I can sympathize with you Wendy, I wish I could offer you an answer. All I can do is say keep trying and if you can, move to another state with chronic pain legislation. I know I am making it all sound easy, I know it is not. My generation is now the ones who are doctors and such as well as other generations but we do weild the power-so I am VERY disappointed in my generation and their unwillingness to do what is right. This is eventually going to lead to an all out war if things do not change and that is where DOCTORS need to listen and get their act together- endless suffering and pain makes for VERY DESPERATE people/patients. I KNOW, I AM ONE.  I SAY, REFUSE FOOD, REFUSE ALL OTHER MEDS, IF THIS IS THE ONLY WAY TO GET REAL RELIEF, DO WHAT EVER IS NECESSARY UNTIL YOUR LIFE IS TOLERABLE. FORCE DOCTORS AND THOSE TREATING YOU TO USE AND THE 1-10 PAIN SCALE AND KEEP A RECORD, GO OVER IT WITH YOUR DOCTOR(S) WHEN EVER YOU VISIT. BECOME VERY FAMILIAR WITH ALL POSSIBLE TREATMENTS AND ONLY GO WITH THE SAFEST AND MOSR EFFECTIVE- WHICH IS MOST LIKELY PAIN MEDS NOT TRICYCLIC ANTI DEPPRESSANTS, THEY ARE A JOKE AND DO NOTHING, ASPIRIN, TYLENOL AND IBUPROFIN WILL KILL YOU IN THE LONG RUN SO I KNOW THIS IS NOTHING NEW TO YOU- SO IF YOUR PROBLEM IS LONG TERM, MOVE IF YOU CAN, OTHERWISE STRENGTH IS IN NUMBERS SO MY NAME IS THOMAS, I LIVE IN ROCHESTER, MINN AND I AM NOT AFRAID OF PUBLICITY. I AM AT WING HOUSE, A PLACE FOR NEURO REHAB--THE NUMBER IS IN INFO AS I DO NOT HAVE IT ON ME- DOCTORS HATE NOISE AND THEY CANNOT STAND PEOPLE IN NUMBERS. MR OBAMMA IS OPEN TO OUR PROBLEMS, BUT AGAIN, THEIR IS AN ELECTION COMING UP, THIS CAN BE AN ISSUE IF WE MAKE IT ONE- AS I SAID, STRENGTH AND NOISE IS IN NUMBERS- RAISE HELL, USE THE 1-10 PAIN SCALE, KEEP A RECORD, KNOW YOUR DISEASE AND ALL POSSIBLE TREATMENTS- USE ONLY THE SAFEST, MOST EFFECTIVE ONES- THAT MAY BE NARCOTICS, IT MAY NOT BE, BUT 90% OF THE TIME, IT IS.  DOCTORS JUST HATE THIS BECUASE IT MEANS THEY ACTUALLY HAVE TO USE THEIR PEN NOT JUST THEIR CONDESCENDING VOICE. ALWAYS KEEP A RECORD- AND NOT TO GIVE YOU A HARD TIME, BUT CHECK SPELLING IN YOUR POSTS- THE MORE INTELLIGENT YOU LOOK, THE LESS "MESSED UP" YOU LOOK. I DO NOT THINK YOU ARE, BUT DOCS WILL USE ANYTHING TO MAKE YOU LOOK BAD. I PROBABLY MADE SOME SPELLING ERRORS IN HERE. HANG AS LONG AS YOU CAN-