Monday, February 01, 2010 Rosedarling asks

Q: Still dont know what is causeing the chronic pain after 7 months. Please help!

I am lost on what to do and where to turn. Over 7 months ago my neck acted up so bad I could hold it up or move. I went to the ER and they told me I had spasmodic torticollis. That seemed to fit what was going on and they put me on meds for it and it did get alittle better for awhile. But since then my I have had extreme pain in other parts of my body. After my neck my back started to act up I started to feel numbness in my hands and arms which has now seemed to go away. My knees will get really sore now. Not both at the same time its either one or the other. None of the pain is mirrored like what you would see in romatory arthritis and I have had no rashes or bumps. The doctors are looking into Lupus as well as romatory and both blood test came back clean. I know that sometimes they will not show up right away in your blood but my symptoms don't completely match up for either of these anyways.

I havent had a fever, no butterfly shaped rash or any rashes at all, no mouth sores, no hair loss, no dye eye, no chest pain. Rarely dose it hurt to touch an area that hurts. It hurts more when I move around. I can not left heavy things. I get bad headaches which are not just my forehead but sometimes my face the back of my head and or down my neck, or down on side of my face.

My inflammatory makers showed up high in the blood tests and my white blood count is up and my vit D is low. It came back negative for lyme disease. They looked into it being fibromyalgia but ruled it out fairly quickly. Pain killers like valium and hydroquinone help a whole lot but they took me off these because they are addictive and I am only 25 years old. Lately I have been stuck in bed most days. I am going crazy and want to know whats wrong with me. They have tried a bunch of other meds since taking me off the valium and hydrocodone but nothing seems to help and most of them make me feel crappy.

I am looking for if anyone has a clue of what I might have, what test my doctors could run or what I could ask about. Meds that might help me would be nice too but really I just want to know what the hell is wrong with me. Pleaser write back if you have any ideas. You can email me if you like, Might be easier for me cuz I that way I know I will get it. My email is Rosedarling84@hotmail.com. Thank you!

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Answers (2)

Ozigal

2/ 1/10 4:57pm

Gee, Rosedarling, I'm no doctor but to me it sounds like Fibromyalgia. Did they explain to you why they ruled it out.

To have a positive reaction to the tender point test the sore area is not "touched" but rather "prodded" with a pressure of 4kg force. If FM is present, this test will haveyou jumping. I believe some doctors are accepting FM diagnosis without the standard 11 out of 18 tenderpoints present.

Hopefully somebody more knowledgable than I will be able to explain this better.

Good luck in finding out! Best Wishes Ozigal

Rosedarling

2/ 2/10 6:11pm

They said it was rule out cuz I had little to no reaction to the points the pressed I am not sure how hard it was pushed at or prodded. I dont remeber what they did on the points but two doctors already said no to Fibromyalgia. I know some doctors will say you have it without all the pressure points but with none to maybe just very few is kinda pushing it. Im not sure what you mean by prodded but I dont recall how they did it anyways. I am going to kinda put pressure on them to figure things out.

thank you!

Ozigal

2/ 2/10 6:32pm

Dear Rosedarling, The force used on tender points is enough to change the colour of fingernails, if you press on your arm until your fingernails change this will approximate the amount of pressure used in testing. I read this online but can't remember where (foggy brain syndrome). This may be of no help to you whatsoever. The next post has provided some good advice.

Keep asking and don't settle for less than a full explanation.

Sites such as this are a great resource as well. All the best to you, Ozigal

snowgoer68

2/ 1/10 5:03pm

I am so sorry you are going through this awful unknown. First of all. When someone is dealing with true chronic pain, rarely is addiction involved. Yes you become tolerant and yes you will go through withdrawal when coming off of them if on for a very long time. Like I am on methadone for my chronic phantom limb pain plus lyrica and I can take oxycodone for breakthrough which i am rarely getting since the lyrica. Finally after 40 different meds. I could go off the pain meds instantly and detox would be nothing if i was told there would bgve no pain after of during. There is like a 0.01 percent chance of becoming addicted in the way that you are taking the meds for euphoria or diverting and using in ways you shouldn't. When pain meds are used properly and you follow directions there is a very small chance of addiction. With chronic pain most of us have been on long acting opiates like methadone, ms-contin, oxycontin for years and years to come. Believe me when you are in agony addiction is worth the risk but rarely happens in true chronic pain.I copied this for you down below. I can't help you with a diagnosis but please don't lie there in agony if you don;t have to and you should not have to defend your pain and beg for help. Oh I am sorry you are on this journey. I too have been thru so so much.

Take care, snowgoer68

To allow a patient to experience unbearable pain or suffering is unethical medical practice.1

Pain Relief as a Human Right

We must all die. But that I can save him from days of torture, that is what I

feel as my great and ever new privilege. Pain is a more terrible lord of mankind

than even death itself. Albert Schweitzer.

Also Read this from our own Karen Lee Richards

http://www.healthcentral.com/chronic-pain/c/5949/101849/addiction/?ic=6042

Rosedarling

2/ 2/10 6:02pm

Thank you. I would love to get on some meds that help me and wont stop fighting for them. It is worth the risk. Even if they told me that coming off the meds would be complete hell it would still be worth it to live normally. I sometimes just pray for one more day of normal life..

Thank you for your support.

Q: Still dont know what is causeing the chronic pain after 7 months. Please help!

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