I am lost on what to do and where to turn. Over 7 months ago my neck acted up so bad I could hold it up or move. I went to the ER and they told me I had spasmodic torticollis. That seemed to fit what was going on and they put me on meds for it and it did get alittle better for awhile. But since then my I have had extreme pain in other parts of my body. After my neck my back started to act up I started to feel numbness in my hands and arms which has now seemed to go away. My knees will get really sore now. Not both at the same time its either one or the other. None of the pain is mirrored like what you would see in romatory arthritis and I have had no rashes or bumps. The doctors are looking into Lupus as well as romatory and both blood test came back clean. I know that sometimes they will not show up right away in your blood but my symptoms don't completely match up for either of these anyways.
I havent had a fever, no butterfly shaped rash or any rashes at all, no mouth sores, no hair loss, no dye eye, no chest pain. Rarely dose it hurt to touch an area that hurts. It hurts more when I move around. I can not left heavy things. I get bad headaches which are not just my forehead but sometimes my face the back of my head and or down my neck, or down on side of my face.
My inflammatory makers showed up high in the blood tests and my white blood count is up and my vit D is low. It came back negative for lyme disease. They looked into it being fibromyalgia but ruled it out fairly quickly. Pain killers like valium and hydroquinone help a whole lot but they took me off these because they are addictive and I am only 25 years old. Lately I have been stuck in bed most days. I am going crazy and want to know whats wrong with me. They have tried a bunch of other meds since taking me off the valium and hydrocodone but nothing seems to help and most of them make me feel crappy.
I am looking for if anyone has a clue of what I might have, what test my doctors could run or what I could ask about. Meds that might help me would be nice too but really I just want to know what the hell is wrong with me. Pleaser write back if you have any ideas. You can email me if you like, Might be easier for me cuz I that way I know I will get it. My email is Rosedarling84@hotmail.com. Thank you!