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Monday, May 25, 2009 Flopsie, Community Member, asks

Q: I have a herniated disc which is causing unbearable neurogenic pain in my buttock, leg and foot

Result of Lumbar MRI -

- spondylosis

-santral hernia at the L4-L5 disc which is narrowing the spinal canal and pressures the cauda equine roots

- diffuse bulgings at the L3-L4 and L5-S1 discs.

 

Have taken, ibuprofen, panadol extra, co-proxamol and received  one caudal epidural injection (Dr Cyriax method) of triamcinolone acetate (40 mg) plus bupi vacaine + SF + 2am ilcuglort.

 

None of the above drugs or procedures have relieved the agonising pain.  I have not slept more than 1 hour a day over the last 3 weeks and I am in total agony.  The Dr has now suggested that I adminster Synecthen Depot (1 ampule a day) however when I looked up the side effects of this drug, and the occassions it should be used, I am wary about taking it.  Can anyone who has had this condition please tell me a drug that I can take that will relieve this pain.

 

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Answers (7)
5/26/09 5:08pm

Neurogenic pain can be very difficult to treat and many people have questions about it. Please see "What Can be Done for Nerve Pain" I do not have any experience prescribing the injectibles you mentioned so I could not comment on what your doctor suggests. Sometimes a more specific transforaminal approach to an epidural can be more successful (although I do highly respect the master of orthopedic medicine, Dr. Cyriax).

 

You may also find some helpful information on our low back page.

 

For sleep, you might want to try a zero-gravity chair. The "Perfect Chair" by HumanTouch was a lifesaver for me.

 

Dr. Christina Lasich, MD

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Tomee, Community Member
6/ 6/09 11:59am

I also have a herniated disc and also degenerative disc, I had two epidurals, and upon the second one as the Dr. was administering it I let out a big yell, 'ouch i said' and he said oh sorry and backed it out a bit and continued the procedure. That was about 8 months ago and the last time I was there for a check up he told me the numbness in my toes and my calf and back of upper leg is probally pernament nerve damage and I will just have to live with it probally for the rest of my life. Im 43 years old and from not pushing off with my toes as normal people walk, I noticed my calf muscle in that leg is totally weak, almost like its disappearing.

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therese5x, Community Member
7/27/09 10:32pm

I have 2 herniated discs in my lumbar region and 3 in my neck from being rear ended on my way home from work.  I didnt realize I was hurt at the time, didnt get the other drivers info, my car wasnt damaged.  2 weeks later I was in the emergency room.  It took 3 months for them to diagnose me, I have had 3 injections in 6 months.  They dont work for me.  I cant take pain meds, they make me sick.  I am taking an anti seizure medication which is supposed to work wonders on nerve pain, right!  So far, no change.  Constant pain, weakness, I am exhausted by 4 in the afternoon, cant do much more.  I am a single mom of 5, I dont have time to sit back and wait to feel better!  Laundry, grocery shopping and housework have to be done early in the day before I lose energy.  I have a full time job that I love but sitting at my desk brings tears to my eyes sometimes. It has been 9 months now, no releif in sight.  I am depressed from the pain, I want my life back.  

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therese5x, Community Member
7/27/09 10:40pm

Sorry I did not really help with my previous answer.  The injections did help with the numbness and loss of balance though.  I dont think anything will help my pain.  I am convinced I will have to learn to live with it.  Good luck.

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Elaine Watson, Community Member
7/ 8/10 12:00am

Why have you not considered surgery?

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Mrs.Thornton, Community Member
7/11/10 1:00am

I also have 2 herniated discs in my lumbar region. I am only 21 years of age, and I have tried many things that have not helped me at all. I have been doing therapy since the accident ccured in October of 2009. I have had 3 injections done over a 3 month period of time, which to me, only made matters worse. There was some relief, for about a week, then everything went downhill from there. There are ddays when i cant even bare to walk, I was sure I would be declared disabled. I have tried Prednisone which made me sick as a dog, methylprednisolone, vicodin, volume which only made me high, tramadol, norco, motrin, yo name it, Ive had it, and nothing has helped me. It has been over 9 months now and I am starting to get worried. I have not been able to woek and I have no income, andmy attorney cant seem to get me any income and this is just a very difficult situation. I feel for anyone who has to go through this, but I know that my back will never be the same. And by me being so young, I am scared I wont be able to lead a normal life. If anyone has any suggestions please let me know, bwcause I dont know how much longer I can take this.

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Flopsie, Community Member
7/12/10 1:23am

Thank you for your replies.  For me, fortunately there has been a little light at the end of the tunnel.  First of all I have been told not to consider a back operation unless it is a life and death situation, as apparently a back operation is so tricky that it is one of the most dangerous operations.  I was medivacced back to the UK and sent to hospital where I was administered numerous drugs which relieved the pain and allowed me to rest.  I was in hospital for a week only until they 'controlled' the pain.  After this week my leg and foot was totally numb and I could only drag my leg behind me.  I was discharged from hospital with a walking aid!  I then went privately to a physiotherapis who worked on my leg and back for several months. She also gave me exercises to strenghten my back.  It is now 1 year since the incident and although I always have lower back pain, this is now bearable and is just like the pain you have when you have stood doing 6 hour of ironing!  I can walk okay now and am even wearing high heeled shoes again, although the feeling in my toes has not returned (I think this must be permanent nerve damage).  I am now going to the gym and exercising strenuously to strenghten my back; this is working to a certain degree and I am getting better month on month.  I do believe I will now always have problems with my back and I am very wary of what I do now, as I would hate these discs to slip again, causing me to have to go through the same agony.  I have been told to watch the pain and if and when it goes into my saddle, I will have about 2 days in which to get an operation, otherwise I will be paralysed for life.  My heart goes out to all of those who are suffering excruating pain like this.  Good Luck

 

 

 

 

 

 

 

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By Flopsie, Community Member— Last Modified: 12/24/10, First Published: 05/25/09