hi i have chronic back pain with pain radiating down both legs ,numbness,pins and needles and burnind sensation at times,not constant.i have new symptoms the last 3 weeks when i wake which is normally about 3am i have pain and burning in my knees and when i do go out which is not much as it causes me more pain i am getting pains in the top of my legs groin area as if leg is going to collapse under me,i also had an xray a few weeks ago said i have unaligned pelvic bones put on an urgent list to see surgeon found out today it wont be for months,i have an mri booked for feb but was told few weeks ago that would be put on urgent list as something serious wrong with my back and still nothing done about that either.i am on a 20mg butran patch 1 weekly, 4-5 diazipam for nerve pain in leg and 8 paracetamol.i can not take painkillers or anti-inflammitries and my gp put me on this patch to try ease the pain it has worked that i can get around do some housework,look after my baby 6 mths most of the time some times i cant lift her.i am having awful side effects off the patch,constapation got a load of medication still was only going every 3-4 days feeling sick most of the time,headaches,itchy all over given anti-histamine for that only works for a little while,upped the constapation meds when i had severe stomach pain and had oppisite effect,wasnt well for few hrs after that so lowered the dose and havnt went in few days have upped the dose again,he gave me stronger sachets to take for this but it has a lot of side effects,and with all im suffering didnt want to add more.i also have urinary retention not a infestion i can go but it can take ages even if my bladder feels full,dont know if this is from meds or back problems.the worse effect is that i wake every morning between 3-4 and canot get back to sleep so im only getting about 4 hrs sleep a night tried going to bed earlier i just wake earlier and same with later.most mornings i wake in agony and cant sit up i have to roll on to the floor and get up on my knees.i dont know if i should come off these meds they are helping before them i could barely walk and there nothing else i can take.i feel as if im falling asunder any help would be gratefully received.wishing ye well shelsers





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I was diagnosed with FB last year - though not convinced I have it as I am not suffering too badly.
Doctor put me on Amitriptyline, usually given for depression, but studies have shown that FM sufferers do well on this, I only have 10mg at night and sleep like a baby, before that I could not sleep, was in pain all the time. Now I wake up refreshed and this has made my life so much better. Go to the Doctors and get some !! Good Luck Polly54