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ChronicPainConnection.com

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Monday, November, 30, 2009
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Hi, so sorry you are having so much trouble with finding something that keeps working to help you. My body also is one that has to try so many different remedies or treatments. Just please, do not give up! I am in pain every day from too many problems to name here, but thank goodness I have a doctor sent from heaven who did not give up on me and he and I worked TOGETHER to find out what was going on with me and he has me on a pretty good pain management treatment now. Seems that what usually works for most people doesnt work for me or continues to work for me. BUT, because he didn't give up on me and send me screaming to the nearest shrink (no disrespect meant) I am finally at a tolerable level of pain. Am I pain free? NO! But I never expected to be. I just wanted to be able to take out my own trash. One problem that we found with me was and is my thyroid disease. Graves disease MIXED WITH ADRENAL EXHAUSTION. Thats when I really learned that I was a medical oddity.  The most important thing is to keep a good line of communication with your doctor and to be honest no matter how silly or insignificant YOU might think it is. Also I went to a sleep clinic and found out I have severe OBS=obstructive sleep apnea and also central sleep apnea=my brain for some reason just isn't sending the signal out for me to breathe normally especially at night.The results of my sleep study showed that I was waking up almost all the time. Not enough that I would remember waking up but I was way past sleep depravation and truly felt like I was going to die if I did not get some real rest! It is a horrible thing to experience. There truly arent any words that can explain how that kind of exhaustion feels other than you feel like you are dying! (I had a car accident years ago with severe head trauma) Since that was finally diagnosed and they hooked me up with a bi-pap machine with oxygen piggy backed into my bi-pap machine I sleep alot better now. Yes, I have to take Lunesta every night  to get maybe 3-5 hours of sleep but let me tell you it is a good 3-5 hours of sleep and I will take that over NO sleep anyday. Now that I am used to my sleep machine I cannot sleep without it now. I absolutely LOVE it! It does take some getting use to but I cannot say enough about it! Sometimes I actually think the quiet swishing of the oxygen machine with the bipap machine helps lull me to sleep.Have you had a sleep study?I do not have to use oxygen in the daytime unless I  take a nap.I didnt mean to write so much I just understand how it feels when doctors look at us like we are nuts.Because what works for almost everyone else just wasn't doing it for me. Please don't give up. Has your doc checked your endocrine system and also a sleep study? My doctor still freaks out and so does his consultants when they find out my TSH =thyroid stimulating hormone (metabolism) (anything over 4.0 is considered HYPOTHYROID! The higher the number the lower your metabolism RATE is) is 104!  YES! I said 104! They cannot figure out how I have the energy to even walk. Yes, I am tired but thrilled to still be here and watch my grandkids get older each year. The advice about toxins is also great advice.Try removing one thing at a time from your enviroment and or what you take, but you MUST let your doctor know this before you stop or start any medication and or supplement!!!!! Please take care. Sharon
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