let that physician know so that other options can be tried.

 

6)  Never use illicit/illegal drugs unless you are willing to unnecessarily go to jail. 

 

Get help before you kill yourself!!

Reply
maggie, Community Member
11/11/12 3:25pm

Granted that I have limited experience with ERs, I was never given any pain medication for anything at any ER. Your tone sounds so superior and self righteous that I felt the need to question why you would include the you tube video. I do not condone or support these kinds of pain management places but it is amazing what a person, like myself, would consider to get some pain relief. I look at pain meds like I look at insulin or other necessary meds. No one would deprive a diabetic of the proper amount of insulin.

Reply
OK Military Mom, Community Member
1/16/13 10:52am

Since my chronic pain stems from a congenital spinal defect, arthritis, old age and yrs of working 3 hard-labor jobs to support my kids, perhaps we should exhume my mother, cram me back into her womb and force feed her so I would've had a healthier gestation and formed normally. Rather impossible, wouldn't you say?

I refused to be shamed as an 'opiate addict' after 40 yrs of successful pain mgmt. I had nothing to do with bringing unbearable pain on myself. I always followed my Drs. guidelines religiously and fekt free to have honest dialog with them before 'the invasion of the drug war zealots' began terrorizing trained medical professionals w/ political cover. But, alas, my docs got old like me and retired.  The DEA has turned into drug Nazis (follow the money, Honey) because failed drug war policies have brought in astronomical revenues to law enforcement agencies and the feds. They began propagandizing in med/nursing schools at the expense of the citizenry as soon as they smelled blood money in the water. For 5 decades they have misinformed medical students regarding opiate use and addiction. Most DEA administrators are former military lapdogs, happily wagging their tails for politicians who give tasty tax dollar treats to useful idiots & drones. The typical scenario in Afghanistan is this: farmer whose family has grown poppies for 1000 yrs on a couple of acres borrows money for poppy seeds, plants and nurtures his crop. He then watches as Afghani police, accompanied by US troops destroy his crops. The next day the seed lender comes and takes his children for the debt. AND OUR POLITICIANS & MILITARY LEADERS KNOW THIS IS HAPPENING!!! It's no wonder radical Islamists find it easy to recruit suicide bombers who have nothing to live for after their children were seized by our actions. They hate our guts, and rightfully so. 

I predicted 30 years ago that they would go after Drs and pharmacists and here we are.  

Hitler had no problem murdering 6 million Jews and the DEA has no problem using the same fascist tactics to force the millions of Americans who pay their salaries to live in pain. Radical dogma of any kind has no need for truth or reason. ... and I'm a conservative!!!

Reply
tonyo, Community Member
2/17/11 11:46am

you r 100% corect! i take a massive amount of fentanyl and lortabs each month ans in 10 years, i've never gotton a buzz. very well put. whoever said that you do has no idea what PAIN is. until it happens to that individual, i found you can't convince them of this. thanx for telling truth. funny thing is, when u do tell the truth...no one ever believes u? tonyo

Reply
Raven, Community Member
6/ 6/11 10:29pm

isnt that the truth no one has a clue what we go through as pain suffers it is the most horrible feeling in the world your lost u give up i read once about a man tha was found dead under a tree because he suffered from pain intensely and his dr stopped him cold turkey with hsi meds so he killed himself it was probally about 5 or so yrs back but i will never forget that he needed help and guess what r medical community turned him away and he could not deal with having that pain 24/7 if u r a pain suffer u will understand

Reply
Anthony Osowski, Community Member
4/17/10 8:31pm

and you can get illegal drugs way easier than pain meds from your drs. obviously most people who coment on pain subjects have no reality to the devastation to ones life that pain can do. if you've never had severe cronic pain for 10 years and have tried to relay the severity to your dr. or pain management, then you wont know what were talkin bout. your comments are welcome but leave your stupidity at home please. illeagal drug use is brought on by normal everyday people some who have no other choce. not because we want to be drug addicts, but we dont have other options. sure you have a picture or a TV show that depicts what a drug user looks like. but a lot of abuse is out of nessecity. we are fed up with pain managements crap. we need to find something that takes our pains away and at some point we say: when is enough...enough! so we search options we wouldnt normally or morally want. i for one am thinking marijuana, heroin may be easier to obtain than the meds my pain managements prescribe. somehow its never enough to calm the horrible pain in our bodies. but maybe just enough to make you come back to supply the drs, and pain managements with there new BMW's or mercedes benz. wake up people and dont tell us what you think UNLESS you have horrific intense pain.....please.....tonyo

Reply
mherron111, Community Member
4/18/10 8:48am

Actually, doctors know exactly the devastation that chronic pain can cause, that is why they try to direct chronic pain patient to the correct place for their chronic pain.  In this instance the Emergency Rooms are not the correct place for chronic conditions.

 

For someone to suggest that you have to have chronic pain ro understand the horror that chronic pain patients are going through is ridiculously simple-minded.

 

As far as  a person using illegal drugs because you have no choice....that's a cop out.   People use illegal drugs for one reason, and that is because they are criminals.   If you can afford illegal drugs, you can afford to go to a pain management clinic.    Illegal drugs cost a hell of a lot more than legal drugs.

You have the option of doing the right thing or doing the wrong thing....You should do the right thing!!!  But most of all you should get to a doctor to try to find out the underlying cause of your pain so the underlying cause can be corrected...that way you may not need pain medication.

 

Secondly, what do you think is going to happen to you if you get caught with illegal narcotics by the police...they are going to throw you in jail where you will not be getting any pain medication whatsoever, plus you will have to become some guys wife because you won't be able to defend yourself secondary to pain.

 

I agree with you on one point.   Some of these doctors, like those in Dade County and Broward County Florida in these unregulated pill mills are nothing but drug pushers.

Reply
CIG, Community Member
3/17/11 10:33pm

Saying: For someone to suggest that you have to have chronic pain ro (sic) understand the horror that chronic pain patients are going through is ridiculously simple-minded.

As far as  a person using illegal drugs because you have no choice....that's a cop out. People use illegal drugs for one reason, and that is because they are criminals.

proves the point.

 

I was in a motor vehicle accident, several years ago, which resulted in an, extremely, painful injury. This was followed by a, lengthy, period of, extremely, painful physiotherapy. During this time, I used copious quantities of oxycodone.

 

Fortunately, my pain was temporary but, from the experience, I can tell you that, if you're in enough pain, you either aren't getting "high" or don't notice if you are and you'll do, pretty much, anything to reduce the pain.

 

Also fortunately, I don't live in the US so didn't have a problem obtaining the oxycodone. If I did live in the US and was unable to obtain the oxycodone legally, I would've have had no compunctions about obtaining it from a "street vendor". There's more than a little truth to the saying: "any port, in a storm".

 

Reply
UnderstandingHuman, Community Member
5/16/11 6:09am

Wow, I've rarely seen anyone more incorrect that many times in one post...

 

E.R.s are NOT the correct place to completely treat chronic pain, however, as my doctor (actually, as the last 3 of my doctors [they have a habit of either moving or passing away] have said, "If your pain wakes you in the middle of the night and taking an extra pain pill doesn't help, go to the E.R."  <--yes, that's a direct quote from EACH of them)

 

It's not ENTIRELY true that you MUST have chronic pain to understand the horrors it can cause, however, it IS most definitley true in MOST cases... I have several family members and most of a medical degree, so I learned long ago how chronic pain can devastate lives.... THEN, in my late 20s I was the one in chronic pain (hereditary problem).... Even though I grew up seeing it, I had NO idea EXACTLY how it would change my life... I had a general understanding of what it could do, but there was NO WAY I could completely understand (and I'm an extremely empathetic person)

 

And if you knew much about illegal drugs, you would know how blatantly false your third paragraph truely is... I know a friend who has terminal cancer.. She has no insurance.. The government denied her enough assistance to cover all of her medical treatments plus medications... To see her pain management doctor it cost $95 per month for the office visit.. Her 'scripts were (roughly) $420 for one, $368 for another, and $47 for the last... There's NO WAY on God's green Earth she could afford that.. Various perscriptio plans could cut that by a couple hundrend, but she still couldn't pay for that.. Her only choices were to lie in bed and wait to die, while in such intense pain that she could not speak sometimes (on a good day, she could speak, but NOT move around without help) OR go to the corner and cop a little heroin... It's possible to get heroin on the street for about $10 a bundle and (if you're not an addict and only using it for pain) you can make a bundle last a day (two doses).. This can go on for a while without tolerance requiring more (she's been doing it for two years now and is JUST NOW up to a bundle and a half a day... She's still in pain, but at least (on a good day) she can get out of bed... Hell, I even saw her on her front porch the other day when I drove by!!

Do the math and tell me illegal drugs are more expensive for a non-addict...

Granted, given enough time, it would eventually become more expensive than the over $1000 A MONTH going to a doctor would cost, but she won't live that long, so who cares about tolerance!!

She should have some decent government assistance relatively soon (we're praying!!) and HOPEFULLY she'll be able to get a doctor who can help her through the last year or so of her life... We live in Arkansas, so that's doubtful.. The State Medical Board is being so hard on doctors around here that they are scared to write ANYTHING (a guy at work lost his finger one day and all the E.R. doc gave him was 800 mg Ibuprophen and said to see his regular doc...his regular doc said "I'd best not give you anything stronger than the E.R. doc thought you would need..." then, in a low voice, said, "Go to another state and see someone, they will be able to help you... Our medical board is ripping licences for even the most legitimate perscriptions right now.."

 

Do some research, WITH AN OPEN MIND, stories such as these are EVERYWHERE.. The DEA and the state medical boards are cracking down on high-powered opioids, and in the process they are harming a LOT of good doctors and even more great people!

Write your Senator.... Write your Congressman... Write your Governor... Write the medical board... The ONLY way things will become better is by good, law-abiding citizens doing their part and telling politicians to stop punishing good people for what bad people do!!

 

Sorry for the rant, but two very good friends have recently committed suicide because they could find NO doctors willing to treat their very real (and VERY well-documented) pain....

Reply
jaylew, Community Member
8/22/12 11:35pm

Reading some of your posts is actually painful. The bottom line is that the federal and state governments you claim are not genuinely involved in any of this pain pill free for all that is rampant in this country.....are the same state and federal governments that have their hands out like prostitutes for every penny and dime and dollar of excise tax they can abscond on every sale of every pack of cigarettes, every cigar, and every bottle of beer wine and booze.....

 

Yeah we should all follow Uncle Sam's example of consistency......oh and by the way....for your own edification check out the excise taxes Uncle Sam collects on the nearly all the pre-cursor chemcals used in the manufacture of every legally pharmaceutically produced pain medication. Uncle Sam the prostitute has her hand all up in that tax collection too.

Reply
jaylew, Community Member
8/23/12 12:01am

the so-called war on drugs is a complete waste of time and hundreds of billions of dollars.....the culprit behind all of it is the profit motive.....there would be no cartels if there was no profit motive....there would be no pain pill mills if there was no profit motive....

 

i just love to read the hypocrisy that is so pernicious in this society......as if for example playing the stock market is such a noble and worthy activity....but betting on a horse race or a card game is for fools. The reality is that they are both forms of gambling.....the same dichotomy is played in this country with drugs.....and the DEA and every drug task force will tell us all what a great and noble and powerful thing they do for society.....I for one....find news stories of SWAT team dressed policemen busting into peoples home just a little bit disturbing......and the reason for the SWAT garb is what? Weapons...and the reason the dope dealers have weapons? The money they make for slinging dope....and the reason they make money from slinging dope? Because it is illegal......the entire aspect and current model of drug use and drug abuse in this country is a complete and total joke....and now people with legitimate pain are caught up in big brothers "We are here to help" bullcr*p. The entire drug enforcement model in the United States is perhaps the largest failure and the biggest waste of money to ever be foisted upon the taxpayers of this country. 

Reply
mherron111, Community Member
4/18/10 9:11am

CNN   Florida Pain Clinics

 

http://www.youtube.com/watch?v=2L1kxT0DqrU&feature=player_embedded

Reply
CRegal, Editor
4/19/10 10:49am

Please keep this discussion civil!  Thank you.  We don't want to have to start deleting any comments.

Reply
izzi, Community Member
12/27/10 5:53am
Reply
mherron111, Community Member
4/13/10 8:13am

My cousin was told that she had fibromyalgia by one doctor several years ago.  She was taking narcotics daily for 10 yrs.  Finally she went to another doctor who checked her vitamin D level and it was extremely low.  After receiving Vitamin D replacement therapy, 50,000 units of Vitamin D2 per week.   She is pain free and  no longer needs to use narcotic pain medicaion.

Reply
Anthony Osowski, Community Member
4/17/10 8:34pm

you for one know exactly what is going on with America. dont be dismayed with other peoples negative posts on this subject. do some research on the net. you will find a conspirisy from the DEA to control the opium in Afganistan. i for one know what your going thru. tonyo

Reply
mherron111, Community Member
4/18/10 9:07am

I would suggest that if you have chronic pain you do 5 things:   1) Establish a relationship with a primary care physician.   2) Get your primary physician to try to find out the underlying cause of your pain.  3)  Get your primary care physician to refer you to the appropriate specialist to treat the underlying cause of your pain....if you need surgery.. get the surgery.  If you have a medical condition that is causing your pain, this condition needs to be treated.

4)  If your primary care physician cannot control your pain, you need to be referred to a pain managment physician.

 

5) If your pain is not being controlled by your pain manangment physician, let that physician know so that other options can be tried.

 

6)  Never use illicit/illegal drugs unless you are willing to unnecessarily go to jail. 

Reply
jds6262, Community Member
10/20/10 7:57am

this has to stop its not right to let humane being suffer they dont even let an animal suffer at least they put them to sleep but they cant even help a person suffering from pain every day for years i have been suffering in pain for years and have been taking pain medication and know i have a new doctor because my doc hase retired and my new doctor is putting me though all kinds of crap just to keep me taking my medication that i have been on for years and doesnt give a crap if i am suffering or not and i cant even find out what my rights are as a humane being not to suffer pain and now withdraw we need to stop it now!!!!!

Reply
Skye, Community Member
10/20/10 11:25am

I am so fatigued from this whole debate. I am an honest patient with 3 crippling "chronic" pain patient that has unpredictable flares aside from the day to day junk. 

 

I have gone through 3 pain programs in over 10 years. I have learned many helpful stratigies that do help control my discomfort, however, at times the pain defeats my ability to stay "on top" of it and I need extra help. If I fall down, or there is a weather change, or ??? can trigger some tough stuff.

 

I take the neurotransmitters, and antidepressant drugs and see my psychologist regularly as I am well aware that pain thrives on emotions and vice versa. 

The guilt that I feel being unable to do things that my work ethics is agonizing.

 

My regular doctor is in an office by himself and I have gone to the ER only when he tells me. 

 

Whoever out there who criticizes me and has not walked a mile in my shoes does not know my life history has no idea how I feel.

 

Reading an article, seeing a tv show or a blog on the computer about drug abuse,

does not make you responsible to make assumptions or judgements of any individiual including myself.

 

This is a SUPPORT group where we should come to vent at times and share valuable information with one another. I,for one, do not expect to come here to be told, once again, I am not living my life to someone elses standards.

 

 

 

Reply
jds6262, Community Member
10/21/10 3:10pm

hey skye i am sorry for your pain and what you are going though. I have been in pain every day of my life for the past 7 10 years and i understand what you are going though, i have been fortunate to have good insurance and a good doctor for years but it took me many doctors and all kinds of medication to finally get help its too bad that the drug dealers and addicts are making it so hard and i have been treated like a drug addict more times than i can count and there is no doubt about my condition and that i live with a lot of pain but some people just cant see past there own ignorance but just like you said until they have walked a mile in are shoes. I will be praying for you and i hope you find the relief you are looking for and a good caring doctor who will listen and help you God bless you jim.

Reply
tonyo, Community Member
2/17/11 12:22pm

ii can tell you have had a ongoing battle both pysically and mentally for chronic severe pain issues. i to have and still am trying to walk out of those shoes. it devestates every minute of your thought process. if your not a strong willed person...those are the ones who dont survive. at one time or another, the thoughts you dont want to visualize keep hounding you until you find a phsyician who believes you. it takes to much out of you then you spend the rest of your life trying to get back all you've lost. phsycally and mentally. but you got to have hope and believe there is someone who will take on your delema. living by your own standards is a must. trying to recover all the standards you lost is harder than the original reason. well put man.

Reply
FightingChrPain, Community Member
12/30/10 9:12am

Hello, I sought out this article you wrote in a general search, because I feel horrible about a recent similar experience of my own, and have other past experiences very much like yours. I just went to a new Pain Mgt Doctor to get other options (including and hoping for medicinal non-narcotic options) to help my unrelenting body-wide chronic pain, but instead I was prescribed "a psychologist and pool therapy" -sound familiar? This guy charged about $250-400 for the exam, but knew ahead of time he wasn't going to help me. I made it clear before the exam that I've been physically unable to even get out of bed since I first moved back here 18 months ago. 

 

I'm in my 40's, and (surprise! as a TEEN, I was in a 6mo. out-patient treatment center in a pioneering chronic-pain program. I know more than most professionals about therapy and chronic pain!). Then again 12 years ago combined pool/psych after another serious injury, then repeated again pool/psych about 7 years ago. I also have a BA in psychology. I've worked my "past" into the ground. Enough already, it's NOT psychological!!!

 

Since my body totally crashed about 18mo ago, I arrived in my hometown by my family literally evacuating me from another State where I'm a homeowner. Having lost almost all my independence to pain, weakness, and severe fatigue caused by multiple conditions, I came here to be cared for by my elderly mom. I was originally referred the same thing by my new VA doc here, but I told her the truth, I'm too weak and in too much pain to get to a pool or a psychologist... AGAIN. We started working together trying to really get answers and find solutions, but then she quit to move with her family. I WAS CRUSHED! The new doctor replacing her has, for no reason, not only NOT asked what my former treatment plan/goals were, but has ignored me every time I tried to explain the things that were helping and the goals we had! Since then, it's been 18mo of me explaining to doc after doc, who then quit the VA, that I've become too weak and in too much pain to get out of bed. Within 3 months, the entire VA neuromuscular clinic quit and was closed! Five different neurologists have seen me recently, and all 5 had totally different reactions and treatment suggestions! Same with GP's and pain doc's. I have no faith in the medical world anymore.

 

Most "treatments" I've tried have seriously harmed me or almost killed me. Unfortunately, opiates are the only class of medicine that dent my pain. I am on a high dose, and was offered even higher by the VA, but I am afraid and hate being dependent on any drug. Opiates aren't a perfect solution, but in my case, so far they are the only drug class I've found that might restore some independence to my life someday. I really feel that there was a window of opportunity years ago when I needed a high enough dose of opiates to take out the pain while it still could, but I was ignored as a patient and vastly under-medicated, allowing really stubborn, intractable pain acute pain from a new injury to take hold for too long over my pre-existing chronic pain. I don't know if there's any hope for me now. 

I believe you and have also experienced the DEA connection interfering in my own care plan by my physician. My former (non-VA) GP told me "off the record" that all GP physicians in the State were risking DEA investigation if they prescribed any narcotics, no matter the patient. He said that even if cleared, the accusations alone are too costly to defend against and does irreparable harm to the reputation of a doctor. He felt horrible for not being able to change the entire medical system to work for people like us. I was getting my narcotic pain meds from the VA, but my former VA doc there never ordered them on time, and almost every month, I ran out before the mail came w/ the new script. By that time, I couldn't get to my mailbox without the pain meds, because it was so far away from my house. No one who could help me gave a crap. 

 

Years of having been under-diagnosed and mistreated by doctors and hospitals, unable to get the help I need from the VA (even as a 100% disabled veteran) nor the local hospitals and doctors where I still own my home, I eventually became unable to maintain my own home, myself, nor even able to take care of my service dog! The rarity of my conditions and the combined effects of back, neck, hip, jaw pain and whole-body pain from Fibromyalgia has been a difficult combination for me to explain to doctors in order to get safe, effective treatment. Many FMS meds and treatment recommendations not only failed because I also have a neurological disease, but the meds could have killed me because they activate the other condition! For years nobody knew it, and didn't pay attention to my numerous symptoms that didn't fit, so they just assumed I was a "difficult" patient, malingering. I think we all have that label, and it's a crime to ignore a suffering patient. Should we change our justice system to presumption of guilt? Because that's what chronic pain sufferers go through in the doctor's office, the ER, and the hospital! Guilty and impossible to prove innocence! I feel like a criminal every time I talk to a doctor. I don't want to talk anymore! All I had left was my integrity, now they want that too. 

 

Regarding a psychologist, it may help to talk to someone about how wrong the medical community is, but the ROOT of my "PROBLEMS" are physical, and I'm sure yours are as well. I truly understand your frustration, and I have personally been mistreated to the point of illegal negligence by at least 5 doctors and two therapists. Morally mistreated by even more than that. I'm a veteran, but the VA hospital doesn't even have a neurology department qualified to deal with my emergencies anymore so I can't even go there! So, I've been to the civilian hospital ER's and been hospitalized, and watched doctors pass the issue of my pain meds like a hot potato. They NEVER even called my VA pain med prescribing physician to get my baseline dose! I left the hospital almost as bad as when I got there. Most times I've gone to the ER, I've come home worse off. It's an outrage, and doctors as well as hospital administration should be held accountable. 

 

Hang in there and good luck! If I ever get well enough, I'm going to compile an entire research document from stories like ours and try to change the way the world, and the medical world, sees and treats us. Blessings and good luck.

Reply
Skye, Community Member
1/ 2/11 11:03am

I really feel for you. I feel boxed in as it is so painful to go out to see any healthcare provider when you know ahead of time that they are not going to help you. As you say, pool and psych therapy is the norm and it hurts so much to just get there.

 

I have been looking for help since my DX 13 yrs ago. I am an RN and want so much to work but this unpredictable pain makes it unsafe to try to help anyone on a schedule.

 

Best of luck to you on changing the world, when i first was diagnosed, Docs threw pain meds my way like candy! Now they act like a single Vicodin is a major decision for them. The part that really stings is that they treat me like a "drug-seeker" just because I even know the names of narcotics or ask for something that has helped in the past and don't know all the rule changes.

 

 

Reply
tonyo, Community Member
2/17/11 12:53pm

i have to say ....3 cheers toyou!!! on the button with your history. this is the life of a dishonored, disgraced, disheartened and disrespected life of a real chronic pain patient. i also have many documents, journals, and notebooks and some PM visits that discriminate us patients severely. maybe we can combine our notes. i am planning to write something maybe a book about this crappy life so someday it may help others and even change our system of treatments as leppers. there is one thing i did to fight the wronged. i reported my PM Dr. to my states phsycicians license board or review. even with the evidence of neglect on tape. Dr. said, he didnt care what i needed, what i wanted or cared about me personnally or medically. the board did nothing but piss him off. so he retaliated. he reduced my pain meds. so i would flunk my urine test and release me from his narcotic aggreement with no other means to have any future pain medicine. he also made it immpossible for me to be accepted into another PM in the state of Ga. after applying to 9 PM's i had to go to Emory Univercity Hospital. they were the only ones who would take me on. best move i ever made. they immediatly set me up with tests and neurologist and shrink. within 3 months i now had confirmation of exactly what i had, how severe it was and a corse of action to be applied. i wish i could thank the old PM Dr. but no attorny would take my case. it's nice to find a person who is thinking the same as yourself. maybe we can swap info some day. at present i'm much better off than i was. i'm sleeping, eating and dont have those bad thoughts going thru my head. and i no longer see the shrink.

Reply
sunrisedusk, Community Member
8/27/11 10:32am

I'm in the same boat due to new laws passed in Florida. Can you please tell me why the hosptal helped you when no-one else would? I don't know where to go and have only lived in Florida for 3 months when my PCP told me he couldn't see me anymore due to the new legislation. Maybe I should try a hospital? 

Thank you in advance. 

Reply
Iam8up, Community Member
2/14/14 5:55pm

I am living in TN who wants to be the leader in the United States in removing all the drug addict and over dose teens. State of TN Opioid Prescribing Policy Acts 2001 Chapter 327  63-6-1103 Legislative Declaration.

 

7. Opiates can be accepted treatment for patients with severe chronic intractable pain who have not obtained relief from any other means.

 

I have been taking oxy's for 6 years.  Never had a problem, no pill count wrong, no DR shopping, no excused for "lost" pills, come to the office every month.  I am the only person in this clinic on oxy's, so my Dr does not hand them out like candy.

My last appt.  I was met with a cup for a urine test to make sure I was POSITIVE!  I also reviewed and signed a 13 page document about rules and regulations on taking these medications.

I see the Dr, who informs me I have to be cut way, way, down on my medicines.  I have 6 years of documentation, nerve test, MRI's, CAT scans, etc.

I have to go down 10 mg per visit.  It may not seem like much, but I have already experienced the beginings of withdrawl, yawning and severe stretching of all my muscles.  The break through meds. are being taken first.  The 80 mg. that are suppose to last 12 hours, never have, usually 8, and right now about 6 1/2 hours.  There are those of us who have played by the rules, but we are lumped in with the criminals.

That 7. listed above?  The government does not consider RSD a chronic pain problem and will not consider reviewing any documentation on what I have been through.

I get the run around trying to talk with anyone in the government about this extremely strict law.  Anyone who knows who I can write or call let me know.  It's like when I had RSD starting 6 years ago and not a soul recognized it.  It is like taking two steps backwards in the world of RSD!

Reply
johnson, Community Member
2/16/11 1:50pm

The DEA is breaking the law daily. They are intimidating doctors with threats and telling them hoiw much they can prescribe.They are not doctors. Let them do what they are supposed to do. , Break up the cartels selling heroin , cocaine, extasy. They are letting patients that have real pain suffer needlessly. They should all have an older parent or child with severe pain and not get any medication and then they would stop this garbage. People need to send e-mails by the millions complaining about the DEA and that with all the billions of dollars they cost taxpayers you and I both know that the drugs are still there. Legalize it all and tax it and in one year we would have no deficit and all the recreational users will have overdosed and we won 't have these problems. Alcahol and cigarettes kill 10000 times the amount of people and its legal. What crap is that.

Reply
Barkeydude, Community Member
3/15/11 9:48pm

OMG .... I am a member of many chronic pain forums .... am a medical professional and have rarely if every seen the complete amount of ignorance lack of simpathy .... pis poor additudes and lack of compassion for the chronic pain patient.  I am simply amazed at you who call your self "human Being" for you have provided all the insight typically seen by simians.  How dare you all pick on this RN by referencing statistics that apply to just about any profession .... again your lack of compassion is simply remarkable, disappointing and clearly from the view of either a jelious drug addict and a heartless person who has never experienced the depths of chronic pain .... I am simply amazed and many of you should simply be ashamed. End of my rant for now.  Thank you and God help us all.

Reply
UnderstandingHuman, Community Member
5/16/11 7:00am

Very well said!!

Although, I think the word "some" should have been used to clarify that not ALL of the people in this thread are completely uneducated as to the horror of living with chronic pain and the hell such people go through simply to find a doctor (thanks to a combination of the DEA [mainly] and state medical boards [playing along with the DEA])

Did you know one of the members of my state's medical board actually said the words, "...people on strong opiates are all addicts or drug dealers and manipulate doctors into giving them what they want to get high or what they need to make the most money.."   

People need to start writing letters (en masse) to ALL of their state AND national governing body!!!  That is the ONLY way we will be able to change the laws in our country to stop punishing the MANY innocent instead of the FEW guilty!

(SLIGHT paraphrase, because I'm working and exhausted [and, of course, in pain] but the paraphrasing is EXTREMELY slight)

Reply
mherron111, Community Member
3/18/11 7:21pm

The Drug Enforcement administration is simply doing its job.  They are not picking on physicians.   Some doctors are simply drug dealers.  They write prescriptions for narcotic pain medication without every examining a patient, never establishing a treatment protocol or plan for their patient, never doing a history and physical examination...some even let their nurse practioner or physicians assistant write prescriptions for their patient while they vacation in other countries.  This is illegal.  Every patient who presents to a physicians office for narcotic pain medication must receive a physical examination.   The history and physical examination must be documented by the physician.  The physician must be present in the office when the medications are prescribed.  The physician cannot back date prescriptions to be handed out by his/her staff.  These actions are illegal.  These actions are usually what gets the physician in trouble with the DEA, and not simply prescribing narcotics.  There is a right way to do things, and a wrong way to do things.  If the physicians would do the right thing in the first place the DEA would not have a reason to investigate.  If these pill mills wouldn't exist, there would be no need for physician investigation by the DEA.  Let's face it, some doctors are nothing but illegal drug dealers.

 

The DEA does not tell doctors how much of a medication they can prescribe.

 

Like it or not, narcotic prescription drug use is on the rise in this country.  Also, death from legal narcotic prescriptions is on the rise in this country.

 

There is not question that most doctors do not like to treat patient with chronic pain.  That is why we have pain management specialists.  

 

Again, the Emergency Department is an inappropriate place for treatment of any chronic condition.  The Emergency Room is for acute problems, emergent medical conditions and trauma.  Not chronic problems.

Reply
UnderstandingHuman, Community Member
5/16/11 7:20am

Yet another seemingly uneducated post in this thread.. I'm starting to get depressed...

 

You need to clarify that in MANY cases the DEA is simply doing it's job.. I happen to know a physician who lost his license.. He has been a family friend for YEARS.. The man is as meticulous as you can get.. He ALWAYS did EVERYTHING required (all the exams, documentation, etc., etc.) but two patients (in the span of about 3 or 4 years) were able to con him using falsified medical records, MRI reports, etc and both overdosed (both left notes, so these were both planned well in advance)

I know another doctor who told my 84 year old grandmother that "the DEA will not allow me to write anything stronger than Lortabs for you" (Hydrocodone/Tylenol 5mg/500mg) even though you just had heart surgery.. If this doesn't help, come back and we can talk about changing something.. We went back 3 days later (after seeing her lie in bed and cry all day and all night, I forced her to go back).. When we went back, he added 800 mg Motrin and said she would have to "just learn to deal with the pain, it should be over by sometime next week".... That night, her blood pressure was so high (from the pain) that she had a heart attack and passed away in the middle of the night (that's the time she used to wake up crying because it hurt so badly)

I spoke with the doctor after this incident.. He LITERALLY cried in front of me and said that he was so scared of losing his license that he refrained from giving her what he KNEW she needed....

Yeah, there is a lawsuit in progress...

 

Point being - SOME Doctors are bad, SOME patients are bad..... BUT, the methods being used today to punish the bad are negatively impacting the good (to put it MILDLY)

 

Please, write your governing body and tell them stories such as this, or if you don't know any stories such as this, tell them you feel it is not only wrong, but un-American to punish the innocent to prevent guilt in others...

If my 80-something year old grandmother can die from these policies of under-medicating due to fear of the powers-that-be, don't you dare think for one minute that you can't either!!

Reply
hamstergirl, Community Member
7/ 6/11 9:43pm

May your poor grandmother rest in peace. I pray that her suffering will be avenged. There is no justice for us pain patients.

 

No one should have to live like this. No one should be forced to seek suicide as a last way out. We have lost too many good people. I have cerebral palsy in addition to chronic pain. You'd think they'd listen to me. No. Seven stinking years waiting for a pain clinic they say will never cure me. They look to me for answers and get angry when I don't have them.

 

Cerebral palsy cannot destroy like chronic pain does. I have been destroyed and broken by this and apart from a few loyal friends, no one cares. My own parents lied to me about a pain clinic so they could put me in a nursing home against my will, then bragged behind my back how easy I was to manipulate while in severe pain. And my mom is a nurse working with cancer patients.

 

I expect to be gone by the end of the summer. Even I have my limits.

 

-signed someone who cries all night from pain.

Reply
Barkeydude, Community Member
3/16/11 12:28am

Your original post with the misspell: And you think coming here, as a new member, and personally attacking other members is going to help in what way?   A "medical professional" who calls other people a "jelious drug addict" or a "hearless person," and can't spell piss or jealous correctly. God help us all is right if you're truly representative of medical professionals.   Jon  

 

 

Not HEARLESS - Heartless

 

 

Reply
Barkeydude, Community Member
3/16/11 12:58am

on maybe a more topic and constructive note ... i have been involved in this conversation on a number of other pain sites .... and the general consesus has been that an ER is NOT the place for a chronic pain patient to seek care for many of the reason listed before .... none of the having to do withyour profession - But you may recall from your training tht enmergent is considered a problem with the ABC's (Airway Breathing Circulation) that this the "bread and butter" of the ED.  I you don't happen to fall into one of those catagories there is a tendency for many ED's to simple want to refer you during normal business hours to your GP or pain management group.  On the other side of the argument there is this little Federal law call E.M.T.L.A. Emergency Medical Treatment and active labor act which states it is an ED's responsibility to stabilize what ever the presenting condition is bofore release of transfer ... that sould simple mean an rx for 5 - 10 norco to get you throough the night till you can get to you G.P. of pain specialist ... as always ... there are four side to every coin and even more opinions. Seek the care you need and if it happens to be when the docs are closed .... then you have few choices ... I agree that i won't make a habit of it.  Good luck with finding appropriate and consistant pain management.     

Reply
mherron111, Community Member
3/18/11 6:33pm

By definition, chronic pain, is not an emergent medical condition and therefore does not fall under EMTALA. 

Reply
Skye, Community Member
7/10/11 10:47pm

If you have pain in L-3, L-4 for several years, it is chronic pain, but if some weekend L-5 and sacrial pressure are damaged and you are in severe pain, they still call it chronic back pain and will not listen or give narcotics until you can see a pain doctor.

 

By the way, I can spell MISSISSIPPI today, but in fibro fog I never know if I am even using the same alphabet. We don't need to be Einstein's to have PAIN. Be kind to one another, someone has to be.

Reply
techzilla, Community Member
11/12/13 2:05pm

You're technically correct, a chronic pain problem that is simply suboptimally medicated, would not likely be an emergency.   

 

However you can easily run out of medication, while following every single rule, and then you can slip in to an emergency situation.   This depends on the severity of the dependance, but stop pretending it doesnt happen.  It does happen, and it may become an emergency.  

 

In addition even if the situation is entirelly "your own fault'", like you're a regular heroin addict, the immediate cecasion of all usage is definitly an emergency.  If it wasnt an emergency, then why the hell do people require immediate medical detox?

 

So even if you're a moralizing piece of garbage, which you most certainly are, physical dependance can still become an emergency.  Regardless of how appropriate you belive the initial presciption was, it's still a serious situation and must be respected as such. 

 

BTW you have no business providing your 'medical opinion', what if somone actually listened to you! What if they waited too long when they ran out of medicine legitimately?  What if they died from dehydration in bed!?  Some of the pain patiants are older, and the dangers are not to be invalided by laymen such as yourself.

Reply
mherron111, Community Member
3/18/11 7:27pm

Hospital obligations

Hospitals have three obligations under EMTALA:

  1. Individuals requesting emergency care, or those for whom a representative has made a request if the patient is unable, must receive a medical screening examination to determine whether an emergent medical condition (EMC) exists. Examination and treatment cannot be delayed to inquire about methods of payment or insurance coverage, or a patient's citizenship or legal status. The hospital may only start the process of payment inquiry and billing once the patient has been stabilized to a degree that the process will not interfere with or otherwise compromise patient care.
  2. The emergency room (or other better equipped units within the hospital) must treat an individual with an EMC until the condition is resolved or stabilized and the patient is able to provide self-care following discharge, or if unable, can receive needed continual care. Inpatient care provided must be at an equal level for all patients, regardless of ability to pay. Hospitals may not discharge a patient prior to stabilization if the patient's insurance is canceled or otherwise discontinues payment during course of stay.
  3. If the hospital does not have the capability to treat the condition, the hospital must make an "appropriate" transfer of the patient to another hospital with such capability. This includes a long-term care or rehabilitation facilities for patients unable to provide self-care. Hospitals with specialized capabilities must accept such transfers and may not discharge a patient until the condition is resolved and the patient is able to provide self-care or is transferred to another facility.

Chronic pain is not an emergent life or limb threatening condition and therefore does not fall under EMTALA.

Reply
Ocktavius, Community Member
9/23/12 4:51am

how many times can you miss this point? Acute, severe, and debilitizing pain above the level or normal chronic pain IS an emergant medical condition.  People have *died* from this not being treated.  In addition, several people have stated that numerous pain management specialists and PCPs have TOLD them to visit the ER in these cases.  Why do you still keep trying to bring up this absurd point?

Reply
KayKay713, Community Member
3/25/12 7:52pm

You picked up on that too.......I'm sitting hear wondering just what the heck this person's job is anyway??????   Among many other things....

Reply
squirrel63, Community Member
7/10/11 6:57pm

I do not understand WHY they are so uncomfortable helping legitimate chronic pain sufferers. We have heard the same things lately from our great state as well.

My heart goes out to you,as I am and have suffered with disc herniations,spinal stenosis....and when you HEAR one of these doctors say that..I dont feel comfortable RX narcotics,the DEA is breathing down my neck..it makes you so angry/hurt/upset..that you find yourself hoping that THEY get to experience firsthand the pain that we go through daily.Surprised!!

Also...when you tell the truth...its seeming that you get NO help,and you have the lying,manipulative smooth talking addicts out there..getting whatever they want.Makes me so mad/upset.Yell!!

Reply
squirrel63, Community Member
7/10/11 7:00pm

I do not understand WHY they are so uncomfortable helping legitimate chronic pain sufferers. We have heard the same things lately from our great state as well.

My heart goes out to you,as I am and have suffered with disc herniations,spinal stenosis....and when you HEAR one of these doctors say that..I dont feel comfortable RX narcotics,the DEA is breathing down my neck..it makes you so angry/hurt/upset..that you find yourself hoping that THEY get to experience firsthand the pain that we go through daily.Surprised!!

Also...when you tell the truth...its seeming that you get NO help,and you have the lying,manipulative smooth talking addicts out there..getting whatever they want.Makes me so mad/upset.Yell!!

Reply
mherron111, Community Member
8/ 8/11 9:22am

I don't feel that ER doctors are uncomfortable treating anyone's painful condition, however, once again, the ER is not the appropriate place for the treatment of chronic pain.  That is why they have primary care physicians, anesthesiologist, and pain management physicians.

 

 

If the emergency rooms across the country did nothing but treat chronic conditions it would take you a year to get into to the ER while you are having your heart attack or stroke or other acute lifethreatening emergency.  That is why the Emergency Rooms across the country continually refer chronic pain patients to pain management and their primary care physicians.

Reply
Denise, Community Member
8/ 1/11 6:39pm

I went through the same thing. I am also a nurse. After visiting numerous physicians who insuated I only wanted the pain meds to abuse them I finally found one who actually heard me. he in turn sent me to pain management. No one can judge another persons pain. I advise you find a doctor who will not judge you and will be empathetic to your situation. I saw 10 different doctors before I found one who was willing to help me. That was 11 years ago and I am still being treated for chronic pain. Good luck! The sad part is that so many people are drug seekers that it affects those of us who really need medication and take it appropriately.

Reply
mherron111, Community Member
8/13/11 9:27am

Two Physicians Indicted in Pain-Med Deaths of 4 Patients

Robert Lowes

 

 

August 12, 2011 - Two physicians who once practiced in Colorado face federal charges of illegally prescribing opioid analgesics and other controlled substances that led 4 patients to overdose and die. They also face charges of healthcare fraud and money laundering.

 

If convicted, Sam Jahani, DO, of Cleveland, Texas, and Eric Peper, MD, of Summerland Key, Florida, could receive long prison sentences and pay millions of dollars in fines. The charges related to the patient deaths come with the most severe punishment - life imprisonment.

 

The criminal charges, filed last week in a US District Court in Denver, Colorado, pertain to a period between January 1, 2006, and April 30, 2010, when Dr. Jahani operated urgent-care centers in 3 Colorado cities - Montrose, Delta, and Grand Junction. Dr. Peper worked at 2 of the centers.

 

According to a grand jury indictment, the 2 clinicians prescribed controlled substances, such as oxycodone, alprazolam (Xanax, Pfizer), diazepam, and fentanyl, to known drug addicts without a basis in medical necessity. The indictment alleges that the physicians "prescribed controlled substances in such strengths and quantities that their prescribing became a contributing factor in the patients' overdose deaths."

 

The healthcare fraud charges stem from the physicians allegedly falsifying medical records and overbilling third-party payers, such as Medicare, Medicaid, and private insurers, for their services. The indictment claims that Dr. Jahani even submitted claims for services never rendered, including those for dead patients. In addition, third-party payers reimbursed pharmacies for the controlled substances that the physicians prescribed.

 

Dr. Jahani and Dr. Peper were hit with the money-laundering charges because they conducted various financial transactions using third-party reimbursements for allegedly fraudulent claims.

 

Indicted Physicians Have Had Run-Ins With Authorities Before

The 2 physicians are no strangers to professional controversy. While he was practicing in Dallas, Texas, Dr. Jahani was accused in a federal civil lawsuit of overcharging Medicare for services that were not medically necessary, not provided as billed, or not provided in compliance with federal and state law. The federal government claimed damages of $5 million.

 

Dr. Jahani settled his civil case in 2004. In such settlements, defendants do not have to admit to any wrongdoing, but Dr. Jahani entered into a 42-page "integrity agreement" with the US Department of Health and Human Services.

After a 2-year hiatus from working as a cardiothoracic surgeon, Dr. Peper was ordered by the Colorado State Board of Medical Examiners in 2005 to complete an educational program before resuming his surgical practice or providing nonsurgical care in Colorado. The order came after the board investigated a complaint about Dr. Peper involving 19 patients.

 

Journalist

Robert Lowes

Freelance writer, St. Louis, Missouri

Disclosure: Robert L. Lowes has disclosed no relevant financial relationships.

 

Reply
GeisterXfahrer, Community Member
8/22/11 2:22am

I live in GA, Atlanta area, And there is a Dr. Howard Williams III aka Dr. Pain.  I started seeing him in August 2010, and was on norco 10/325 every 4 hours, by december he had me on 200mg mscontin a day plus oxycodone for BTP.  I agree about having to go to another State.  For instance, I just went to the ER for my new back issues, I was given IV dilaudid, and they gave me 10mg percocet to tide me til monday morning and recomended that my PCP give my 8mg Dilaudid every 3-6 hours PRN PO.

Reply
Hammer, Community Member
9/12/11 5:24pm

I cannot answer your question, but can tell you how bad it is in my state, Florida. I was injured bad on a job 8 years ago and have been on narcotics ever since then. I go to a pain mgt. clinic and am on morphine. So now since all the perscription drug abuse in this state they pass a new law. Now my meds cost doubled I now have to see my Dr. every month as to every three months, which all cost me more money per month( I am on S.S.D.) then friday I am told I need to do a urine sample drug test, so I go to the lab downstairs (Sacred Heart) and am told it cost me 248.00 for the test cause Medicare won,t cover it! So the nurse at my Dr.s office tells me when I come back up " You have to get it or we will stop your meds, its a new law!" So a 8 year  morphine addict could be forced to suffer opiate withdrawels, which could kill me? because I can,t afford the test. And I believe I have to test every month. So I guess for me Sept. will really be pain awareness month. How can I get a drug test that Fla. will recognize cheaper? Prayers would be apprecated. I am 65 years old.

Reply
KayKay713, Community Member
3/25/12 8:09pm

@Hammer:  prayers are coming.

Reply
Pain-for-life, Community Member
12/30/11 6:11pm

Like Grayson said in Congress"When you get sick DIE QUICKLY!", or you will be forced to serve a life of pain. I have been on pain meds for over 20 years and without the meds I would have not lived a somewhat normal life. My kids, I was there for soccer and other milestones in their lives. Without meds I live on a couch and hardly eat or drink and do nothing but try to survive the pain. When all the people that need pain control cannot get meds there will be a surge as people will do almost anything to stop their pain.

Reply
Gazelle, Community Member
2/ 8/12 9:46pm

I ran across these post and read down through them.   Even though I get tired of reading the ones with fantastic scenarios that have a suspicious quality to them-the ones where the doctor screwed up the urine test-right!  I decided maybe you might get something useful out of my story.

 

Seven years ago I hurt my back-not badly.   But during pt to fix it something went horribly wrong and I got shooting pain in my thoracic region so severe I could ot stand it.  I tried to work but I was a marketing person who traveled all the time and I was in so much pain I just could not even sit in the office for a long, let alone travel. Finally after a year of hell of trying to hold onto my job and not let my employer know how bad off I was, I finally left work.  

 

When I got hurt I had gone to my regular doctor.  She tried giving me some light narcotics and other things like muscle relaxants and pt but the pain got worse.  Finally it was apparent that somone more specialized needed to treat the pain so she sent me to a well-know pain clinic here in Seattle.

 

Despite the fact that they could not find the source of the pain, they believed that my pain was real.  In over 70% of back injuries, they never find the cause of chronic pain.  The pain management person started out giving me some oral narcotics but also gave me non narcotoc injections along the nerve pathways and a variety of other treatments including meditation. But the pain was still uncontrollable. Finally they proposed that they put a pump that pumped pin drugs into my spinal fluid into my abdomen.  I tried to get aling without it for almost two years and then got the pump.  But they either had trouble finding a drug that would work or I had such bad side effets they had to take the drug out before they could use enough to see if it was effective.  I have a strange physiology, many drugs just don't have any effect on me!  I continued on oral drugs and trials with stuff in this pump.  

 

They werre very, very strict and you knew the rules from the beginning.  You got so many pills and if you lost them or took too many you could not get more until you saw your doctor.  If you lost your pills you could go to an emergency room to get help if you went into withdrawals but ER docs were not at all sympathetic.  You could also go to an emergency room if your pain suddenly got worse.  Over time, I developed a colossol narcotic tolerance-not depemdence though. ER docs were not sympaththic at all and did not give you more narcotic even if you explained that.  They were usually sarcastic! If you demanded that they call your pain doc (they can page him) and they did, their attitude changed dramatically and they changed amazingly after they talked to him!  Several times I had really severe pain that the ER could not get under control OR the pain clinic could not. They they admitted you to the hospital for "pain control" so that can happen.  So the point is the ER is not a very good place to get treated and the ER physicians have no training in pain medicine!  they are used to addicts coming in and trying to come up with a story to get a script.  I am the nicest 69 year old you ever saw and they suspected me!

 

If you were in the hospital for something else entirely, you had to worry that they would continue your pain drugs!  also even worse if you were in a nursing home!  In both cases, they almost always screwed up my pain meds and did not give me all of them!  the only thing that saved me was when they called and ask the pain management clinic to consult.  I was in the hospital recently and they stopped one of the drugs I take orally by mistake!  The stupid hospitalist did not know what it was!  I went into withdrawals and was sicker by far. 

 

It is not a bed of roses!  sometimes I have to fight my pain doc about how much I can take! Periodically the newspapaers do a story about pill mills and how people re getting too much narcotics which is why the legit. pain management places have to be so careful. But if you go though the process, you can get help without having to go to all kinds of doctors.

 

 By the way, pain management doctors know they have to prescribe enough to actually stop or really help the pain.  Also I can't hop from clinic to clinic.  I have to go where my family doc has referred me!

 

Last, I spent months in Mexico.  I brought a letter from my doctor so I could refill narcotic prescriptions.  You may be able to illegal drugs but legal morphine for instance is very, very hard to get.  Same ith many of the other pain drugs.  The doctor told me that I would have to get them in the US and bring with me as he could not prescribe enough legally for me to stay in Mexico indefinitly.  So there you go!  If you ant to risk your life on that stuff in Tiajuana you can.  The average doctor written legal narcotic script in Mexico is far more like to be tylenol and a little codeine.

 

Cheers!

Reply
whiskerbuscuit, Community Member
4/20/12 11:51am

If you live on the East Coast of Florida there are a million Drs. that will see you

Reply
Pink187, Community Member
5/25/12 11:10pm

Skye: I know this post is 2 yrs later than your original, but I felt compelled to write. I have RA (Rheumatoid Arthritis-20 yrs this year), I am also now a transplant pt because of the RA. 3+ yrs ago, they put me on Hydromorphone (Dilaudid). I have only asked for an increase ONCE, & early refills a handful of times if that. Last week, I fell & have a severe back injury due to that. Mon. I went for my RA infusion, asked about my pain meds (due on the 29th) & was told to drop a UA. No problem, I don't drink or abuse drugs. I have been diligent when it comes to my pain meds as I need them for the severe pain that comes w/RA. Suddenly, my RA dr (who I've had for almost 12 yrs) tells me that I've been asking for early refills for months (proved that one a lie with the pharm records-even had them faxed to my dr). But here's the kicker: I was told 1st that I had NO pain meds in my UA (impossible), then, that I'm "taking too much" (so which is it???). Now, my dr said that a dr had his license pulled 3 days ago (another lie-I check). I have no clue what's going on. Like you, when I go to the ER, it's for my transplant, NOT the RA (they always acted like I was some faking junkie when I said anything about that). Plus, wait for it.....there's a SIGN in the ER stating that they "have the right to ask your friends & family about your pain med use". A direct violation of the HIPPA Act. What in the hell is going on here? Do we have to be DYING to get opiates? I didn't ask for the damn RA (I HATE it & what it's doing to my body, especially this past year), I didn't ask to be a transplant pt (the RA did that) & I did NOT ask to be put on a opiate because I've been through withdrawals 4-5 times & I wouldn't wish that on anyone. I hope since your post that you have found some relief & a compasssionate doctor who has helped you. Thank you for your post.

Reply
Margie, Community Member
5/26/12 7:54am

Gently but firmly remind you GP about the oat he took as a Dr. "to do no harm" blah blah blah. I also throw in the whole "quality of care' bit.

Try it, you have nothing to loose. Maybe you need to find a new GP. 

Hope this helps.

Reply
tdhkwh47, Community Member
6/14/12 4:16pm

If you need pain medicine, don't move to Iowa! I was seeing a pain dr whos practicw got closed due to neglacence of one of the other doctors & no other clinic will take patients from there. How fair is that? They closed but the patients have to suffer? OH yeah, they will not give meds to help tapper down so the 1800 patients of this clinic will probably be very sick detoxing. Never had one but hear its not a eay thing to go through . Sorry for rambling but I am PISSED!

Reply
Jeannie, Community Member
7/ 2/12 9:50pm
 
 

The Raid

Inbox
 

 

First I would like to comment on the raid that has taken place at the Stuart Pain Clinic.I really am shocked at our Government for allowing these clinics to pop up all over the state of Florida,and now that they have, and are in existence the blame is put everywhere but where it should be.I can't help but see things as they truly are.However the very fact that these so called pills mills needed to be clamped down on very hard for the safety of the citizens, is a huge task.What I am sick about and bothered by is what is going to happen to the sick people that are affected by the way this is being handled.It is a sad situation anyway you choose to look at it.People are dieing from drug overdoses and the true sick people are also dieing from the severe withdraws they are having to suffer because of the lack of understanding from this new bill.When this bill was put in place they forgot one very important element the sick people, that need their medications for a quality of life, when all other options have been exhausted, or there were no other options for them to begin with.Please do not comment to my post unless you have read the new bill and understand the full effects of it.I feel really bad for the families that have lost their loved ones from overdoses,but I feel just as bad for the families that are loosing their loved ones from the lack of concern that is taking place while Law Enforcement are running around like cowboys raiding more than these pill mills.I have been with this from the very beginning.It is the everybody is a drug addict mentality that seems to be so alarming.Look there is no difference for the sick people of this state that are on medications, and that is what they are to them, their medications,not drugs,to a addict they are drugs.What is the meaning of dependency? There is no difference between someone who needs their diabetes medicine,or high blood pressure medicine to give them a quality of life,for without those medications they will have consequences and even death.The same goes for sick people that suffer from chronic retractable pain.They need their medications to be able to function,some people need to work,take care of their families etc: These medications are how they can accomplish the smallest of tasks that some people take for granted.While it looks like things are running smoothly as to what is being done about these so called pill mills,and mom and pop pharmacies,the truth of the matter is that our well known pharmacies are being targeted as are some of the Legit Doctors and their Legit patients.If you think about were all these sick patients,and I am not talking about the addicts,I am talking about the truly sick people,where they are going when these Clinics are being raided and closed down,and no Doctor wants to take the patients that are truly in need of these medications,what do you think is happening to them?I will tell you what I know to be true.The patients that are in need are now scrambling to finds Doctors,and if they are lucky enough to find one,chances are it will be another clinic like the ones that just got raided.There is a lot of behind the scenes that the Media refuses to tell the truth about,while they are only enjoying the Drama.These sick people are now looking like Doctor hoppers,Pharmacy Hoppers and drug seekers,the very thing that this state was trying to stop and is now causing some of the same problems to begin with.I bet there are many of you out there that do not know that the corporate Legit Pharmacies are being told not to fill peoples medications.The Legit Doctors refuse to take sick people even though they have insurance.You have been told that if these people can pay these pill mill Doctors that amount of cash to get there medications then they should be buying health insurance.There are a lot of people in those clinics that have insurance,most legit Doctors in this State refuse to take their insurance.I want to know why everybody is a drug addict,that need narcotic pain relievers.I do however also know that there are Legit Doctors taking patients who are addicted to these pain killers,for several reasons,some have been in car accidents and they see Dollar signs,some have better insurance than others,all the while they do not even care or know that they have addicts on their hands,or maybe they do know.My point here is that everything on the surface is just that on the surface.While it has been all over the news that they raided this clinic and that clinic and this pharmacy and that pharmacy and confiscated 3 million oxycodone in each raid.The real story to date is not even near that amount.That bill was a very poorly written bill and signed by a Governor who had no regard for the truly sick people of his State and what the consequences for them would be.I will tell you what is happening to many of them,they are left without Doctors,they either have insurance that is useless or no insurance at all.Most are scrambling to Doctor after Doctor to the point they now fit the Doctor shopping profile,they  also are fitting the Pharmacy hopper profile,because the pharmacies are being told not to fill their medications in this county or that county.They are going through severe withdraws and some are dieing.I bet you are not hearing that on the news are you? So while it is important for our Government to clean up the mess that was inflicted by them for not paying closer attention to some of these Doctors coming into our State from all over the World without some of them not even having the proper credentials to practice Medicine, and now the sick people have to suffer the consequences.As far as the over prescribing of these medications is concerned I have to wonder whose fault that happens to be.How many sick people will continue on their quest to find a Doctor in this State who really cares and who now is not afraid of the big bad wolves coming to get them.I hope they can find some resolve for all involved.As for Dr.Kammerman and his gang of outlaws shame on you for using the addicts and the sick people for your greed and unpretentious ways.I understand the urgency to clean up Florida but lets face it I know it and you know it drug addiction doesn't start with the Doctors,it starts because of the lack of Doctors and how they care and what they care about.This Pill Bill is yet to do it's job,or maybe it is the people behind the Bill that aren't doing their job.The sick people and addicts will always be part of society both will do what they have to.I think it is time we as the citizens of this state stand up together for are rights,the constitution is there to protect us and so are the Patients Bill of Rights.They are in fact in violation of these laws.The problem is finding an Attorney to stand up against these officals that are denying us our care.Since the DEA has a Medical License then it would be apporiate to say they have commited some kind of Medical Malpractice.Finding the exact violation will take the people that are suffering because of this new Pill Bill and hit head on with every possible law suit,and please do not say it can't be done.
Reply
Jeannie, Community Member
7/ 2/12 11:20pm

Jean
"WE THE PEOPLE" ARE COMING,FLORIDA, AND WE ARE PISSED!!! For you becoming part of the problem,For Representing special interests,For Ignoring your responsibility to the sick people of this State,For Killing Us, not representing us,For jeopardizing our Health,For redistributing blame,For a Tyrant Government,For not living by the Laws you pass,For treating us like serfs instead of citizens,who need your help,For "Transforming" FLORIDA into a prejudice state against the sick people,For Forgetting you work for us....YOU ARE FIRED!!!! "WE THE PEOPLE" ARE COMING,FLORIDA, we are coming for you!!! For breaking the Laws.

Reply
pudbrock, Community Member
8/ 2/12 10:20pm

this is sooooooooooo sad for many good people my nerves have been so bad all my life i wouldnt leave the house i really had probleams takeing them some where for panic attacks i cant speak when thease tings happen or any noise my heart beats so fast , and, when i got on nerve pills my life changed i could drive shop take care of the probleams at home with a normal mind i have high axity disorder ptsd i went to the counslers they sent me to the doctor that could give me nerve pills maybe addicted but, im liveing whats gonna happen , im so scared plus my pain pills when i get up i can hardly walk then the pain shoot in my leg i cant lean do laundry go out side , what will happen dose any one care about the ones that didnt breal the law i kept my meds in a safe with a gun , i bit theam into i took what i needed please someone tell me what hppends now this isant right to the good people


Reply
Hypermobility, Community Member
9/20/12 8:53pm
Impt case in FL for pain mgmt. Ruggow vs Feds. Ruggow won w/20 min jury deliberation. Check it out. Reply
Hypermobility, Community Member
9/20/12 8:56pm
Also check out Forest Tennant MD. Reply
Cindy, Community Member
9/24/12 3:45pm

Its because Ins. companys pay specialist to say drugs are addictive. The real medicine that works cost ins. company to much money so now they pay to develop synthectic Rat poisens and say there not addictive. They are worse for your heart and body because just like when they stared the phase of low fat sythctic sugers. Its all about Ins. companies chargeing more for deadlier medications. We have no more Dr.'s everyone specialst have not connection with u as a human being . We have all become cash cows. I know I carried a paper around for 21/2 years that Digestive Desieas DR. so no more cat scans and Mri's for me . But every time refused treatment becuase of crhronic pain caused by specialist no communicatig with eachother. Just 2 weeks ago I finally made it back to university of Md hospital after being treated as nothing more than a cash cow not worth of pain relief. Finally found out what two high risk means. Even john Hopkins cant help me now becuase of all the refussuls to even get a apt . unless  I got another cat scan or mri despite warings from other specialist in Fl. I as finally told the truth I now have Radiation Sickness. From all the years of being bullied into taking more test and no treatment . UM told me I now need end of life care to at least be comfotable in my last days. Now I cant even get Family Dr. to sighn for a electric wheel chair and anti nausua med. Theiveing Murdering Specialist in FL to busy making people sick rather than give them any quility of life. Cindy Bortmes

St.Augustine , FL32086

Reply
MMT, Community Member
10/28/12 1:18am

A large majority of the PMD's in this area are starting to use Suboxone and nerve meds. to treat chronic pain instead of stronger opiates. If your doctor will not give you the popular, but often abused ,well known opiates, perhaps it may be more convient and effective to find a doctor who prescribes Suboxone for Chronic Pain Management.

 

If some or all of your pain is neuropathic, they will prescibe you Neurontin or Lyrica in additon to Suboxone.

 

If one takes small dose(s) of the Suboxone at frequent intervals they will not exceed the "ceiling effect" that this drug combination has.

 

The active ingredient in Suboxone is called Buprenorphine. It is a long lasting opiate like agonist drug. It is combined with Naxolone which is put in the Suboxone, it is a opiate antagonist. The Naloxone is compounded with the Buprenorphine (4:1 ratio) to reduce the abuse potential of the drug.

 

Buprenorphine has a half life of approximately 37 hours.

 

Suboxone is prescribed for the treatment of chronic pain in an off-label fashion and is also more commonly used for opiate addiction similar to Methadone uses.

 

A very low dose of Suboxone can help manage chronic pain successfully in certain cases. Suboxone is now days prescribed in sublingual strips which are placed under the tongue where they dissovle rapidly.

 

Pain relief from the Suboxone can start is as little as 15 minutes after the sl strip dissolves.

 

"Less is best" when using Suboxone for cp since the ceiling effect of the drug is from 4-16 mg. If a patient were to take more than their ceiling effect for Suboxone, it would be wasted, since the drug is no more effective for pain after the ceiling is reached.

 

Some patients take as little as 1 mg Suboxone, which would be about 1/8 of an 8 mg strip, combined with say 1mg clonazepam and 300 mg of neurontin and find that their pain is more tolerable than it was on high dose of opiates such as Roxicodone, etc.. even.

 

Suboxone gives the patient(s) feelings of energy, patients are less apt to become tolerant to the drug in comparison with other opiates, thus requiring no increase to the drug's mg dosage. Often the patient(s) lower their dose once it is built up in their system.

 

Suboxone has a severe wd effect if stopped abruptly due to it's very long half life. Suboxone is not recommended for women who are pregnant, in these cases Subutek may be prescribed.

 

If suboxone is snorted or injected the Naloxone can cause wd symptoms, this fact reduces the likelyhood that one would abuse the Suboxone.

 

You can find much useful information on many forums and websites about Suboxone.

 

Doctors feel more comfortable to prescribe Suboxone than other more well publicised and abused prescription pain killers and may hold the key for some patients who may be having difficulty finding a doctor to prescribe pain medication(s).

 

Suboxone could be a "stepping stone" to tide patients over until they can find a doctor to prescribe other medications if the Suboxone is not for them.

 

Buprenorphine, mg/mg is stronger than Morphine. Doctors who prescribe Suboxone must be certified to prescribe this medicaton.

 

I hope this may help just one person on this forum if not more.

 

 

Reply
MMT, Community Member
10/28/12 6:47pm

Did you all know that the well known blood thinner Warfarin aka: Cumonin was developed by DR. Sefaninni?

 

It was developed and dosed for humans from a RAT POISON !!!

 

It killed the rats by causing them to bleed to death internally.

 

Now the drug's altered form has saved many thousands of humans, thanks to the properties the RAT POISON has which thins human blood and allows the heart to work less, can sometimes let potentially life threatening blood clots pass without doing the damage the clot could have done if the blood thinner was not used.

Reply
jody, Community Member
11/11/12 5:06pm

Have you tried going to a different town in your area? otherwise i have to agree you need to go to a new state ;( .. i have been on pain meds for about 20 years and i just moved 2 years ago and took my records into a new GP and he was hesitant because of the methadone but he gives them to me every month now.. he has learned to trust me over the last 2 years but i never get refills ihave to go back every month but i still get them.. Try going to a methadone clinic..Good Luck Skye i sure hope you find something hun .. {{hugs}} 

Reply
autumnsunset123, Community Member
11/25/12 11:19pm

I know exactely what you're going through. I have had success with getting a prescription from a doctor but they never refill it so I have to go to another doctor and it appears I'm doctor shopping when I'm not and there have been serveral occasions where doctors look at the Prescription Monitoring Program to deny meds when I"m in extreme pain. I think this program is a violation of our rights as patients. 

 

One thing I can say, I have gone down the Suboxone route which has helped (except now that has tainted me forever because when a doctor sees that I was prescribed that- they assume it is for withdrawal). 

 

Another alternative for pain is called Kratom. It's a natural, legal pain reliever. You can get it on several places online. There's a place in Portland, if you google Portland and Kratom you can find it. It tastes funny because it's like sand you have to put it whatever and drink. But it's a legitimate pain reliver i would try if I were you.

Reply
Stuckinarut, Community Member
12/31/12 12:45am

I had that problem for years.  I saw 5 different practitioners at my health clinic (on Medicare so few options for healthcare) and spent 3 years as their guinea pig for every non narcotic with even a remote association with chronic pain.  They even had misdiagnosed me as having fibromyalgia, so they tried all sorts of medications that only help that specific illness.  I was in so much pain and nothing they gave me would help.  The clinic actually has a ridiculous policy that they will only prescribe narcotics if you can provide medical records proving that you have been prescribed them over time by another practitioner.  I finally found an NP who prescribed Morphine Contin, but she kept messing it up.  First, she didn't put anything but my name on the triplicate, so the pharmacy made me go back.  The new Rx was for a lower dose that actually doesn't exist.  I went back and told her she had written it for the wrong dosage and she included "aggressive behavior" in my diagnosis: I can't get them to remove that label, and they use it as their new excuse for not giving me narcotics.

 

Anyway, my only option was to go to a pain management doctor; none in this county, at least, take Medicare.  They all charge between $400-$450 just to get set up, then $150 for each monthly visit.  My doctor doesn't accept ANY kind of insurance at all!  I have had to stop driving my car and drop my insurance so that I can pay him. Trigger point injections, at $125 a pop, worked to relieve some of the pain so that I didn't need to take as much morphine.  However, when I couldn't afford them anymore my doctor just increased my narcotics rather than reduce his rates or do something so that I could afford the injections!

 

Point is, you will need to find a pain management doctor, and be prepared to pay very high prices for their services.  I don't know where you live...I'm in California--Bay Area--so that is the deal out here.  Mine would have no problem treating acute pain as well; you have to build a trust relationship with him/her, but once you do then you can get what you need when you need it. If you can afford it these doctors have a lot of alternate therapies that might help you, depending on your diagnosis, such as the injections, accupuncture/accupressure, injections of other types of medicines, like botox or cortisol (I think).  

 

It really is horrible how doctors make chronic pain patients feel like scammers or criminals, and we always have to explain or justify ourselves.  The DEA is also to blame.  The whole situation just sucks.

Reply
Tom Tele, Community Member
1/15/13 1:08pm

Intractable pain patients have  no rights which must be respected by anyone. Siobhan Reynolds, (peace be upon her) wrote up a lawsuit to force the DEA out of medical practice, but she could not get enough funding. Especially because a low grade semi human ( Judge Tanya Treadwell) legally destroyed her organization. If MD's had any courage they would revolt against persecutions such as perpetuated by Dr Hurwitz and Drs Schneider. DEA agents with gunshot wounds should be tossed out as you were. Nice to dream. As far as I can tell. hysterical opioiphobia is a foundation of Western Civilization. Maybe it differetiates us from Persians? Anyway, I am sorry this has happened to you and I wish those who refused to treat you out of fear, have long, slow, painful deaths.

Reply
Dhali Momma, Community Member
2/13/13 3:53am

I was researching my 'next' step pain management wise when I ran across this blog and wanted to add my story to all of yours.  First of all, I am so sorry that you are suffering. It's frustrating and you feel that you are so alone....I feel for each of you.It's a rough road but it's what we have to travel.

 

I have a little heard of disability called Arachnnoiditis which is inflammation of the nerves in spine and brain and damage to the spinal cord that can lead to many painful and debilitating symptoms. Chronic pain is common, including neuralgia. Numbness and tingling of the extremities is frequent due to spinal cord involvement. Bowel, bladder, and sexual functioning can be affected if the lower part of the spinal cord is affected. And that can just be devestating...and embarrassing, no less.

 

While arachnoiditis has no consistent pattern of symptoms, it frequently affects the nerves that supply the legs and lower back. Many sufferers find themselves unable to sit for long (or even short) periods of time, often due to severe pain as well as  neurological symptoms, such as difficulties controlling limbs. A lot of cramping, nausea, depression, and anger...makes me just a joy to be around!

 

 It is relentless, incurable, and degenerative...and I got it because I listened to doctors about substitutes for medication..It can be caused by the introduction of chemicals into the spinal fluid or damage to the spine..it started in 2005 when I was seeking relief from severe disc degeneration cervical and a ruptured disc lumbar. I thought THAT WAS PAINFUL....WHAT AN IDIOT I WAS!

 

 The spinal epidurals in my neck as pain blocks worked well for my cervical spondylosis & ridiculapathy for a couple of years...THEN I had an epidural in 2009 for a hip replacement  that knicked the dura and no one suggested a blood patch, so it continued to bleed into the dura. All of which led to this condition.

 

After years of doctors telling me that it was forever and I would become an addict if I kept taking drugs (which is ever so much worse than a completed suicide, right?) I THOUGHT just F it....I quit all meds, never went through any withdrawal (360mg of oxy a day...but I titrated down before stopping) and started meditating 2 hours a day & doing Yoga as well as going to therapy for my non pain issues.... Panic disorder as well as the pain depression....through this I was relatively unbothered by my pain for a long time...there's pain and then there's suffering, right? attitude is everything.

 

 All was manageable until I went in for a routine Mammogram & a steriotatic biopsy in radiology without anesthetic other than lidocaine...no prob. no pain, right? Well, they nicked the artery . it bled for a week , formed a huge blood clot & intercostal nerve was damaged.....and I flared into full Arachnoiditis again. I started having trouble breathing and was thinking of ending it all.....so I called my doc.

 

I got lucky. I had a doc who was familiar with my 'do no drugs' policy & he recognized I wasn't looking for something to get high with so he gave me some dilaudid & said if it didn't work, go immediately to ER 'cause I could have a blood clot or other problems and the pain was through the roof.

 

The ER was where the insanity started...I presented with palpitations, chest pain, shosrtness of breath and severe nausea, classic heart attack for women...a young doc looked at me, gave me 1mg of dilaudid in the arm & asked if I had a drug problem! (there was a notation on my chart that I have a resistance to medication) My BP was 155/115 and I weigh 120 lbs at 5'7'...not hypertensive. He did no blood work, no EKG, and told me there was nothing he could do...what a judgemental moron. Cute but stupid.....

 

I left, went home, cried, and then wrote to the CEO of the hospital with the complete story. I found out that there are many similar stories out there and I live on a small island, Kauai, with one hospital, so you don't wanna rock the boat...NOT ME.I don't care what anyone thinks about me but there may be hope iin my story for someone else.

The outcome is that we now are developing a pain management program including medication, yoga, therapy, meditation (which actually changes brain chemistry).

Am I cured? No, this is forever for me but sometimes we can use something to make it better for others.....and a little medication goes a long way if you use it right...so now it's 10 mg oxy when I need it and a bit of smoke, cause that's growing in my yard....and meditation, good friends, yoga, and painting.....concentration on suffering just makes it worst...find something else to do. I feel for you all and hope you find a good place in your world. keep smiling and F the ER doc!(whoops, that didn't sound very buddhist , huh?)

M

Reply
ttbp, Community Member
2/14/13 5:27am

I believe that one of the reason those  doctors don't give pain medicating is because there user themselves this is more of the hand of God stopping  this.I don't want to be a part of the things that will happen to them. I been researching natural stuff. Wow this wrong how do these people live with themselves.This is frist call ticket to heaven people soal saving suff we may in other ways be a unbeatable force. I know being clam silence and praying is frusting but when were angered we are alway in more pain.I tryed to post my history how i got it. this did not work I alittle afraid to post a pisture or even use my real name even reading the what i wrote would be away to id me the people involed are nurses, mental health, cop/nures doctor/cop they know i don't talk about without being view as insane

Reply
fancyod, Community Member
8/ 1/13 10:25pm

I was told the same thing,handed a paper about narcotics for pain.Something has to be done about this someway somehow. The DEA needs to be put in check by we the people and our rights come before there Politics,I am joining the fight for our medical rights to relieve acute and cronic pain. Our we building the Mayflower yet? Your not the only one there are millions of folks who suffer in pain.

Reply
fancyod, Community Member
8/ 1/13 10:55pm

One of the major causes of  deaths is the overuse of OTC NSAIDS like acetaminophen (Tylenol) and ibuprofen (Advil, Motrin) by people who are desperate for pain relief. The Food and Drug Administration estimates that 300,000 cases of gastric bleeding occur each year, resulting in nearly 40,000 deaths. Americans are a generous and compassionate people. But they have been brainwashed their entire lives by the constant drumbeat of anti-drug propaganda coming from drug warriors, law enforcement and the criminal justice system, and endlessly parroted by self-serving politicians and the media.
Less than 10 years ago, the DEA made prescription drug abuse its primary mission after its survival was threatened because of its failure to have any impact on the availability of street drugs. The DEA ginned-up a lot of bogus statistics about deaths supposedly due to prescription drugs and they cranked-up their propaganda machine in concert with their allies in various public and private agencies who all have one thing in common; they owe their existence to the war on drugs follow the money. The media accepts press releases from these agencies and does stories on them without any critical examination of the claims being made. Mothers who lost their children to drug abuse are invited to testify before Congress, giving our representatives an opportunity to exploit their grief in a national spotlight for political gain. 

Reply
fancyod, Community Member
8/ 1/13 11:36pm

We need to file a class action lawsuit against our Government DEA,and the Medical Boards, Just a thought can it be done?

Reply
redawgc1215, Community Member
8/ 6/13 4:07am

I can only imagine what some of you are going through I have a bad back I have had a couple surgeries also now I am type 1 diabetic with severe neropathy I am aslo in need of a hip replacement. I had an ER visit from passing out from Ketone acidoses after awaking in the ER since they had not finished adding me to registery I had then decided to go home to save money since I know how to treat myself for this medical condition. Upon going to my pain dr I was told that they would have to take me off the pain meds since the ER dr had said I overdosed even though my wife was there and clearly told him I am diabetic and they were preparing to treat me for acidoses he still wrote this as the reason my wife said he had only looked at my eyes and thats when I had awoken all becuase I told him I did not need to be seen. They had put me on suboxone to come off of my pain meds I can barly function at all even becoming somewhat suicidal thinking of what my quality of life will be after I am on no pain medicatins at all. I do not know what to do about this I did nothing wrong at all but I am still repremanded. I may just tell them at my next appoiments if they refuse me I will quite taking all of my medications and that would likey kill me in days since I am a brittle diabetic. I have a wife and 4 yr son I do not know if I could ever leave them behind regardless of how much pain I am in most of the time but I did they would understand. All that will come from this is escalating suicide rates of those in chronic pain.

Reply
deepblue, Community Member
8/ 7/13 8:39pm

I have an MRI showing Multiple levels of damage, bulging, narrowing & arthritis. I'm even considered 100% disabled. It took 5 years of complaining in St. Paul, MN to even get an MRI in the lumbar area only. I'm on my 4th Doctor visit this year. This new clinic prescribes many, many narcotic analgesics for a variety of reasons and they do not treat cancer. The recommendation to the clinic was by an acquaintance who's current prescription is for up to 200MG Oxycodone & Oxycontin daily. All I'm offered is an electric stimulation implant & 800MG Ibuprofen. In my research; this stimulator can provide up to a pitiful 20% pain relief at its best. I will die before that happens. I regularly go through my P.D.R. looking for reasonable options and there are many, many choices that are not abuseable at all. So, there is no reason what so ever not to help manage someones debilitating pain.   My last Doc. Told me this, "No matter short acting or long, after 6 months new studies show that the people experienced the same level of pain as the people who received a placebo." I have heard similar things. My reply."Studies show between a person who wins a multimillion dollar lottery and a person who becomes a paraplegic in an accident there are almost the same psychological test results in regards to happiness between the two within 6 to 9 months. I don't know about you, but I would rather win the lottery.

    I am still housebound staring at a bottle of blood thinners right now; I would not treat my dog or cat like this ever. I hope everyone has better luck than I did.

from Stillwater Minnesota.  8/2013

Reply
Janis, Community Member
11/13/13 1:46am

I believe that drs must have a DEA license or permit to prescribe narcotics. That would include ER drs. All drs dont. I had an acute unrelated emergency and did get pain meds shot at ER. But when i had another attack wks later, nothing. depends on dr. If theres s change in a chronic condition ER expects you to see your dr. If they know or expect you are on pain meds they wont give you more. Family drs dont prescribe narcotics much anymore, but chronic pain patients certainly take them. Pain mgmt drs treat pain. You read that narcotics arent for chronic pain just cancer or end of life pain. But theres nothing else for severe chronic pain so narcotics are it.Theres reporting to DEA some drs. dont want to do so never prescribe them. if specialists have done all they can to treat your condition but left you in pain they usually refer patients to a pain mgmt specialist. all they need is a referral and medical records including tests that document pain. I'd guess hard to fake pain anymore with tests available.

Reply
ladyred72, Community Member
1/ 5/14 6:49pm

Hi I myself have chronic pain, I know how you feel. It's very hard sometimes to get pain meds here in Alaska,they make you go to a pain clinic. my first app. is next month. I pray it go's well. I am praying for you and hope you find a good DR. SOON...

Reply
shea, Community Member
1/14/14 6:23am

I was 24 years old when I started having pain and I was a every active and fit then. Went through every specialist and test more then few times over 10 years. 4 years ago my daughter was born and never been the same. Being military family hoping and trying to push through to get retirement line but I couldn't. I understand how u feel. The rules and regulations supposed to be place to control the doctors now laws. Basically u have to agree to drug screens, random pill counts, addiction and aduse by mental health, refill records and no other doctors can give u pain medicine including the ER. Basically treating everyone as a drug addict who has pain diseases doesn't matter if you do what is needed and take as you should.  But the hole thing is if your drug test doesnt go positive, you get in trouble but thats creating the gate for poeple to be addicts. Guess thats why pain laws are gettimg worse and some states you have to sign agreement allowing your records to be reviewed by anyone treating you and now who ever samewhere you never met look over your records, what your taking dosages, notes and judge by that if your an addiction, aduser. All is keeping those who need treatment and pain medication from getting proper timely treatment be able to have some type of life. Should be making shows bout poeple with cchronic pain diseases all the struggling daily they have and impact on the family and how doctors and medical personal behavior to patient and the type treatment given. 

 

 

 

 

 

Reply
JennyR, Community Member
2/ 7/14 4:34pm

So, the DEA cuts off ALL opiate pain meds  to legitimate  sufferers- how much would we bet there would still be as much opiates & users , maybe even more? The drugs are coming from other than Dr's & pharmacies! (Mexico, anyone?) Just read the oxycontin is hard to get, thus the increase in street heroin use. So cracking down on sick people really fixed  that! Thus, users discovered  heroin is way cheaper! DEA didn't help, just created a new  monster! The worst drug out there by far is alcohol, legal doesn't make it harmless!

Reply
Iam8up, Community Member
2/14/14 5:26pm

I am a female with RSD.  I had appendectomy,disc surgery,fibroid surgery,disc surgery and an implant of a titanium cage all within 20 month period. I believe that is why I have RSD. I go to an actual pain Dr.  I am the only patient that the DR has that takes oxy's.  Back six years ago I was given a vest that sent electrical current to pressure points on my back.  I would wear it, Dr would download the chip in it to see how I was using it and reset for the next month.  It worked for me!  No meds,yeah! Nope, my insurance company refused to pay for the vest but would pay on the pain medication.  I tried PT and OT, massage therapy, and the vest, but they(ins. co.) okay the oxy's.  Six years later I am on 315 mg. of oxy. part because I have a high tolerance and part from taking it for so long.  I go to my pain DR's, I am given an urine test to make sure I am POSITIVE for drugs.  Then I sign a 13 page document concerning the Dr.,Oxy's and me!  I am told I need to go down to 100 mg and quickly.  I am being taken off ten mg. a month.  I live in Tennessee, the leaders, forefront of remove the drug addicts from our state.  Like you I can have my prescription if I am dying or if I have cancer.  A paper pusher behind a desk decided what my prescription would be.  I already had a paper pusher that put me on the medications.  In six years I have never had a single problem, drug counts perfect, come to all appointments, never doctor shop and like you I feel I am headed out into the streets for my meds.  My RSD was extreme when I was first diagnosed, both legs on fire and my legs and feet grossly swollen. It is only, my entire right thigh, I have the flaming pits of hell burning,scorching, and torturing fire.Now not only is that returning, I get the thrill of withdrawl.  If anyone knows who to talk with about this new TN Opioid Prescribing Policy PLEASE let me know.  I have followed everybodys rules and I have ended up feeling like a criminal for taking my meds.  A side note I have no primary Dr. they don't believe in RSD or the massive amounts of medication I have been taking.  Sorry to go on about this but in our town we are down to one store that will carry the medications.  This will do nothing to the street addicts they will get their drugs somewhere, it is people like myself who have a 902.00 premium on my insurance and can't get the help I need. My husband says we will move if we have to, he can't go through me having the pain I did again.! I needed to vent! Thanks!

 

 

 

 

 

Reply
toneo, Community Member
5/12/14 10:45am

Hi and sorry for your pain.i can truly relate i been in pain 24/7 for over 20 years.WHAT YOU NEED is a pain managenent doctor.yes the dea is trhowing all t5he bricks it can,but pain management doctors have proven they can prescribe correctly.or they would not be around long example recently when i saw my doc i told that the meds just did not help anymore i felt it was hopeless,but three minuts later i had a new med that is less potent but works better. it is sad and pathetic so many live in hell,but if who ever is not in pain the chances they will give you the time of day is well not very good.it took me a long time time to find a good one because you want help but you also don't need more problems.i am no doctor,but i have been "educated"at least 5 times by pain docs.good news is thier is help for you,but as i have learned it is your responseability be your gait keeper meaning know what meds are prescribed for you example i personaly would absolutly stay away from all the oxi's - contin the list is long.why avoid them?because if for what ever reason you can no longer get them you can look forward to at least three months of hell on earth.this brings me back to finding a good pain doc.and if you have family like i do be very careful who you tell about it they are not in pain and will think they are helping you by a never ending list of reasons you do not need them ( pain meds).good luck and you may need to get tough i know now is the worst time to get tough,but to get real help never give anyone power over you and if you need look over blogs or whatever in your area to find your help.

 

Reply
Needhelp70, Community Member
5/17/14 2:36am

Hello everyone,

I'm new to this forum and I'm writing for my mother, a 70 year-old with chronic, severe pain, who has just had her pain medication cut off by a new doctor.  We live in Illinois.  She has been on pain meds for some 30+ years due to post polio syndrome, crippling arthritis, 3 back surgeries (discectomies and a fusion), lung (2/3 of 1 lung removed), gall bladder (removed), uterine (removed), rotator cuff torn, and she needs knee replacement(s).  She was prescribed oxycontin 80mg x 3 daily, with percocet 10mg x 4 daily (the amounts built up to this level after 30 years).  In the last 5 years 2 doctors have left, and the third told her she was a "legal drug addict," and that she needed to get off these pain meds, then he gave her a urinalysis which she passed.  Less than a month later he gave her another urine test, in which he found trace amounts of another pain med (methadone) prescribed by one of her previous doctors (she never throws pain meds away, just in case), and he told her he would not fill the pain meds and that she should "go to rehab!"  She had taken the methadone (10mg) so she would not run out of the oxycontin early, which she explained, to no avail.  So with no warning she had to go "cold turkey," from a large prescription of addictive pain medication, with no guidance from a physician.  Luckily, as I mentioned, she hadn't thrown her old pain meds away and she was able to step down from the high-doseage without serious problems.  After 3 weeks, and speaking to a hospital advocate she was able to see a new doctor, who gave her another urinalysis and prescription (cut in half), but as we were driving away from the hospital and discussing her visit, she said that she forgot to tell the doctor about a pain medication when he asked (she has taken several weaker pain meds in gradually lower doses to step down), so I told her to call when she got home.  I picked up one of her prescriptions and was in the process of picking up the second when the pharmacist told me the doctor's office had called and told him to hold the script.  The doctor said that she lied to him and that he would not give her pain meds; she would have to see the pain clinic at the hospital for that.  

She got an appointment and saw the pain clinic doctor, who told her he would not take care of her pain.  She called and called and saw both doctors once again, but they will not take care of her pain.  I also took her to an emergency room (same hospital) and they would do nothing for her pain.  We called the state ombudsman, the agency on aging, and a pro-bono legal service but they can't or won't help.  She even asked for a referral to see a pain clinic in another town, but after speaking with the doctors from her hospital, they told her they were not taking new patients from our county.  

This all took about six weeks and she is out of all the pain medication she has saved (for such a time as this) through the years.  She suffers daily, crippling pain and the doctors here will not help.  I have tried and tried to help my mother, all to no avail.  When I see her rocking back and forth late at night, weeping because her pain is severe, I feel so helpless and furious at those who will do nothing to help.  It seems there is something going on behind the scenes (some board telling doctors to cut patients off to save money? To satisfy some other agency?), because I have talked to others in my town who have also had the same thing done to them by this same hospital.  How long will this punishment last?  There has to be something I can do to help my mom, I'm at the end of my rope.         

Reply
Jenifer, Community Member
5/31/14 7:45pm

Unbelievable

 

Reply
Jenifer, Community Member
5/31/14 8:03pm

If it was my mother I would secretly video tape her at night and send it with her story to every paper and TV News station,within 100 miles from where she lives. I would also send it to her state/US congressman and senator,the governor, state medical board, every agency on aging a bunch of lawyers and then stand in front of the doctors office/hospital who refuse to help treat your mother's pain telling everyone who goes by how crappy and cruel the doctors and hospital are.  There is no excuse for this. You can look up your state prescribing laws and you will find that the laws about prescribing opiate medications do match with what these cruel crappy doctors are telling you. The doctor probably wanted your Mother medication cut not because state requires he does it but instead he found your Mother welfare worthy of the extra time that he may have been required to fill out more paperwork if he prescribed over a certain amount opiate meds. Patients are being lied to by the 1000's by being told that the DEA will only allow pain doctors to fill opiate medication when in fact any doctor in good standing that has a dea # can prescribe any pain medications they want.It also mentions that if the doctor has done a exam and has tests to support why the medication is being prescribed the doctor will not lose his license. In fact in MN if a patient is taking more medication then prescribe or goes to more then one doctor to get opiates the doctor needs to consider if the patient is a psydo- addict (someone getting more medication then prescribed because they are not getting proper pain relief. If I am correct the DEA says the same thing. Of course no one will tell you that. If you cannot get anyone to help her  you might want to see if hemp oil or grow you own pot may help her.That would be the last resort since that would show up on every drug test and maybe against the law in her state. Now that would be story if she got arrested. I see the headline now. 70 YEAR OLD WOMAN WHO HAS SEVERE CHRONIC AND TAKING OPIATE MEDICATION FOR 30 YEARS IS ARRESTED FOR SMOKING POT AFTER DOCTORS REFUSE TO NO LONGER PRESCRIBE HER MEDICATION. I do not even know your Mom but I am pissed on how she is being treated. You both are in my prayers.

Reply
witchesbrewtoo, Community Member
5/24/14 1:03am

I literally feel your pain.  I am sitting here crying for the both of us for for all of the other people who live wth chronic pain in various parts oftheir bodies and are being held prisoners by the DEA.  I am also crying because I am so very tired of living in this pain and most nights I pray that I won't wake up in the morning and have to endure another day in pain. 

 

I have been on and off pain medication since the age of 19 when I was involved in a very serious auto accident.  My physicians at the time told me that I would always be in sme sort of pain for the rest of my life due to the neck injury and other inuries I received in the accident. Now, at the age of 62 it is impossible for me to obtain the medication (since Sept 2014) that I need in order to perform everyday things.  I have difficulty walking due to the excruciating pain I have in both knees and in my heels, feet and ankles, I have a torn rotator cuff in my right arm which is very uncomfortable and they refuse to operate because they don't feel the tear is large enough to warrant surgery.  Additionally, I was diagnosed 5 years ago with Fibromyalgia by an arthritis specialist.  I was recently told by my GP not to tell any of the specialists about the fibromyalgia because it really isn't a REAL disease...supposedly it's just a fake pain that you THINK you have but it doesn't exist...they use the term to say you have psychological problems...but no real pain.  That was a real kick in the face, especially when a doctor tells you that you have it knowing that they are saying you are just a nut. And on top of all that my neck pain has continued to progress over the years due to my bones in my neck and spine losing the natural junk between the discs which occurs with age...so that has added to the pain I already have been dealing with for over 40 years...just getting progressively worse.  And then I musn't forget about the two herniated discs in my lower back which occurred about 30 years ago which still cause me problems from tme to time and pinch my sciatic nerve.  So with all that said I now have no life at all.  Just daily pain and am unable to enjoy life in any way. I wake in the morning after sleeping here and there completely exhausted and in pain. I hve been unable to sleep in a bed for the past 20 years due to the pain, and it wouldn't be viable even if I could because I am uable to get up the stairs on most days to get to the bedroom to get dressed or to do laundry because my washer & dryer are on the second floor of our home. I have been sleeping on the sofa for 20+ years with a heating pad on my neck.  It is difficult for me to cook because the pain in my knees, legs and feet is unbearable. I try to go the the grocery store once a week but can only pick up a few things at a time because I am unable to lift packages with my shoulder and neck pain.  Basically, my life sucks!!  When my doctors prescribed the pain medication I was able t live a normal andvery active life, caring for my sick and elderly parents and my family, working a full time job, cooking, cleaning, and doing everything like a normal person.  I never in a million years would have thought that my life would become what it has now that I am unable to obtain pain medication. And believe me I was not one of those people who over did my pain medication. I always broke my pills in 1/2 because I didn't want to not be able to functon. I only too my pain pills as needed and never even gave a thought about doctor shopping which I have been told so many people do.  I am NOT a drug addict now, nor have I ever been.  I was always very responsible in takig my pain medicines.  Any of my very few doctors who prescribed them over these many years would attest to that fact!  I always had one doctor, my GP and if I needed to be seen by a specialist my GP would refer me. I never received pain medication from any other doctors, nor would I ever even think to ask for them. Why would I?  My GP knew my history and knew that I was a responsible person who would NEVER take my pain medications other than prescribed andmost times no as much as they were presribed for.

 

When the DEA came down on all doctors this past year my GP sent me to a pain management clinic where I spent the past 8 months being given pills tha were no better in helping my pain han an aspirin. Yet I was made to constantly provide urine for drug testing at a cost of $2,000.00 each and every month or at their discretion in between the month. They NEVER found any other drugs in my urine other than what I had been prescribed BY THEM!!  I begged them to help me with y pain..I didn' care what drugs they gave me...I just needed something that would help with my pain but that was not to be. I finally tld my GP that I was nevergoing back tothe pain clinic, they were doing absolutely nothing to help me.  My GP was actually shocked wehn I told her about all the drug testing and the fact that they refused to give me opiates for my pain because I have been on anti-anxiety medication(Ativan) since my auto accident since I was 19 years old.  I had to be put on the anti-anxiety medication because I had horrific panic attacks which began soon after the accident. I actually was unable to work for almost 2 years and refused to leave the house due to the panic/anxiety attacks. I couldn't even get to the doctor for treatment because of them.  It seems that the pain clinic is worried aout me becoming a drug addict if I continue taking the same 2 drugs I have been on since I was 19 years old.....don't forget I'm 62 now. I am not now, nor have I ever been a drug addict.  I have not had any pain medication since September of 2013 and have had no withdrawals.....just a lot more pain and the inability to have a normal, productive life, a good nights sleep because every time I move I wake up from the pain.  So, here I am sufffering on a daily basis with no possible end in sight. 

 

There is something wrong with this scenario.....how in god's name can a doctor do their job in caring for sick people who are in chronic pain when the DEA is threatening them with losing their licenses.  And why aren't more people such as myself complaining aout these so called pain management clinics who are nothing more than a money making scam who are not helping people with their chronic pain, just sucking money out of the insurance companies and their patints pockets.  I do believe that all of us who are experiencing this inhumane treatment or lack thereof should get together, form a group and ask our government when they became doctors and started making decisions as to what our doctors should be prescribing to their patients...especialy when their patients are suffering from chronic pain and are unable to get proper medical help/treatment.  

 

It's late in the evening now and I will try to get some sleep shortly...knowing that when I wake in the morning I will have another day of excruciating pain to deal with, causing me to become depressed and once again hoping that I won't wake up in the morning to have to live another day without relief from this pain.  I am thankful that my parents have passed on...I wouldn't want them to see me like this.....it would break their hearts that the daughter who they loved dearly and who cared for them even on her worst days was now basically a prisoner to her own pain and unable to get the proper medicines needed to live the rest of her life at least without excruciating pain day in and day out.  God rest their dear loving souls.

 

Reply
asmerella, Community Member
5/26/14 10:31am

My father in law has lupus and hes been on pain meds Just tramadol for years and the doctors made him jump through rediculous amounts of hoops just to get those back after they became a "narcotic"...I'm very sorry that you cant get what you need...it is rediculous...can they not see... do they not have eyes...Frown

Reply
Answer This

Important:
We hope you find this general health information helpful. Please note however, that this Q&A is meant to support not replace the professional medical advice you receive from your doctor. No information in the Answers above is intended to diagnose or treat any condition. The views expressed in the Answers above belong to the individuals who posted them and do not necessarily reflect the views of Remedy Health Media. Remedy Health Media does not review or edit content posted by our community members, but reserves the right to remove any material it deems inappropriate.

By Skye, Community Member— Last Modified: 05/31/14, First Published: 03/03/10